Key Update, August 2022, Volume 19, Number 2

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

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The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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A Great Opportunity! FDA Issues Request for Nominations for Individuals and Consumer Organizations for Advisory Committees! Deadline: August 15

The Food and Drug Administration (FDA) is soliciting nominations for its advisory committees! You can nominate yourself or be nominated by a peer-run organization. “FDA seeks to include the views of individuals on its advisory committees regardless of their gender identification, religious affiliation, racial and ethnic identification, or disability status and, therefore, encourages nominations of appropriately qualified candidates from all groups.” Deadline: August 15, 2022. For details and instructions, click here. (Courtesy of Ann Marshall)

Your Input Is Sought for SAMHSA’s August 2022 Office of Recovery Planning Meeting

In mid-August 2022, some 150 invited representatives from around the U.S. and from across the field will gather in Maryland at a meeting convened by SAMHSA’s Office of Recovery, which was launched last year to evaluate and initiate policy, programs, and services with a recovery focus, and to ensure that voices of individuals in recovery are represented. The goal is to develop a road map for the future. To provide input in advance of the meeting, choose one of these two remaining one-hour Zoom meetings. (The meetings will be recorded, and you must register in advance.) To register for the July 31 meeting (at 8 p.m. ET), click here. To register for the August 2 meeting (at 3 p.m. ET), click here. You can also send written comments by August 4 to peer representative Ann Kasper (ann@kasperconnects.com); she will share your input with SAMHSA. SAMHSA’s plan is to review the recovery definition, dimensions, and guiding principles to ensure use across programs and services; discuss successes, challenges, and innovations of the last 10 years to improve recovery-oriented systems of care; and generate ideas and strategies to inform development of the Office of Recovery. (Ann writes: “Please note that I am providing Zoom information meetings to you as a volunteer and not fiscally sponsored by any organization.”)

Informational Webinar for “Emerging Adults” (18-30) on ConnectionsRx: August 1

The Temple University Collaborative on Community Inclusion will host an informational webinar on August 1 at 11 a.m. ET about “ConnectionsRx, an intervention program designed to support emerging adults (18-30) with mental health conditions to participate in the community. The program consists of 1-1 supports and a peer support group facilitated through Discord…[T]he program is designed to support social relationships, resilience, and competence.” To register, click here. Can’t make it? Contact Marcus.Robinson@temple.edu for eligibility information and benefits of participation in this research opportunity.

A Free, Two-Part SAMHSA-Sponsored Webinar on Youth Mental Wellness on August 3 and 4

On August 3 and August 4, 2022, SAMHSA will sponsor a two-part TA Coalition webinar series on Social Connectedness–A Key Component to Youth Mental Wellness, Including Youth with Serious Mental Illness or Emotional Disturbances,” presented on behalf of the Association of State and Territorial Health Officials (ASTHO). Participants in the 90-minute August 3 webinar, beginning at 2 p.m. ET, can register for Part Two–a 60-minute intimate dialogue with the presenters–Linda Hall, director, Wisconsin Office of Children’s Mental Health, and Kini-Ana Tinkham, executive director, Maine Resilience Building Network–on August 4 at 2 p.m. ET. For details and to register, click here. (Courtesy of Judene Shelley)

MindFreedom International’s Next Judi's Room to Be Held on August 3

On August 3, 2022, at 6:00 p.m. ET, 3 p.m. PT, MindFreedom International will host its next monthly Judi’s Room. For more information stay tuned here! To register for free, click here.

There Is "No Evidence Low Serotonin Causes Depression"
As has been reported in numerous publications recently, "After decades of public misperception, a major review finally lays the chemical imbalance theory of depression to rest." For the Mad in America article, which includes links to additional information, click here.

Past Alternatives Conference Attendees: Your Input Is Sought as NCMHR Plans Alternatives 2022!

“We are excited to announce that planning is under way for a virtual Alternatives 2022 for the beginning of November,” the Alternatives 2022 Planning Committee writes. “We would very much like to have your input as you attended the Alternatives conference at least once in the last few years. Please take a few minutes to complete the survey at this link (click here). We will be sending additional details about the conference based on the input your give. Thank you for your time! We look forward to seeing you at Alternatives 2022! For this announcement, click here.

Two SAMHSA-sponsored Webinars Will Highlight NASMHPD’s Racial Equity Guidance

NASMHPD’s racial equity guidance for state behavioral health offices will be the focus of a SAMHSA-sponsored, two-part webinar series entitled “Guidance, Actionable Steps, and Examples to Begin to Address Behavioral Health Care Disparities & Bring Racial Equity within the Behavioral Health Care System.” Part One, a 90-minute webinar, will take place on August 11, 2022, at 2:30 pm. ET. Part Two, on August 12, is a 60-minute roundtable discussion. For the 12-page document, click here. For details and to register, click here. Questions? Contact kelle.masten@nasmhpd.org (Courtesy of Judene Shelley)

MHA Is Accepting Applications for Its Young Mental Health Leaders Council

Mental Health America is accepting applications for its 2022-2023 Young Mental Health Leaders Council. “YMHLC identifies young adults (ages 18-25) who have created programs and initiatives that fill gaps in mental health resources in their communities...Selected applicants participate in a six-month cohort to connect and share ideas with other leaders from across the U.S.” Applications are due by August 19. For more information and to apply, click here.

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here. (Courtesy of Kevin Fitts)

South Southwest MHTTC Publishes “Hotline Peer Specialist Integration: Preliminary Considerations for Equity and Sustainability”

“Authors Kirill Staklo (he/him) and Nze Okoronta (they/them) provide an overview of the necessary information for the integration of peer specialists in hotline programming for equity and sustainability. Topics include Intro to the Peer Role; Medical trauma and minority stress; Hotline work: How is it different?; Informed consent and harm reduction; Best practices in service establishment and training; and further resources.” For the 26-page document, published by the South Southwest Mental Health Technology Transfer Center Network, click here. (Courtesy of Jessi Davis)

Free Webinar: "Returning to Our Roots: Remembering Why the Work Is Important and Why We Love It"

NYAPRS will host a free webinar on August 10, 2022, at 12 p.m. ET entitled "Returning to Our Roots: Remembering Why the Work Is Important and Why We Love It.” NYAPRS writes: "Reconnecting with our personal ‘why’ is important. Being connected to our convictions, our purpose, and our personal mission motivates us to be focused on our impact, to reflect and to recalibrate. Join NYAPRS Training Collective team member Robert Statham in a conversation to take a closer look at your own ‘why.’” To register, click here.

New Study Explores Employment Outcomes of Certified Peer Specialists

A recent three-year, four-state study of employment outcomes of certified peer specialists (CPSs) by Live & Learn Inc. has found that “[w]orkers with a CPS credential had higher employment rates, compared with [other] adults with psychiatric disabilities, and the quality of peer specialist jobs was equal to or higher than the quality of other jobs held by study participants.” For the abstract, published in Psychiatric Services, click here. (Live & Learn is purchasing open access; in the meantime, contact@livelearninc.net and they will send a PDF copy.)

HALI’s Next Academy of Peer Services Learning Collaborative Will Begin on August 22
Hands Across Long Island will begin its next Academy of Peer Services Learning Collaborative on August 22, 2022. The free one-hour Zoom sessions will be held every Monday (Tuesdays on holiday weekends) at 3 p.m. ET through November 14, 2022. Although some of the information will be New York State-specific, most of it will be applicable across the U.S. Participants are urged, although not required, to log in (for free) to the Academy of Peer Services website (click here) and look over the identified module prior to each week's session. For the HALI calendar of events, which includes the Zoom link and a New York State phone number, click here. For more information, and for phone numbers outside New York State, contact Em Wasserman: ewasserman@hali88.org 

Building Culturally & Linguistically Specific Recovery Community Organizations for Latinos
On August 30, 2022, at 2 p.m. ET, Doors to Wellbeing will host the latest in its monthly webinar series: “Building Culturally & Linguistically Specific Recovery Community Organizations for Latinos.” The presentation will cover what its founders call “the first, and still only one of its kind, culturally and linguistically specific Recovery Community Organization for Latinos in Oregon.” Founded in 2021, the Recovery Drop-in Center quickly became a hub for the local Latino recovery community. The presenter writes: “This presentation will talk about how we did what we did, what we learned about launching this project, and what we think can help others launch similar projects.” For more information and to register, click here.

Learning Collaborative Webinar Series Offers Several Archived Presentations 

The Doors to Wellbeing website offers a number of webinars that you may find of interest: “The Importance of Policies and Procedures in Peer-run Organizations”; “Building Partnerships to Enhance the Peer Workforce,” by Kyneta Lee, Tim Saubers, and Todd Noack; “Handing Over the Keys: Leadership Succession Planning in Non-Profit Organizations,” by Elise Padilla and Maxine Henry; “How to Embed Strategic Planning into the Culture of Your Organization,” by Oryx Cohen; “Fundraising and Sustainability: Building your Organization by Telling the Right Story to the Right Audience”; “Developing a Board of Directors for Mental Health Organizations,” by Amey Dettmer and Matthew Federici; and “Conflict Management in Peer-Run Organizations: Tools for Effective Conversations.” Certificates of attendance are not available for any of these presentations. For more information and to register for any or all of them, click here

AD4E 2022 Virtual Conference to Take Place September 16

The 3rd annual A Disorder for Everyone (AD4E) festival, to take place on September 16, 2022, “will bring you a whole day of change-making talks, presentations, conversations, poetry from far and wide,” the organizers write. The conference will begin at 9:00 BST (British Summer Time). For a time conversion table, click here. For more information and to buy a ticket, click here. (Courtesy of Kevin Fitts)

ISEPP’s 2021 Conference Is Available to View Online

The 2021 conference of the International Society for Ethical Psychology and Psychiatry can be viewed online. The theme of the conference, convened October 9-10, 2021, was “The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?” It was dedicated to the life and memory of Paula J. Caplan, Ph.D. To buy a ticket to watch the full conference recording for $22.85, click here.

APA to Host Mental Health Services Conference October 13-14 in Washington, DC

The American Psychiatric Association writes: “The 2022 Mental Health Services Conference will bring psychiatrists and other mental health professionals together to collaborate on practical advice to influence systems-level change for their patients. Join us in-person in Washington, D.C. at the Capital Hilton Hotel, October 13-14, as we work together to develop practical solutions to solve real-world issues.” Sessions include “988 and Crisis Care: What Happens After the Call?”; “Mental Health Professionals’ Role in Reclaiming Community Members from the Justice System”; and “The Overturning of Roe vs Wade: Implications for Women’s Health and the Practice of Medicine.” For more information, click here.

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; R. Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The August 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “Having a ‘Life Purpose’ Is Linked with Better Brain Health, Study Shows,” click here.  For “The Power of Talking to Yourself: ‘External self-talk,’ as it’s clinically known, gets a bad rap. But it can be great for pushing through all sorts of obstacles,” click here. For “Text Your Friends. It Matters More Than You Think. New research says most of us underestimate the power of the casual check-in,” click here. For “Women are more likely to live past 90 if they’re optimistic, according to a new study,” click here.

The August 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Why Was Joshua Held for More Than Two Years for Someone Else’s Crimes? Honolulu incarcerated the wrong man for more than two years—a miscarriage of justice that shows the cruel inadequacy of America’s approach to mental health,” click here. For “Ardella’s House brings new form of dignity for formerly incarcerated women,” click here. For “Secret Solitary: A prisoner with a life sentence investigates a solitary confinement cover-up in Texas prisons,” click here. For “Experts Say We Have the Tools to Fight Addiction. So Why Are More Americans Overdosing Than Ever?” click here. For “The Supreme Court’s Unusual Move on the Death Penalty,” click here. For “Death Penalty Census Database,” click here. For “On 20th Anniversary of Atkins v. Virginia, Supreme Court Denies Petition to Review Procedural Loophole Permitting Execution of Intellectually Disabled Prisoners,” click here. For “Federal Judge Rules Gruesome Medical Neglect in Arizona Prisons Violates Eighth Amendment: ‘No legitimate humane system would operate in this manner,’ the judge concluded,” click here. For “DPIC Analysis Finds Prosecutorial Misconduct Implicated in More than 550 Death Penalty Reversals or Exonerations,” click here. For “She ‘fell’ out of a patrol car and died, police say. Her family wants answers,” click here. For “Op-Ed: An L.A. program helps people get mental health care instead of jail time. Why not expand it?” click here. For “Missouri’s top mental health official balked at new homeless law. The governor signed it anyway,” click here. For “Column: ‘No treatment until tragedy’ is our mental health system. CARE Court could change that,” click here. For “ 28 Years, 160 Arrests: What One Man’s Record Reveals About San Diego’s Broken Justice System. What do you do with people who are repeatedly failed by social services and the legal system?” click here. For ‘You Shouldn’t Have Used the D-Word’: Saying ‘I’m depressed’ to jail staff landed Nicholas Brooks in solitary. But with his peers, he has found a way to speak freely,” click here. For “Alabama Department of Corrections picks new medical, mental health care provider,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

CONFERENCES

National Latino Behavioral Health Conference to Be Held in Las Vegas September 15-16, 2022

“The National Hispanic and Latino Addiction Technology Transfer Center (NHL-ATTC) and the National Hispanic and Latino Prevention Technology Transfer Center (NHL-PTTC) invite you to join us for the 2022 National Latino Behavioral Health Conference: Latino Behavioral Health Equity ¡Juntos Podemos! [Together We Can!] on September 15-16, 2022 at the Sahara Hotel in Las Vegas, Nevada. The purpose of the 2022 National Latino Behavioral Health Conference is to highlight the latest and most relevant data around Prevention, Treatment, Recovery, Policy, and Research focusing on the Hispanic and Latino communities.” For more information and to register, click here.

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

National Association for Rural Mental Health Conference to Be Held November 2-4, 2022

The 47th Annual National Association for Rural Mental Health (NARMH) conference will be held at the Embassy Suites in Boulder, Colorado, November 2-4, 2022. The theme is “Beyond the Pandemic—Building on Rural Resiliency.” The early-bird registration fee is $500; for people who are retired or students, it’s $250. For more information as it becomes available, click here.

The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

PETITIONS AND OPEN LETTERS

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (For another ISEPP petition, see below.)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

OTHER OPPORTUNITIES AND RESOURCES

Rutgers Releases W-TLC Virtual Toolbox and Training/Learning Collaborative Series

“The Rutgers Center of Alcohol & Substance Use Studies has announced the release of the Wellness Training Learning Collaborative (W-TLC) virtual toolbox and Training/Learning Collaborative series…This toolkit provides peer support, individual, and organizational approaches to support the wellbeing of the critical health care workforce.” For descriptions of the 12 upcoming sessions—including two in July (July 7 and July 28), with the remaining sessions to be held August 2022 through January 2023—and to register for them, click here. For the “Journey to Wellness Guide,” click here. (Note: Information about the Journey to Wellness Guide was included in the April 2022 Key Update.)

“Would You Like to Share Your Experiences to Help Others Who Are Trying to Find Freedom, Healing & Hope Beyond Psychiatry?”

“I am currently working on a book about life beyond psychiatric services and would love to include the wisdom and expertise of as many survivors as possible!,” Jacqui Dillon, a person with lived experience in the UK, posted on Facebook. “I am looking for submissions between 500 and 2,000 words. I am aiming to cover a range of issues and experiences which many of us have had to engage with, which will be useful for people currently trying to navigate their way out of the system. Please feel free to focus on whichever areas interest you most. You are free to use your own name, or a pseudonym, whichever feels most comfortable to you. Please contact me here for further information, or send your submissions here: beyondthemadhouse@gmail.com. Submissions are required by mid-September.” For the Facebook post, click here. (Courtesy of Philip Benjamin via Jacek Haciak)

Lancet Offers Stakeholders New Opportunities

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 2, August 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

Key Update, July 2022, Volume 19, Number 1

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL legal system DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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July Is Mad Pride Month and Disability Pride Month

“The month of July has many connections to the movement for mental health consumers/psychiatric survivors,” David Oaks, founder of MindFreedom International, writes. They include the choice of Bastille Day by New York State mental health activists to hold an annual protest of the mental health system, and that “one of the first known psychiatric survivor groups”—the Alleged Lunatics’ Friend Society—was founded on July 7, 1845. At the same time, he adds, because the Americans with Disabilities Act was signed into law on July 26, 1990, July was chosen as Disability Pride Month. “ ‘Disability pride’ has been defined as accepting and honoring each person’s uniqueness and seeing it as a natural and beautiful part of human diversity.” For more about Disability Pride Month, click here. For David’s blog about Mad Pride Month and Disability Pride Month, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh), Keris Myrick (National Association of Peer Supporters), and Laura Van Tosh (convener of Washington Legislative and Policy Advocates) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Free Webinar: “Implementing the SAMHSA/NASMHPD 988 Convening Playbooks”

On July 6, 2022, at 1 p.m. ET, the TA Coalition will present a free, 90-minute webinar on “Implementing the SAMHSA/NASMHPD 988 Convening Playbooks,” presented on behalf of the National Council for Mental Wellbeing. “These playbooks are designed to help programs and providers prepare for and implement 988-related services.” This webinar will “share strategies for implementation, case studies and other resources, and outline SAMHSA’s five-year plan for the continued implementation and enhancement of 988 and other services across the crisis continuum.” For details and to register, click here. (Courtesy of Judene Shelley)

MFI and I Love You, Lead On Will Co-Host Judi's Room on the Controversy Surrounding Assisted Suicide  

On July 6, 2022, at 6:00 p.m. ET, 3 p.m. PT, MindFreedom International and I Love You, Lead On will co-host a Judi’s Room discussion on “the danger of allowing people with depression, ineffective health care, disability, and undiagnosed medical problems the right to use suicide as health care,” said Susan Fitzmaurice of I Love You, Lead On. “Our freedoms are being eroded by recent actions of the U.S. Supreme Court; we are no longer thought capable of making our own decisions around reproduction,” Fitzmaurice said. “When will we be determined incompetent to choose to refuse assisted suicide when offered by doctors as a health care option? And might someone who is entangled in a guardianship have that decision made for them?” She continued: “Know what changes in law are being proposed. Know how to protect yourself. We are in a fight for our very lives.” The speakers will be disability rights activists Anita Cameron, director of minority outreach of Not Dead Yet, and John B. Kelly, director of Second Thoughts MA: Disability Rights Advocates Against Assisted Suicide. To register for free, click here.

Do You Work in Substance Use Recovery and Have Outstanding Student Loans?

To find out if you’re eligible for the Health Resources & Services Administration (HRSA) Substance Use Disorder Treatment and Recovery Loan Repayment Program (STAR LRP), and for more information, click here. The deadline to apply is July 7, 2022, at 7:30 p.m. ET. The program offers up to $250,000 in loan repayment. “If you receive an award, you must work full-time for six years in a STAR LRP-approved facility.” 

Rutgers Releases W-TLC Virtual Toolbox and Training/Learning Collaborative Series

“The Rutgers Center of Alcohol & Substance Use Studies has announced the release of the Wellness Training Learning Collaborative (W-TLC) virtual toolbox and Training/Learning Collaborative series…This toolkit provides peer support, individual, and organizational approaches to support the wellbeing of the critical health care workforce.” For descriptions of the 12 upcoming sessions—including two in July (July 7 and July 28), with the remaining sessions to be held August 2022 through January 2023—and to register for them, click here and scroll down. For the “Journey to Wellness Guide,” click here. (Note: Information about the Journey to Wellness Guide was included in the April 2022 Key Update.)

NYAPRS 2022 Annual Conference Call for Presentations Deadline is July 8

NYAPRS will host its 2022 Annual Conference–”A New Alliance: It Takes a Community”--at the Villa Roma Resort in Callicoon, New York, from September 21 to 23. (Covid protections will be in place.) The deadline for submission of proposals is July 8. For the application, click here.

Psychiatric Advance Directives Facilitated by Peer Supporters Help Prevent Involuntary Commitment, Researchers Say

A recent article in JAMA Psychiatry—“Effect of Psychiatric Advance Directives [PADs] Facilitated by Peer Workers on Compulsory Admission Among People With Mental Illness: A Randomized Clinical Trial”—found that “Peer worker-facilitated PADs are effective in decreasing compulsory hospital admissions and increasing some mental health outcomes (self-perceived symptoms, empowerment, and recovery). Involving peer workers in the completion of PADs supports the current shift of mental health care from substitute decision-making to supported decision-making.” To download a PDF of the article, click here. (Courtesy of Dan Fisher) In addition, the Temple University Collaborative on Community Inclusion offers two documents to help people who want to create a PAD: “Advance Self-Advocacy Plan: A Guidebook for Creating a Mental Health Advance Plan or Psychiatric Advance Directive” (click here), and “Advance Self-Advocacy Plan: An easy-to-use, customizable plan for people who want to create a Psychiatric Advance Directive or Mental Health Crisis Plan” (click here.) And the National Resource Center on Psychiatric Advance Directives (click here) is also helpful!

“Would You Like to Share Your Experiences to Help Others Who Are Trying to Find Freedom, Healing & Hope Beyond Psychiatry?”

“I am currently working on a book about life beyond psychiatric services and would love to include the wisdom and expertise of as many survivors as possible!,” Jacqui Dillon, a person with lived experience in the UK, posted on Facebook. “I am looking for submissions between 500 and 2,000 words. I am aiming to cover a range of issues and experiences which many of us have had to engage with, which will be useful for people currently trying to navigate their way out of the system. Please feel free to focus on whichever areas interest you most. You are free to use your own name, or a pseudonym, whichever feels most comfortable to you. Please contact me here for further information, or send your submissions here: beyondthemadhouse@gmail.com. Submissions are required by mid-September.” For the Facebook post, click here. (Courtesy of Philip Benjamin via Jacek Haciak)

Dealing with “Core Emotions,” Such as Disgust, May Be Key to Processing Trauma

A recent article in Slate reports on a trauma therapy, developed in 2000, called Accelerated Experiential Dynamic Psychotherapy (AEDP), which “combines affective neuroscience, trauma theory, attachment theory, and rapid transformation theories. This type of emotion-focused therapy gets to the root problem, using the catalytic power of ‘core emotions’ like disgust, sadness, anger, and joy to turbocharge brain change, also known as neuroplasticity. This stands in stark contrast with medicating symptoms of mood disorders or using behavioral tools to change thinking and behaviors,” according to Slate. For the article, click here.

The AAPP Annual Meeting Includes a Focus on “the New Activism in Psychiatry”

A highlight of the 2022 meeting of the Association for the Advancement of Philosophy and Psychiatry (AAPP), in New Orleans May 21-22, was “the new activism in psychiatry and the scientific turn evident in fields such as neurodiversity and mad studies,” writes Awais Aftab, MD, in Psychiatric Times. “Utilizing Harding’s notion of “strong objectivity,” the hosts of a popular philosophy of psychiatry webinar series (currently on hiatus) “argued that psychiatric activism can be understood as a legitimate form of scientific criticism, and that [the] neurodiversity movement and Mad Pride are beginning to pursue scientific goals that may ultimately transform psychiatric science or establish scientific alternatives to psychiatry.” To learn more, click here.

June MHTTC Newsletter Offers Resources and Opportunities

The June edition of the Northeast and Caribbean Mental Health Technology Transfer Center (MHTTC) Network newsletter offers a variety of resources and opportunities. For LGBTQ+ Pride Month, in June, there are links to several websites that provide information and support to the LGBTQ+ community, which are useful year-round. The newsletter also contains links to “a self-paced, online, three-part HealtheKnowledge (sic) course,” an episode of its “Toward Wellness and Recovery” podcast, a new toolkit from SAMHSA’s National Center of Excellence for Tobacco-Free Recovery, and more. For the newsletter, click here

“Mass Violence Takes Toll on Americans’ Psyches,” Washington Post Reports

“Repeated shootings in schools, churches, and stores erode [Americans’] sense of safety,” according to a recent Washington Post article. “When the American Psychological Association surveyed more than 2,000 people about their stress levels just days after back-to-back mass shootings in El Paso and Dayton, Ohio, in 2019, the findings laid out the toll of seemingly ceaseless, random violence. A third of the respondents said they would no longer go to certain public places for fear of becoming a casualty of a mass shooting. Almost as many said they could not go anywhere without worrying about being shot. Twenty-four percent said they had made changes in their lives due to their fear of a mass shooting. Sixty-two percent of parents said they lived in fear of their children becoming victims of a mass shooting, and 71 percent said the possibility of mass violence was adding stress to their lives. The poll used an online survey with non-random methods so the results may not be nationally representative.” For the article, click here.

Free Webinar: “Workplace Burnout: How We Get There; How We Recover”

On July 14, 2022, at 12 p.m. ET, NYAPRS will host a free webinar on “Workplace Burnout: How We Get There; How We Recover.” NYAPRS writes: “Doing something from time to time to support our own mental health is good, but incorporating self-care into our routines is a more effective strategy. In the NYAPRS July webinar, ‘Workplace Burnout: How We Get There; How We Recover,’ Glenn Courounis will explore what leads to burnout and, more importantly, what we can do to recover from it! CEs are approved for this offering for LMSW, LCSW, CPRP and LMHCs.” To register, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offer additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Free Webinar: “Deflection, Diversion and Mental Health Recovery: A Systems Approach and DEI Practice Perspective”

On July 15, 2022, at 12:30 p.m. ET, SAMHSA will sponsor a 90-minute webinar on “Deflection, Diversion and Mental Health Recovery: A Systems Approach and DEI Practice Perspective.” “U.S. prisons and jails incarcerate a disproportionate amount of people with current or past mental health challenges, especially those with serious mental illness, but often fail to properly support the individuals’ recovery or community reintegration after release. In Illinois, Treatment Alternatives for Safe Communities (TASC) is at the forefront of justice system interventions and recovery supports, specializing where behavioral health and criminal justice intersect.” Following the webinar, participants may register for Part Two of this table talk discussion with Jac Charlier, executive director, TASC Center for Health and Justice, and Joel K. Johnson, president and CEO, TASC, to be held July 20, 2022, at 1:00 p.m. ET. “Part Two is a 60-minute intimate dialogue with the presenters and a smaller number of registered webinar participants who will be able to ask more detailed questions and engage with the presenters more comprehensively.” For more information and to register, click here. (Courtesy of Judene Shelley)

You’re Invited to a White House and HHS Call on Reports Addressing the Long-Term Effects of COVID-19

On July 15, 2022, at 4 p.m. ET, the White House Office of Public Engagement invites you to a briefing on the status of two reports addressing the long-term effects of COVID-19. Included will be “nongovernmental experts, organizations, and interested parties, including individuals affected directly by the long-term effects of COVID-19. Featured speakers include Admiral Rachel L. Levine, MD, Assistant Secretary for Health and Rear Admiral Michael F. Iademarco, MD, MPH, Deputy Assistant Secretary for Science and Medicine (OASH), and other members of the Long COVID Reports team. Questions submitted in advance will be given priority; live questions will be accepted if time allows. This call is closed press, open registration, and free to share widely with your networks! ASL and CART will be provided.” To register, click here. (Courtesy of Braunwynn Franklin)

Free Webinar: “Finding Our Voice,” Presented by the National Empowerment Center on July 19

On July 19, at 2 p.m. ET, the National Empowerment Center (NEC) will present a free, 90-minute webinar on “Finding Our Voice.” NEC writes: “Would you like to participate in advocacy but don't know where to begin? Experiences of trauma and treatment often stifle our voice. Join this webinar to learn how we can transform our anger to our passionate voice!” The presenters are Joana Arcangel, Dan Fisher, Shira Collings, and Richard Krzyzanowski. To register, click here.

PsychU Will Host Two Free Webinars in July: “The Effects of Racism on the Mental Healthcare Community” and “Digital Health Tools: Combating Stigma and Healthcare Disparities”

On July 21, 2022, at 12 p.m. ET, PsychU will host a one-hour webinar on “The Effects of Racism on the Mental Healthcare Community: How Marginalized Patients & Providers Are Impacted.” And on July 28, 2022, at 12 p.m. ET, PsychU will present a one-hour webinar on “Digital Health Tools: Combating Stigma & Healthcare Disparities.” For more information and to register for one or both of these webinars, click here.

Free Webinar: “Peer Support Is In Demand” on July 26, Presented by Doors to Wellbeing

The next webinar in the monthly series sponsored by Doors to Wellbeing will take place on July 26. The topic is “Peer Support Is In Demand,” and the presenter will be Amey Dettmer, the program manager of Doors to Wellbeing. For more information and to register, click here.

National Association for Rural Mental Health Conference to Be Held November 2-4, 2022

The 47th Annual National Association for Rural Mental Health (NARMH) conference will be held at the Embassy Suites in Boulder, Colorado, November 2-4, 2022. The theme is “Beyond the Pandemic—Building on Rural Resiliency.” The early-bird registration fee is $500; for people who are retired or students, it’s $250. For more information as it becomes available, click here.

Do You Want to Be More Humble? More Forgiving? More Patient? More Positive? Try This.

“In the Positive Psychology Research Group, we have created a number workbooks that people can work through on their own to build their virtues or character strengths,” writes Everett Worthington, Commonwealth Professor Emeritus at Virginia Commonwealth University. Seven workbooks—all evidence-based, Worthington explains—are currently available on his website. “Thus far, we have investigated the following: forgiveness (secular), forgiveness of Christians who have offended other people in their church, humility, patience, self-forgiveness, self-control, and positivity.” To download the free workbooks, click here and scroll down. (Courtesy of Peggy Swarbrick via Jacek Haciak)

“Why Do People Hear Voices?”

A three-page infographic from the Western Mass Recovery Learning Community answers “Why do people hear voices?” with “I don’t know why any one person hears voices, but here are just a handful of reasons why some people believe that they do...” and then offers details on some of the possible reasons. For this 2016 infographic, click here.

The July 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “And How Do These Books Make You Feel? These seven books analyze what really happens between therapist and patient,” click here. For “How to Stop Dating People Who Are Wrong for You: Focus on the long term. Don’t try to replace your ex. Plus three more cures for unhealthy romantic habits,” click here.

The July 2022 Digest of Articles about the Criminal Legal System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Sheriffs Want to Turn Transport of Psych Patients Over to Mental Health Workers: Patients under involuntary commitment orders describe being traumatized by law enforcement involvement in mental health care, which often comes with handcuffs and added stigma,” click here. For “When the Death Penalty and Serious Mental Illness Collide,” click here. For “Cops and Counselors: Mental health professionals call the police, work with the police, and act like the police. But even in our ranks, an abolitionist future is possible,” click here. For “The Shadowy World of Jailhouse Informants: Explained,” click here. For “Does the death penalty target people who are mentally ill? We checked,” click here. For “LGBT Individuals Overrepresented in Prisons: Study,” click here. For “Courting Judicial Excellence in Juvenile Justice: A 50-State Study,” click here. For “Inventing Solitary: In 1790, Philadelphia opened the first American penitentiary, with the nation’s first solitary cells. Black people were disproportionately punished from the start,” click here. For “When Innocence Isn’t Enough: Christopher Dunn has spent more than 30 years in prison for a murder he and others say he didn’t commit. The state of Missouri says he must stay there—because he wasn’t sentenced to death,” click here. For “A new attorney helped clear an innocent man of a murder sentence after 32 years in prison: Natlie Figgers logged 2,000 hours working for free to exonerate Thomas Raynard James after misidentification and suspect police work sent him to prison in Florida,” click here. For “Denver Deployed Mental Health Workers Instead of Police—and Some Crimes Went Down,” click here. For “Solitary Confinement: A Curated Collection of Links,” click here. For “A Texas Court Brazenly Defied SCOTUS. The Conservative Justices Just Rewarded It. Republican judges in Texas figured out how to nullify the Sixth Amendment—and get away with it,” click here. For “Denial of death-row challenge stirs pushback on overlooked orders. Justice Sonia Sotomayor signed a lengthy dissent that says the Texas Court of Criminal Appeals thumbed its nose at findings from a 2020 high court majority,” click here. For “Incarcerated LGBTQ+ Adults and Youth: This brief examines the criminalization and over-incarceration of LGBTQ+ people in the United States, highlighting the drivers of overrepresentation and presenting recommendations for reform,” click here. For “Turning Prisons into Haunted Houses: Giving strange new life to old penitentiaries,” click here. For “Commentary: Provide Tools to Prove Innocence: We spent decades in prison for crimes we didn’t commit and it’s time the Legislature did something to fix it,” click here. For “In some states, your 6-year-old child can be arrested. Advocates want that changed,” click here. For “SCOTUS ruling in Concepcion, while addressing crack cases, should also resolve circuit split on compassionate release factors,” click here. For “The Supreme Court Let The Death Penalty Flourish. Now Americans Are Ending It Themselves. As Roe v. Wade ends, a look back at how the court reversed itself on capital punishment— spurring an anti-death penalty movement,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

HHS Announces Its First-Ever Behavioral Health Recovery Innovation Challenge

The Department of Health and Human Services (HHS), through the Substance Abuse and Mental Health Services Administration (SAMHSA) has announced its first-ever behavioral health Recovery Innovation Challenge. Its goal is to identify innovations that advance recovery and that were developed by peer-run or community-based organizations and their partners, such as local or state governments, health systems, hospitals, or health plans. The application deadline is July 15, 2022; finalists will be announced on August 6. The purse prize (for up to 10 awards) is up to $400,000. For more information, click here. (Courtesy of NYAPRS E-News)

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

Save the Date: National Latino Behavioral Health Conference

On September 15-16, the National Latino Behavioral Health Association (NLBHA), with support from the Substance Abuse and Mental Health Services Administration, will sponsor the 2022 National Latino Behavioral Health Conference in Las Vegas, Nevada. The theme will be "Latino Behavioral Health Equity: Juntos Podemos! (Together we can!) For more information, write to nlhconference@nlbha.org.

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com 

CONFERENCES

The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

PETITIONS AND OPEN LETTERS

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (For another ISEPP petition, see below.)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

OTHER OPPORTUNITIES AND RESOURCES

Lancet Offers Stakeholders New Opportunities

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 19, No. 1, July 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

Key Update, June 2022, Volume 18, Number 12

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL JUSTICE DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

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“False Diagnoses and Bad Drug Recommendations Are Now Just a Few Hashtags Away, New Research Warns”

“[R]esearchers are examining how pharmaceutical companies partner with patients who are willing to share their experiences with their followers and help give the drugs more credibility,” according to a recent article in Mel Magazine. ‘This is a growing phenomenon, but there is virtually no research on it and very little regulation,’ Erin Willis, an associate professor at the University of Colorado, said in a press release…Willis and Marjorie Delbaere, a professor at the University of Saskatchewan, reviewed 88 articles on current industry regulations and practices, and…concluded that influencers are ‘the next frontier in direct-to-consumer pharmaceutical marketing.’…Willis and Delbaere’s paper argues that this, along with the rise of internet-aided self-diagnosis, has created a culture of patients who tell their doctors what is wrong with them and what drugs they need, as opposed to the other way around. And amazingly, up to 44 percent of doctors oblige these medication requests. ‘It’s a lot like what we used to see with doctors and pharmaceutical companies,’ Willis explained. ‘Only now it’s patients using social media to advocate for disease awareness, and in some cases, pharmaceutical medications.” For the article, click here.

MFI to Present “Viewing the Suicide Prevention Industry Through a Critical Lens”

On June 1, 2022, social activist authors Robert Whitaker and Rob Wipond will discuss the suicide prevention industry on Mind Freedom International’s Judi’s Room at 6:00 p.m. ET, 3 p.m. PT. Their presentations will be followed by a discussion arising from audience questions.  To register for free, click here. (Note: Rob Wipond will be one of the keynote speakers at NARPA’s 2022 conference. See “NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29,” below.)

NY Times Reports: “Doctors Gave Her Antipsychotics. She Decided to Live With Her Voices.”

A recent article in the New York Times Magazine does some justice to the peer movement and to the fact of recovery from serious mental health conditions. Featured in the article are several movement activists talking about the Hearing Voices Network, as well as peer-run crisis respites such as Soteria Houses (in Israel) and Afiyah Peer Respite, run by the Wildflower Alliance in Massachusetts. The Times reporter, Daniel Bergner, cites the World Health Organization’sguidance [that] seeks to put an end to human rights violations in mental health care” (included in the July 2021 Key Update). He also quotes Thomas R. Insel, who led NIMH from 2002 to 2015, saying that, although $20 billion may have been spent, “I don’t think we moved the needle in reducing suicide, reducing hospitalizations, improving recovery for the tens of millions of people who have mental illness.” Bergner continues: “Better outcomes, the W.H.O. predicts, ‘will depend on a re-evaluation of many of the assumptions, norms and practices that currently operate, including a different perspective on what ‘expertise’ means when it comes to mental health.” He quotes Michelle Funk, the primary author of the W.H.O. report: “Practitioners cannot put their expertise above the expertise and experience of those they’re trying to support.” For the New York Times Magazine article, click here. For “The Medical Model Doesn't Work for Mental Health," an interview with Thomas Insel, click here. (Note: Journalist Daniel Bergner will be a panelist in the June 9th webinar presented by NYAPRS. Please see “NYAPRS to Host Three Free Webinars in June,” below, for details.)

TU Collaborative’s Parenting Through Leisure Series Continues on June 2

On June 2, 2022, at 12 p.m. ET, the Temple University Collaborative on Community Inclusion will continue its Parenting Through Leisure webinar series with its third free, one-hour webinar, which will focus on using leisure to talk about mental health conditions. The TU Collaborative writes: “We will go over the benefits of disclosing mental illnesses to children, as well as strategies to talk about mental illnesses while engaging in fun activities with children…This webinar series features strategies parents who experience mental health issues can use to spend quality time with their children, and ways to use family leisure to improve connection and communications.” For more information and to register, click here.

June 3 Is Gun Violence Awareness Day. Wear Orange! More Americans Died of Gun-Related Injuries in 2020 Than in Any Other Year on Record. And NCMHR Decries Texas Governor Abbott’s Call for “ ‘Mental Health’ Instead of Background Checks”! And “March for Our Lives” to End Gun Violence on June 11!

In 2022, the 8th National Gun Violence Awareness Day will fall on June 3, the first Friday of the month. That will kick off Wear Orange Weekend on June 4-5, which will feature virtual and in-person events across the nation. For more information, click here. “More Americans died of gun-related injuries in 2020 than in any other year on record, according to recently published statistics from the Centers for Disease Control and Prevention (CDC). That included a record number of gun murders, as well as a near-record number of gun suicides.” For “What the data says about gun deaths in the U.S.,” click here. (On May 14, 10 people were shot and killed in a Tops Friendly Market in Buffalo, N.Y., in a racially motivated hate crime. And on May 24, 19 children and two teachers were murdered in Robb Elementary School in Uvalde, Texas. For the response of the National Coalition for Mental Health Recovery to the tragedy in Uvalde—“National Advocacy Organization of People Labeled Mentally Ill Decries Gov. Abbott’s Call for “Mental Health” Instead of Background Checks”—click here.) And “March for Our Lives” to end gun violence on June 11 in DC and around the US! For more information and to find a march near you, click here.

“Courageous Conversations: Cultivating Cultural Humility and Managing Biases with Families Facing Serious Mental Illnesses and Serious Emotional Disturbances”—Session One of Three

On June 3 from 2 p.m. to 4 p.m. ET, the Substance Abuse and Mental Health Services Administration will sponsor Session One of “Courageous Conversations: Cultivating Cultural Humility and Managing Biases with Families Facing Serious Mental Illnesses and Serious Emotional Disturbances.” “Participants will…learn practical strategies for working compassionately and authentically with diverse families facing severe emotional disturbances based on the cultural humility core pillars of establishing a commitment to self-evaluation, fixing power imbalances, and committing to institutional accountability, and explore implicit and explicit biases and managing biases in advancing behavioral health equity.” For more information and to register for this free webinar, click here. (Courtesy of Judene Shelley)

MHTTC Announces Three Upcoming Webinars June 7, 8, and 9

The Northwest MHTTC (Mental Health Technology Transfer Center Network) has announced three webinars taking place on three consecutive days: June 7, 8, and 9. These are “Supervising Peer Specialists, with Pat Deegan” (June 7, 1 p.m.-2:30 p.m. ET, 10 a.m.-11:30 a.m. PT), “Incorporating Strategies to Effectively Engage Hispanic and Latinx Clients” (June 8, 1 p.m.-2:15 p.m. ET, 10 a.m.-11:15 a.m. PT), and Co-Occurring Disorders: Compassionate Care for Healing and Recovery” (June 9, 1 p.m.-2:15 p.m. ET, 10 a.m.-11:15 a.m. PT). For information about the three webinars and to register, click here. (Courtesy of Jacek Haciak)

NYAPRS to Host Three Free Webinars in June

“This month's webinars offer a theme of shared experience, space for conversation and community building,” NYAPRS writes. “Career Chat 2.0: Exploring Change through Education, Credentialing, and Professional Development,” an interactive chat, will take place on June 8 at 12 p.m. ET. Career Chat 2.0 is a space where we share our experience and perspective and explore change…Join Gita Enders, NYC Health + Hospitals; Jonathan P. Edwards, NYC DOHMH; and EM Vaianella, HALI; and other peer supporters and colleagues for this interactive chat.” To register, click here. On June 9, NYAPRS is partnering with Community Access and the College for Behavioral Health Leadership to present a free, one-hour webinar on “Soteria New York” at 1 p.m. ET. The presenters are Pesach Lichtenberg, founder of Soteria Israel; Voyce Hendrix, director of Soteria San Jose (1976-1978); Yana Jacobs, a counselor at Soteria San Jose; and Daniel Bergner, contributing writer, New York Times Magazine, and author of the upcoming book “The Mind and the Moon—My Brother, the Science of Our Brains and the Search for Our Psyches.” To register, click here. And on June 15 at 12 p.m. ET, NYAPRS will present Wellness and Recovery Story Circles—Build Relationships across Cultural Differences.” Story Circles “grant opportunities for peers who are service recipients the freedom to share their living and lived experiences in a safe, supportive and welcoming environment. Story Circles also engage participants in collective learning, leadership development and storytelling experiences that can reshape their lives, support personal wellness and recovery goals and improve the quality of personal and community life.” To register, click here.

Reclaiming Employment™ Platform Offers Self-Employment Support

Live and Learn, Inc., is recruiting users for its Reclaiming Employment platform, launching in June 2022. Reclaiming Employment offers support for people with mental health challenges around work to start and run small businesses. “At this time, Reclaiming Employment is only available to use through a pilot research study, where users will have access to all the website’s features and participate in a few surveys. If you or someone you know is interested in or currently engaged in self-employment and would like to use Reclaiming Employment, let us know by filling out the interest form (below). The deadline for enrollment is June 3. Join us in building a community where personal, economic, and collective empowerment are achieved through self-employment. Earn up to $80 for participating!” For more information and to get involved, click here.

Latest N.A.P.S. Newsletter Offers Opportunities for Peer Supporters!

The May 25th edition of the National Association of Peer Supporters (N.A.P.S.) newsletter invites applications for sponsors and exhibitors at the N.A.P.S. annual conference, October 19-21, 2022. (The deadline for workshop applications is June 17!) The hybrid conference will be held at the Dallas/Ft. Worth International Airport and online! In addition, N.A.P.S. members can apply to serve on its board of directors. And a new “Youth and Young Adult Peer Supporter Community Space” is open! Also, through a partnership with the online, nonprofit, institutionally accredited Western Governors University, N.A.P.S. members can apply for a $5,000 scholarship to earn a bachelor’s or master’s in business, IT, education, or health care! For the N.A.P.S. newsletter, click here.

AHRQ Invites Public Comment on a Potential Service-Recipient Survey to Assess Inpatient Mental Health Care

“AHRQ invites public comment on its Request for Information (RFI) about a potential Consumer Assessment of Healthcare Providers and Systems (CAHPS®) survey to assess patient care experiences in inpatient mental healthcare settings. Specifically, this RFI seeks comment regarding methodologically sound survey and data collection approaches of care experiences of those receiving inpatient mental healthcare. In addition, this RFI seeks comments about any unique considerations or concerns associated with collection of such patient care experience information. There currently is no CAHPS instrument designed to measure care from the patient perspective in this setting. This request for information will help inform the development of a scientifically sound survey to measure the experience of patients receiving inpatient mental healthcare.” The comment period ends July 1, 2022. For more information and/or to submit a comment, click here(Courtesy of Amy Smith)

HHS Announces Its First-Ever Behavioral Health Recovery Innovation Challenge

The Department of Health and Human Services (HHS), through the Substance Abuse and Mental Health Services Administration (SAMHSA), has announced its first-ever behavioral health Recovery Innovation Challenge. Its goal is to identify innovations that advance recovery and that were developed by peer-run or community-based organizations and their partners, such as local or state governments, health systems, hospitals, or health plans. The application deadline is July 15, 2022; finalists will be announced on August 6. The purse prize (for up to 10 awards) is up to $400,000. For more information, click here. (Courtesy of NYAPRS E-News)

Poor People’s and Low-Wage Workers’ Assembly & Moral March on Washington June 18

“The Mass Poor People’s & Low-Wage Workers’ Assembly & Moral March on Washington and to the Polls” on June 18, 2022, will be a generationally transformative declaration of the power of poor and low-wealth people and our moral allies to say that this system is killing ALL of us and we refuse to be silent anymore!...Did you know that there are fewer voting rights in 2018 than there were 50 years ago when the Civil Rights Act and Voting Rights Act were passed? Since 2010, 23 states have passed racist voter suppression laws, including racist gerrymandering and redistricting, laws that make it harder to register, reduced early voting days and hours, purging voter rolls, and more restrictive voter ID laws.” The marchers will gather at 9 a.m. on June 18 and the march will start at 10 a.m. For more information, click here. (Note: For details about the gathering place, it may be necessary to RSVP using the form provided at the link above, or to contact the organizers.)

NARPA Announces Exciting Keynoters to Speak at Its 2022 Annual Rights Conference, October 26-29

The National Association for Rights Protection and Advocacy (NARPA) will hold its 2022 Annual Rights Conference at the DoubleTree by Hilton Hotel Newark Airport October 26-29. The four inspiring keynote speakers will be Rob Wipond, an activist, investigative journalist, and author of the upcoming “Your Consent Is Not Required: The Rise in Forced Detentions, Forced Treatment, And Abusive Guardianships”; Ruth Lowenkron, Director, Disability Justice Program, New York Lawyers for the Public Interest, who has filed lawsuits against the New York Police Department about their responses to mental health crisis calls; Vesper Moore, an indigenous political activist, leader, author, trainer and educator in the psychiatric survivor and disability rights movements; Deborah Dorfman, Executive Director, Disability Rights Connecticut, who is active in individual, class action, and systemic reform litigation for disability rights around the nation; and Robert Dinerstein, Professor of Law, American University Washington College of Law, who will speak about recent developments in mental health law. Visit www.narpa.org for registration form and updates. 

Free Webinar: “Integrating Faith & Spirituality into Trauma Recovery”

On June 29, 2022, at 2 p.m. ET, SAMHSA will sponsor a free, 90-minute webinar about “Integrating Faith & Spirituality into Trauma Recovery.” The presenters will discuss “what trauma recovery consists of and the value of a faith- or spirituality-based approach; best practices for inquiring about a trauma survivor’s relationship with spirituality and integrating their beliefs into treatment and healing; and incorporating Islamic faith and spirituality into trauma work with the Black Muslim American population.” Following the webinar, participants will be able to register for Part Two of this discussion with the presenters on June 30, 2022, at 2:00 p.m. ET. “Part Two is a 60-minute intimate dialogue with the presenters and a smaller number of registered webinar participants who will be able to ask more detailed questions and engage with the presenters more comprehensively.” For more information and to register, click here

Doors to Wellbeing Will Host the Next Free Webinar in its Monthly Series on June 28

The Doors to Wellbeing website will include details closer to the date, here. To register, click here.

TU Collaborative Offers a Free Publication on “Why Mattering Matters”

“Why Mattering Matters: The importance of mattering for people with serious mental illness” is a new publication from the Temple University Collaborative on Community Inclusion. The TU Collaborative writes: “For many individuals who experience serious mental illnesses, social isolation and loneliness are part of their experience of everyday life. However, social connection is not simply being in the presence of others. Do people notice when someone is there or when they are absent? Does their presence contribute to the social environment or to the activity? In short, does it feel like they matter? So, while it may seem like simply spending more time with other people might combat loneliness, it appears that reducing loneliness and isolation likely involves more than increasing one’s social connections. Mattering may be a key component to effectively reducing loneliness among individuals who experience mental illnesses. This document presents the importance of social connections and mattering for all people, and why these issues are especially important for people living with mental illnesses.” To download the free, nine-page pamphlet, click here.

Save the Date: National Latino Behavioral Health Conference

On September 15-16, the National Latino Behavioral Health Association (NLBHA), with support from the Substance Abuse and Mental Health Services Administration, will sponsor the 2022 National Latino Behavioral Health Conference in Las Vegas, Nevada. The theme will be "Latino Behavioral Health Equity: Juntos Podemos! (Together we can!)” For more information, write to nlhconference@nlbha.org.

National Safety Council Offers a Free Webinar Series Focusing on Mental Health in the Workplace

"The impact of the COVID-19 pandemic will affect employees well beyond the initial crisis," the National Safety Council writes. "Employers have a unique ability and responsibility to address the mental health and wellbeing of their workers, which is a true organization-wide effort. This free Mental Health Webinar Series led by the National Safety Council, and first presented in August 2020, speaks to a variety of positions within an organization and how each one can address stress and mental health." Four of the five webinars are titled: "Supporting Employee Mental Health" and respectively subtitled "Resources for Employees," "Actions for Leadership," "Actions for Supervisors," and "Actions for HR Professionals." To view the free, archived webinars, click here.

“25 IG Cartoonists Who Totally Get Your Anxiety”

“…sometimes, a good anxiety cartoon is just what you need to interrupt all the perfection for an acknowledgment of the messier side of life. These cartoonists? They got you—insecurity, anxety, imposter syndrome and all. Here are our absolute favorite anxiety cartoons on Instagram.” For the comics, click here.

The June 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “The Power of Kindness in Improving Brain Health,” click here. (Courtesy of Peggy Swarbrick via Jacek Haciak.) For “Mindfulness Hurts. That’s Why It Works. Facing the painful parts of life head-on is the only way to feel at home with yourself,” click here. For “Getting Back Into Running Is Easier Than You Think: Whether you’re lacing up your running shoes after a few months or a few years, follow these tips to avoid injury and frustration,” click here. For “AA Agnostica is meant to be a helping hand for the alcoholic who reaches out to Alcoholics Anonymous for help and finds that she or he is disturbed by the religious content of many AA meetings,” click here. For “Make Swimming Your Summer Workout: With just 30 minutes and a few useful tricks, a trip to the pool can become serious exercise,” click here.

The June 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Va. Gov. Youngkin restores voting rights to thousands of ex-felons,” click here. For “Millions of People With Felonies Can Now Vote. Most Don’t Know It. In a handful of key states, no more than 1 in 4 formerly incarcerated people registered in time for the 2020 election, a Marshall Project analysis found,” click here. (The preceding article was included in the Key Update’s Criminal Justice Digest in July 2021.) For “Supreme Court makes it more difficult for prisoners to argue they had ineffective counsel,” click here. For “Supreme Court Limits Inmates’ Challenges Based on Bad Legal Help: Splitting 6 to 3, the justices ruled that federal courts may not hold evidentiary hearings in suits from state prisoners claiming ineffective assistance of counsel,” click here. For “The Supreme Court Just Gutted Another Constitutional Right,” click here. For “Counties Pledge to Break the Cycle Between Jail and Homelessness: With $20 million in MacArthur Foundation funding, four U.S. jurisdictions are exploring ways to make sure that brushes with the law don’t end up putting people on the street,” click here. For “LGBTQ people are disproportionately incarcerated. Here’s why. More than a century of homophobia and transphobia have shaped the policing and incarceration of women and trans men,” click here. For “This Prison Won't Let Me Read ‘Game of Thrones’: Navigating the sometimes weird, arcane rules about inmate contraband, click here.  For “The America That Killed George Floyd: In a new biography of the man whose murder sparked massive protests, two reporters tell a longer story of institutional racism,” click here. For “Op-Ed: The mentally ill defendants in my courtroom need treatment, not jail,” click here. For “The Island: A History of Rikers,” click here. For “New Justice Dept. policy says agents must intervene if they see abuse: Memo from Attorney General Merrick Garland is the first such policy update in 18 years,” click here. For “Given a chance to avoid jail and criminal charges, mentally ill, addicted and homeless people in L.A. pass,” click here. For “The Center for Justice Paves a Path to Reentry for Formerly Incarcerated Students: This year, seven formerly incarcerated students affiliated with Columbia's Center for Justice will graduate from the university,” click here. For “Daniel Taylor Was Innocent. He Spent Decades in Prison Trying to Fix the State’s Mistake. He was in police custody at the time of the murders, but a dubious confession led to his wrongful conviction while Chicago police and prosecutors turned a blind eye to inconvenient facts that eventually exonerated him,” click here. For “The Superpredator Myth Did a Lot of Damage. Courts Are Beginning to See the Light,” click here. For “Justice Dept. Inquiry Finds ‘Systemic Failures’ at Mississippi Prison: A report singled out solitary confinement and enforced segregation as particularly harmful practices that contributed to the poor mental and physical health of prisoners,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

OPPORTUNITIES TO PARTICIPATE IN RESEARCH STUDIES AND AN “EXPERIENCES WITH HOSPITALIZATION” SURVEY

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

CONFERENCES, WEBINARS, AND ONLINE SUPPORT GROUPS

South Southwest MHTTC First Episode Psychosis (FEP) Conference on June 1-3, 2022

"We invite those with a commitment to transforming FEP care, including those with lived experience, family members, providers, and researchers, to join us for the South Southwest MHTTC First Episode Psychosis Conference 2022 to celebrate successes and imagine a future of continued growth and accountability on June 1-3, 2022, either in person in Austin, TX ($75) or virtually (free). This event[—whose theme is Re-envisioning FEP Services with Youth and Young Adults—]will include keynotes, panels, informal networking, and collaborative dialogue groups. We place particular emphasis on developments related to diversity of perspective, including incorporating lived experiences, marginalized or minoritized groups, and other positionalities (culture, class, gender, age, religion, sexual orientation, childhood lived experiences, contexts, worldview, perspectives, etc.). We hope to see you there!" For registration and more information, click here.

These Four National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. NAMI’s virtual conference, “NAMIcon,” will be held June 14-16. For the full schedule and to register, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

ISPS-US (Hybrid) 2022 Conference to Be Held November 4-6

The 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference will be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challengesFor more information, click here. (Courtesy of Jacek Haciak)

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

PETITIONS AND OPEN LETTERS

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (For another ISEPP petition, see below.)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

COVID-19

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

OTHER OPPORTUNITIES AND RESOURCES

Lancet Offers Stakeholders Opportunities

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 12, June 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

Key Update, May 2022, Volume 18, Number 11

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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Looking For an Effective Mental Health App? The NY Times Offers Guidance

There are thousands of mental health apps, “but not all of them are safe or effective,” The New York Times writes. They are not a substitute for therapy, “and especially not if you have impairing symptoms.” Also, “most mental wellness apps are not subject to government oversight. Thus, some apps make unsubstantiated marketing claims” and/or “offer inaccurate and potentially harmful information…In addition, there is no requirement that all wellness apps conform to the Health Insurance Portability and Accountability Act” (HIPAA). In fact, one study “found 29 of the 36 top-ranked apps for depression and smoking cessation shared user data to Facebook or Google, but only 12 accurately disclosed this in their privacy policies.” Two websites that evaluate mental health apps are Mind Apps and One Mind PsyberGuide. For The New York Times article--which includes some recommendations of helpful apps, including those that are free--click here.

Free Webinar: “The Role of a Peer within a Clinical Team,” with Pat Deegan, PhD

On May 3, 2022, at 1 p.m. ET, peer movement activist Pat Deegan will present a 90-minute webinar on “The Role of a Peer within a Clinical Team.”Peer specialists are not clinicians, yet work as members of clinical teams. What are the role responsibilities that colleagues can expect peer specialists to fulfill? What are signs of drift from the role of peer specialist and what does assimilation into clinical look like? Pat Deegan, PhD, will discuss the unique and unduplicated contribution of peer specialists working as members of clinical teams. This webinar[—sponsored by the SAMHSA-funded Mental Health Technology Transfer Center Network—]will be relevant to not just peer specialists but to all members of the clinical team.” To register, click here.

MFI to Host Judi's Room on “Informed Consent: Forcing Doctors to Warn Their Patients About Psychiatric Drugs"

On May 4, 2022, at 6 p.m. ET, MindFreedom International (MFI) will host a two-hour Judi's Room discussion on “Informed Consent: Forcing Doctors to Warn Their Patients About Psychiatric Drugs." A featured presenter will be Roxanne Stewart-Johnson, who has launched "a campaign to introduce a bill into the Ontario House of Parliament mandating that all Canadian medical providers who prescribe ‘anti-psychotics’ fully inform their patients of the risks associated with those drugs in advance of treatment." Roxanne is "a mother of two who documented her dramatic flight from Jamaica to avoid forced psychiatric drugging, then documented the extraordinary legal battle she waged to win asylum and permanent residency in Canada." For more information and to register, click here.

CAFE TAC to Host Mental Health Cross-Disability Community of Practice on May 4, 2022

"The CAFÉ TA Center invites you to join a conversation that will explore the intersection of psychiatric disabilities and intellectual or developmental disabilities, including common experiences and priorities, and ways to develop a shared vision of person-centered systems of care. This conversation began with a webinar that was hosted on March 30. For the recording, click here. It continues in a Community of Practice that met on April 6th and April 20th, and will resume on Zoom at 2 p.m. ET on May 4, 2022. For more information and the Zoom link, click here

Free Webinars: Disability Rights California to Present Two Peer-focused Webinars

On May 3, 2022, at 4 p.m. ET (1 p.m. PT), Disability Rights California (DRC) will present a free webinar on “Perspectives on Mental Health: A Peer Discussion”; and on May 10, 2022, at 2 p.m. ET (11 a.m. PT), DRC will present "Peer Self-Advocacy Program: Sharing Our Unique History." About the May 3rd webinar, DRC writes: "In honor of Mental Health Awareness Month, we have invited a speaker to share [their] story of hope and affirm that having a mental illness is not a barrier to living a fulfilled life...This webinar is presented from a peer perspective (original emphasis)." And on May 10, DRC will present “Peer Self-Advocacy Program: Sharing Our Unique History.” DRC writes: "Join us as we share about the history, accomplishments and future goals of the Peer Self-Advocacy Program. In addition to our self-advocacy services, we will describe our work with the California Memorial Project (CMP) and our efforts to inform people about individuals with mental health and developmental disabilities who lived and died in state institutions..." For more information and to register for the May 3rd webinar, click here. For more information and to register for the May 10th webinar, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Free Webinar: TU Collaborative’s Parenting Through Leisure Series Continues May 5

On May 5, 2022, at 1 p.m. ET, the Temple University Collaborative on Community Inclusion will continue its Parenting Through Leisure webinar series with its second one-hour webinar, which will focus on planning family community participation. The TU Collaborative writes: “This webinar series features strategies parents who experience mental health issues can use to spend quality time with their children, and ways to use family leisure to improve connection and communications.” The second webinar will cover “how to identify family interests, strategies for overcoming barriers, and how to focus on and take advantage of facilitators.” For more information and to register, click here.

Free Webinar: "Working Through Psychosis and Extreme States: An Alternative to Suppression"

On May 11, 2022, at 12 p.m. ET, ISPS-US (International Society for Psychological and Social Approaches to Psychosis-US Chapter) will present a 90-minute webinar on "Working Through Psychosis and Extreme States: An Alternative to Suppression." ISPS-US writes: "Mainstream mental health treatment for 'psychosis' in the U.S. focuses on the suppression of non-ordinary experiences, which are framed as symptoms of illness. But is this the most helpful approach?...In this webinar, Gogo Ekhaya Esima and Emma Goude will discuss the very different possibility of 'working through.' Instead of suppressing them, Gogo and Emma have found ways to engage with their extreme experiences, to find constructive meaning in them, and then to rebuild their lives in ways that are enriched by all that they have gone through." For more information and to register, click here. (Courtesy of Kevin Fitts)

Free Conference: First Annual (Virtual) African American Behavioral Health Conference to Be Held May 18, 2022

The theme of the first annual (virtual) African American Behavioral Health Conference is Rise Above: Resilience and Recovery.  The conference, based in Portland, Oregon, will be held via Zoom on May 18, 2022, from 11 a.m. to 8 p.m. ET (8 a.m. to 5 p.m. PT). The topics covered include “Racism as a Public Health Crisis,” “My Story and How I Am Using My Position to RISE ABOVE Barriers to recovery,” “SUD and Domestic Violence Within the African American Community,” and “DCJ Through the Lens of the African American Program,” followed by an African-American panel discussion. The MC will be Larry Turner, president of Fresh Out Community-based Reentry Program. Questions about the conference? Contact Larry Turner at lasa1230na@gmail.com. To register, click here(Courtesy of Jacek Haciak)

Online Symposium Asks, "How Can We Imagine the Future of Psychedelic Therapies?"
From May 23 through May 26, 2022, the Ethnopharmacologic Search for Psychoactive Drugs (ESPD) will present a four-day livestream symposium. ESPD writes: "How can we imagine the future of psychedelic therapies? How can ancestral knowledge bring depth to scientific research? What does sustainability look like for plant medicines through the indigenous perspective?" For the program, click here. (The times are in GMT+1.) For the fee schedule, click here. (Minimum contribution: $10; contributions over $250 are tax-deductible. A limited number of scholarships are available; to request a scholarship, email espd@mckenna.academy.) (Courtesy of Kevin Fitts)

Free Webinar: "If You Think Work Is Bad for People with Mental Illness, What About Poverty, Unemployment, and Social Isolation?"

On May 24, 2022, at 12 p.m. ET, NYAPRS will host a webinar presented by Joe Marrone, who, NYAPRS writes, over 20 years ago “emerged as a leading proponent for employment for people with psychiatric disabilities with these famous words:  ‘If You Think Work Is Bad for People with Mental Illness, What About Poverty, Unemployment, and Social Isolation?’…NYAPRS is very pleased to host Joe in a new webinar by the same name in which he'll advance strategies on how to avoid long-term unemployment and to promote employment as a key component of recovery within systems of care. This webinar is for everyone, including people looking for employment, direct care providers and administrators.” To register, click here.

Free Webinar: "Ethics in Peer Support," to Be Sponsored by Doors to Wellbeing
On May 31, 2022, at 2 p.m. ET, Doors to Wellbeing will present a free, one-hour webinar on "Ethics in Peer Support." Doors to Wellbeing writes: "This webinar is designed as an overview, from a national level, of ethics as they pertain to peer specialists around the country. Some state specifics will be discussed as information is available. It will cover how to draw on our ethical knowledge to navigate common difficult situations facing peer specialists." The presenter will be Crystal Gery-Agee, a recovery specialist with the Northwest Florida Health Network. For more information and to register, click here.

2022 N.A.P.S. Conference, 10/19-21, Issues Its Call for Proposals! 

The 2022 conference of the National Association of Peer Supporters will be held October 19-21, 2022, at the Sheraton DFW (at the Dallas/Ft. Worth International Airport). The conference theme is The Value and Values of Peer Support. "The 2022 N.A.P.S. conference will be the first time we gather in person since 2019. I can't wait to see you there! Join us for networking, education, and celebration of each other," said Jessi Davis, N.A.P.S. board president. For the Call for Proposals, click here.

South Southwest MHTTC First Episode Psychosis (FEP) Conference on June 1-3, 2022

"We invite those with a commitment to transforming FEP care, including those with lived experience, family members, providers, and researchers, to join us for the South Southwest MHTTC First Episode Psychosis Conference 2022 to celebrate successes and imagine a future of continued growth and accountability on June 1-3, 2022, either in person in Austin, TX ($75) or virtually (free). This event[—whose theme is Re-envisioning FEP Services with Youth and Young Adults—]will include keynotes, panels, informal networking, and collaborative dialogue groups. We place particular emphasis on developments related to diversity of perspective, including incorporating lived experiences, marginalized or minoritized groups, and other positionalities (culture, class, gender, age, religion, sexual orientation, childhood lived experiences, contexts, worldview, perspectives, etc.). We hope to see you there!" For registration and more information, click here.

"Announcing the Publication of the First Issue of Including Disability, one of the Ontario Tech Open Access Journals following the 2021 Disability Summit"
"This free, open-access journal (click here) is devoted to facilitating dialogue across disabilities, disciplines, professions, identities, and boundaries. It welcomes scholarly research, personal reflections, historical essays, policy analysis, artistic creations, educational innovations, professional best practices, and any other expressions that articulate, illuminate, and improve understandings of disability and the experiences of disabled people. Including Disability brings the ethos of the Disability Summit into a convenient electronic journal, which will serve as a platform for ongoing interaction and cross-pollination for research, analysis, invention, and expression about disability. This inaugural issue of Including Disability features expanded versions of the keynote talks by Dr. Ashley Shew and Dr. Angel Love Miles from the 2021 Disability Summit among its contents. If you have suggestions, questions or want to help, the editors of Including Disability can be reached at includingdisabilityjournal@gmail.com. Feel free to tag us in any of your twitter posts at @UMDDisabilityS1."

NAMI to Host a Virtual Conference June 14-16, 2022

The theme of virtual “NAMIcon,” June 14-16, 2022, is “Together for Mental Health.” NAMI writes: “NAMICon will offer “Robust programming with 30+ workshops built around five tracks focused on mental health research and treatment; youth and young adults; transforming crisis response; promoting equitable mental and emotional support for underserved communities; and best practices for NAMI State Organizations and NAMI Affiliates.” The cost is “only $10 for students and peers, $15 for NAMI members and $25 for non-members.” For the full schedule and to register, click here.

Three Articles Focus on the Importance of Service Users in Mental Health Research; a Fourth Article Welcomes a New "Lived Experience" Feature in Psychiatric Services

Three articles, published over the last 12 years, highlight the value of service users in mental health research. In "Mental Health Service User Leadership in Research," the authors write: "Research by service users has produced new knowledge and contributed to the development of innovative methods of improving the lives and advancing the human rights of people with mental health problems. Service user research has also contributed to changing how mental ill health is conceptualized: it has challenged a model of mental illness as simply deficit and pathology..." The other articles support and supplement this position. For "Mental Health Service User Leadership in Research," by Felicity Callard and Diana Rose, click here. For "Service user leadership in priority setting: an end in itself as well as a means to an end," by Dr. Nev Jones, click here. And for "Patient and public involvement in health research: Ethical imperative and/or radical challenge?" by Diana Rose, click here. In addition, in "Lived Experience Leadership in Peer Support Research as the New Normal," Dr. Jones welcomes Psychiatric Services’ new "Lived Experience Inclusion and Leadership" column. "To the best of my knowledge," she writes, "[this] column is also the first peer-reviewed publication on peer support in the journal, led and coauthored in its entirety by lived experience leaders within the peer support movement, most of whom have also worked as peer specialists." For the article, click here.

Free Webinar: “Recognizing the Inner Voice: Breaking the LGBTQIA+ Conversation Barrier”

On June 1, 2022, at 12 p.m. ET, NephU and PsychU will host a free webinar entitled “Recognizing the Inner Voice: Breaking the LGBTQIA+ Conversation Barrier.” They write: “The month of June is Pride Month, and throughout the world the LGBTQIA+ communities come together to celebrate sexual and gender diversity, and to raise awareness of the ongoing pursuit for equality. NephU and PsychU will be joining the community awareness efforts. During this webinar, our speakers begin by sharing perspectives of coming out, identifying fears of self-disclosure, and using affirmative language to improve personal and professional interactions with LGBTQIA+ individuals.” For more information and to register, click here.

“Peer Worker-supported Transition from Hospital to Home—Outcomes for Service Users”

To study how peer support workers might help individuals in their transition from psychiatric hospitalization back to the community, researchers in New South Wales, Australia, established a statewide Peer Supported Transfer of Care (Peer-STOC) program “to enhance recovery-focused supports available during this transition period.” Analyzing the results of data from 82 questionnaires and 58 individual in-depth interviews, the researchers concluded that the Peer-STOC program “enhanced people’s experience in hospital, eased their transition from hospital and assisted with people recovering community-based relationships, activities, and routines.” They added that "[t]hese findings...evidence that other workers within the mental health system recognize the positive impact that this peer-delivered program has had on the recovery outcomes of service-users.” For the abstract of the article, published in the International Journal of Environmental Research and Public Health, cclick here. (Courtesy of Karen Machin via Jacek Haciak)

Free Book: Reimagining Crisis Support: Matrix, Roadmap and Policy

Reimagining Crisis Support: Matrix, Roadmap and Policy, available for free download, “aims to shift the conversation about personal crisis from one based in mental health discourse to one based in a social model of disability and human rights. The book's primary thesis is that crisis support can be reimagined as support for decision-making and maintaining an independent life in the community—as provided for under Articles 12 and 19 of the Convention on the Rights of Persons with Disabilities.” The author, Tina Minkowitz, “is a theorist and practitioner of international human rights law from a survivor-of-psychiatry perspective.  She contributed significantly to the drafting of the Convention on the Rights of Persons with Disabilities and to its subsequent [and ongoing] interpretation and application. From 2002-2015, she represented the World Network of Users and Survivors of Psychiatry in various capacities. She is President of the Center for the Human Rights of Users and Survivors of Psychiatry, which she founded in 2009.” For more about the book, read “Ending Coercive ‘Help’: A Review of ‘Reimagining Crisis Support,” by Mad In America (click here). To download a free copy, click here. (Courtesy of Kevin Fitts)

ISPS-US Issues Call for Proposals for its (Hybrid) 2022 Conference, to Be Held November 4-6

May 30 is the deadline to submit a workshop proposal for the 2022 ISPS-US (International Society for Psychological and Social Approaches to Psychosis—U.S. Chapter) conference, to be held November 4-6 in Sacramento, California, as well as online. The conference theme is Opportunity Through Experience: Psychosis, Extreme States, and Possibilities for Transformation. ISPS-US writes: “People with lived experience, family members, clinicians, and researchers are all invited to propose presentations that promote mutual collaboration and respect, and can allow us to offer each other both greater understanding and more light. We especially welcome proposals from members of marginalized groups whose experiences have included systemic as well as relational traumas and challenges. Proposals are due by May 30.” For more information and to submit a proposal, click here. (Courtesy of Jacek Haciak)

ISEPP Invites Mental Health Practitioners and Academicians to Sign Its Open Letter to the Major U.S. Mental Health Professional Organizations

The Coalition Against Medicalized Psychology & Psychiatry (CAMPP)—the action committee of the International Society for Ethical Psychology & Psychiatry (ISEPP)—asks mental health practitioners and academicians worldwide “to join us in signing an open letter to the American Psychiatric Association, American Psychological Association, American Counseling Association, National Association of Social Workers, and American Association for Marriage and Family Therapy to provide evidence for framing emotional distress and troublesome behaviors as illnesses or defects in a person’s biology—and, if they can't, to publicly reject the medical model of mental disorder. With this we hope to raise awareness of the harmful effects of that model. Send me your name, credentials, profession, position, city, state, and country to be appended to the letter. Pass this email on to others in your network and ask them to sign too. Our plan is to share the above organizations' responses (or lack of responses) with The Washington Post and The New York Times science and/or health editors.” For the letter, click here. (Courtesy of Elizabeth R. Stone) (Note: For another ISEPP petition, see the “…But Still Fresh” Department, below the Criminal Justice Digest.)

16 Documentaries and 12 Podcasts Explore Mental Health Issues

If you have some time to spare, check out "16 of the Most Eye-Opening Documentaries About Mental Health" and "12 Mental Health Podcasts to Listen To Between Therapy Sessions" on PureWow.com. Two of the documentaries are available for free on YouTube: "Nadiya Hussain: Anxiety and Me" (2021), about the former Bake Off winner's struggle with panic attacks; and "Demi Lovato: Simply Complicated" (2017). The other films are on Amazon Prime, Apple TV, HBO Max or Hulu. For the 16 documentaries, click here. The podcasts "cover everything from depression and anxiety to grief and addiction." For the 12 podcasts, click here(Courtesy of Surviving Spirit Newsletter and Mike Skinner)

Early Movement Leader Su Budd Has Died at Age 79

Su Budd, a lifelong mental health activist, died on April 2, 2022. A brief obituary notes that she “helped launch many support networks throughout the years, dedicating her time to help others in need. Her caring nature truly made a difference in other people’s lives.” Su was a co-author, with Howie the Harp and Sally Zinman, of Reaching Across: Mental Health Clients Helping Each Other, published in 1987 by the California Network of Mental Health Clients. She is survived by her husband, Dennis Budd—also a movement activist—whom she married in 1969. A native of Connecticut, Su moved to Kansas City, Kansas, with her husband in 1971. Her obituary (click here) includes a photograph of her with her calico cat. In a related story, to honor some of the movement leaders who had recently died, the National Coalition for Mental Health Recovery (NCMHR) created short video tributes, available on the NCMHR Youtube Channel, RecoveryandHope. If you would like to contribute a short video in memory of Su Budd or others who have died since these videos were recorded, please contact Judene Shelley at jshelley@gmail.com. 

The May 2022 Digest of Articles Offering Healthy Lifestyle Advice

For “The Pandemic’s Gardening Boom Shows How Gardens Can Cultivate Public Health,” click here. (Courtesy of Jacek Haciak) For "How to reduce loneliness: Meaningful activities can improve health, well-being: A new study demonstrated that engaging in meaningful, challenging activities during free time can reduce people's loneliness and increase their positive feelings," click here. For "Meditations for Uncertain Times," click here.

The May 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Georgetown degree program launches for Maryland prisons,” click here. For “Pilot program will train women offenders nearing release for customer experience careers,” click here. For “How a Missouri prison became a training ground for the next wave of computer coders,” click here. For “Settlement reached in suit over ‘repulsive’ Fulton jail conditions: A federal judge has approved a settlement that ends litigation that showed mentally ill women were being detained in squalid conditions at the South Fulton Jail,” click here. For “Cops Could Use First Aid to Save Lives. Many Never Try. Most officers get training to respond to injuries, but are often not required to use it,” click here. For “Out of Prison, TikTok Influencers Are Reshaping How We Think About Life Behind Bars. But a dearth of content creators of color raises questions about the app’s algorithm,” click here. For “Beyond the Era of Punitive Excess: Reckoning with our overreliance on excessive punishment requires a commitment to truth-telling,” click here. For “What the Survey of Prison Inmates tells us about trans people in state prison. We look at the experiences of 29 incarcerated transgender people before and during their incarceration,” click here. For “For a Child Who Killed Their Child, Parents Chose Restorative Justice,” click here. For “Tulsa police respond after video shows arrest of woman in mental health crisis,” click here. For “Broken ‘compassionate release’ rules strand Pa.’s sickest prisoners as costs to taxpayers soar: There is bipartisan agreement that it’s too hard for people serving life in prison to get out when they are aging and ailing. But two proposals to change that face an uncertain future,” click here. For “Judge Awards $1.375M in an Inmate Suicide at Halawa Correctional Facility: The state admitted liability in the case of a 28-year-old prisoner who was on ‘observation status’ in the medical unit, but hung himself anyway,” click here. For “Opinion: In prison, having your period can put your life in danger,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

(Virtual) International Conference on Psychiatric Drug Withdrawal Scheduled for May 6-7, 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is scheduled for May 6-7, 2022 and will be held online due to the Covid pandemic. (It was originally planned to be held in Reykjavik, Iceland.). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

MHA Offers "May Is Mental Health Month" Toolkit and Additional Resources

"This year, the theme of MHA’s 2022 Mental Health Month Toolkit is 'Back to Basics,'" Mental Health America writes. "Our goal is to provide foundational knowledge about mental health & mental health conditions and information about what people can do if their mental health is a cause for concern. Our toolkit includes sample materials for communications and social media as well as printable handouts on the following topics: Starting to Think About Mental Health, What Plays a Role in Developing Mental Health Conditions, Maintaining Good Mental Health, Recognizing When You Need Help with Your Mental Health, and What To Do When You Need Help. The toolkit will be available in Spanish in April." For more information and for a link to download the free, 34-page toolkit along with other resources, including toolkits of past years and "Tools 2 Thrive," click here.

NARPA to Host Its 2022 Conference October 26-29

The National Association for Rights Protection and Advocacy (NARPA) 2022 Annual Rights Conference will be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey. The conference will address "strategies, ideas, programs, and emerging practices," in connection with the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice." For more information, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life.​ You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with ​Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

2022 Virtual PEER-A-PALOOZA Peer Summit to Be Held May 7

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host PEER-A-PALOOZA on Saturday, May 7, 2022, from 1 p.m. to 5 p.m. CST via Zoom. "Our 2022 theme is: Creating a Zest for Life Through Growth, Resilience, Recovery and Community," the organizers write. "We believe that unifying talented peers of diverse backgrounds provides a unique opportunity to interact and propose stronger solutions together." Registration is $25; it's free for peer specialists. Workshop topics include How to Address Isolation, Autism Spectrum and Alternative Treatments, Personal Experiences, and a Writing Workshop. To register, click here.

These Three National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 11, May 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, April 2022, Volume 18, Number 10

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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"As a Crisis Hotline Grows, So Do Fears It Won’t Be Ready," NY Times Writes; But Many Advocates Fear a Different Problem

A recent New York Times article highlighted the fear that the demand for 988 may exceed the ability of call centers to respond quickly. But many advocates focus on another problem: that callers' anonymity will be breached and that they may find police at their door, which would exacerbate the trauma caused by the crisis they are already experiencing. On the one hand, Representative Tony Cárdenas (D-CA) "said the reimagined Lifeline would reduce costs by limiting police interventions in mental health emergencies." But, according to recent Mad In America coverage reported in the Key Update (February 2022), "Even after their own advisory committee criticized call tracing, leaders of the National Suicide Prevention Lifeline (NSPL) have been lobbying government for cutting-edge mass surveillance and tracking technology. Privacy experts are raising concerns." For the Mad In America article, click here. For the New York Times article, click here. 

NARPA Has Extended the Deadline for Workshop Proposals to April 7!

It's not too late to apply to present a workshop at the Annual Rights Conference of the National Association for Rights Protection and Advocacy (NARPA), which will be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey! The conference will address "strategies, ideas, programs, and emerging practices," in connection with the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice." For more information and to apply to present a workshop, click here.

Revised DSM, Rolled Out in March, Has Its Good Points and Its Bad Points

The new Diagnostic and Statistical Manual, the DSM-5-TR, released on March 18, 2022, has its plusses and its minuses. On the plus side, the new edition highlights the psychological impact of the social determinants of health and mental health, including racism. It also highlights the effects of trauma, which is "enormously predictive of psychosis," as a DSM Steering Committee member opined to Psychiatric News. [It should be noted that the prevalence of trauma in the general population is very high, in comparison to the much lower prevalence of psychosis.] On the minus side, “prolonged grief disorder” has been added to the new edition. “You’ve got to understand that clinicians want diagnoses so they can categorize people coming through the door and get reimbursement,” Jerome C. Wakefield, a professor of social work at New York University, told The New York Times. Meanwhile, critics say “that the designation risks pathologizing a fundamental aspect of the human experience….And they fear grief will be seen as a growth market by drug companies that will try to persuade the public that they need medical treatment to emerge from mourning,” the Times writes. For the Psychiatric News article, click here. For the New York Times article, click here. For Medicating Normal, an award-winning documentary about “what can happen when profit-driven medicine intersects with human beings in distress,” click here.

Peer Advocates Over 50 Years Old Are Invited to a Weekly Empowering Support Group

"People over 50 who are mental health lived-experience advocates, change makers, visionaries, and current status quo challengers" are invited to join "a weekly, open, upbeat, peer-support empowering environment for seasoned peers with lived experience who are active, and were active, as advocates for positive change," the WiseCrackers write. The goal of the recently launched group is "to support mental health advocates over 50 years of age with pure peer support practices based on natural curiosity, acceptance, humor, and positive networking." The free, 90-minute Zoom meetings are held on Mondays at 7 p.m. ET, 6 p.m. CT, 5 p.m. MT, and 4 p.m. PT. The meetings are currently co-facilitated by "East and West Coast Peers" and sponsored by the Community for Positive Aging. To register and to review the WiseCracker Principles of support, click here. Questions? Contact info@choiceheals.com or 503.208.0065.

MFI to Host Judi’s Room on "Guardian/Conservator and Supported Decision Making" & Urges You to Sign a Petition About "The Dangers of an Unchecked Guardian System"

On April 6, 2022, at 6 p.m. ET, MindFreedom International will host a two-hour Judi's Room discussion of "Guardian/Conservator and Supported Decision Making." MFI writes: "In a supported decision-making model, individuals with disabilities whose decision-making autonomy has been restricted or completely removed are capable with the support and help of trusted family members and friends to make and communicate their own decisions. Explored by our three presenters are the needs for a more equitable system of assistance where it is recognized that people have a diverse range of abilities, a continuum in which they can adequately exercise their decision-making rights." For much more about this event and to register, click here. MFI also urges you to sign a petition about "The Dangers of an Unchecked Guardian System." To sign the petition, click here.

BU Seeks Peer Support Specialists for a Research Study

The Center for Psychiatric Rehabilitation at Boston University is developing and testing the effectiveness of a coaching service called Coaching and Advancement for Peer Providers (CAPP) “to increase organizational commitment and job satisfaction and decrease turnover among mental health peer providers.” BU CPR writes: “We need Peer Support Specialists (PSS) to participate in our study. Who can participate? People who are in a paid job as a Peer Support Specialist providing support to other people with mental health challenges, who are employed at least 10 hours per week, who have worked for the past six months in a mental health program, and who are experiencing stress because of challenges in the workplace. The study involves 16 one-hour sessions of coaching over a four-month period designed to help you with your job, meeting online (through Zoom, for example) with your coach, and filling out surveys one time before coaching starts and three additional times. You will have a 50/50 chance of getting a coach or having a one-time meeting to give you information about challenges at work. Benefits? You may learn strategies to help make work less stressful.” For more information, click here. For questions, contact Principal Investigator E. Sally Rogers, Sc.D., at erogers@bu.edu or 617-353-3549.

The BMJ Writes About "The Illusion of Evidence-Based Medicine"

"Evidence-based medicine has been corrupted by corporate interests, failed regulation, and commercialization of academia." This is the subhead on "The Illusion of Evidence-Based Medicine," a recent BMJ opinion piece. It begins: "The advent of evidence-based medicine was a paradigm shift intended to provide a solid scientific foundation for medicine. The validity of this new paradigm, however, depends on reliable data from clinical trials, most of which are conducted by the pharmaceutical industry and reported in the names of senior academics. The release into the public domain of previously confidential pharmaceutical industry documents has given the medical community valuable insight into the degree to which industry sponsored clinical trials are misrepresented. Until this problem is corrected, evidence-based medicine will remain an illusion." For the opinion piece, click here. (Courtesy of Berta Britz)

TU Collaborative Launches Parenting Through Leisure Webinar Series

"The Temple University Collaborative on Community Inclusion is excited to announce our Parenting Through Leisure webinar series! The first one-hour webinar is April 14, 2022, at 12 p.m. ET. This webinar series features strategies that parents who experience mental health issues can use to spend quality time with their children, and ways to use family leisure to improve connection and communications. In the first webinar, learn about the benefits of family leisure and specific strategies for parents to use to connect with their kids. Participation certificates are available upon request. Webinar hosts include Dr. Gretchen Snethen and Dr. Bryan McCormick." For more information and to register, click here.

NYAPRS to Host Virtual "Career Chat 2.0" on April 19

On April 19, 2022, from 12:00 p.m. to 1:30 p.m. ET, NYAPRS will host "Career Chat 2.0: Exploring Change through Education, Credentialing and Professional Development." NYAPRS writes: "This Zoom meeting will provide attendees with the opportunity to share their experience and perspectives on navigating the potential challenges on the road to change. Led by Jonathan Edwards, Gita Enders, and Emily Vaianella, this conversation is for anyone who is interested in exploring change through education and/or employment. Because of the nature of this conversation, we will be limiting registration to 75, so register today!" To register, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

Poetry Coalition to Launch "Poetry & Disability Justice" Initiative

"This year, the 25+ organizations nationwide that comprise the Poetry Coalition will launch 'The future lives in our bodies: Poetry & Disability Justice,' the coalition’s sixth annual programming initiative...Poetry Coalition members aim to demonstrate how poetry can inspire questions in their communities about disability justice and spark increased engagement with this important theme. Member organizations are committed to offering programming that is accessible and that includes disabled, neurodivergent, and d/Deaf poets and those of diverse racial, ethnic, and gender identities, backgrounds, and communities. All organizations and others interested are invited to create programs on this theme in 2022 and share their efforts using the hashtags #DisabilityJustice and #PoetryCoalition. For some additional resources to assist with programming, particularly in creating accessible programming, click here.

“Kracking Up (in a Good Way): A [Free] Night of Stand Up for Mental Health Comedy,” April 25

On April 25, 2022, at 7:30 p.m. ET, Fountain House, SchizophrenicNYC, City Voices, and Stand Up for Mental Health will present “Kracking Up (in a Good Way): A [Free] Night of Stand Up for Mental Health Comedy.” The organizers write: “Kracking Up will feature eight amateur comics who poke fun at their mental health challenges and try to krack us up.” For more about Stand Up for Mental Health, click here. For your free ticket for this virtual two-hour event, click here. (The Zoom link will follow 14 days before the event.)

NYAPRS to Host (Virtual) 18th Annual Executive Seminar on April 26-27

On April 26-27, 2022, NYAPRS will host its 18th Annual Executive Seminar. The theme of the entirely virtual event is "Mindful Leadership: Reconnect, Replenish, & Redesign." NYAPRS writes: "Join a special CEO Plenary, 'Experience, Strength and Hope,' for a discussion with our national leaders," which include the current or former heads of the National Council for Mental Well Being, Forward Movement Inc., Association for Mental Health and Wellness, and Mental Health America, respectively. "Many of the things we take for granted within our system now were hard-fought wins for this group of leaders. We bring them back to the NYAPRS Executive Seminar to share their thoughts about our future and engage with you in a heartfelt discussion of what we can all do to assure that our behavioral health system keeps moving forward despite all the challenges and changes we are facing." For the member and non-member rates and to register, click here.

Promoting Spiritual and Religious Participation Among Individuals with Psychiatric Disabilities: A Factsheet and Resource Guide

The Temple University Collaborative on Community Inclusion writes: "Engaging in spirituality and/or religion is an important area of community participation that has health benefits. This fact sheet describes the health benefits of spiritual and religious participation and to provide resources to support people with serious [mental health conditions] to engage more." For the four-page fact sheet and resource guide, click here.

Open Dialogue Is Good. Would Peer-supported Open Dialogue Be Even Better?

A British study to test a model of Peer Supported Open Dialogue (POD) recruited 50 service users treated by the POD team, along with participants from their families and social networks. The study found that "[s]ervice users reported significant improvements in wellbeing and functioning," and "a marked increase in perceived support" by those in the individual's support network. The results, recently published in BMC Psychiatry, indicate that it is possible to deliver a clinically effective POD service in the UK's National Health Service. For "Peer-supported Open Dialogue in the NHS: Implementing and Evaluating a New Approach to Mental Health Care," click here.

Rutgers University Invites Peer Specialists to Take a Survey on Their Wellness and Self-Care Needs

Behavioral health care workers, including peer support specialists, are invited to participate in a survey on behalf of the Rutgers Center for Alcohol and Substance Use Studies. The purpose of the survey is “to better understand your wellness and self-care needs and to gauge your interest in the Wellness Training & Learning Collaborative (W-TLC) and virtual resources.” The team writes: “You know better than most that behavioral health care workers need support, compassion, and care to sustain the energy and commitment to provide quality services. Your responses will help the Rutgers team identify what will be most useful so we can offer you the opportunity to access a free online resource: W-TLC Virtual Toolbox. This toolkit and 12 learning collaborative sessions (conducted between June 2022 and January 2023) will be available to you and other members of the behavioral health care community at no cost.” For the survey, click here. (See a related story below.)

Rutgers Center of Alcohol & Substance Use Studies Offers Free Wellness Guide

"Your Journey to Wellness Begins Here," writes the Rutgers Center of Alcohol & Substance Use Studies. "This Journey to Wellness Guide will help you find new ideas to use to begin or continue on your personal journey, no matter where you are in your life. If you have ever experienced chronic stress, addiction, trauma, or another life challenge, you will find examples here that have helped many to pursue and continue a journey to wellness." To view the 20-page Wellness Guide, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

Doors to Wellbeing Presents Free Webinar on “Finding and Sharing Meaningful Work”
On April 26, 2022, at 1 p.m. ET, Doors to Wellbeing will present the latest in its monthly series of free one-hour webinars: “Finding and Sharing Meaningful Work.” Doors to Wellbeing writes: “Join us for this presentation on finding where you thrive at work and how to motivate others to seek out meaningful work. Peer specialists will be engaged to reflect on your own experience with employment and learn ways to share that experience with others.” The learning objectives are: Define meaningful work; list 3-4 ways to support others in discovering meaningful work; describe 3-4 keys to wellbeing at work; and discuss how to share our journey to employment to support others in their journey. To register, click here.

(Virtual) International Conference on Psychiatric Drug Withdrawal Scheduled for May 6-7, 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is scheduled for May 6-7, 2022 and will be held online due to the Covid pandemic. (It was originally planned to be held in Reykjavik, Iceland.). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

MHA Offers "May Is Mental Health Month" Toolkit and Additional Resources

"This year, the theme of MHA’s 2022 Mental Health Month Toolkit is 'Back to Basics,'" Mental Health America writes. "Our goal is to provide foundational knowledge about mental health & mental health conditions and information about what people can do if their mental health is a cause for concern. Our toolkit includes sample materials for communications and social media as well as printable handouts on the following topics: Starting to Think About Mental Health, What Plays a Role in Developing Mental Health Conditions, Maintaining Good Mental Health, Recognizing When You Need Help with Your Mental Health, and What To Do When You Need Help. The toolkit will be available in Spanish in April." For more information and for a link to download the free, 34-page toolkit along with other resources, including toolkits of past years and "Tools 2 Thrive," click here.

Video Tributes in Memory of Some Movement Leaders Are Available on NCMHR YouTube Channel

To honor some of the movement leaders who had recently died, the National Coalition for Mental Health Recovery (NCMHR) created short video tributes to air at Alternatives 2021. All of the videos are available on the NCMHR Youtube Channel, RecoveryandHope. Or you can click on each of these links: Effie Smith by Michelle Dyson Click here; George and Maryanne Ebert by James Rye Click here; Emily Hoffman by Michael Finkle Click here; Deron Drumm by Paul Acker Click here; Mark Davis by Bluebird Click here; Linford Gayle by Khatera Aslami Click here; Kinike Bermudez by Celia Brown Click here; Pat Risser by Steve Stone Click here; Janet Foner by Lauren Spiro Click here; Jay Mahler by Sally Zinman Click here. If you are interested in recording a short video in memory of others who have died since these videos were recorded, please contact Judene Shelley at jshelley@gmail.com. 

The April 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "How to Live With the Anxiety and Grief You Can’t Escape: There are ways to help alleviate the very worst of your stress, whether through support, sleep or radical self-care," click here (Courtesy of the Surviving Spirit newsletter). For "Find More Ways to Be an Outsider: Doing so may feel painful, but it’s one of the best investments you will ever make," click here. For "The Dangers of Self Hatred," click here.

The April 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Debunking the 'Excited Delirium' Diagnosis for Deaths in Police Custody—Report breaks down how the term was created and misused for years," click here (Courtesy of Marie Verna). For "Colorado police department uses mental health professionals to help deescalate certain 911 calls," click here. For "The hidden billion-dollar cost of repeated police misconduct: More than $1.5 billion has been spent to settle claims of police misconduct involving thousands of officers repeatedly accused of wrongdoing. Taxpayers are often in the dark," click here. For "What you need to know about the cost of police misconduct: Key takeaways from The Post’s investigation into payments at some of the nation’s largest departments," click here. For “Too Many Locked Doors: The Scope of Youth Confinement is Vastly Understated,” click here. For "Majority of L.A. County sheriff’s deputies did not complete training requirements, audit says," click here. For "Inmates leaving gangs, stripping tats for jobs, better lives," click here. For "Guaranteed income experiment provides hope for formerly incarcerated: The program is being tested in Gainesville, Florida," click here. For "Editorial: ‘Zero bail’ and release from jail are not the same thing," click here. For "Ex-inmates can get up to $8K for each year they didn’t get special ed classes in N.J. prisons, court says," click here. For "How Debevoise Scrubbed 1,000 Years From ‘Unjust’ Prison Terms," click here. For "Criminal defendants stuck in yearslong legal limbo with incompetency findings: According to the Colorado Department of Human Services, 1,567 defendants were referred to the state last year for competency restoration. That’s nearly triple the rate it was in 2017, when just 553 defendants entered state custody for treatment," click here. For "California Prepares for a ‘Future Without Youth Prisons,’" click here. For (video) "The Dehumanizing Theater of the Parole Process: In 'The Interview,' directed by Jon Miller and Zach Russo, formerly incarcerated people describe what it’s like trying to convince a group of strangers that they are more than the worst thing they ever did," click here. For "Death row inmate seeking new trial in Atwater murders gets access to withheld records," click here. For "Abolish the Debt Sentence," click here. For "Waiting for a Second Look: People given lengthy sentences at a young age are seeking relief through D.C.’s landmark sentencing reforms, but they face hurdles due to the pandemic and a dysfunctional federal prison system," click here. For "Police Officer Kills Dog for Walking Toward Him With Tail Wagging: Bradley Brock says his dog Moose was walking toward a police officer wagging its tail when the officer gunned his pet down," click here. For "Restorative Justice Group Calls For Sweeping Reform Of Women’s Prison System: The Women’s Prison Project helped introduce 12 bills they say would improve the state’s prison system for women," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Barnard Center for Research on Women to Host (Virtual) Scholar and Feminist Conference

From February 23 through April 12, 2022, the Barnard Center for Research on Women (BCRW) will present its 47th annual Scholar and Feminist Conference. Entitled “Living in Madness: Decolonization, Creation, Healing,” the conference will comprise five virtual events, four of which are in March and April. "This conference will explore experiences of madness, disability, survival, and refusal through the frameworks of mad studies, disability justice, and artistic practice," BCRW writes. "We ask how structural violence has both created maddening conditions and established the terms by which survivors are pathologized, criminalized and alienated." For more information and to register for upcoming presentations, the first of which is March 8, 2022, at 6:30 p.m. ET, click here. (Courtesy of Andrew Phelps)

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life.​ You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with ​Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

2022 Virtual PEER-A-PALOOZA Peer Summit to Be Held May 7

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host PEER-A-PALOOZA on Saturday, May 7, 2022, from 1 p.m. to 5 p.m. CST via Zoom. "Our 2022 theme is: Creating a Zest for Life Through Growth, Resilience, Recovery and Community," the organizers write. "We believe that unifying talented peers of diverse backgrounds provides a unique opportunity to interact and propose stronger solutions together." Registration is $25; it's free for peer specialists. Workshop topics include How to Address Isolation, Autism Spectrum and Alternative Treatments, Personal Experiences, and a Writing Workshop. To register or to sign up as an exhibitor or sponsor, click here.

These Three National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

On April 28, AD4E Will Host a Prominent British Journalist and a Distinguished British Psychologist to Discuss Their New Books

On April 28, 2022, at 2 p.m. GMT, A Disorder for Everyone (AD4E) will welcome Johann Hari (author of Stolen Focus: Why You Can't Pay Attention) and Lucy Johnstone (author of A Straight Talking Introduction to Psychiatric Diagnosis) to talk about their new books. "Crucial Conversations is a series of 'A Disorder for Everyone' online events in which authors of recently published books that contribute to challenging the culture of diagnosis and disorder are invited to talk about their work. There will be audience questions and a panel discussion afterwards." When you register, AD4E requests a donation based on what you can afford. For details, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Mad In America Continually Posts Research Studies Seeking Participants

Mad in America continually posts research studies that are looking for participants. The studies change as old ones close and new ones are launched. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here 

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 10, April 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

Key Update, March 2022, Volume 18, Number 9

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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What Is a "Mental Health Problem"? Some Researchers Want Service Users to Decide.

Researchers in the UK and Switzerland scoured more than 100 publications that mentioned mental health problems, and identified some 34 different models: biological, psychological, sociological, and others. But they found no criteria that could be used to prioritize one model over another. Because understanding mental health issues is crucial to diagnosis and treatment, the researchers suggest that "this debate needs greater input from non-medical professions and service users," Science Daily reports. One researcher said: "Uncertainties about what constitutes a mental health problem have become more pronounced in recent decades due to the increase in the number of mental health conditions being identified in the manuals which are used by general practitioners and psychiatrists." Another researcher noted: "One way out...could be to ask service users which model they feel to be most appropriate for them and their treatment. The consequence, however, would be that non-medical models might become more important than clinicians would be willing to accept." For the Science Daily article, which includes a link to the study (in the Journal of Mental Health), click here.

Judi's Room Panel: "Celebrating the Accomplishments & Embracing the Challenges of African American Leadership in our Movement"

On March 2, 2022, from 6 p.m. to 8 p.m. ET, MindFreedom International and "I Love You, Lead On" will present a "Judi's Room" event on "Celebrating the Accomplishments & Embracing the Challenges of African American Leadership in Our Movement." Featured speakers are Cindi Fisher, Jonathan P. Edwards, and Yvonne Z. Smith; Celia Brown will facilitate. "African American activists/leaders within the CSX movement share their firsthand experience of systemic racism and how they have been working to bend the arc toward justice. They will address the need for change by sharing experiences (accomplishments and lessons learned), and how these experiences relate to other movements such as prison abolition, Black Lives Matter (BLM), and school to prison pipeline." For more information and to register, click here.

"New Research Suggests 911 Call Centers Lack Resources to Handle Behavioral Health Crises"

Although many cities now field mobile crisis teams--often based on CAHOOTS in Eugene, Oregon--the system only works if 911 operators are knowledgeable enough to be able to funnel behavioral health crisis calls away from police to these teams. "The best mental-health responders in the world can help only if emergency dispatchers know when to deploy them," The Atlantic recently noted. But a "2021 Pew Charitable Trusts survey of 911 centers found that staff are seldom trained on mental-health issues and have few options for mental-health responses." When police get involved, the crisis may end in tragedy. (For evidence, click here and click here.) Even without a tragic ending, police often take people to institutions, including jails, "that do little for their mental health while also giving them the stigma, and real consequences, of a criminal record. 'You couldn’t go out of your way to invent a system that was less useful,” says Mike Gleason, who as Eugene’s city manager helped launch CAHOOTS in 1989." For "The Stumbling Block to One of the Most Promising Police Reforms" in The Atlantic, click here. For the Pew Charitable Trusts survey, click here.

Barnard Center for Research on Women to Host (Virtual) Scholar and Feminist Conference

From February through April 2022, the Barnard Center for Research on Women (BCRW) will present its 47th annual Scholar and Feminist Conference. Entitled “Living in Madness: Decolonization, Creation, Healing,” the conference will comprise five virtual events, four of which are in March and April. "This conference will explore experiences of madness, disability, survival, and refusal through the frameworks of mad studies, disability justice, and artistic practice," BCRW writes. "We ask how structural violence has both created maddening conditions and established the terms by which survivors are pathologized, criminalized and alienated." For more information and to register for upcoming presentations, the first of which is March 8, 2022, at 6:30 p.m. ET, click here. (Courtesy of Andrew Phelps)

TU Collaborative Shares Free "Resources for Remote Community Participation"

"During this time of physical distancing, we are sharing strategies to make you aware of opportunities for participation," the Temple University Collaborative on Community Inclusion writes. "Many of these resources for staying connected while staying apart require internet access, which we understand can be a barrier to participation for many people." The 20-page document includes "a review of free and low-cost opportunities to access the internet and some options for learning how to use the internet effectively. Next, we discuss opportunities for community participation with a basic phone, with no need for a smartphone or internet access. This document concludes with a running list of online resources for community participation...These tips are helpful for anyone who wants to increase their community participation while staying at home, for any reason." For the free document, click here.

Free Webinar: "Reclaiming Employment: Self Employment Opportunities and Education"

On March 29, 2022, at 2 p.m. ET, Doors to Wellbeing will sponsor a free, one-hour webinar on "Reclaiming Employment: Self Employment Opportunities and Education," presented by Laysha Ostrow. "Reclaiming Employment® is an interactive virtual platform that provides self-employment education and support for people with mental health-related challenges around work. It was designed by Live & Learn, Inc., based on research and personal experiences with business development, to empower peers to start and sustain self-employment. This webinar will walk attendees through the platform, explain its conceptual development and offerings, and show how peers seeking to pursue self-employment can access support." For more information and to register, click here.

"‘Tokenistic’ Service-user Involvement Must Be Addressed, Says Report"

A new report by Shaping Our Lives, a disabled people's and service-user network, "highlights the importance of involving disabled people in planning and delivering services, but also the barriers they face when trying to share their lived experience," Disability News Service (DNS) reports. "The Tickboxes and Tokenism report says the inclusive involvement of disabled people and members of other marginalized communities in such activity is 'critical' in promoting 'system and social change,'" DNS writes. Shaping Our Lives notes: "This report is the result of a survey we ran in 2021 to explore people’s experiences of service user involvement...The report contains recommendations for those who want to run truly inclusive, meaningful involvement to shape their services and make them better for everyone." For the DNS article, click here. For the report, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life.​ You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with ​Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

"Is Electroconvulsive Therapy for Depression More Effective Than Placebo?"

According to this "Systematic Review of Studies Since 2009," the answer is No. Of the 91 studies reviewed, "only 2 aimed to evaluate the efficacy of ECT," the authors write. "Both were severely flawed. None of the other 89 produced robust evidence that ECT is effective for depression, primarily because at least 60% maintained ECT participants on medication and 89% produced no meaningful follow-up data beyond the end of treatment. No studies investigated whether ECT prevents suicide." In addition, "[o]nly 4 placebo-controlled studies have ever produced data beyond the end of treatment, none of which have found any advantage for ECT over placebo." The authors concluded: "There is still no evidence that ECT is more effective than placebo for depression reduction or suicide prevention. Given the well-documented high risk of persistent memory dysfunction, the cost-benefit analysis for ECT remains so poor that its use cannot be scientifically, or ethically, justified." For the study, published in Ethical Human Psychology and Psychiatry, click here.

2022 Virtual PEER-A-PALOOZA Peer Summit to Be Held May 7

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host PEER-A-PALOOZA on Saturday, May 7, 2022, from 1 p.m. to 5 p.m. CST via Zoom. "Our 2022 theme is: Creating a Zest for Life Through Growth, Resilience, Recovery and Community," the organizers write. "We believe that unifying talented peers of diverse backgrounds provides a unique opportunity to interact and propose stronger solutions together." Registration is $25; it's free for peer specialists. Workshop topics include How to Address Isolation, Autism Spectrum and Alternative Treatments, Personal Experiences, and a Writing Workshop. To register or to sign up as an exhibitor or sponsor, click here.

"How to Report with Care on Disability," by the Disability Reporting Fellow of The NY Times

Amanda Morris, who reports on disability for The New York Times, writes that her goal is to "shift the way that the news media...writes about disabled people. Some of my work dismantles long-held stigmas and negative attitudes that many people have toward disability—such as the flawed idea that having a disability is inherently bad or is limiting." Describing herself as "a hard-of-hearing woman," she always asks those she interviews if they prefer identity-first or person-first language. And "[a]ny time I’m writing an article that affects a group of people with certain conditions or disabilities, I always reach out to multiple people living with the condition and include their voices in the story." Taking a stand against what has been called "inspiration porn," she writes: "Reducing disabled people’s lives into simplistic narratives about overcoming barriers to do ordinary things often misses the fact that society created those same barriers in the first place." For the article, click here.

"COVID-19 Vaccination Boosts Mental Health Along with Immunity, Study Finds," while "Covid Patients May Have Increased Risk of Developing Mental Health Problems"

"Getting vaccinated for COVID-19 measurably improved the psychological well-being of participants in the Understanding Coronavirus in America study, a large longitudinal look at the impact of the pandemic on individuals in the United States. Vaccination was associated with declines in distress and perceived risks of infection, hospitalization, and death. The study, appearing in the American Journal of Preventive Medicine, validates the intuitive but previously unanswered questions of whether becoming vaccinated reduces perceived risks associated with COVID-19, and whether the reduction of these fears leads to improvements in mental health and quality of life." For the Science Daily story, click here. At the same time, "[a] new, large study found that in the year after getting Covid, people were significantly more likely to be diagnosed with psychiatric disorders they hadn’t had than people who didn’t get infected," The New York Times reports. For that story, click here.

Trauma Survivors May Admit to Crimes, Even When They Are Innocent, Experts Say

"Psychological research has shed light on why police sometimes misjudge innocent people as guilty, why innocent people sometimes confess to crimes they didn’t commit, and why stereotypes sometimes produce erroneous medical judgments," according to Psychology Today. The magazine focuses on trauma survivor Melissa Lucio, who was convicted of killing her 2-year-old daughter despite her likely innocence. For the Psychology Today article, click here. For "How Melissa Lucio Went From Abuse Survivor to Death Row: Why some trauma victims are more likely to take responsibility for crimes, even when they may be innocent," click here. And for "As state executions ramp up, prosecutors pledge changes in handling of death penalty cases: 'We have all now arrived at the same inexorable conclusion: Our country's system of capital punishment is broken,' said a joint statement signed by 56 prosecutors," click here. For the Free Melissa Lucio campaign, click here.

Latest Edition of Café TA Center's Newsletter Focuses on Supported Education Survey

"The latest edition of CAFE TAC’s Focus 2.0 newsletter is here! This time, we share some information on the ongoing National Supported Education Database survey that CAFE TAC is working on along with its partner national consumer and consumer-supporter TA centers. Not sure what supported education is or how it works? You can find a quick overview of this promising practice too! We also share an update on our efforts to connect employers and people with mental health conditions, and share a survey where you can let us know about your employment experiences and needs. Finally, our 'Capacity Corner' column returns with a look at how an Executive Director and Board Chair can work together to help a peer-run organization succeed." For the latest Focus 2.0, click here.

These Three National Mental Health Conferences (Among Others) Are Coming Up in 2022

The annual meetings of the American Psychiatric Association, Mental Health America, and the International Conference on Trauma and Mental Health will take place in 2022. The American Psychiatric Association 2002 annual meeting, to be held both in-person in New Orleans May 21-25 and online June 7-10, will focus on the theme of "Social Determinants of Mental Health." For more information, click here. The theme of Mental Health America's 2022 annual conference, to be held June 9-11 at the Hyatt Regency on Capitol Hill and live-streamed, is "Forward Together: Recovery, Healing, Hope." For more information, click here. The International Conference on Trauma and Mental Health will take place November 3-4, 2022, in San Francisco. For more information, click here. (Note: See FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!--below the Criminal Justice Digest--for more conferences, including NARPA [deadline for workshop proposals: March 31; conference October 26-29], A Disorder for Everyone: AD4E (April 28), Peerpocalypse (March 14-17), and the International Conference on Psychiatric Drug Withdrawal (May 6-7).

US News & World Report  Covers "Mental Health Support Groups: Pros and Cons." (Peer Support Is an Evidence-Based Practice.)

"Support groups can provide a safe place to connect and learn to cope. Consider these pros and cons before joining a group," U.S. News & World Report posted on February 24, 2022. Among the "pros" is that support groups are normally led by people with lived experience, "which can be inspiring and comforting to those who are struggling." The "cons" include the difficulty that some people may have in revealing their personal mental health challenges to a group. For the article, including other pros and cons, click here. Meanwhile, the Centers for Medicare & Medicaid Services (CMS) declared peer support an evidence-based practice in 2007. In a letter to state mental health directors, CMS wrote: “CMS recognizes that the experiences of peer support providers, as consumers of mental health and substance use services, can be an important component in a State’s delivery of effective treatment." For the CMS letter, click here. For more information about the value of peer support, click here. For Depression and Bipolar Support Alliance support groups, click here. For Hearing Voices Network USA support groups, click here.

Three Articles in the Mainstream Media Highlight the Value of Peer-Support Programs

Three articles, published in recent months, cover peer-support programs in New York, North Carolina, and Alaska. "...[A]n innovative community-based behavioral health program--EnTRy (Enhanced Treatment and Recovery)--is bringing novel peer-to-peer counseling, telehealth, advanced psychiatric care, and early intervention programs for youth and young adults to Southeast Brooklyn." The program, based at the Family Health Centers at NYU Langone, is made possible by a $5 million SAMHSA grant. (Click here.) A second article covers "[a] peer-run center in North Carolina [that] offers alternative for psychiatric care. At Retreat @ the Plaza, guests use their experiences with mental illness, homelessness and domestic violence to help one another regain their footing." (Click here.) A third article covers a peer-run drop-in center in Fairbanks, Alaska, where "members say ‘you can just be you.’" (Click here.)

"We've All Wondered What Animals Could Say If They Could Speak..."

"In his funny and unique comic series called 'They Can Talk,' [artist Jimmy Craig] shows what would happen if animals started talking. He also puts his very own unexpected twists into his comics, making them a lot more memorable. Although he draws mostly cats and dogs, he includes other critters like birds, bugs, reptiles, and fish. Check out some of his hilarious work below!" For the comics, click here.

The March 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "Why We All Need to Have More Fun: Prioritizing fun may feel impossible right now. But this four-step plan will help you rediscover how to feel more alive," click here. For "Are You Dreaming Too Big? Lifelong, hard-to-achieve goals might not make you happier. Small steps will," click here. For "You Can Learn to Love Being Alone: Solitude doesn’t have to feel lonely. It can be restoring and refreshing with a little practice," click here. For "How to feel more pride: Get comfortable owning and enjoying your achievements, big and small, and you will nourish your mental health and self-esteem," click here. For "Hard on Yourself? 4 Emotionally Abusive Habits to Replace: An emotionally abusive inner critic can take a toll on your mental health. When your self-talk is hurtful, here’s how to flip the script," click here.

The March 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Why It’s So Impossible to Get Decent Mental Health Care in Prison,” click here. For "The first shots wounded their 16-year-old. His parents wonder: Did police need to fire the second round?" click here. For "‘I can’t let him out on society,’ sheriff says: Murder suspect found incompetent to stand trial remains in jail," click here. For "Prison And Jail Reentry And Health: People reentering communities after incarceration are sicker than the general population and face barriers to accessing health care and other supports. Along with criminal justice reform, policy makers must work to improve evidence-based reentry programming that supports healthy people and communities," click here. For "Smoke-filled cells. Triple-digit temperatures. Chest-deep water. People behind bars can’t flee when climate disasters strike. The Intercept mapped climate risks for 6,500 detention facilities. In some already miserable places, the suffering is set to intensify," click here. For "Opinion: With Amir Locke’s death, ‘officer safety’ claims another victim," click here. For "A sentence that never ends: How probation kept a Pennsylvania man locked up through the pandemic — even after his release date," click here. For "Connecting inmates with health and social care upon reentry can help end the prison cycle: A growing number of transition programs are focused on healthcare planning–helping formerly incarcerated individuals with enrollment in Medicaid, and supporting them to access covered programs to treat medical and physical health conditions," click here. For "Here's Why Abolishing Private Prisons Isn't a Silver Bullet: The vast majority of prisoners are held in publicly run prisons. But the private sector affects their incarceration in different ways," click here. For "Prosecutors push U.S. to limit life sentences for juveniles," click here. For "State of Justice," the February 25, 2022, newsletter of the Council of State Governments Justice Center, click here. For "Who Writes the Rules for Cops? After years of high-profile shootings, policing in America is under more scrutiny than at any time in our history. Meanwhile, one company—which sells policy handbooks to police departments across the country—seems determined to give officers cover," click here. For "Opinion: Call solitary confinement what it is: Torture," click here. For "New Pardon Board Official Wants to Expand Clemency in Pennsylvania, Where Thousands Are Sentenced to Die in Prison: Celeste Trusty, a longtime activist for sentencing reform, speaks with Bolts about her recent appointment to the state’s clemency system, and her desire to 'help liberate people,'” click here. For "He got a second chance after 27 years in prison. Then he went missing. Kevin Flythe, now 52, has serious mental and physical disabilities. His attorneys say the Bureau of Prisons released him without a plan," click here. For "Fitness trainer uses his decade behind bars to inspire clients and help former inmates transform their lives," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

NARPA Issues Call for Papers for Its 2022 Conference

The National Association for Rights Protection and Advocacy (NARPA) 2022 Annual Rights Conference, to be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey, has issued its call for workshop proposals. The deadline is March 31; selected presenters will be notified by April 30. "NARPA is seeking proposals which address strategies, ideas, programs, and emerging practices. Workshops [of approximately 90 minutes] will be selected based on adherence to the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice"--"with an emphasis on diversity and multicultural perspectives." For more information, contact NARPA at narpa4rights@gmail.com or 256.650.6311. "Mail proposals to NARPA, P.O. Box 855, Huntsville, AL 35804 or e-mail to narpa4rights@gmail.com. Electronic submissions preferred." For the Call for Papers, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

On April 28, AD4E Will Host a Prominent British Journalist and a Distinguished British Psychologist to Discuss Their New Books

On April 28, 2022, at 10 a.m. EDT (2 p.m. GMT), A Disorder for Everyone (AD4E) will welcome Johann Hari (author of Stolen Focus: Why You Can't Pay Attention) and Lucy Johnstone (author of A Straight Talking Introduction to Psychiatric Diagnosis) to talk about their new books. "Crucial Conversations is a series of 'A Disorder for Everyone' online events in which authors of recently published books that contribute to challenging the culture of diagnosis and disorder are invited to talk about their work. There will be audience questions and a panel discussion afterwards." When you register, AD4E requests a donation based on what you can afford. For details, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com.

(Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 9, March 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, February 2022, Volume 18, Number 8

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions but are still relevant. These include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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"Major Review Finds Limited Effectiveness for Medication and Therapy"

"Most mental health treatments are marginally better than placebo; therapy for OCD seems to be the exception." This is how Mad In America sums up a new study, in World Psychiatry, evaluating the effectiveness of medication, therapy, and combined treatments. The researchers--affiliated with universities in Germany and Austria, as well as with Stanford University School of Medicine--considered "102 meta-analyses, encompassing 3,782 RCTs [Randomized Controlled Trials] and 650,514 patients," covering a wide array of diagnoses. "They found that both medication and therapy had limited efficacy in treating these problems," Mad In America reports. To overcome research biases that might cause treatment effectiveness to be overestimated, the researchers measured how effective (original emphasis) a treatment is, rather than just whether it is effective or not. Exceptions to the evidence of the limited effectiveness of most treatments included the finding that cognitive behavioral therapy (CBT) was far better than medication not only for OCD but also for PTSD. (However, most people diagnosed with OCD were also taking medication, so this could be considered a combined treatment, the researchers noted.) Meanwhile, a "compelling negative finding was that antipsychotic drugs were not very effective at treating schizophrenia.” For the Mad In America article, click here.

Free Webinar: “Preventing and Managing Suicide in an Outpatient Setting”

On February 7, 2022, at 3:30 p.m. ET,  NASMHPD (National Association of State Mental Health Program Directors) is sponsoring a free webinar presented by Dr. Laura Leone, an Integrated Health Consultant for the National Council for Mental Wellbeing. "Following this 90-minute webinar, participants will be able to register for a more intimate dialogue with Dr. Leone on February 11, 2022, at 3 p.m. ET," NASMHPD writes. This 60-minute "intimate dialogue" with Dr. Leone will include "a smaller number of registered webinar participants who will be able to ask more detailed questions and engage her more comprehensively." For more information about the webinar and Dr. Leone, and to register, click here. (Courtesy of Judene Shelley)

Part 1: Community Crisis Response Needs "A Better Way," NASMHPD Says

"A comprehensive and integrated crisis network is the first line of defense in preventing tragedies of public and patient safety, civil rights, extraordinary and unacceptable loss of lives, and the waste of resources," writes NASMHPD in the introduction to its free, eight-page fact sheet: "Taking the Lead: Investing in Community Crisis Response/Continuum." "There is a better way...Research has demonstrated the effectiveness of the core elements of systemic quality crisis care as being high-tech crisis call centers, [a] 24/7 non-law enforcement mobile crisis team, crisis stabilization centers, and essential principles and practices governing care pathways." To download the free fact sheet, click here. (Courtesy of Anne Hillman of Mental Health Mosaics) (See also below.)

Part 2: City of New York Is Sued Over Its Policy of Sending Police to Respond to Mental Health Crisis Calls

In a related story, on December 29, 2021, "a broad coalition of public interest groups and people with mental disabilities filed a class action lawsuit against the City of New York, then-Mayor Bill de Blasio, and then-Police Commissioner Dermot Shea for violating New Yorkers’ constitutional and civil rights by sending police officers—rather than trained health professionals and peers with lived mental health experience—to respond to thousands of mental health crises each year. The case challenges the legality and constitutionality of the City’s policies, which have resulted in unlawful detentions, excessive force, serious injuries, forced hospitalizations, and 19 deaths of people with disabilities at the hands of the police in the last six years alone." For the press release, click here.

Part 3: "Roll-out of 988 Threatens Anonymity of Crisis Hotlines"

"Even after their own advisory committee criticized call tracing, leaders of the National Suicide Prevention Lifeline (NSPL) have been lobbying government for cutting-edge mass surveillance and tracking technology. Privacy experts are raising concerns." This is the teaser on a January 29, 2022, Mad In America article. At issue is the NSPL's "so-called 'Active Rescue' policy." At a meeting in August 2020, four Lived Experience Committee (LEC) representatives "called 'Active Rescue' a 'euphemism' for what was usually going on—aggressive police interventions followed by forced psychiatric detentions....The LEC members recommended 'removing police involvement entirely' from the NSPL’s practices." Susan Mizner, director of the ACLU Disability Rights Program, said, “If someone has reached out to 988, that means that they’re open to help, and they’re asking for help. We don’t believe that help should come in the form of someone who carries a gun." For the article, click here.

Part 4: Brookings Institution Weighs In on 988

Although Media Bias/Fact Check rates the Brookings Institution "very high" on its "Factual Reporting" scale, Brookings' recent reporting on 988 makes no mention of the serious problems covered in detail by Mad In America. Instead, in a recent blog--"Building a Sustainable Behavioral Health Crisis Continuum"--the research organization considers 988 uncritically. Although the blog accurately notes that "[h]istorically, behavioral health crises...have been responded to in a fragmented manner, with default reliance on law enforcement, hospitals, and jails," it adds that "[t]he creation of the 988 hotline has prompted a great deal of hope that behavioral health crises will be handled more effectively, safely and efficiently than they are in our current emergency response system." Based on the challenges outlined by Mad In America, this seems unlikely at the present time. For "Building a Sustainable Behavioral Health Crisis Continuum," click here.

Global Disability Summit 2022 to Be Held (Mainly Virtually) in Norway on February 16-17

The International Disability Alliance (IDA), the Government of Norway, and the Government of Ghana will host the second Global Disability Summit (GDS22) on February 16-17, 2022. The Summit, mainly virtual, will mobilize efforts for the implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD), the principle of ‘Leave No One Behind’ (LNOB), and building back better and more inclusively regarding Covid-19." For more information, click here. (Courtesy of Kevin Fitts)

NARPA Issues Call for Papers for Its 2022 Conference

The National Association for Rights Protection and Advocacy (NARPA) 2022 Annual Rights Conference, to be held October 26-29 at the Doubletree Newark Airport in Newark, New Jersey, has issued its call for workshop proposals. The deadline is March 31; selected presenters will be notified by April 30. "NARPA is seeking proposals which address strategies, ideas, programs, and emerging practices. Workshops [of approximately 90 minutes] will be selected based on adherence to the NARPA mission--"to support people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity and choice"--"with an emphasis on diversity and multicultural perspectives." For more information, contact NARPA at narpa4rights@gmail.com or 256.650.6311. "Mail proposals to NARPA, P.O. Box 855, Huntsville, AL 35804 or e-mail to narpa4rights@gmail.com. Electronic submissions preferred." For the Call for Papers, click here.

Advocates Dispute the Basis of a Recent Article About Factionalism in Mental Health Policy-Making

A recent Psychiatric Services article--"Rapprochement and Reform: Overcoming Factionalism in Policy Making for Serious Mental Illness"--attempts (according to the abstract) to "illustrate how factionalist advocacy (emphasis added) causes advocates and policy makers to fail in their duties to represent and develop policy in support of people with serious mental illness." However, in a tweet by a co-author of one of the three commentaries solicited by the publication, Nev Jones, PhD, calls readers' attention to the "[s]ubtle but real a priori choices...about whose perspectives & what perspectives ‘count.’" She added, "We all want to see greater ‘equity,’ but how to get there [&] how to address a history of exclusion that has become encoded in policy & research are questions that remain." A co-author of the original paper, Dominic A. Sisti, PhD, called all three commentaries--published simultaneously with his article--"excellent." For "Rapprochement and Reform: Overcoming Factionalism in Policy Making for Serious Mental Illness," by William R. Smith, MD, PhD, and Dominic A. Sisti, PhD, click here. For "Overcoming Factionalism in Serious Mental Illness Policy Making: A Counter-Perspective," by Kendall Atterbury, PhD, and Nev Jones, PhD, click here.

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.    

Submissions Are Sought for a Special Issue on Open Dialogue

"This collection, named 'Open Dialogue around the globe,' will be published in Frontiers in Psychology," Mad In America writes. "It will include papers and contributions on Open Dialogue practices, outcomes, impact, and future directions worldwide. Peers, survivors, users, clinicians, and researchers are all welcomed to provide diverse set of perspectives. If you are interested in this opportunity, please contact Raffaella Pocobello (raffaella.pocobello@istc.cnr.it) and Sebastian von Peter (sebastian.vonpeter@mhb-fontane.de). The deadline for the abstract submission is February 25 2022. The final deadline for manuscript submission will be September 30 2022." For more information, click here.

A German City Has Created Sleep Pods for Homeless People; Tiny Houses Offer a More Elaborate Solution

Ulm, Germany, has installed sleeping pods across the city to provide shelter for people who are homeless. The windproof, waterproof pods, called Ulster Nests, are made from wood and steel and are fitted with solar panels. They're designed as an emergency shelter for up to two people. "They've been fitted with sensors which can monitor temperature, humidity, smoke and carbon dioxide levels and an electronic verification system so those using it can lock the capsule from the inside. They also have lighting, an alarm signal buzzer and a ventilation system," according to a BBC article. When a pod door opens, it "triggers a motion sensor which lets social workers who check the pods know they've been used so they can get them cleaned, and so they can also provide help to those who might need it." For the BBC article, click here. For another answer to housing homeless people, see "shipping containers [that] unfold into $50,000 tiny homes that can be stacked into custom buildings," covered in the October 2020 edition of the Key Update. For the story, click here. For a video demonstrating how the tiny houses are erected, click here.

"Ethnic Minorities Experience Persisting Inequality in Treatment for Mental Health Problems," a British Study Has Found. The Same Inequities Persist in the US.

Research recently published in the British Journal of Psychiatry "found that people from all ethnic minority groups were less likely to receive a range of interventions for problems like depression or anxiety compared to White British people." The investigators also found "that the inequality gap widened [between 2007 and 2014] for Black people with these conditions." Calling the lack of appropriate help for common mental health conditions provided to people from ethnic minority backgrounds "an enduring pattern," the study's "first author" noted that this was "'in contrast to stark overrepresentation, particularly for Black people, in being detained under the Mental Health Act at points of crisis.'" In a related story, on January 18, 2021, the American Psychiatric Association apologized to Black, Indigenous, and People of Color (BIPOC) for the harm it has caused--and continues to cause--them. For the APA press release, reported in the February 2021 edition of the Key Update, click here. For "The Historical Roots of Racial Disparities in the Mental Health System," click here. For the Medical Xpress story reporting on the British study, click here.

Free Webinar: "Community Inclusion and Recovery: How Community Inclusion Helped Me"

In its ongoing monthly series of free, one-hour webinars, Doors to Wellbeing will sponsor "Community Inclusion and Recovery: How Community Inclusion Helped Me" presented by Natalie Klaus-Rogers, on February 22, 2022, at 2 p.m. ET. "Using the presenter’s personal journey of working to get off of disability benefits after 20 years for permanent full-time employment, this webinar discusses the importance of community inclusion for peers with mental health challenges. Sometimes stigma, community mental health care, and lack of self-confidence can make community participation more difficult for people with mental health challenges. However, community inclusion is key to being well, getting well, and staying well." For more information and to register, click here.

TU Collaborative Publishes "The 2022 Guide to Getting Out of the House"

"While the past two years of the COVID-19 pandemic have impacted the way we spend time with one another, this 2022 calendar is focused on getting out of our homes and connecting with the people and places in our communities," the Temple University Collaborative on Community Inclusion writes. "As we head into 2022, we hope that this calendar can help you to maintain meaningful community connections and participation!" To download the free calendar, click here. And for the TU Collaborative #CollabChats podcast series, which "shares the latest cutting edge community inclusion research from the Temple University Collaborative and partner centers,” click here.

"New NICE Guidelines for ECT Are Dangerously Inadequate, Say 50 Patients and Professionals"

NICE (National Institute for Health and Care Excellence), a British nonprofit that provides "national guidance and advice to improve health and social care," recently issued new ECT guidelines that completely ignore the concerns NICE had raised in 2003 and again in 2019, in which it noted the lack of evidence justifying the use of ECT (electroconvulsive treatment). In response, "an open letter from 50 people, including 18 ECT patients and relatives, 12 Psychiatrists and 7 Professors, has been sent to NICE, and the [British] government, calling for the ECT section of the draft guidelines to be ‘radically rewritten’ to avoid putting patients’ safety at risk," and listing the "10 most important flaws in the draft guidance," a Council for Evidence-Based Psychiatry blog reports. For the blog, which includes links to the letter, and to other relevant information, including a "2021 audit of ECT use in England [that] found multiple failings, putting patient safety at risk," click here.

"What Doesn't Kill You Makes You Stronger"? Guess Again.

"Repeated exposure to major disasters does not make people mentally stronger, a recent study found: individuals who have been repeatedly exposed to major disasters show a reduction in mental health scores," Science Daily reports. According to a recent Texas A&M University study, "the more experience the individuals had with such events, the lower their mental health was." The researchers studied the Houston area, which had been affected by many of the 33 major natural disasters in Texas from 2000 to 2020, in addition to manmade industrial emergencies. Using a short survey to assess respondents' mental and physical health, "the team found that when individuals experienced two or more events over the past five years, their MCS [Mental Component Summary] averages fell below the expected national levels. The results of the study...underscore the need for public health interventions targeted toward these individuals as well as the communities where they reside." For the Science Daily article, click here.

How Do You Know When It's Time to Quit Therapy?

A recent article in Teen Vogue suggests that knowing when to quit therapy "depends, in part, on the problems at hand and how large they loom over a person's life...But knowing when to stop therapy is also dependent on what a patient's initial objectives were for counseling...and how close they’ve gotten to achieving them." Meanwhile, a 2013 article in The New York Times suggests that, among other reasons to quit, "if you have gained from therapy what you set out to, if you feel you’ve developed skills to help resolve problems and conflicts, if you’ve learned to cope with stress, and if you have gotten past the things that have been holding you back, then the time has come to graduate from therapy, and you can do so with confidence." And a recent review of The Zen of Therapy, also in the Times, notes that "freedom lies ultimately not in understanding what happened to us, but in loosening our grip on it all...The goal...isn’t to reach the state of feeling glowingly positive about yourself and your life. It’s to become less entangled with that whole question, so that you get to spend your time on more meaningful things instead." For the Teen Vogue article, click here. For the 2013 NY Times article, click here. And for the Times book review, click here.

On April 28, AD4E Will Host a Prominent British Journalist and a Distinguished British Psychologist to Discuss Their New Books

On April 28, 2022, at 10 a.m. EDT (2 p.m. GMT), A Disorder for Everyone (AD4E) will welcome Johann Hari (author of Stolen Focus: Why You Can't Pay Attention) and Lucy Johnstone (author of A Straight Talking Introduction to Psychiatric Diagnosis) to talk about their new books. "Crucial Conversations is a series of 'A Disorder for Everyone' online events in which authors of recently published books that contribute to challenging the culture of diagnosis and disorder are invited to talk about their work. There will be audience questions and a panel discussion afterwards." When you register, AD4E requests a donation based on what you can afford. For details, click here.

Sylvia Caras, a Passionate Mental Health Advocate, Has Died at Age 86

Sylvia Caras, a tireless community organizer with lived experience, has died at age 86. A resident of Santa Cruz, California, Sylvia was active nationally and internationally. (In the World Health Organization's "Mental Health Policy and Service Guidance Package: Mental Health Legislation and Human Rights," she is among those who are thanked for their "expert opinion and technical input.") In a blog created by her family to celebrate her 70th birthday, many notable mental health advocates and other experts contributed warm comments. Among them was award-winning anthropologist and author Dr. Sue Estroff, who wrote, in part: "...Sylvia is one, if not THE, most informed, erudite, passionate scholar and advocate in the human right/disability/people with psychiatric diagnoses arena. I learn from her..." In "The Downside of the Family-Organized Mental Illness Advocacy Movement," published in Psychiatric Services in 1998, Sylvia wrote, "As a person with a disability, what I want is acceptance. When you speak of my life as a tragedy, you are robbing me of my dignity. I want you to see my potential..." For the article, click here. Rest in Power, Sylvia Caras.

"Artist with Anxiety Illustrates Mental Health Tips She Learns in Therapy"

"Illustrator Kate Allan was diagnosed with Generalized Anxiety Disorder as an adult. The identification not only validated her experience, but it has given her the opportunity to use her artistic talent to help herself and others in the quest for improved mental health. Allan has taken what she’s learned since entering therapy to create a mental health comic about mindfulness. 'Mindfulness,' she says on Twitter, 'can be useful for literally everyone, but I found it particularly helpful for anxiety—this exercise got me out of the house and functioning again.'” For Kate Allan's comic, click here.

The February 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "This Simple Piece of Equipment Could Elevate Your Workout: A jump rope can increase your agility and speed while giving you a great workout in half the time of a run," click here. For "Are You Dreaming Too Big? Lifelong, hard-to-achieve goals might not make you happier. Small steps will," click here. For "An 11-Minute Body-Weight Workout With Proven Fitness Benefits: Five minutes of burpees, jump squats and other calisthenics, alternating with rest, improved aerobic endurance in out-of-shape men and women," click here. For "The Year in Fitness: Shorter Workouts, Greater Clarity, Longer Lives: The most vital exercise science of 2021 provided a reminder that our bodies and minds can flourish, no matter our circumstances," click here.

The February 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "How Do You Clear a Pot Conviction From Your Record? It depends on where you live. (Californians, you’re in luck.)," click here. For "The Criminal Justice Issue Nobody Talks About: Brain Injuries--I know firsthand what it’s like to navigate the criminal justice system with a brain injury caused by domestic violence. I also live with the fact that an injury like mine can turn a victim into a perpetrator," click here. For "A Family-Centered Approach to Criminal Justice Reform" (105 pages), click here. For "Remedying injustice for the wrongfully convicted does not end when they are released," click here. For "In first day of civil rights trial, former David Wade prisoners describe years of solitary confinement, filthy living areas and poor mental health care," click here. For "The Artists of Sing Sing: At an exhibition hosted by Rehabilitation Through the Arts, subjects included Ta-Nehisi Coates, Nikole Hannah-Jones, global warming, and home," click here. For "State of Justice," a newsletter of the Council of State Governments Justice Center, click here. For "The Sentences That Create Us: Crafting A Writer’s Life in Prison," click here. For "Opinion: Can’t pay the court? Go to jail. Debtors’ prison lives on," click here. For "Make Prosecutors 'Earn' Immunity," click here. For "‘The Only Way We Get Out of There Is in a Pine Box’: Elderly, ailing and expensive, lifetime prisoners cost Louisiana taxpayers millions a year," click here. For "Video of 'Fight Night' at Rikers Jail Leads Judge to Find Cruel and Unusual Punishment: A New York state judge found video of guards ceding control of Rikers to gang leaders more than enough evidence to order the release of a pretrial inmate," click here. For "Walla Walla Mean Face: Dispatch From a Prison Transfer--Moving brings anxiety, disruption for incarcerated," click here. For "Shaker Heights, MetroHealth collaboration will send social workers on 911 calls to connect mentally ill with help," click here. For "Storycatchers Theatre Works With Incarcerated Youths To Tell Their Stories And Break Down Barriers," click here. For "After more than six years of federal oversight, dangerous problems persist in L.A. County jails," click here. For "Brave Behind Bars: Prison education program focuses on computing skills for women. MIT computer scientists and mathematicians offer an introductory computing and career-readiness program for incarcerated women in New England," click here. For "New data: The changes in prisons, jails, probation, and parole in the first year of the pandemic--Newly released data from 2020 show the impact of early-pandemic correctional policy choices and what kind of change is possible under pressure. But the data also show how inadequate, uneven, and unsustained policy changes have been: most have already been reversed," click here. For "Cost of Incarceration in the US," click here. For "Prison Food: A Curated Collection of Links," click here. For "Here's Why Abolishing Private Prisons Isn't a Silver Bullet: The vast majority of prisoners are held in publicly run prisons. But the private sector affects their incarceration in different ways," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (2) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

 “Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

 “Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion.

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 8, February 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, January 2022, Volume 18, Number 7

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

 The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department (directly below the monthly Criminal Justice Digest) includes items that are still relevant, including research studies still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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Revised DSM to Be Rolled Out in March, the APA Announces

The American Psychiatric Association will release a revised edition of its Diagnostic and Statistical Manual (DSM-5) in March, Psychiatric News reports. Among its changes are "a comprehensive review of the impact of racism and discrimination on the diagnosis and manifestations of mental disorders," and updates to "gender dysphoria" that reflect current concepts, such as changing "cross-sex medical procedure" to "gender-affirming medical procedure." However, some revised wording may be misleading. For example, according to the article, "neuroleptic" is "an anachronistic term that emphasizes side effects (emphasis added). It will no longer be used except in the case of the widely used 'neuroleptic malignant syndrome.'...” Instead, the DSM-5-TR will apparently use terms that may downplay the risk of such side effects as tardive dyskinesia. For the Psychiatric News article, click here. (Courtesy of Indigo Daya)

Is Online Gaming "the New Therapist’s Office"? Evidence Points in That Direction

"[O]nline multiplayer and single-player gaming can be healing in the hands of mental health professionals," according to a recent article in Wired. "Some research suggests that video games can be as effective—and potentially more effective—as other mental health interventions, particularly for anxiety...And sometimes it’s within a game world’s digital boundaries that patients may feel more safety and freedom to work through intense emotions." In a related article in myfitnessexercises.net, the president of Geek Therapy (a nonprofit that advocates for video games to be used in therapy) says that Minecraft and Fortnite especially lend themselves to therapeutic purposes. And a 2010 article in Review of General Psychology notes that “[r]ecent experience suggests that video games may facilitate therapeutic relationships, complement the psychological assessment of youth by evaluating cognitive skills, and elaborate and clarify conflicts during the therapy process." For the Wired article, click here. For the myfitnessexercises.net article, click here. For the Review of General Psychology article, click here.

Medicating Normal Will Begin a Three-Year Run on Public Television Across the US on Jan. 2, 2022 
Medicating Normal, "the untold story of what can happen when profit-driven medicine intersects with human beings in distress," will begin a three-year run on public television on January 2, 2022. “[The pharmaceutical industry] wants to disease-ify every single experience because they want to sell their pills to treat it,” said Anna Lembke, MD, of Stanford University Medical Center, who is quoted in the film. To find out when it airs in your part of the country, click here. (If you don’t see your local station listed, find your station and request via email that they air Medicating Normal.) For more information about the film, click here. (Courtesy of Berta Britz)

Free Webinar: "Discarded America: Rural America's Social Injustice and Mental Health Crisis"

On January 12, 2022, at 12 p.m. ET, The National Coalition for Mental Health Recovery (NCMHR) is presenting a free, 90-minute webinar on "Discarded America: Rural America's Social Injustice and Mental Health Crisis." The webinar will take a look at "the racial and social injustice in rural America through the eyes of people with mental health concerns who have been affected by law enforcement; educators; and public policy through elected officials." The NCMHR plans to create a documentary on this subject and requests support through a tax-deductible contribution. To contribute, click here. To register for the webinar, click here.

Free Webinar: "Core Competencies for Peer Crisis Support: Values, Practices, and Skills"

On January 12, 2022, at 1 p.m. ET, NYAPRS and the College for Behavioral Health Leadership will present a free webinar on "Core Competencies for Peer Crisis Support: Values, Practices, and Skills." The webinar will be presented by Eduardo Vega, who will share details about the "Growing Through" model of advanced peer crisis support training and will engage in a discussion with webinar attendees about "the integration of this model from the lens of public mental health and suicide prevention fields," NYAPRS writes. In addition, you can review Eduardo's December 15th presentation, "Intensity, Lived Experience and Crisis: Activating Peer Support for a Transformed Mental Health Crisis Response System," at this link. To register for the January 12th webinar, click here.

"Many States Aren’t Ready for a 988 Crisis Line. The Deadline Is Looming"

A federal law has mandated that, by July 16, 2022, every state in the U.S. must have installed the new 988 system, an alternative to calling 911 that could be a game-changer by dispatching trained staff rather than law enforcement to respond to behavioral health calls. "Calling 911 for people having mental health breakdowns has led to deaths that were avoidable, especially among people of color. Between 2015 and 2020, 1 in 4 people who were shot and killed by police had a mental illness; 1 in 3 were people of color," a recent STAT article reports. However, the article notes, "many states aren't ready...more than half the states haven't made any progress at all...If some states aren’t prepared to roll out 988, or have weaker infrastructure or support for it, the country could end up with a system that perpetuates inequities in mental health access rather than reduces them." (According to a Federal Communications Commission fact sheet, "Under the new rules, calls to 988 will be directed to 1-800-273-TALK..." [the National Suicide Prevention Lifeline].) For the FCC fact sheet, click here. For the STAT article, which suggests solutions, click here.

TU Collaborative Publishes "Strategies and Recommendations to Strengthen the Next Generation of Behavioral Health Leadership"

"Young professional peer specialists are an important, and growing, part of the behavioral health workforce, but more needs to be done to maximize their contributions and engagement," the Temple University Collaborative on Community Inclusion writes. Young Professional Peer Support: Strategies and Recommendations to Strengthen the Next Generation of Behavioral Health Leadership "offers young professional peer specialist perspectives on their experiences in the behavioral health system and what individuals, agencies, and systems can do to promote their impact, career development, and long-term connections." To download the 17-page document, click here.

"Stigma" of Depression Decreases, but Increases for Other Psychiatric Diagnoses; Would It Help to Change Public Perceptions of the Causes?

For the first time since such data have been studied, the "stigma" associated with major depression has lessened--involving a "statistically significant drop" in social rejection--according to a recent Indiana University study. However, "stigma" levels for other mental health conditions remain unchanged, and "public perceptions attributing dangerousness to schizophrenia and lack of morality to alcohol dependence increased," the study found. But would changing people's ideas about the causes of mental health conditions decrease prejudice? In earlier research, psychologists Eleanor Longden and John Read explore the argument that “framing individuals as ‘people with problems’ as opposed to ‘patients with illnesses’ is a more promising and robustly evidence-based strategy for reducing stigma and prejudice.” Meanwhile, many advocates have made a case for eliminating the word "stigma" entirely. In "Let's Call Mental Health Stigma What It Really Is: Discrimination," originally published in 2016, the HuffPost quotes Kana Enomoto, then acting administrator of the U.S. Substance Abuse and Mental Health Services Administration, as saying, “We [at SAMHSA] don’t use the word stigma...You look the word up in the dictionary and it refers to a mark of shame.” For the Indiana University press release, click here. For "Psychosocial Explanations of Psychosis Reduce Stigma, Study Finds," in Mad In America, click here. For the HuffPost article, click here.

NEC Offers (Virtual) eCPR Training for the Queer/LGBTQIA2S+ Community

The National Empowerment Center (NEC) is offering a virtual Emotional CPR (eCPR) training for the Queer/LGBTQIA2S+ community on three Saturdays in January 2022. NEC writes: "This training will take place via Zoom 1/15, 1/22, and 1/29 from 1:00 to 5:00 p.m. EST. The training is offered at a sliding scale [$0-$250]; please contact us if you need additional financial support OR IF YOU ARE HAVING TROUBLE REGISTERING (original emphasis) at info@emotional-cpr.org. This training is geared towards members of the queer/LGBTQIA2S+ (Lesbian, Gay, Bisexual, Trans, Questioning, Intersex, Asexual, Two Spirited) community. The plus sign is an added welcome to anybody who feels this training might be appropriate for them but does not identify with any of the terms listed. The training is taught by trainers who themselves identify as queer/LGBTQIA2S+..." For information about eCPR, click here. For more information about the training and/or to register, click here.

PCORI Wants to Hear from You About Its Proposed Research Agenda

The Patient-Centered Outcomes Research Institute (PCORI) is asking for public comment on its research agenda. The deadline to submit comments is January 31, 2022. "Meaningful stakeholder and broader public input are central to ensuring PCORI’s adopted National Priorities for Health and Research Agenda appropriately reflect(s) how PCORI can best meet the healthcare community’s needs in coming years and fulfill the organization’s mission as the nation's primary funder of patient-centered comparative clinical effectiveness research," PCORI writes. For details and to submit comments, click here. (Courtesy of Elizabeth R. Stone)

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

"Why 1,320 Therapists Are Worried About Mental Health in America Right Now"

"The New York Times asked 1,320 mental health professionals--[w]e heard from mental health providers in all 50 states, as well as Washington, D.C., and Puerto Rico--to tell us how their patients were coping as pandemic restrictions eased. General anxiety and depression are the most common reasons patients seek support, but family and relationship issues also dominate therapy conversations. One in four providers said suicidal thoughts were among the top reasons clients were seeking therapy...And while the pandemic has been polarizing, our analysis found that the higher demands for therapy are happening in every region, and at similar rates in red and blue states." For more information, click here.

Family Café Seeks Presentation Proposals for Annual Conference: Deadline January 7, 2022

"The Family Café is currently seeking presentation proposals for The 24th Annual Family Café, which will be held on May 27-29, 2022 in Orlando. The deadline to submit your proposal is Friday January 7, 2022. The Annual Family Café brings together thousands of people with disabilities and their family members for three days of education, training, and networking each year. The more than 200 breakout sessions on the agenda form the backbone of the event, and we rely on the knowledge and expertise of our presenters to make the event a success.” For the Presentation Proposal Form, click here.

CSGJC Issues "Expanding First Response: A Toolkit for Community Responder Programs"

"Communities across the country are reimagining their approach to public safety," the Council of State Governments Justice Center (CSGJC) writes. "As a result, many jurisdictions have invested in community responder programs that position health professionals and staff trained in crisis response as first responders. Community responder programs, when implemented as part of a larger network of crisis responses and social services, can help jurisdictions improve health outcomes, strengthen connections to services, and reduce unnecessary police involvement. Just released, ‘Expanding First Response: A Toolkit for Community Responder Programs’ serves as a central hub for local communities and states looking to establish or strengthen these programs." For the toolkit, click here.

NAMI Issues Call for Proposals for Its 2022 Hybrid Conference; Deadline: January 31

NAMI's 2022 hybrid conference, to be held June 15-18--with the in-person meeting at the Atlanta Marriott Marquis--is seeking "proposals that encourage mental health education and innovation and are well-versed in theory, research and practice." January 31, 2022, is the deadline to submit a proposal; you will be notified about its status by March 1, 2022. For details about NAMI’s goals, visit its 2020-2025 Strategic Plan. For information about the session tracks and how to submit a proposal, click here. (Courtesy of Kevin Fitts)

Two Studies Report on Young People's Experiences of Police Involvement During Involuntary Psychiatric Holds and Transports

Two recent studies of the experiences of youths during involuntary psychiatric hospitalization have found that police involvement "contributed to the youths' feelings of being criminalized, stigmatized, and marginalized," and that "peer support during the inpatient treatment was seen by the youth as the most empowering aspect of their treatment experience," according to the abstract of "In their voices: Experiences of adolescents during involuntary psychiatric hospitalization." The authors of another study, "Youths’ and Young Adults’ Experiences of Police Involvement During Initiation of Involuntary Psychiatric Holds and Transport," conducted in-depth interviews with "40 participants (ages 16–27) who had experienced an involuntary hold; the 28 participants who reported police involvement are the focus of this analysis....A majority of participants reported negative experiences...The authors also characterized the positive experiences of officer involvement reported by a minority of participants, and youths’ perspectives on the degree of control officers could exert over initiation and transport decisions..." For the abstract of "Youths’ and Young Adults’ Experiences of Police Involvement During Initiation of Involuntary Psychiatric Holds and Transport," click here. For the abstract of "In their voices: Experiences of adolescents during involuntary psychiatric hospitalization," click here.

Café TA Center Publishes "Tips for Employers on Hiring Individuals with Mental Health Conditions"

"Finding sustainable, quality employment is central to self-sufficiency, thriving in the community, and supporting recovery," the Café TA Center writes. "Our new tip-sheet for employers, Tips for Employers on Hiring Individuals with Mental Health Conditions, explains the benefits of hiring people with lived mental health experience, common myths and misperceptions, and inclusive recruiting and hiring practices. Whether you are an employer of people in the mental health recovery community, or an advocate looking to make the case for your own employment, this will be a great resource for you!" For "Tips for Employers on Hiring Individuals with Mental Health Conditions," click here. For a short, anonymous survey to help the Café TA Center "better understand how people in the mental health peer community feel about employment...and what you wish employers understood about hiring, supervising, and supporting workers with mental health conditions," click here.

Doors to Wellbeing to Present the Next Free Webinar in Its Monthly Series on January 25, 2022

On January 25, 2022, at 2 p.m. ET, Doors to Wellbeing will present a free 60-minute webinar as part of its monthly series. The topic, additional information, and a link to register will be posted on its website: click here.

Autumn Saw the Passing of Two Who Made Great Contributions in the Mental Health Arena

The peer movement is mourning two movement leaders: Darby Penney, who died on October 11, 2021, and Steve Harrington, who died on November 29, 2021. The headline on Darby's obituary in The New York Times read: "Darby Penney, Who Crusaded for Better Psychiatric Care, Dies at 68: She shed light on marginalized people’s lives by examining the contents of suitcases left in the attic of a psychiatric hospital. She went on to become a prominent activist." “The history of mental health is almost always told by psychiatrists and hardly ever by patients or through patients’ lives,” Darby said in an interview with The New York Times in 2007. “A lot of these folks happened to be in the wrong place at the wrong time and said the wrong thing to the wrong person.” Steve Harrington, who founded the National Association of Peer Specialists, was memorialized by friend and colleague Rita Cronise in a blog that invited others to comment. Andy Bernstein, a clinical psychologist and ally, wrote that Steve "was hugely instrumental in the evolution of the peer support movement as it coalesced into a professional discipline in its own right... Steve’s warmth, intelligence, humor, courage, and familiarity with writings from widely ranging fields of thought established him as a beacon of hope and growth for anyone who sought to use their own lived experience to help others on their journeys of recovery and actualization." For Darby's obituary, click here. For Rita's blog about Steve, click here.

The January 2022 Digest of Articles Offering Healthy Lifestyle Advice

For "Procrastinate This, Not That: Putting things off can improve your performance—if you do it right," click here. For "4 Ways to Cultivate Resilience in 2022: Pandemic life doesn’t have to be just about survival. You can become stronger and ready for the next challenge," click here. For "Our Favorite Healthy Habits of 2021: From labeling your feelings to exercise snacks, here’s a roundup of some of Well’s best advice for better living," click here. For "An Overlooked Cure for Loneliness: Science tells us the solution may lie in what we do for others, not ourselves," click here. For "The Health Toll of Poor Sleep: Finding that slumber sweet spot can be helpful for fending off a range of mental and bodily ills," click here.

The January 2022 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "From Prison Cells to PhD is seeking scholars for the 2022 Virtual 24th Prison to Professionals Cohort (P2P-24). Applications are now open, and will close January 10," click here. For " ‘Blood Money’: How Profit Shapes U.S. Incarceration, click here. For "Prison Phone Companies Are Recording Attorney-Client Calls Across the US: Lawyers say their conversations with incarcerated people are being recorded and analyzed by private companies in at least nine US states," click here. For "Illinois courts seek compassion and hope for mentally ill," click here. For "Brooklyn Man Shot by the Police Was Mentally Ill, Family Says: The killing of Eudes Pierre, 26, underscores the need for alternatives to having the police respond to mental health episodes, activists say," click here. For "Mental health teams that respond to emergencies in lieu of police will soon be available countywide," click here. For "Man who died after being tased by Pittsburgh police pleaded for medical help but got none, report says," click here. For "Disciplinary action initiated against 9 Pittsburgh police officers in tasing, death of man in Bloomfield," click here. For "Norway’s Humane Approach to Prisons Can Work Here Too: The Scandinavian nation strives to rehabilitate instead of punish. UCSF’s Amend program is showing that this model can help solve the public health crisis plaguing the American correctional system," click here. For "The Prisoner-Run Radio Station That’s Reaching Men on Death Row: They can’t go to classes or prison jobs, and they don’t have tablets or televisions. But they do have radios," click here. For "How Can You Destroy a Person’s Life and Only Get a Slap on the Wrist?" click here. For "The Population Prevalence of Solitary Confinement," click here. For "The ‘21-Foot Rule’: How a Controversial Training for Police is Used to Justify Shootings," click here. For "Springfield police detective Gregg Bigda found not guilty of brutality, abusive interrogation," click here. For "Court Excellence and Therapeutic Jurisprudence: In this blog David B. Wexler, Honorary President of International Society for Therapeutic Jurisprudence, discusses how the 3rd Edition of the International Framework for Court Excellence is a major advance for therapeutic jurisprudence," click here. For "Opinion: Thousands of incarcerated people deserve to come home. Here’s how prosecutors can help," click here. For "Men headed for prison given a second chance with new rehabilitation program training dogs: A program director said they pull dogs unlikely to be adopted from local shelters and then pair them up with men who would have been facing serious jail time," click here. For "New report hits DOJ over lack of police shooting data," click here. For "Law Enforcement: DOJ Can Improve Publication of Use of Force Data and Oversight of Excessive Force Allegations," click here. For  Missed by a Mile: How hard is it to count deaths by police?" click here. For "FBI may shut down police use-of-force database due to lack of police participation: Police data must cover 60 percent of all local and federal officers, but has not reached that level in the first two years of the program," click here. For "Police Hurt Thousands of Teens Every Year. A Striking Number Are Black Girls," click here. For "How—and Why—America Criminalizes Poverty," click here. For "New Data Suggests a Connection Between Pandemic Gun Sales and Increased Violence: 'Time-to-crime' figures published by the ATF show that guns sold in 2020 were more likely to wind up at crime scenes within a year than in any previous period," click here. For "Illinois inmates' performances explore domestic violence, as public gets rare chance to see behind prison walls," click here. For "It’s Never Too Late to Go to College and Rewrite Your Story: Devon Simmons served 15 years in prison for crimes he committed as a teenager. Since then, he’s been on a mission to remake not just his own life, but the legal system itself," click here. For "College-in-prison program found to reduce recidivism significantly," click here. College-in-prison program leads to reduction in recidivism rates across racial groups," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

NIH to Host a Variety of Listening Sessions, Each Geared Toward Specific Audiences

At 6 p.m. on January 18, 2022, the National Institutes of Health (NIH) will host a 90-minute listening session geared to nonprofit organizations, community-based organizations, and advocacy organizations. The session (the second of two geared to the same audience) is part of NIH's UNITE initiative, which was "established to identify and address structural racism within the NIH-supported community and the greater scientific community...The insights that you share will provide valuable information on the full range of issues and challenges facing diverse talent within the scientific and administrative workforce and will help develop priorities and an action plan...Twenty-four hours prior to the scheduled session, registered participants will receive an email from UNITEInitiative@nih.gov with login information (Zoom link)." For the complete schedule and to register for specific sessions, click here. (Courtesy of NYAPRS E-News)

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission on Psychoses is accepting applications for an academic advisory board (click here) and a lived experience advisory board (click here). (2) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com.

(Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'" "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 7, January 2022. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, December 2021, Volume 18, Number 6

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions of the newsletter but are still relevant. These items include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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Next ISMICC Meeting Is December 16; Submit Comments by December 6!

The next meeting of HHS’s Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC)--comprising senior leaders from 10 federal agencies along with 14 non-federal public members--will be held on December 16, 2021, from 1 p.m. ET to 4 p.m. ET. Public comments will be scheduled at the end of the meeting. To submit written or brief oral comments, and/or to attend virtually or to request special accommodation for persons with disabilities, email ISMICC Designated Federal Officer Pamela Foote (Pamela.Foote@samhsa.hhs.gov) on or before December 6, 2021. Up to three minutes will be allotted for each approved public comment as time permits. Written comments received before the meeting will be considered for inclusion in the official record. To register online, click here. For more information about ISMICC, click here. (Courtesy of NYAPRS E-news)

CMS Invites You to a Discussion on Its Strategy to Advance Health Equity

On December 8, 2021, at 1:30 p.m. ET, the Centers for Medicare & Medicaid Services (CMS) Innovation Center invites you to a 90-minute roundtable discussion on how the Center can execute its strategic objective to advance health equity. The discussion follows the release of its recently published white paper "Driving Health System Transformation--A Strategy for the CMS Innovation Center's Second Decade" (click here). Written comments are encouraged and may be submitted to CMMIStrategy@cms.hhs.gov, with “HEALTH EQUITY ROUNDTABLE” in the subject line. "Some of the written comments may be read aloud during the roundtable session. Please indicate if you would prefer not to have your comments read or wish to remain anonymous." For more information--including the questions that the discussion will cover--and to register, click here.

Involuntary Commitment Is the Theme of Both a Helpful Podcast and a Harrowing Personal Story

The controversial topic of involuntary commitment is tackled in both a podcast and a recent personal story, the latter published in a college newspaper. "Committable is a podcast about involuntary commitments. We focus on stories from people with lived experience as a window into complex conversations with attorneys, physicians, psychologists and more," according to the Committable website. As one commenter wrote: "If you’re curious about what happens when people in mental health crisis are 'helped' by being brought to the ER for an emergency evaluation and then held on a psych unit against their will, listen to this podcast." All of the episodes are free at the link below. And in "At the Forefront of Medicine: My Summer of Involuntary Hospitalization--A neuroscience student reflects on the psychiatric system’s failure to care for its patients," published in The Chicago Maroon--the independent student newspaper of The University of Chicago since 1892--Cassidy Wilson details the horrific experiences that began when, in June 2021, she was committed to UChicago Medicine’s psychiatric ward against her will. "From the moment the UCPD came to my door," she writes, "I knew that what followed would not be care." For the Committable archive, click here. (Courtesy of Nev Jones) For the Chicago Maroon story, click here. (Courtesy of Fred Friedman)

Free Webinar: "Talking About Tobacco: Sharing Strategies and Treatments"

On December 9, 2021, at 2:30 p.m. ET, the Academy of Peer Services will present the fifth webinar in its "Talking About Tobacco" series: "In this [90-minute] webinar, we consider myths and facts about nicotine, and proven strategies for helping people change their use of tobacco. Together, and in chat with those who attend, our presenters [will] explore available treatment options and different strategies for making change. The webinar will include personal stories by the presenters related to their own tobacco use and the methods they used for regaining control over tobacco use. This information can help those who offer peer support to provide additional choices and options for people when they are talking about and exploring changes related to tobacco use." For more information and to register, click here.

Free Webinar: "...Art-making as an Alternative Philosophy of Care During Emotional Crisis"

On December 9, 2021, at 4 p.m. ET, the National Empowerment Center will host a free, 90-minute webinar on "New Frontiers for Activism: Art-making as an Alternative Philosophy of Care During Emotional Crisis." The presenter, Karin Jervert, writes: "In this workshop, we will explore several conditions and intentions in art-making practice which can create spaces that support healing for ourselves and for those in emotional crisis. We will talk about art-making as a container for suffering, anger, altered states and other experiences; how to facilitate flow within this space; and what obstacles can appear like fear, judgement, shame and paralysis...I will offer tools and ideas that together use art-making practices and concepts as a framework for a philosophy of care and compassion in the presence of our own and other’s suffering, and create portability of these practices so that we can bring these ideas and intentions into our lives and relationships day to day to create positive change within ourselves and our larger communities." To register, click here.

Survey of Mental Health Peer Warmlines Is Published

From the 2021 National Warmline Survey Executive Summary:  "This survey captured information about a wide range of [Mental Health] Peer Warm Lines, including length of operation (from one year to 36 years old), geographic location in the U.S. (18 different states, many regions of the country), geographic location served (county/national), as well as call volume (less then 100 calls a week to greater than 1,500 calls per week). The majority are open seven days a week with varied hours, but only about a third were open on holidays. More than 70% reported a significant/monumental increase in calls during the past year...Most reported the need for accessing higher levels of care to be rare (less than 1% of calls) and a few lines have a policy against calling 911...The greatest need reported by the responding Peer Warm Lines was FUNDING...When asked about the impact of Peer Warm Lines on Crisis Services, many responded that they believed that Peer Warm Lines assist people before they get to the point of needing crisis services, although this is primarily anecdotal." For the 19-page survey, click here. For the warmline directory, which includes many links to additional information, click here.

"Your [Lived Experience] Voice Deserves a Paycheck, and Here’s What to Charge"

Seth Rotberg--who describes himself as a patient advocate, community connector, and motivational speaker--says that people with lived experience of a physical or mental health condition often ask how much they should charge for their expertise. He writes: "[W]e first need to understand the following: What type of service are you offering? ([e.g.], blog post, speaking engagement, feedback on clinical trial design/protocol); Who (or which company) is requesting this service? ([e.g.], pharmaceutical/biotech, nonprofit organization, medical school); How much time will you need to perform the [tasks involved/service], including any prep work? ([e.g.], one-time or ongoing engagement)...To determine how much to charge for your advocacy work, there is now a fair-market value calculator that the National Health Council created to demonstrate how much a patient or caregiver should be getting compensated. This calculator can provide evidence on your reasoning behind charging a company or organization the amount you requested." For the article by Seth Rotberg, click here. For the Fair-Market Value Calculator, click here. (Courtesy of Kevin Fitts)

Free Webinar: "Mental Health Recovery: What Helps and What Hinders"

On December 10, 2021, at 11 a.m. ET, Illume: The Behavioral Health Center will present a free, two-hour webinar on "Mental Health Recovery: What Helps and What Hinders." The speaker will be Nanette Larson, Deputy Director, Wellness and Recovery Services, State of Illinois. Illume writes: "Although most staff, advocates, and loved ones want to support the recovery journey of those with mental health challenges, there is still great misunderstanding about what is truly helpful in that process. The Hippocratic Oath, 'Do No Harm,' can only be followed if we understand what may, indeed, cause harm. In this presentation, you will learn things that help and things that hinder the recovery process for individuals with mental health challenges." To register, click here. (Courtesy of Fran Hazam)

NIH to Host a Variety of Listening Sessions, Each Geared Toward Specific Audiences

At 6 p.m. ET on December 14, 2021, and January 18, 2022, the National Institutes of Health (NIH) will host 90-minute listening sessions geared to nonprofit organizations, community-based organizations, and advocacy organizations. The two sessions are part of NIH's UNITE initiative, which was "established to identify and address structural racism within the NIH-supported community and the greater scientific community...The insights that you share will provide valuable information on the full range of issues and challenges facing diverse talent within the scientific and administrative workforce and will help develop priorities and an action plan...Twenty-four hours prior to the scheduled session, registered participants will receive an email from UNITEInitiative@nih.gov with login information (Zoom link)." For the complete schedule and to register for specific sessions, click here. (Courtesy of NYAPRS E-News)

2nd Annual Summit to Decriminalize Mental Illness to Be Held in Philadelphia December 13-15

The Sozosei Foundation will hold its Second Annual Summit to Decriminalize Mental Illness from December 13 to 15, 2021, at the Pennsylvania Academy of the Fine Arts in Philadelphia. Portions will be live-streamed. "The Summit is a global event that brings together experts, thought-leaders, people with lived experience, medical professionals, lawyers, judges, advocates, artists, and funders to collaborate, create, and explore pathways to decriminalize mental illness with a particular focus on 988, the new national mental health crisis telephone line, due to go live in July 2022," the organizers write. "Sozosei" means "creativity" in Japanese. "With creativity as a core value, we believe that together we can identify new pathways in order to eliminate the inappropriate use of jails and prisons for the diagnosis and treatment of mental illness." For more information and to register, click here. (Courtesy of Kevin Fitts)

WHO Highlights Community Mental Health Services with a Rights-based Approach Around the World

Following the publication of its “Guidance on community mental health services: promoting person-centered and rights-based approaches,” in June 2021--included in the October 2021 Key Update--the World Health Organization is highlighting "models of care from around the world that largely center on relationships and compassionate listening to promote wellness and increase one’s ability to manage symptoms and live meaningful lives." The WHO press release features programs in India, Brazil, Myanmar, New Zealand, Norway, Kenya, and the UK. Programs in New Zealand, Kenya, and Myanmar incorporate peer support. For the press release, click here.

Free Webinar: "Activating Peer Support for a Transformed Mental Health Crisis Response System"

On December 15, 2021, at 1 p.m. ET until 2:15 p.m. ET, NYAPRS and The College for Behavioral Health Leadership will sponsor the first part of a two-part online seminar series titled "Intensity, Lived Experience and Crisis: Activating Peer Support for a Transformed Mental Health Crisis Response System." The organizers write, "While much progress has been made to develop a modern array of 'crisis services,' including mobile crisis units, hospital diversion programs and 'crisis call centers,' through…the National Suicide Prevention Lifeline Network, the integration of people with lived experience of suicide and crisis as peer support providers has been slow to advance. Peer support can and should play an active role at many points in the transformation of crisis response systems, including those driven by the national 988 line initiative." The presenter will be Eduardo Vega, M. Psy., CEO and founder of Humannovations. For more information and to register, click here.

Please Sign a Petition to Help Save a Public Mental Health Model in Italy

"Trieste is recognized by the World Health Organization as the model of global best practice in mental health care," according to a change.org petition highlighted in a recent NPR article. "It has inspired dozens of programs throughout the world to create an integrated network of community services focused upon the whole-person needs of its users; maintaining their dignity as citizens; and minimizing the coercive practices of old-fashioned institutional settings...Trieste has shown us how community inclusion improves people’s lives. But this great achievement is now threatened by a new right-wing regional government that, on poorly informed and ideological grounds, is fast and impulsively dismantling Trieste's wonderful system of community care...As a Friend of Trieste and all that it stands for, please sign this petition and distribute it widely. For updates on this situation, please consult www.accoglienza.us." For the NPR article, "A public mental health model in Italy earns global praise. Now it faces its demise," click here. For the petition, click here. (Courtesy of Laura Van Tosh)

NRCPD and TU Collaborative Help Parents with Mental Health Conditions

"There is a major gap in services for parents with mental [health conditions] within traditional mental health services," writes the National Research Center for Parents with Disabilities (on the Brandeis University website). "Using lessons learned from the implementation of Family Options, an intervention developed in Massachusetts that focuses on parents and their children as a unit and draws on the strengths, resilience and recovery goals of family members receiving services, we have identified three essential elements of developing successful interventions for parents with psychiatric disabilities: hiring the 'right' staff, establishing organizational frameworks, and fostering community engagement." For the article, click here. And to check out the many and varied parenting resources on the Temple University Collaborative on Community Inclusion website's "Parenting" page, click here.

Cafe TAC's Focus 2.0 Newsletter Covers Telehealth and Smartphone Apps

The latest edition of CAFE TAC's Focus 2.0 newsletter examines "how telehealth and smartphone apps are providing new ways to access mental health resources," the national technical assistance center writes. "What’s out there? What are the advantages of virtual mental health services? What are the barriers? What should you look for when considering telehealth or smartphone apps for mental health? Check out this Focus 2.0 for some answers! We also invite you to share your thoughts on what you wish employers knew about hiring and supervising people with mental health conditions, and our 'Capacity Corner' offers some advice on how to make sure you have effective Committees that actually get stuff done in your mental health consumer organization." For the newsletter, click here

MedPage Offers "News and Commentary from the Psychiatry World"

"The American Psychiatric Association [has] released a new edition of the clinical treatment guide for gambling disorders, as more and more people are turning to internet betting....A previously homeless man who was falsely held for 2 years at a Hawaii psychiatric hospital because of mistaken identity just filed a federal lawsuit. [A] new survey of over 8,000 people--who had an average age of 56--found that social media use was tied to higher odds of depressive symptoms, which were highest for Snapchat, followed by Facebook, and TikTok. A new report from SMI Adviser is offering guidance on how to improve behavioral health services for people living in rural communities." These are some of the stories in MedPage's November 24, 2021, edition. To read the articles, click here.

"Are You Between the Ages of 21 and 60 and Drink Alcohol?"

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

A Poem Teaches the Necessity of Community Organizing

In this poem—“Each Day, One More,” published in 1980—Marge Piercy teaches us why we need to organize, and that there is strength in numbers. The poem begins: “What can they do/to you? Whatever they want./They can set you up, they can/bust you, they can break/your fingers, they can/burn your brain with electricity,/blur you with drugs till you/can't walk, can't remember…” And it continues: “How can you stop/them?... A dozen make a demonstration./A hundred fill a hall./A thousand have solidarity and your own newsletter;/ten thousand, power and your own paper;/a hundred thousand, your own media;/ten million, your own country.” The poem concludes: “It goes on one at a time,/it starts when you care/to act, it starts when you do/it again after they said no,/it starts when you say We/and know who you mean, and each/day you mean one more.” For the poem in its entirety, click here.

Comic Books Have Both Contributed to Mental Health Prejudice and to Positive Education

In "Don't Laugh at the Comics: A Modern Take" (2020), the authors cover the history of how mental health professionals have been portrayed since the 1940s. For example, a "surprising number of mental health providers are villains in comic books..." they write. "In addition to the blatantly evil psychiatrists and the narcissistic psychiatrists, since the late 1970s there have been character representations of the flawed or damaged (psychiatric) hero. Even the once revered Dr. Amadeus Arkham, founder of Arkham Asylum [in Batman], becomes a warning about psychiatric care after he kills patients, murders his mother, and becomes an inmate in the institution he founded in a 1989 graphic novel story line." But "...many forms of pop culture (e.g., movies, TV shows, books, comic books) can be used to teach mental health concepts, whether to medical students or in the therapy room...If positive messages are to be portrayed by the comic book industry, mental health professionals and comic creators need to work together to allow creatives to tell compelling stories while at the same time not needlessly stigmatizing mental health patients and providers. This collaboration has already begun, and can be done." For the article, click here.

The December 2021 Digest of Articles Offering Healthy Lifestyle Advice

For "An Age-Old Tool for Suicide Prevention—Social connection is the first line of defense," click here. For "The Pain Brain: Millions of Americans are living with chronic pain. A quiet revolution in research and treatment is finding new ways to help them heal," click here. For "4 Stretches to Combat Too Much Screen Time: Hunching over a laptop for long periods can sabotage your health. These restorative exercises really do make you feel better throughout the day," click here. For "Does High-Intensity Exercise Affect Our Hearts? Minds? Life Spans? Waistlines? What you need to know about high-intensity interval training, or HIIT," click here. For "Smile: Why It’s Important in Personal Life and Workplace: This emotional expression could help you be happy, grateful, and productive," click here.

The December 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "In an overcrowded justice system, mental health diversions work | Editorial," click here. See also "Keeping the Mentally Ill Out of Jail: An innovative Miami-Dade program shows the way" (2018) (click here) and Mental Health Courts: Pros & Cons (click here). For "There Is No One Answer to Over-Policing and Mass Incarceration—There Are Many: Examples abound for successful alternative methods that can greatly improve the current criminal legal system," click here. For "Reimagining police departments with safety and justice in mind: Scott Pelley reports on the ways American cities are reimagining their police departments, with Austin, Texas, leading the way," click here. For "String of LAPD shootings exposes L.A.’s broken mental health system, officials say," click here. "How Prison Writers Struggle to Be Heard: Sky-high email and phone costs, fear of retaliation by prison staff, and isolation create roadblocks for incarcerated people to share their experience and join a growing national conversation on reforming the criminal legal system," click here. For "State of Justice," a newsletter of the Council of State Governments Justice Center, click here. For "How Police Justify Killing Drivers: The Vehicle Was a Weapon: A Times investigation into a common defense for shooting motorists found that some officers had put themselves in danger. Others appeared to face no peril at all," click here. For "America can’t fix policing without fixing the country’s gun problem: America’s tremendous number of firearms makes it much harder to reform policing," click here. For "The Language Project"--which comprises "I Am Not Your 'Inmate,'" "Good Intentions Don't Blunt the Impact of Dehumanizing Words," "I Was Trained to Call Men a Word They Hated," "People-First Language Matters. So Does the Rest of the Story," "How I Convinced My Incarcerated Peers to Make Language a Priority," and "What Words We Use--and Avoid--While Covering People and Incarceration"--click here. For "An Ode to Memo, the Cellmate and Art Teacher Who Saved My Life: After decades in the system, I was acting like a wild horse roaming the countryside. Memo taught me how to paint through the chaos," click here. For "Gila County faces 4th claim citing jail abuses against mentally ill inmates," click here. For "Can The Death Penalty Be Fixed? These Republicans Think So: A growing number of conservative lawmakers want to overhaul capital punishment, or end it," click here. For "Workers at federal prisons are committing some of the crimes," click here. For "Have It Your Way"--Issue 9 of News Inside, a Marshall Project newsletter, "meets you where you are," click here. For "Opinion: Being pulled over for a broken taillight shouldn't end in death. Too often, it does," click here. For "Young adults facing prison get a second chance through first-in-the-nation court program," click here. For "The Supreme Court’s Growing Hostility to Arguments of Death Row Inmates: Recent rulings, including one turning down a death row inmate’s request supported by the prosecution, offer telling glimpses of the state of capital punishment," click here. For "Do Prisons Deserve a Second Chance? Over the last decade, hundreds of jails and prisons in the U.S. have closed, inspiring architects and designers to reimagine sites of incarceration as positive community spaces," click here. For "Independent Oversight Is Essential for a Safe and Healthy Prison System: Preventive monitoring of conditions in American prisons can help shine a light on what needs to change," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Virtual 2021 Youth Mental Health Disparities Conference to Be Held December 8-9

The 2021 Youth Mental Health Disparities Conference will be held virtually on December 8-9, 2021. It is sponsored by the National Institute of Mental Health, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, and the National Institute on Minority Health and Health Disparities. Its theme is "Identifying Opportunities and Priorities in Youth Mental Health Disparities Research." Registration information and an agenda will be forthcoming. (Courtesy of Jacek Haciak)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission on Psychoses is accepting applications for an academic advisory board (click here) and a lived experience advisory board (click here). (2) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'“ "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 6, December 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, November 2021, Volume 18, Number 5

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions of the newsletter but are still relevant. These items include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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"How Therapy, Not Pills, Can Nix Chronic Pain and Change the Brain"

New research, published in JAMA Psychiatry, "provides some of the strongest evidence yet that a non-drug, psychological treatment can provide potent and durable [pain] relief. The University of Colorado Boulder study found that two-thirds of chronic back pain patients who underwent a four-week psychological treatment called Pain Reprocessing Therapy (PRT) were pain-free or nearly pain-free post-treatment. And most maintained relief for one year. They also showed changes in pain-generating brain regions after therapy...'This treatment is based on the premise that the brain can generate pain in the absence of injury or after an injury has healed, and that people can unlearn that pain. Our study shows it works,'" said lead author Yoni Ashar. For the CU Boulder press release and a link to the JAMA Psychiatry study, click here.

Lancet Offers Stakeholders New Opportunities Re: Psychosis & Participatory Research

Check out these opportunities for stakeholder involvement! (1) The Lancet Psychiatry Commission on Psychoses is accepting applications for an academic advisory board (click here) and a lived experience advisory board (click here). (2) The Lancet Psychiatry Commission's "Lived Experience Hub" invites stakeholders to contribute blogposts to convey criticisms, concerns and/or ideas relevant to the work of the Commission. For details, click here. To submit a blog, email lancetcommissionpsychosis@gmail.com. (3) The Lancet Psychiatry Commission's "lived experience research group" is a new listserv focused on lived experience advocacy and activism on participatory psychosis research and related policy and practice. In part, this will serve as a sounding board for Lancet Commission work and a place to engage in dialogue about what needs to change. To join, email  lancetcommissionpsychosis@gmail.com. (Courtesy of Dr. Nev Jones)

Free Online Dialogue: "Experts with Experience" Discuss Role of Researcher with Lived Experience in Mental Health Care

On November 8, 2021, researcher and educator Dr. Nev Jones, philosopher Rob Sips, and cultural scientist Alke Haarsma-Wisselink will discuss "the often difficult realities of navigating [psychosis] researcher roles and projects with direct experience challenges, unsettling existing power hierarchies, and the subtle othering and/or marginalization that often occurs when one is a minoritized lived experience member of a larger research team," Dr. Jones writes. "The primary target audience is researchers engaged in psychosis studies." Psychiatrist and philosopher Dr. Kinge Berends will facilitate the 90-minute dialogue among the speakers and with the audience. The 90-minute dialogue will begin at 8 p.m. Brussels time; click here for a time zone converter. To register and for details, contact rob.sips@kuleuven.be. After registration you will receive a Zoom link for the event. To read Dr. Jones's Twitter thread (@viscidula) on this subject, click here.

"Psychiatrist with Philosophical Interests" leads "Conversations in Critical Psychiatry," a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

Free Webinar: "How Clinical and Community-Based Peer Services Engagement Can Improve SUD Treatment and Recovery Outcomes”

On November 9, 2021, at 12:30 p.m. ET, NYAPRS will host a free webinar entitled " “Peer Professional Roles and Competencies–How Clinical and Community-Based Peer Services Engagement Can Improve SUD [Substance Use Disorder] Treatment and Recovery Outcomes.” It will be presented by Ben Riker and Theresa Knorr of Friends of Recovery New York, who "will describe roles and competencies of peer professionals in SUD treatment and community-based settings. They will help you to understand best practices for peer integration into both clinical and non-clinical settings, as well as how treatment outcomes can be improved through peer services engagement. NYAPRS is offering 1 CE for this webinar." To register, click here.

IEPA Virtual Conference (Nov. 8-12, 2021) Will Feature a Workshop on Meaningful Service-User Inclusion in Early Psychosis Research

The IEPA (International Early Psychosis Association) virtual conference, whose theme is "New Frontiers in Early Intervention," will be held November 8-12, 2021. The conference "will bring together the world’s leading experts in early intervention in mental health and research, acting as a forum for ideas to be exchanged, experiences shared, knowledge developed and innovation inspired," the organizers write. Highlights will include a workshop--on November 12--on meaningful service-user inclusion in early psychosis research, co-facilitated by Ying Ying Lee (Singapore), Veenu Gupta (UK) and Nev Jones (US). A core activity of the workshop will be collective troubleshooting of a series of "scenarios in which the intentions are good, but 'lived experience' nevertheless ends up sidelined or marginalized," Dr. Jones writes. "The question: How can we collectively deepen our understanding of what it means to co-produce or meaningfully and authentically collaborate?" For more information and to register for the conference, click here. For more information about Dr. Jones's workshop, click here. (Conference times are in AEDT so click on "View in Your Time Zone"; links are provided in the conference information.)

MHA National Publishes 2022 Report on "The State of Mental Health in America"

Mental Health America's free 2022 report on "The State of Mental Health in America" paints a grim picture. Key findings include: "Suicidal ideation continues to increase among adults in the U.S...Over 2.5 million youth in the U.S. have severe depression, and multiracial youth are at greatest risk...Over half of adults with a mental health condition do not receive treatment, totaling over 27 million adults in the U.S. who are going untreated...The percentage of adults with a mental [health condition] who report unmet need for treatment has increased every year since 2011...Over 60% of youth with major depression do not receive any mental health treatment...Nationally, fewer than 1 in 3 youth with severe depression receive consistent mental health care...Both adults and youth in the U.S. continue to lack adequate insurance coverage...Rates of substance use are increasing for youth and adults, even prior to the COVID-19 pandemic." To download a free copy of the 45-page report, click here.

12th Annual (Virtual) Rehabilitation and Recovery Academy to Be Held November 16-18

NYAPRS's 12th Annual Rehabilitation and Recovery Academy will be held virtually from November 16 through November 18, 2021. The Academy's theme is "Moving Forward Together: Healing the Trauma, Advancing New Innovations." NYAPRS writes: "Join us for a special workshop, 'Promoting an Anti-Racist and Anti-Oppressive Culture in Your Organization,' where you’ll hear from experts in the field--Lenora Reid-Rose, James Rodriguez, Clinton Green and Ruth Colón-Wagner--on the urgent need to implement anti-oppressive care in behavioral health services and some strategies for addressing [this issue] at the macro and micro levels within your organizations. CEs will be offered at no cost for identified workshops in Social Work, Mental Health Counseling, and CPRP." Academy tickets for individuals are $79; for programs, $399; and for organizations with multiple programs, $599. To register, click here.

CMS Invites Participants to Its Listening Session on November 18; Comments May Be Submitted Via Email or During the Chat

On November 18, 2021, at 1 p.m. ET, The Centers for Medicare & Medicaid Services (CMS) will hold a 90-minute listening session about the strategy it published in October: Driving Health System Transformation - A Strategy for the Innovation Center’s Second Decade, "which details its vision for attaining a health system that achieves equitable outcomes through high-quality, affordable, patient-centered care." Although the 15 stakeholder speaker slots have already been filled, participants may submit comments via email to CMMIStrategy@cms.hhs.gov using the subject line “LISTENING SESSION #1,” or via chat during the live session. (Some of the written comments may be read aloud during the listening session.) For more information about the CMS Innovation Center’s new strategy and the CMS Innovation Center Strategic Direction, click here. Sign up for the CMS Innovation Center listserv for details on future listening sessions, model updates, and more. For details about the Listening Session and to register, click here. (Courtesy of Elizabeth R. Stone)

2 Free Webinars on "The Cultural Perspective in Psychiatry": November 19

On November 19, the Local Organizing Committee of the 6th World Congress of the World Association for Cultural Psychiatry (WACP) in Rotterdam, the Netherlands, will offer two free 75-minute webinars--at 11 a.m. CET and 8 p.m. CET--on "Re-conceptualizing culture and context to meet the needs of a globalizing world." In the run-up to the 6th World Congress of Cultural Psychiatry on September 14-17, 2022, the WACP is hosting two webinars, in which four experts in the fields of cultural psychiatry and anthropology will speak. For a CET-to-EST time-zone converter, click here. For more about the webinars and to register, click here. For more about the 6th World Congress, to be held in Rotterdam, The Netherlands, click here.

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

"Mental Health Research Matters" Website Posts Early Career Researcher (ECR) Content

Mental Health Research Matters, a UK organization, has launched a web page dedicated to early career researchers. They write: "Welcome to the home of all Early Career Researcher (ECR) content on the #MentalHealthResearchMatters website. Mental health research matters, and so do the individuals and groups who will carry on this vital work long into the future. Nurturing and mentoring these people, and providing the support they need to grow as researchers, and people, is as important as delivering cutting-edge research. Here you will find resources ranging from recordings of ECR workshops, advice from the experts, discussions on best Open Science practices and knowledge mobilization--as well as signposting to various ongoing and upcoming opportunities for ECRs." For the web page, click here.

"Pioneering Study Constructs The First Body-Map For Hallucination Sensations," Science Alert Reports

"Psychologists from the University of Leicester in the UK recruited a dozen volunteers through the National Health Service's Early Intervention in Psychosis teams, and asked them to document the hallucinations that occurred in everyday life for a week," according to a recent Science Alert article. Besides their visual and auditory symptoms, the 12 participants tracked "any other emotions, sensations, or even cognitive states...The result was a kind of map that broke down the boundaries of hallucinations, describing them as events that can affect just about any part of the body." The researchers believe that this small study could lead to better therapies to help people deal with the challenges that accompany "their particular mix of experiences." The research was published in EClinicalMedicine, a Lancet publication. About 3 percent of the population will experience some kind of psychotic episode during their lives, studies suggest. For the Science Alert article, click here. (Courtesy of Jacek Haciak)

Free Webinar: "Working Together to Support Peer Excellence in Kentucky"
On November 30, 2021, at 2 p.m. ET, Doors to Wellbeing will present a free 60-minute webinar on "Working Together to Support Peer Excellence in Kentucky." Doors to Wellbeing writes: "Collaboration is an important skill to use in the workplace. This training will highlight the successful collaboration between the Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities and the Bridgehaven Center for Peer Excellence. At the end of this training, participants will have a better understanding of the strategies needed for a successful collaboration." To register, click here.

Save the date: Virtual 2021 Youth Mental Health Disparities Conference

The 2021 Youth Mental Health Disparities Conference will be held virtually on December 8-9, 2021. It is sponsored by the National Institute of Mental Health, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, and the National Institute on Minority Health and Health Disparities. Its theme is "Identifying Opportunities and Priorities in Youth Mental Health Disparities Research." Registration information and an agenda will be forthcoming. (Courtesy of Jacek Haciak)

What Do Our Wandering Thoughts Teach Us About Our Mental Health? Plenty, Researchers Say

The findings of a University of Arizona-led study, published in Scientific Reports, may eventually be useful in the diagnosis and treatment of mental health issues such as depression. The researchers recruited 78 randomly chosen participants without knowing if they had any clinical diagnoses, and trained them to voice their thoughts aloud for 10 minutes while sitting alone in a room without access to electronic devices. More than 2,000 thoughts were recorded, transcribed, and analyzed, with the goal of measuring thought patterns--especially "ruminative thinking," i.e., continuously thinking the same negative thoughts, which is a common symptom of depression. "We were able to witness how some people became trapped in perseverative cycles of thinking," said one researcher. On the other hand, she added, "many participants found that the exercise offered a refreshing break from the busy world around them." For the press release, click here.

Forbes Highlights Two Organizations That Study Employment Obstacles Facing People with Disabilities

A recent article in Forbes--"10 Things Everyone Should Know About People With Disabilities And Employment"--features two organizations "that study disability and employment in depth, in an effort to better understand barriers to employment and hopefully suggest new solutions that might actually make a significant impact on that huge employment gap. These include Mathematica and the Kessler Foundation’s National Trends in Disability Employment (nTIDE) program, which offers weekly online 'Lunch and Learn' sessions anyone can join. Both these and similar programs try to go beyond the obvious, and figure out what roles are played by discrimination, education and job training, benefits rules, and wider economic and social conditions." For a recent Mathematica 14-page Issue Brief--"Promoting Opportunity Demonstration: Summary of the Interim Findings," published by the Social Security Administration, click here. For the Kessler Foundation's National Trends in Disability Employment program, click here. For the Forbes article, click here.

Dr. Aaron T. Beck, Developer of Cognitive Therapy, Dies at 100

"Dr. Beck was a young psychiatrist trained in Freudian analysis when, in the late 1950s, he began prompting patients to focus on distortions in their day-to-day thinking, rather than on conflicts buried in childhood, as therapists typically did," The New York Times reports. "Dr. Beck’s work, along with that of Albert Ellis, a psychologist working independently, provided the architecture for what is known as cognitive behavior therapy, or CBT.... Steven Hollon, a psychologist at Vanderbilt University, said of Dr. Beck: 'He took a hundred years of dogma, found that it didn’t hold up, and invented something brief, lasting and effective to put in its place. He basically saved psychotherapy from itself.'” Dr. Beck died on November 1, 2021, at age 100. For his obituary in The New York Times, click here.

Celebrities! They’re Just Like Us! These 18 Famous People Were Diagnosed with Bipolar Disorder

What do Brian Wilson of the Beach Boys, astronaut Buzz Aldrin, movie director Francis Ford Coppola, and British Prime Minister Winston Churchill have in common? All were diagnosed with bipolar disorder—along with 14 other celebrities named on the website of Olympia House, a rehab center in Northern California. One of those who are included, singer/songwriter Demi Lovato, “said she wants women to know that it’s possible to live well, feel well, and also find happiness with bipolar disorder or any other mental illness they’re struggling with.” For the article, click here.

"Clinical Depression Cartoons and Comics"

Laughter is the best medicine, right? For some of that medicine, click here.

The November 2021 Digest of Articles Offering Healthy Lifestyle Advice

For "How to Fend Off Winter Depression: As the days get shorter and the nights start earlier, take these steps to help prevent seasonal affective disorder," click here. For "Exercise for 3 Minutes, Every Half-Hour, to Counter the Ill Effects of Sitting: Climbing stairs, doing jumping jacks or even taking as few as 15 steps during mini-breaks improved blood sugar control among office workers," click here. For "How to Age Gracefully: Inspired by a new book, 'Stupid Things I Won’t Do When I Get Old,' I’m taking stock of my life and deciding what I need to reconsider," click here.

The November 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "In New Mexico, a bold experiment aims to take police out of the equation for mental health calls," click here. For "King County crisis services ask for clarity on police intervention: Providers want local governments to prescribe when and how police should be involved in mental health calls," click here. For "Analyzing Mass Incarceration," click here. For "Individuals Awaiting Trial Represent 77% of Jail Suicides: BJS," click here. For "Disabled and Abandoned in New York State Prisons: Incarcerated people are being disciplined because their disability makes it impossible to comply with prison rules," click here. For "The Color of Justice: Racial and Ethnic Disparity in State Prisons: Black Americans are incarcerated in state prisons across the country at nearly five times the rate of whites, and Latinx people are 1.3 times as likely to be incarcerated than non-Latinx whites. This report documents the rates of incarceration for white, Black and Latinx Americans in each state, identifies three contributors to racial and ethnic disparities in imprisonment, and provides recommendations for reform," click here. For "Solitary Confinement Condemns Many Prisoners To Long-Term Health Issues," click here. (Courtesy of Jacek Haciak) For "Why Many Police Traffic Stops Turn Deadly: Officers, trained to presume danger, have reacted with outsize aggression. For hundreds of unarmed drivers, the consequences have been fatal," click here. For "Philadelphia to become first major US city to ban minor traffic stops to promote equity, curb 'negative interactions' with police," click here. For "What Responsibility Do Courts Bear for the Crisis at Rikers Island? In the wake of a dozen deaths in New York City jails this year, prosecutors and judges are being asked to reckon with the consequences of setting bail," click here. For "Opinion: The History of Rikers Island Proves That Reform Isn’t Possible," click here. For "They Put Me in Solitary for Drugs I Didn’t Have: Lockups use unreliable tests to claim that lawyers are sending drugs to their clients behind bars," click here. For "Prisons Said It Was COVID Isolation. The Incarcerated Describe Torture. As the pandemic ravaged prisons and jails, officials opted to force people into inhumane solitary confinement. HuffPost spoke to some who described how they 'nearly broke,'” click here. For "DOJ opens civil rights probe into Texas youth correctional facilities: The department is launching the investigation over allegations of physical and sexual abuse," click here. For "New York State’s New Death Penalty: The Death Toll of Mass Incarceration in a Post Execution Era," click here. For "We Social Workers Should Remember Our Values and Stop Policing," click here. For "Planting a Life—and a Future—After Prison at Benevolence Farm: The residential and employment program on a North Carolina organic farm helps formerly incarcerated women find a new path," click here. For " How to Solve the Crisis on Rikers Island: The dangerously overcrowded and mismanaged jail must be closed—but even before then, there are things we can do right now to keep people out and send them home faster," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available on the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland. “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Conference on Stigma to Take Place November 15-19, 2021, at Howard University

The 12th Annual International Conference on Stigma will be held November 15-19, 2021, at Howard University. "The goals of this hybrid conference are to increase awareness of the stigma of HIV and other health conditions and to explore interventions to eradicate this stigma. The conference also serves to educate healthcare providers and the general public about stigma as both a human rights violation and a major barrier to prevention and treatment of illnesses." The theme of the conference is "Trauma…Recovery…Healing." For more information, click here. (Courtesy of Sharon Wise)

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,' "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 5, November 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, October 2021, Volume 18, Number 4

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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NOTE: The "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" Department, which is directly below the monthly Criminal Justice Digest, includes items that had been posted "above the fold" in earlier editions of the newsletter but are still relevant. These items include ongoing research studies that are still seeking participants, as well as upcoming webinars and conferences, and other items of continued interest. Don't miss it!

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SAMHSA to Hold Open Virtual Meeting of ISMICC on October 27; Comments Due by October 20

The next "committee meeting and listening session" of SAMHSA’s Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC) will be held on October 27, 2021, from 1:00 p.m. to 5:00 p.m. ET. More registration details are pending, NYAPRS E-News writes, "but please email Pamela.Foote@samhsa.hhs.gov before October 20 to offer public comments. The notice says that 'up to three minutes will be allotted for each approved public comment as time permits. Written comments received in advance of the meeting will be considered for inclusion in the official record of the meeting.'” The meeting is open to the public and can be accessed via telephone or webcast only. The agenda with call-in information and the draft report to Congress will be posted on SAMHSA's website prior to the meeting, which "will address feedback from the ISMICC members regarding the final report to Congress and include information on federal efforts related to serious mental illness (SMI) and serious emotional disturbance (SED)." For background about the ISMICC, click here. For more information as it becomes available, click here.

Free Webinar October 8: "Psychiatric Advance Directives (PADs): A Tool for Improving Crisis Care and Legal Issues for Implementation"

On October 8, 2021, at 12 p.m. ET--and available for viewing through November 7, 2021--a free, one-hour, SAMHSA-sponsored webinar on "Psychiatric Advance Directives (PADs): A Tool for Improving Crisis Care and Legal Issues for Implementation" will be presented. The organizers write: "PADs permit persons while in a competent state to consent [to] or refuse future treatment and appoint a proxy decision maker to speak for the incapacitated person to reinforce those preferences during a crisis....This webinar will discuss implementation of PADs and legal barriers to their use." For more information and to register, click here. (Courtesy of Dan Fisher) 

"A Government Program That Controls The Lives of People Leaving Psych Hospitals"

"For those found not guilty of a crime by reason of insanity and put into California’s CONREP program, strict supervision can last decades," according to The Marshall Project. "CONREP, which oversees roughly 650 Californians, is meant to help patients transition from institutions to independence, while also trying to prevent violent relapses. But according to a Marshall Project investigation, many patients, family members, former employees and attorneys say the system can trap people for decades in a legal limbo, one that dictates where former patients live, whether they work, and whom they see." For the Marshall Project article, click here. See also "When Not Guilty Is a Life Sentence: What happens after a defendant is found not guilty by reason of insanity? Often the answer is involuntary confinement in a state psychiatric hospital—with no end in sight": (click here).

SAMHSA's Announcement of Its New Office of Recovery Highlights the Value of Peer-run Services

"Recovery [from mental health conditions and substance use disorders] is enhanced by peer-delivered services," according to SAMHSA's announcement of its Office of Recovery on September 30, 2021. "These peer support services have proven to be effective as the support, outreach and engagement with new networks help sustain recovery over the long term. Peer services are critical, given the significant workforce shortages in behavioral health. SAMHSA’s new Office of Recovery will promote the involvement of people with lived experience throughout agency and stakeholder activities, foster relationships with internal and external organizations in the mental health and addiction recovery fields and identify health disparities in high-risk and vulnerable populations to ensure equity for support services across the Nation." For SAMHSA's press release, click here. For the press release of the National Coalition for Mental Health Recovery about the Office of Recovery, click here.

October 10 Is World Mental Health Day

The World Health Organization's theme for World Mental Health Day 2021 (October 10) is "Mental health care for all: let's make it a reality." To read more about the WHO's suggestions, click here. For WikiHow's ideas about how to celebrate World Mental Health Day, click here. For the WHO's 296-page "Guidance on Community Mental Health Services: Promoting Person-centered and Rights-based Approaches" (courtesy of Janet Paleo), published in the September 2021 Key Update, click here. For a WHO press release--"New WHO Guidance Seeks to Put an End to Human Rights Violations in Mental Health Care," from the July Key Update, click here. For "Former UN Special Rapporteur Denounces 'Global Psychiatry’s Crisis of Values,'” from the June 2021 Key Update, click hereFor "World Mental Health Day: Prioritize Social Justice, Not Only Access to Care," click here.

New Edition of TU Collaborative Newsletter Focuses on College Students with Mental Health Issues

The new edition of the Temple University Collaborative on Community Inclusion's newsletter is here! It includes three free guides: "From You, I Get the Story: Amplifying the Voices of Students with Mental Health Issues on College Campuses" (33 pages), along with a new podcast on the same topic; "Your College Community: How People with Psychiatric Disabilities Can Make the Most of Their College Experience" (35 pages); and "Campus Engagement-Oriented Supported Education" (49 pages). For the newsletter, click here.

Free Webinar: "Navigating Trauma for Kids & Teens: Back-to-School & COVID"
On October 12, 2021, at 2:30 p.m. ET, Mental Health America will present a free, one-hour webinar on "Navigating Trauma for Kids & Teens: Back-to-School & COVID." MHA writes.: "Trauma can have varying effects on a child's developing brain, oftentimes significantly impacting their ability to succeed, socially and academically, in school. These 18 months [of the pandemic] and all that have come with them have compounded already-present traumatic stress for so many kids, and in turn increased the likelihood of behavioral, academic, and social challenges. Join Brightline's webinar to learn more about how these experiences can alter a child’s ability to function in school and the ways we can support them and their families." For more information and to register, click here. MHA's previous webinars are archived and available for viewing. For details, click here.

There Are Three Days Still to Come for the 2021 (Virtual) NARMH Conference

The final three days of the 2021 annual (virtual) conference of the National Association for Rural Mental (NARMH) will take place on October 13, 20, and 27. (The first day was October 6.) The theme is "Emerging from COVID-19: Lessons Learned and Future Directions for Rural Mental Health." The registration fee includes a one-year NARMH membership. For membership details, click here. For conference information and to register, click here. Note: Discounted rate of $75 for the remaining sessions.

A Brain Implant Lifts Depression in One Person, While an Earlier Implant-for-Depression Study Failed

"An electrical implant that sits in the skull and is wired to the brain can detect and treat severe depression, U.S. scientists believe after promising results with a first patient," BBC News reports. "Sarah, who is 36, had the device fitted more than a year ago and says it has turned her life around. The matchbox-sized pack in her head is always 'on' but only delivers an impulse when it senses she may need it. The experimental study is described in Nature Medicine journal." However, in a related story, from 2018, about the Broaden Trial, which began in 2008, all of the trial participants interviewed by a reporter "had suffered a range of debilitating adverse effects, & ultimately had the device explanted." "The trial had been terminated in 2013, due to a low 17% success rate among at least 75 patients that received the controversial brain implant," Mad In America reports. "But the public was given no additional details from the sponsor about the trial’s protocols, or the outcome of at least 128 people that had enrolled in this risky experimental study." For "Brain implant may lift most severe depression," click here. For "Brain Implants: Spinning the Trial Results to Protect the Product," click here.

(Virtual) National Dialogues on Behavioral Health Continue on October 14

There's still time to register for the last four sessions of the 2021 National Dialogues on Behavioral Health Virtual Conference; the cost is $25 per session. The final four sessions will take place on consecutive Thursdays: October 14, 21, and 28, and November 4; each session is from  2:00 p.m. to 4:30 p.m. ET. The theme is  “Behavioral Health in the 21st Century: Fast Forward After the Pandemic Age.” The organizers write: "The purpose of the conference is to bring experts, administrators, providers, consumers, family members and advocates together to discuss the cutting edge in the topic of interest with a focus on implementation and 'how to do it.' A distinctive feature is the opportunity for extended dialogue and interaction among the participants." The conference is sponsored by the National Association of County Behavioral Health and Developmental Disability Directors (NACBHDD), the Western Interstate Commission for Higher Education (WICHE) Behavioral Health Program, and the National Association of State Mental Health Program Directors (NASMHPD). For more information and to register, click here.

National Association of Peer Supporters to Hold 2021 (Virtual) Annual Conference October 21-22

The 2021 conference of the National Association of Peer Supporters (N.A.P.S.) will be held October 21-22. Its theme is "Uniting the Peer Workforce." N.A.P.S. writes: "This two-day virtual event features networking, breakout sessions, and the N.A.P.S. annual meeting. Certificates of Completion will be offered for attendance." For ticket information and to register, click here." (The website includes a link to the program, indicating (at this writing) that it is "coming soon.")

"The Participation Ladder: A Consumer/Survivor Lens"

"The Participation Ladder: A Consumer/Survivor Lens" is a four-page infographic that covers how "[m]oving up the ladder is a way to address social injustice and inequity. The higher you move up the participation ladder, the more say we get to have about our own lives." The infographic includes a "Participation Ladder"--with the categories "Type of Participation" (from "Consumer-owned" on the top rung to "Exclude: Consumers are unable to access services or systems or decision making" at the bottom), "What Happens at Each Level," "Implications and Views," and "Power"--as well as a checklist to measure the level of participation (and, therefore, the impact) that your project can achieve. For the infographic, click here. (Courtesy of Nev Jones and Jacek Haciak)

APA to Present Its (Virtual) Mental Health Services Conference on October 14-15, 2021

The American Psychiatric Association is hosting its Mental Health Services Conference online on October 14-15, 2021. The theme is "Sociopolitical Determinants: Practice, Policy and Implementation." The APA writes: "The Mental Health Services Conference highlights educational programs and innovations in clinical services designed to ensure equal access to high-quality mental health care for all populations regardless of race/ethnicity, age, religion, nationality, sexual orientation, gender identity, socioeconomic status, or geographical background." For details, including ticket costs and the complete agenda, and to register, click here.

"Taking the Call"--a National Conference Exploring Innovative Community Responder Models--Will Take Place October 20-21

Taking the Call, on October 20-21, 2021, "will bring people together from across the U.S. to delve into how jurisdictions are serving as laboratories for innovation to ensure that emergency calls receive the appropriate response. The virtual conference will explore how communities are working to build more comprehensive crisis systems including the opportunities and challenges of emerging community responder models and whether or how the approach may improve community health, lessen the burden on law enforcement, and reduce unnecessary justice system contact. The conference is presented by the U.S. Department of Justice’s Bureau of Justice Assistance, The Council of State Governments Justice Center, and the University of Cincinnati. The national conference is free and open to the public; pre-registration is required. For more information and to register, click here(Note: This conference was first publicized in the May 2021 Key Update.)

Free Virtual Mental Health Summit to Be Hosted by MHA and IDONTMIND

Mental Health America and IDONTMIND, in partnership with Youtube, will present Our Future In Mind: Mental Health Summit, a free live conference, on November 5, 2021, from 5 p.m. to 8 p.m. ET, and November 6 from 12 p.m. to 6 p.m. ET. Mental Health America writes: "The first of its kind, this event will give you a front-row seat to the stories behind some of the biggest movements in mental health and the tools you will need to be part of the change." For more information and to register, click here

Mindspring Alliance Is Sponsoring Several Free Webinars in October 2021

Mindspring Alliance, a mental health agency based in Des Moines, Iowa, has eight free webinars coming up in mid- to late October. "Delivering comprehensive outreach & education is the heart of our mission," they write. "These events are absolutely free and everyone is welcome." All of the webinars are one hour in length, at 1 p.m. ET, 12 p.m. CT, 11 a.m. MT, 10 a.m. PT. The choices are "Understanding Bipolar Disorder" (October 12), "Understanding Obsessive Compulsive Disorder" (October 13),  "Understanding Hoarding" (October 14), "The Psychological Origins of Stigma & Bias" (October 19), "The Science Behind Mental Health" (October 20), "Stress: Signs, Symptoms, Management, & Prevention" (October 21), "Understanding Schizophrenia" (October 27), and "Understanding Seasonal Affective Disorder" (October 28). For more information and to register, scroll down at this link (click here).

Doors to Wellbeing Offers Free Webinar on "The Season for Self-Care"

The next free webinar in Doors to Wellbeing's series is "The Season for Self-Care," on October 26, 2021, at 2 p.m. ET. "As Autumn arrives, we move inward, becoming aware of what is really needed to care for ourselves and those around us. It is essential for those of us who take care of others to spend some time taking care of ourselves first. For peer specialists, this webinar will explore changing self-care to fit the season, applying techniques that foster a positive attitude, and engaging others in ways that support wellness." For more information and to register, click here.

Researchers Construct a Model of Psychological Balance

A recent article in Frontiers in Psychology by researchers at the University of Zurich describes their efforts to create a model of "psychological balance." "...[I]t has to do with the degree to which someone is able to possess a consistent yet flexible outlook on life while also spending the right amount of time taking care of oneself versus others," therapytips.org reports. The model contains 10 value domains: "Self-direction (e.g., 'I decide about which way my life goes'); Stimulation ('I am open to discovering new things in life'); Hedonism ('I can enjoy life to the fullest'); Achievement ('I strive to do my best and succeed in what I do'); Power ('I strive to gain resources and influence over others'); Security ('I want to be safe wherever I am'); Conformity ('I follow social rules out of respect for others'); Tradition ('I follow ideas of my culture or religion'); Benevolence ('I care about my family, friends, and other people'); and Universalism ('I care about all things on the planet')...The researchers suggest that individuals who devote relatively equal amounts of time to themselves and others... are most likely to exhibit psychological balance." For the therapytips.org article, "4 Traits of Psychologically Balanced People," click here. For the Frontiers in Psychology article, click here.

Latest Live & Learn Newsletter Offers Research, News, and Resources

Live & Learn--"the only survivor-run research organization in the U.S."--writes: "This month we are devoting our newsletter to updates from our projects and our efforts to share the information we learn through our work. Make sure to check out the opportunity to contribute to the development of our self-employment resource platform!" For the September 2021 newsletter, click here.

"Study Finds 'Serious Problems with Privacy' in Mobile Health Apps," BMJ Reports

A recent "in-depth analysis of more than 20,000 health-related mobile applications (mHealth apps) published by The BMJ finds 'serious problems with privacy and inconsistent privacy practices.' The researchers say the collection of personal user information is 'a pervasive practice' and that patients 'should be informed on the privacy practices of these apps and the associated privacy risks before installation and use.'...[R]esearchers at Macquarie University in Australia identified more than 15,000 free mHealth apps in the Google Play store and compared their privacy practices with a random sample of more than 8,000 non-health apps. They found that while mHealth apps collected less user data than other types of mobile apps, 88% could access and potentially share personal data...Only 4% of mHealth apps actually transmitted data (mostly user's name and location information). However, the researchers say this percentage is substantial...The researchers also found that 28% (5,903) of the mHealth apps did not offer any privacy policy text, and at least 25% (15,480) of user data transmissions violated what was stated in the privacy policies." For the article, click here.

And Now for Something Completely Different…

For some comic relief, click here.

The October 2021 Digest of Articles Offering Healthy Lifestyle Advice

For "Research Shows People Become Increasingly Unhappy Until Age 47.2. Here's How to Minimize the Negative Effect of the 'Happiness Curve': While middle age 'misery' reaches its low point in our late 40s, still: There are definitely ways to minimize the effect of a global phenomenon," click here. For "The Difference Between Hope and Optimism: For starters, hope is better," click here. For "We Need to Understand the Difference Between Isolation and Loneliness: Both can pose distinct dangers to our mental and physical health," click here. For "Four Light Exercises to Help You Sleep," click here. For "The Opposite of Toxic Positivity: 'Tragic optimism' is the search for meaning during the inevitable tragedies of human existence, and is better for us than avoiding darkness and trying to 'stay positive,'” click here.

The October 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Mental Illness In Solitary Landed These Men An Extra 842 Years In Illinois Prisons, Advocates Say: A civil-rights group wants the governor to commute sentences for 43 people whose mental health and behavior deteriorated in solitary," click here. For "Doing No Harm: Criminal charges against paramedics in Elijah McClain’s death raise questions about when emergency medical responders should be held accountable for fatalities in police custody," click here. For "The Cover-up Machine: Activists in Aurora, Colorado, wanted justice for Elijah McClain. Instead, they found themselves facing decades in prison," click here. For "Seattle police intervening in fewer mental health calls, data show: Since Washington implemented new police use-of-force laws, SPD officers have sent fewer people in mental health crisis to the hospital," click here. (The following six articles are about the brutal conditions at New York City's Rikers Island and the need to shut it down.) For "A hellhole yesterday, today and tomorrow: Mayor de Blasio’s epic Rikers Island failure," click here. For "What to Do About Closing Rikers," click here. For "Opinion: Closing Rikers Island is a matter of life and death," click here. For "Dispatch From Deadly Rikers Island: ‘It Looks Like a Slave Ship in There’: Rikers Island has been notorious for violence and neglect for decades. But detainees, corrections officers and officials tell us the New York City jail complex has plunged into a new state of emergency," click here. For "There’s No Fixing Rikers. Close It, and Let People Go. Bill de Blasio and the correctional officers’ union say the crisis at Rikers Island is about understaffing. But no number of guards will solve the underlying problems with the jail," click here. For "'I Just Want to Be Normal’: A Mentally Ill Man’s Death at Rikers: Esias Johnson had been in and out of Rikers Island during his two years in New York. Now two correction officers have been suspended in connection with his death," click here. For "Officer Faces Discipline 5 Years After Killing Mentally Ill Woman: Acquitted of murder in the death of Deborah Danner, Sgt. Hugh Barry is being brought up on administrative charges in a long-delayed hearing," click here. For "Jurors don’t know what the penalties for a guilty verdict will be. They should. If juries knew the consequences of their decisions, they’d deliberate more carefully—and could serve as a check on punitive laws," click here. For "How I Went From Prison Cook to Pizza Chef at One of Philly’s Best New Restaurants: At Down North Pizza in Philadelphia, all the employees are formerly incarcerated, including executive chef Michael Carter. This is his story," click here. For "In Arizona, a radical change in juvenile detention: How a rural town transformed a juvenile facility into a safe space for teens," click here. For "Violence Behind Bars: The Hidden Abuse," click here. For "Pregnant Behind Bars, Part One: Second Chances," click here. For "Custodial Sanctions and Reoffending: A Meta-Analytic Review" (Abstract), click here. For "What I learned visiting Alaska’s only maximum-security prison: The reforms at the Spring Creek prison show what can be done when people are treated humanely and prepared for life on the outside," click here. For "Peer education initiative for prisoners goes mainstream," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

NARPA’s 2021 (Virtual) Annual Rights Conference Will Present Five Free Webinars

The 2021 annual Rights Conference of the National Association for Rights Protection and Advocacy (NARPA) will consist of five free webinars (which will be archived), in September and October 2021. The five webinars—all of which are 90 minutes long and begin at 2 p.m. ET—are "Advocating for Institutionalized People During COVID: The Massachusetts Experience" (September 13); "The Promise and the Pitfalls of 988: Survivor Advocacy Perspectives" (September 27); "Advocating for Equitable Health Care in a Public Health Emergency" (October 4); "How to Create Change in Police Services: Transparency, Accountability, and Reform" (October 13); and "The Unacceptable Institutionalization of People with Psychiatric Disabilities in Nursing Homes" (October 19). All of the webinars will be archived on the NARPA YouTube channel within a couple of weeks of the presentation date (click here); at this writing, the September 13th and September 27th webinars are posted. For details and to register, click here. In addition, NARPA's free 2020 webinars are available for streaming on NARPA's YouTube Channel. For more information, click here.

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Free Webinar: "New Frontiers for Activism: Youth Involvement & Leadership in Research"

On October 12, 2021, at 4:30 p.m. ET, the National Empowerment Center (NEC) will sponsor a free, 90-minute webinar on "New Frontiers for Activism: Youth Involvement & Leadership in Research." NEC writes: "This webinar will showcase different ways in which youth leaders are influencing research and using research in order to challenge existing ideas and practices and to further advocacy for systems change. Projects conducted both within and outside traditional academic settings will be featured. Although a still under-developed area in other communities, youth activist research and scholarship have played a powerful role in systems transformation. We hope that this webinar will help inspire more discussion and interest in the strategic use of research within the youth and adult peer communities, and among academic allies." For more information and to register, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland; the dates will be confirmed this month (June 2021). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Conference on Stigma to Take Place November 15-19, 2021, at Howard University

The 12th Annual International Conference on Stigma will be held November 15-19, 2021, at Howard University. "The goals of this hybrid conference are to increase awareness of the stigma of HIV and other health conditions and to explore interventions to eradicate this stigma. The conference also serves to educate healthcare providers and the general public about stigma as both a human rights violation and a major barrier to prevention and treatment of illnesses." The theme of the conference is "Trauma…Recovery…Healing." For more information, click here. (Courtesy of Sharon Wise)

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

International Peer Respite/Soteria Summit to Be Held Every Sunday in October 2021

Rethinking Psychiatry and MindFreedom International are sponsoring the International Peer Respite/Soteria Summit, to be held on October 3, 10, 17, 24, and 31, from 12 p.m. ET to 3 p.m. ET. The theme is "Creating Compassionate Alternatives to Systemic Interventions for People in Crisis and Distress." "This free international, online, participatory conference will give people the inspiration, tools, resources, networks and ongoing support to bring Peer Respite or Soteria House to their communities," the organizers write. The Day 2 moderator will be Jim Gottstein, founder of the Law Project for Psychiatric Rights and author of "The Zyprexa Papers." For details and to register, click here. (Courtesy of Kevin Fitts)

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,' "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

"Researchers Reveal New Suicide Prevention Tools from Survivors," and AAS Suicide Attempt Survivors Web Page Offers Many Such Tools

"Strategies to Stay Alive: Adaptive Toolboxes for Living Well with Suicidal Behavior" was published July 29, 2021, in the International Journal of Environmental Research and Public Health. "In the study, the authors present a series of interviews with suicidal individuals that opens new avenues of research into suicide prevention and offers a rare window into the minds of those who have considered or attempted suicide." Meanwhile, the American Association of Suicidology (AAS) Suicide Attempt Survivors webpage offers links to many suicide prevention resources. For "Strategies to Stay Alive," which includes a link to the study, click here. For the AAS Suicide Attempt Survivors web page, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 4, October 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, September 2021, Volume 18, Number 3

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

Chatbots: Do They Help or Might They Harm?

Chatbots—which use software to have an online conversation through text or synthesized speech, and are designed to make it seem as though you’re talking to another human being—are promoted as effective in providing mental health support. But in the brave new world of Artificial Intelligence, they may veer badly off course—like the android in “Alien,” who was responsible for the deaths of nearly the entire crew of his spaceship. That is the gist of a recent article in The New Yorker—“The Chatbot Problem”—which begins by reporting that a chatbot called Replika advised one journalist to commit murder, and another to commit suicide. Yet Replika calls itself “the AI bot that wants to be your best friend.” Another chatbot is Wysa, an award-winning “AI-enabled Life Coach,” whose website says it is “clinically safe.” But the New Yorker article concludes, “We are being forced to confront fundamental mysteries of humanity as technical issues: how little we know about the darkness in our hearts, and how faint our control over that darkness is…” Microsoft’s erstwhile chatbot—Tay—is a cautionary tale: For “Twitter taught Microsoft’s AI chatbot to be a racist a**hole in less than a day,” click here. For the New Yorker article, click here. (The Wysa information is courtesy of Fran Hazam.)

"5 Disability Bills in Congress to Watch," Reported by Forbes

"No list of disability legislation can ever be complete," according to an August 24, 2021, article in Forbes. "And the disability community almost never agrees on which issues at any given time are most important, or which bills have the best chance of passing. Still, it can help to at least try drafting a list, or series of lists, of disability bills in Congress. Here are five to start with as we move into the Fall of 2021." The five--the title of each of which links to the text of the bill, respectively--are 1. Better Care Better Jobs Act (S. 2210 / H. 4131) 2. Transformation to Competitive Integrated Employment Act (H.R. 2373) 3. Supplemental Security Income Restoration Act (S. 2065 / H.R. 3763) 4. Disabled Access Credit Expansion Act of 2021 (S. 2481 H.R. 4049) and 5. Disability Employment Incentive Act (S. 630 / H.R. 3765). For the article, which includes a summary of each bill, click here.

Free Webinar: “The Peer Profession Progression”

“Join NYAPRS on September 14, 2021, at 12 p.m. ET for a lively conversation with leaders in the field of Peer Services as we discuss education and training opportunities that lead to work in the field of delivering peer support services. Our panel of experts will talk about their own experiences in delivering and supporting peer services as well as why peer support is a critical component of someone's recovery process. 1.5 CEs will be offered for this webinar.” To register, click here.

2021 (Virtual) Disability Vote Summit to Be Held September 14

"The National Disability Rights Network and the American Association of People with Disabilities will be hosting the 2021 Disability Vote Summit on September 14, 2021, from 12 p.m. ET to 4 p.m. ET. At the virtual Summit, we will explore the power of the disability vote, lessons learned from 2020 turnout, and how to use data to mobilize the disability vote. Confirmed presenters include representatives from the National Disability Rights Network, National Federation of the Blind, SABE Go Voter Project, and more! Join national disability advocates, state and local organizers, policymakers, and others who are working to get out the disability vote." Questions? Contact Lilian Aluri at laluri@aapd.com or Jack Rosen at jack.rosen@ndrn.org. ASL and CART will be provided during the Summit. To register, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

AAS Announces 2021 Paul G. Quinnett Lived Experience Writing Competition

The American Association of Suicidology (AAS) has announced the opening of the 2021 Paul G. Quinnett Lived Experience Writing Competition. AAS writes: "We invite attempt survivors and those with lived experience to share their written stories to highlight the importance of these experiences. Writing must be: A personal essay describing the author’s experience with suicidal ideation and/or attempt(s). The writing describes the impact on the writer, and tells the story in a way that is accessible and understandable to the greater community. Poetry, creative fiction, and biography are not accepted...We prioritize the perspectives viewed through the lens of intersectionality...Cash prizes are awarded to the top three winning written submissions." Deadline: September 30, 2021, 11:59 p.m. ET. Word limit: 2,500 words. For more information and to submit an essay, click here. (Courtesy of Elizabeth R. Stone) Dr. Paul G. Quinnett is a clinical psychologist and the director of the QPR Institute, an educational organization dedicated to preventing suicide. Among his writings is "Suicide: The Forever Decision." For the free 104-page document, click here.

 Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Many Research Studies Are Seeking Participants, Mad In America Reports

Mad in America recently posted an assortment of research studies that are looking for participants. The studies include International Online Survey of Members of Peer Support Groups About Their Experiences of Withdrawing From Antidepressants; Study on Psychosocial Disability Advocacy and Global Mental Health; University of Pennsylvania Perelman School of Medicine study: Experiences of inpatient psychiatric care among former patients; Dissertation research study: Spiritual/religious experience misdiagnosed as “mental disorder”; Have you had a diagnosis of Bipolar Disorder and decided to stop taking medication?; and others. For details and to participate, click here.

"Researchers Reveal New Suicide Prevention Tools from Survivors," and AAS Suicide Attempt Survivors Web Page Offers Many Such Tools

"Strategies to Stay Alive: Adaptive Toolboxes for Living Well with Suicidal Behavior" was published July 29, 2021, in the International Journal of Environmental Research and Public Health. "In the study, the authors present a series of interviews with suicidal individuals that opens new avenues of research into suicide prevention and offers a rare window into the minds of those who have considered or attempted suicide." Meanwhile, the American Association of Suicidology (AAS) Suicide Attempt Survivors webpage offers links to many suicide prevention resources. For "Strategies to Stay Alive," which includes a link to the study, click here. For the AAS Suicide Attempt Survivors web page, click here.

NYAPRS Announces Schedule for Its Free, Virtual Annual Conference

The New York Association of Psychiatric Rehabilitation Services (NYAPRS) has announced the schedule for its free, virtual 2021 conference, to be held on September 21, 23, 28 and 30th. Its theme is “United in Hope, Together for Justice and Wellness for All.” The conference will feature the U.S. Assistant Secretary for Mental Health and Substance Use, Dr. Miriam Delphin-Rittmon (Sept. 21, 11:30 a.m. ET); NYS Mental Health Commissioner Ann Sullivan (Sept. 21, 4 p.m. ET); WRAP creator Mary Ellen Copeland (Sept. 30, 1:15 p.m. ET); NYS Senate Mental Health Committee Chair Samra Brouk (Sept. 23, 11:30 a.m. ET); Helen 'Skip' Skipper of the New York City Criminal Justice Agency (Sept. 28, 11:30 a.m. ET); CAHOOTS Director Tim Black (Sept. 28, 1:15 p.m. ET); Mental Health America's award-winning youth peer leader Kelly Davis (Sept. 28, 1:15 p.m. ET); Keris Myrick, a JED Foundation director and former Director of the Office of Consumer Affairs at the Center for Mental Health Services (Sept. 21, 2:45 p.m. ET); and Stand Up for Mental Health's founder, David Granirer (Sept. 23, 6:30 p.m. ET). For the complete schedule, click here, and to register, click here.

Free Webinar: “Communication at Work that Promotes Growth and Wellness” on September 28

The next webinar from Doors to Wellbeing, on September 28, 2021, at 2 p.m.ET, will cover “Communication at Work That Promotes Growth and Wellness.” Doors to Wellbeing writes: “As peer specialists, how we communicate and the language we use at work is important and is connected to our own wellness. We tend to compromise our overall well-being while in conversations with others, and sometimes with ourselves, because: it is (a) easier, (b) based on fear and discomfort, or (c) what we are taught is the ‘right’ thing to do. We will explore how we can implement healthy boundaries at work, how and when to speak up, and to shift our thinking from doubt to confidence.” The learning objectives are “exploring other options to say ‘no’ without saying ‘no’; learning to shift our mindset to keep us open to creativity, possibility, and productivity; and identifying passive language and transform it to active language.” To register, click here

International Peer Respite/Soteria Summit to Be Held Every Sunday in October 2021

Rethinking Psychiatry and MindFreedom International are sponsoring the International Peer Respite/Soteria Summit, to be held on October 3, 10, 17, 24, and 31, from 12 p.m. ET to 3 p.m. ET. The theme is "Creating Compassionate Alternatives to Systemic Interventions for People in Crisis and Distress." "This free international, online, participatory conference will give people the inspiration, tools, resources, networks and ongoing support to bring Peer Respite or Soteria House to their communities," the organizers write. The Day 1 moderator will be Robert Whitaker, author of "Anatomy of an Epidemic" and "Mad in America." For details and to register, click here. (Courtesy of Kevin Fitts)

23rd Annual ISEPP Conference to Be Held October 9, 2021; and ISEPP Circulates Petition to Support Human Rights in Psychiatric Treatment

The 23rd annual ISEPP (International Society for Ethical Psychology & Psychiatry) conference--whose theme is "The Destructive Propaganda of the Mental Health Industry: How Did We Get Here? Where Are We Going?”--will be held October 9, 2021. "This year's [virtual] conference will address the question: 'How did we allow biological psychiatry take a strangle hold of the struggles and diversity of humanity?' The presentations of our conference will explore how the so-called 'medical model' has insinuated itself through privilege and power into virtually all aspects of our culture, from defining what is 'normal' to pushing a diseased brain model of all behavior. Our schools, our courts, our healthcare, our everyday life have felt the impact of psychiatry's prejudices. Join us as we critically examine how Big Pharma and Psychiatry influence our lives and our thinking." For more information, click here. (Courtesy of Jim Gottstein) At the same time, ISEPP seeks signatures on a petition to  "[m]ake a strong statement that any psychiatric or psychotherapeutic interventions without full and honest informed consent are unethical and inhumane." For the petition, click here. (Courtesy of Amy Smith)

ISPS-US Offers an Array of Archived Webinars--Free but Donations Are Welcomed

The ISPS-US (The International Society for Psychological and Social Approaches to Psychosis-US Chapter) is offering a whole raft of archived webinars, which are free (although donations are welcomed). Among the webinars are "Cognitive Behavioral & Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery," "How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy," "Robert Whitaker: The Rising Non-Pharmaceutical Paradigm for 'Psychosis,'“ "Life with Voices: A Guide for Harmony," "COPE Project: Non-Pharmaceutical Research on Influencing Voices and Visions," "What Hurts and What Helps In Treatment For 'Psychosis': Insider Perspectives," and many others. For more information and to access the webinars, click here.

WHO's "Guidance on Community Mental Health Services: Promoting Person-centered and Rights-based Approaches"

"...[T]his [WHO] guidance supports countries to develop and reform community-based services and responses from a human rights perspective, promoting key rights such as equality, non-discrimination, legal capacity, informed consent and community inclusion. It offers a roadmap towards ending institutionalization and involuntary hospitalization and treatment and provides specific action steps for building mental health services that respect every person’s inherent dignity....This guidance is intended to bring urgency and clarity to policy makers around the globe and to encourage investment in community-based mental health services in alignment with international human rights standards. It provides a vision of mental health care with the highest standards of respect for human rights and gives hope for a better life to millions of people with mental health conditions and psychosocial disabilities, and their families, worldwide." For the 296-page document, click here. (Courtesy of Janet Paleo) Note: The July 2021 Key Update included "New WHO Guidance Seeks to Put an End to Human Rights Violations in Mental Health Care," a WHO press release without a link to the document. For the WHO press release, click here.

Seven Ways to Keep a Digital Copy of Your Vaccination Card on Your Smartphone

“You'll need proof of vaccination to go back to work or enter many restaurants, gyms and event venues, so keep your COVID-19 card handy.” This is the advice of CNET.com, a tech support website. Besides the obvious—taking a photo of the card to store on your phone—there are six other suggestions. For details, click here. (Courtesy of Yvonne Smith)

Free Webinar: "New Frontiers for Activism: Youth Involvement & Leadership in Research"

On October 12, 2021, at 4:30 p.m. ET, the National Empowerment Center (NEC) will sponsor a free, 90-minute webinar on "New Frontiers for Activism: Youth Involvement & Leadership in Research." NEC writes: "This webinar will showcase different ways in which youth leaders are influencing research and using research in order to challenge existing ideas and practices and to further advocacy for systems change. Projects conducted both within and outside traditional academic settings will be featured. Although a still under-developed area in other communities, youth activist research and scholarship have played a powerful role in systems transformation. We hope that this webinar will help inspire more discussion and interest in the strategic use of research within the youth and adult peer communities, and among academic allies." To register, click here.

Conference on Stigma Calls for Abstracts

The 12th Annual International Conference on Stigma, to be held November 15-19, 2021, at Howard University, has issued a call for abstracts. "The goals of this hybrid conference are to increase awareness of the stigma of HIV and other health conditions and to explore interventions to eradicate this stigma. The conference also serves to educate healthcare providers and the general public about stigma as both a human rights violation and a major barrier to prevention and treatment of illnesses. We are looking for original research that addresses HIV or other mental [emphasis added] or physical health-related stigma to be presented as a VIRTUAL POSTER during the conference virtual poster session. Abstracts that focus on this year’s theme of 'Trauma…Recovery…Healing' are particularly encouraged." Deadline: October 1, 2021, at 5 p.m. ET. For more information and to submit an abstract, click here. (Courtesy of Sharon Wise)

Should Fusion Be the Goal of People with Dissociative Identity Disorder? That Depends on Whom You Ask

Somewhat controversially, people with Dissociative Identity Disorder (DID) have been vlogging about their "multiplicity" on YouTube. Their vlogs have been hailed as inspirational by others with the condition, while some professional DID specialists have concerns. One DID researcher and therapist said that the YouTube videos have "many positives" while adding, "I certainly wonder if that will keep [their parts] from moving toward integration." Another DID specialist called the videos "completely anti-therapeutic." Of course, that depends on what the goal of therapy is: "Instead of fusion, some people in the DID community, even those who said they were in treatment, said they preferred a term like healthy multiplicity or functional multiplicity to describe their treatment goals," New York Magazine reports in "Meet My Multiple Mes: People with dissociative identity disorder have started presenting their selves on YouTube to rapturous fans." Although Wyn--the main focus of the article--said she "felt good," she also "now thinks that 'being on YouTube was massively detrimental to our mental health.'” But, she added, “I might have pressured my system into fusing against their will if I hadn’t been online.” At the same time, the Rings System, also quoted in the article, said "they thought focusing on whether they would fuse was beside the point. 'What I need is not to become the perfect epitome of health. It’s for society to be accessible to me even if I’m not.'” For the New York Magazine story, click here. For a recording of "Building Plural Safe Spaces: One Body, Many Activists - The Rings System, The Alexandrite System," a workshop presented at Alternatives 2021, click here.

Lived Experience Leadership Features 12 Years of Research Studies...

"Lived Experience Leadership features 12 years of research studies focused on this workforce in a range of settings, to foster a better of understanding and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers. Lived Experience Leadership provides clear and simple to read research summaries to allow community members and people employed within various industries the opportunity to easily understand and apply strategies within their own workplace. This website also includes easy to download definitionsaudio/visual resources, and key work by other Australian and International sources. The website will continue to grow to include larger collections of our research as well as other key work. For the Lived Experience Leadership website, click here. (Courtesy of Jacek Haciak)

"Teens Are Advocating for Mental Health Days Off School"; and "...Students with Mental Health Disabilities Must Be Given Equal Access to Higher Education"

A recent New York Times article--"Teens Are Advocating for Mental Health Days Off School: The decline in the mental health of children and adolescents has led to new laws allowing kids to attend to their own self-care”--reported: "Faced with high stress levels among adolescents and a mental health crisis that includes worsening suicide rates, some states are now allowing students to declare a mental health day. In the last two years alone, ArizonaColoradoConnecticut, IllinoisMaineNevadaOregon and Virginia have passed bills permitting children to be absent from school for mental or behavioral health reasons, efforts that were often aided or spearheaded by students..." For the NY Times article, click here. And Inside Higher Ed recently reported that the "U.S. Justice Department reached a settlement with Brown University after students who took medical leaves for mental health reasons were refused readmission, even after their doctors cleared them to return...The department claims Brown violated Title III of the Americans with Disabilities Act..." For "Protecting Students Who Seek Mental Health Treatment: In a settlement with Brown, the Justice Department affirms that students with mental health disabilities must be given equal access to higher education," click here. (The Inside Higher Ed article is courtesy of Nev Jones.)

“45 Honest Comics About Mental Health Illustrated with Dinosaurs”

“Is this series happy? Sad? I don't know. But it's definitely melancholic and realistic. Which, given the fact that we're talking about dinosaurs using social media, is one heck of a compliment.” To read it, click here.

The September 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “How Exercise May Help Keep Our Memory Sharp: Irisin, a hormone produced by muscles during exercise, can enter the brain and improve cognition, a mouse study suggests,” click here. For “How to deal with regret and forgive yourself for making imperfect decisions,” click here. For "Studies Show: We Need to Understand the Difference Between Isolation and Loneliness: Both can pose distinct dangers to our mental and physical health," click here.

The September 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For "Dealing with Mental Health Crisis One Zoom Call at a Time," click here. For “Harris County will send mental health professionals to some 911 calls under new initiative to reduce violence,” click here. For “How a Liberal Michigan Town Is Putting Mental Illness at the Center of Police Reform: Improving the way law enforcement deals with mental illness is emerging as one of the most important and challenging aspects of the national police reform movement,” click here. For "Feds expand Pell Grant program for prisoners working on college degrees," click here. For “Four Ways The Pandemic Made Us Rethink Our Criminal Legal System,” click here. For “From police traffic stops to qualified immunity for officers, 5 ways to reform policing,” click here. For “Mass. defense attorneys say drug test falsely flags client mail,” click here. For “Manslaughter charges filed against LAPD officer who killed disabled man at Costco,” click here. For “Intersection of mental health, police and race takes the life of another young Black man: Fatal shooting in drive-thru shows need to go beyond well-worn crisis intervention to understanding Black fears, negotiating without police,” click here. For “How Atrocious Prisons (sic) Conditions Make Us All Less Safe: The American prison system seems designed to ensure that people return to incarceration instead of successfully reentering society,” click here. For “Race and Wrongful Convictions in the United States: African Americans are only 13% of the American population but a majority of innocent defendants wrongfully convicted of crimes and later exonerated. They constitute 47% of the 1,900 exonerations listed in the National Registry of Exonerations (as of October 2016), and the great majority of more than 1,800 additional innocent defendants who were framed and convicted of crimes in 15 large-scale police scandals and later cleared in ‘group exonerations,’ ” click here. For “Restorative Justice Won’t Work Without This Crucial Piece: Illinois is one of the first states to try it,” click here. For “A Fight to Expose the Hidden Human Costs of Incarceration: The law professor Andrea Armstrong is documenting the loss of life inside jails and prisons in Louisiana, the state with the highest in-custody mortality rate,” click here. For “Where Reform Goes to Die: The Justice Department has never been, and will never be, an ally in ending mass incarceration,” click here. For “New State Funding Boosts Prosecutor-led Resentencing Efforts in California,” click here. For “The Lines of Connection: States make millions off phone-call fees from incarcerated people, but the cost can be even higher for their families,” click here. For “What Does California Owe Its Incarcerated Firefighters? Those risking their life on the front lines of the state’s wildfires earn a fraction of minimum wage,” click here. For “Cities That Reduced Arrests For Minor Offenses Also Saw Fewer Police Shootings. And crime in those cities wasn’t worse,” click here. For “NY Prison Arts and Reentry Programs Persist Throughout Pandemic,” click here. For “The Fascinating Experiment Captured in ‘Philly D.A.’: Could a longtime defense attorney reform the criminal-justice system as an insider?” click here. For “Opinion: How the language of criminal justice inflicts lasting harm,” click here. For “ ‘They Should Have Been Watching’: Suicides Rise in Texas Prisons During Pandemic: Prison suicides have been rising for years. Experts fear the pandemic has made it worse,” click here. For “ ‘Shooting First and Asking Questions Later’: In rural communities, fatal police shootings have occurred at high rates, without the attention (and protests) that urban shootings have drawn,” click here. For “A Most Carceral Friend: The Justice Department’s top Supreme Court lawyer is far more committed to helping prosecutors win convictions and keep people locked up than to ‘doing justice,’ " click here. For “Desperate to escape solitary confinement, a Maine man’s plight deepens: Zachary Swain is a rare example of a Maine prisoner who has spent most of his time behind bars in solitary confinement, even as the state works to reduce use of the controversial practice,” click here. For “Saugus woman who police shot and killed was mother of two ‘in need of help’: GoFundMe page: She was brandishing a knife, police said,” click here. For “Federal Loophole Thwarts State Curbs on Police Seizures of Property,” click here. For “Georgetown University launches national project certifying correctional officials in practices designed to limit solitary confinement of juveniles,” click here. For "Opinion: Virginia can do better than keeping innocent people in prison," click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

“Should I Mask? Can I Travel? What About Hugs? How Delta Is Changing Advice for the Vaccinated.” “The rise of the Delta variant of the coronavirus has raised new questions about how the vaccinated can stay safe and avoid breakthrough infections. We asked the experts for advice,” The New York Times writes. Under “New Guidance for the Vaccinated,” the Times answers these questions: “If I’m vaccinated, why do I need to worry about Delta? What’s the real risk of a breakthrough infection after vaccination? When should I wear a mask? Should I upgrade my mask? What’s the risk of hanging out with my vaccinated friends and family? Can I still dine at restaurants? Is it safe to travel? Should I skip the peanuts and water and keep my mask on? How safe are buses, subways and trains for vaccinated people? Can I hug and visit older relatives? What about unvaccinated children? How do I know if I have the Delta variant?” For the article, click here.

California Memorial Project to Hold 19th Annual Remembrance Ceremony on September 20

The California Memorial Project, a project of Disability Rights California’s Peer Self-Advocacy Program, will hold its 19th annual Remembrance ceremony on September 20, 2021, at 1 p.m. PT, 4 p.m. ET, “to honor the more than 45,000 people with mental health and developmental disabilities who lived and died at California state institutions and were buried anonymously in mass or unmarked graves. Join us as we share some history, stories, poems, songs, artwork, cultural perspectives, and a moment of silence to celebrate their lives and give them the recognition they deserved. Together we can break the cycle of disrespect and create hope and change for the future of the 6,000 peers who currently live in California state hospitals." Closed captioning and Spanish and ASL interpreters will be provided. For more about this webinar and to register, click here.

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

NARPA’s 2021 (Virtual) Annual Rights Conference Will Present Five Free Webinars

The 2021 annual Rights Conference of the National Association for Rights Protection and Advocacy (NARPA) will consist of five free webinars, in September and October 2021. The five webinars—all of which are 90 minutes long and begin at 2 p.m. ET—are "Advocating for Institutionalized People During COVID: The Massachusetts Experience" (September 13); "The Promise and the Pitfalls of 988: Survivor Advocacy Perspectives" (September 27); "Advocating for Equitable Health Care in a Public Health Emergency" (October 4); "How to Create Change in Police Services: Transparency, Accountability, and Reform" (October 13); and "The Unacceptable Institutionalization of People with Psychiatric Disabilities in Nursing Homes" (October 19). For details and to register, click here.

 “Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

Virtual Peer-A-Palooza Will Take Place on September 24-25

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host the 1st Annual Peer-A-Palooza on September 24 and September 25, 2021, eight hours each day, via Whova. The theme of the conference is “Creating a Zest for Life Through Growth, Resilience, Recovery and Community.” The goals are to empower peers with the necessary tools to grow in their own recovery, to leave the past as the past and move forward with dreams, and to be the change agent they can be in their community.” To register, click here.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available the Alternatives conference website (click here).

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. To track the vaccinations in the U.S., by state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

RMIT Mad Studies Network, based in Melbourne, Australia, Hosts Monthly Virtual Reading Group

“The RMIT Mad Studies Network brings together anyone interested in Mad Studies, mad ideas, critical thinking about mental distress, the politics of ‘mental health,’ the mental health consumer/survivor/ex-patient movement and alternatives to the contemporary mental health paradigm/system,” according to the RMIT website’s home page. Currently, the RMIT’s main activity is a monthly reading group, now held virtually. The 90-minute groups take place on the third Tuesday of the month at 7 p.m. AEST (Australian Eastern Standard Time), which is 14 hours later than Eastern Daylight Time (5 a.m. EDT on the third Monday of the month). The time difference grows as you move west: 4 a.m. CT, 3 a.m. MT, 2 a.m. PT. For more information, click here. (Note: The next group has been switched from Tuesday to Wednesday, September 22, 2021.)

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland; the dates will be confirmed this month (June 2021). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

NARPA Free Webinar Series Is Available Online

“In lieu of a face-to-face conference in 2020, NARPA presented a series of webinars related to current events. The last presentation in this series took place in December, withMental Health Courts and Specialized Courts in Canada: Access to Justice from the Perspective of people with psychiatric histories.’ All of the webinars are free and are available for streaming on NARPA's YouTube Channel. For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 3, September 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, August 2021, Volume 18, Number 2

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

“Should I Mask? Can I Travel? What About Hugs? How Delta Is Changing Advice for the Vaccinated.”

“The rise of the Delta variant of the coronavirus has raised new questions about how the vaccinated can stay safe and avoid breakthrough infections. We asked the experts for advice,” The New York Times writes. Under “New Guidance for the Vaccinated,” the Times answers these questions: “If I’m vaccinated, why do I need to worry about Delta? What’s the real risk of a breakthrough infection after vaccination? When should I wear a mask? Should I upgrade my mask? What’s the risk of hanging out with my vaccinated friends and family? Can I still dine at restaurants? Is it safe to travel? Should I skip the peanuts and water and keep my mask on? How safe are buses, subways and trains for vaccinated people? Can I hug and visit older relatives? What about unvaccinated children? How do I know if I have the Delta variant?” For the article, click here.

Alternatives 2021 Is Over, but You Can View Many of the Presentations—and the Work Continues!

If you missed Alternatives 2021—the oldest national conference organized by and for individuals with lived experience of a mental health condition—you can see many of the presentations on the Alternatives conference website! The conference—whose theme was “Connecting, Organizing, Activating!”—was held July 8, 10, 15, and 17, and was organized by the National Coalition for Mental Health Recovery. This year the conference was virtual—and free! One highlight was the three Action Groups—on Promoting Racial and Social Justice, National and Statewide Advocacy, and Crisis Prevention and Alternatives to Institutionalization—which met on all four days. Reports from each of the groups are posted on the Alternatives conference website, and it is hoped that people will continue to work together to make progress on the goals that were determined by participants during the conference. For information about the Action Groups, click here. Recordings of many of the workshops, keynotes, and special activities are available the Alternatives conference website (click here).

Disability Rights Advocates Are Calling on Congress to Eliminate SSDI Waiting Periods

“Long COVID patients could spur changes to the [Social Security] system, as their plight has given more urgency to advocates’ demands,” according to a TIME magazine article posted on July 20, 2021. “Stop the Wait, a coalition of disability and aging groups, is calling on Congress to eliminate official waiting periods built into the Social Security Disability Insurance program. After completing the application process, people have to wait five months for any benefits to begin and two years to receive Medicare coverage. ‘It’s a devastation both for the individuals and their families and for our economy, where people don’t have any money coming in, they can’t spend, they can’t contribute to the economy,’ says Eve Hill, a disability lawyer and lead organizer of the campaign. It can also push people onto other government programs such as Medicaid, which states have to help pay for while the person is waiting for their federal benefits.” For the article, click here. (Courtesy of Yvonne Smith)

Free Webinar: “Talking about Tobacco Part 3: Building Motivation to Change”

On August 16 at 1:30 p.m. ET, the Academy of Peer Services Virtual Learning Community will present “Talking about Tobacco Part 3: Building Motivation to Change.” “In this third (90-minute) webinar in the Talking About Tobacco Series, we draw upon questions and comments from the previous webinars in this series and stories shared by the presenters to explore different motivations to change, particularly in relation to tobacco use,” the hosts write. “Together…we will explore what we mean by motivation and the things that work or don’t work when we are ready to make any change in our lives. We will consider how to have these important (sometimes lifesaving) conversations related to health and wellbeing while respecting peer support values of choice and not forcing or coercing people to make changes against their will.” For more information and to register, click here.

CAMHPRO’s “Peer Statewide Conference 2021” Is Open to All--for Free!

The 2021 Peer Statewide Conference organized and hosted by CAMHPRO (California Association of Mental Health Peer-Run Organizations) is free, and is open to everyone from everywhere, although it will be California-centric. The conference will be held August 16 and 17 (virtually and in person); its theme is “Lead the way. Speak out. Make change.” The conference will address such vital topics as crisis intervention, housing, peer support, and Diversity, Equity, & Inclusion (DEI). “Online viewing is available with limited access.” Virtual participants may register until August 16, the day the conference begins. (The advantage to signing up sooner rather than later is that you will get email updates as the conference approaches.) For more information and a link to register, click here.

“New Guidelines for Supervisors of Peer Support Workers” Are Reported by Mad In America

“In a new article in Psychiatry Online, Dana Foglesong [board president of the National Association of Peer Supporters (N.A.P.S.)] and colleagues report on a new set of guidelines laid out by N.A.P.S. for supervisors of peer-support workers,” Mad In America reports. “Named the ‘National Practice Guidelines for Peer-specialists and Supervisors (NPG-S),’ they were established to help supervisors with practical guidance on providing support and staying true to the core values of peer support. These guidelines respond to growing concerns that supervisors were often acting in ways that were contradictory to the peer-support values, sometimes causing further harm to the peer supporters themselves. This required helping supervisors learn that peer support ethics are often different from those involved in clinical practice. The authors write: ‘The main purpose of the NPG-S is to assist supervisors and peer support specialists as they embark together on a mutual learning process about peer support values and how best to put them into practice.’ ” For a link to the Mad In America article (which includes a link to the Psychiatry Online article), click here.

SAMHSA to Host Virtual Roundtable on Creating and Enhancing Pathways to a Racially/Ethnically Diverse Behavioral Health Workforce

On August 18 at 1 p.m. ET, SAMHSA’s National Network to Eliminate Disparities in Behavioral Health (NNED) will host a virtual roundtable “to hear about strategies that motivate racially/ethnically diverse individuals to consider behavioral health as a career path. Discover how community-based organizations are working to diversify the behavioral health workforce, including recruiting and retaining racially/ethnically diverse staff. Learn from panelists about professional pathways and programs/trainings that support racially/ethnically diverse people in behavioral health careers.” For details and to register, click here.

A Response to the DSM-5: “There Is Nothing Nameable But That Some Men Will Undertake to Do It For Pay.”

“The idea and practice of ‘diagnosis’ in psychiatry has always been controversial,” according to three British psychologists in their article—“A Particular Perspective: A Brief and Personal History of the Response to Publication of the 5th Edition of the Diagnostic and Statistical Manual of the American Psychiatric Association”—published in the Journal of Humanistic Psychology in 2017. “ ’There is nothing nameable but that some men will undertake to do it for pay.’ This last point—some men will undertake to do it for pay’ [from Herman Melville’s unfinished 1891 novel ‘Billy Budd’]—is perhaps important,” the authors note. “We started this paper with a description of how social and economic factors, as much as scientific factors, appear to have influenced the development of psychiatric diagnosis…So what should we do now? One direct and clear suggestion…is that: ... services should...be based on the premise that the origins of distress are largely social...should replace ‘diagnoses’ with straightforward descriptions of problems,...should tailor help to each person’s unique and complex needs...and should offer care rather than coercion.” To download the free 40-page paper, click here.

You Can Comment on PCORI's National Priorities for Health, and Join PCORI’s Free Webinar on Wikipedia Editing

The deadline for public comment on PCORI’s new National Priorities for Health and Research Agenda is August 27, 2021. PCORI (Patient-Centered Outcomes Research Institute) writes: “Meaningful stakeholder and broader public input are central to ensuring that PCORI’s new National Priorities for Health and Research Agenda appropriately reflect how PCORI can best meet the healthcare community’s needs in coming years and fulfill the organization’s mission as the nation's primary funder of patient-centered comparative clinical effectiveness research.” To learn more about “PCORI's strategic plan to identify new National Priorities for Health to guide our mission-driven work” and to comment, click here. And do you want to learn how to edit Wikipedia to better inform people looking for health care information? Join PCORI on August 18 at 2 p.m. ET for a free two-hour training to learn the ins-and-outs of Wikipedia editing. For details and to register, click here.

“Mysteries of Mental Illness,” a PBS Series, Is a Mixed Bag

A PBS series, “Mysteries of Mental Illness,” comprises four 54-minute episodes: “New Frontiers,” “The Rise and Fall of the Asylum,” “Who’s Normal?” and “Evil or Illness.” PBS writes that the series “explores dramatic attempts across generations to unravel the mysteries of mental illness, and gives voice to contemporary Americans across a spectrum of experiences.” Unfortunately, “New Frontiers”—one of the two episodes viewed by the Clearinghouse—focuses uncritically on brain-based theories of the causes of—and treatments for—mental health conditions, with only a passing mention of trauma and of community-based remedies. For example, although the dark history of ECT (electroconvulsive treatment) is included, the present-day version is presented favorably, with its serious risks given short shrift and with no mention of the fact that ECT is still sometimes given against people’s will and is still rightly controversial. (In fairness, it should be noted that, after electrodes are implanted in his brain for “deep brain stimulation,” the young man with OCD does experience significant relief from his symptoms.) On the other hand, “Who’s Normal?” doesn’t shy away from psychiatry’s appalling past—for instance, diagnosing enslaved Black people who sought freedom as having a bogus mental illness called “drapetomania” and categorizing free Black people in the North as insane merely because they were free; classifying homosexuality as a mental health condition until 1973; and even, more recently, having “diagnostic reliability close to zero.” The two episodes include in-depth interviews with people diagnosed with OCD, PTSD, and depression, respectively, as well as an interview with a trans woman. Psychiatrists were also interviewed. The American Psychiatric Association Foundation co-sponsored the series, and Johnson & Johnson also contributed financial support. For more information and to watch the series for free, click here

Mad In America to Present Webinar on “Cognitive Behavioral and Related Therapies for Psychosis”

On August 19, 2021, at 1 p.m. ET, Mad In America will present a 90-minute webinar on “Cognitive Behavioral and Related Therapies for Psychosis: Diverse Approaches to Supporting Recovery.” “This webinar will provide an overview of the research behind CBT for psychosis, and of the style and strategies used. There will then be a discussion of approaches that can easily be integrated with CBT, such as compassion-focused therapy, acceptance and commitment therapy, psychodynamic therapy, mindfulness, family systems and dialogical approaches, and approaches developed within the Hearing Voices Network. Resources for getting training in CBT for psychosis and related approaches will also be described.” If you can’t afford the fee, “you may register for this event for free by using the code ‘Freebie.’ ” For more information and to register, click here.

Free Webinar: “The Time is NOW: Peer-Run Organizations and Integrated Care”

On August 19, 2021, at 2 p.m. ET, CAFÉ TAC will present “a free webinar on the challenges and opportunities presented by integrated care, and the implications for peers and peer-run organizations  in their efforts to promote recovery values and drive systems change.” The webinar—"The Time is NOW: Peer-Run Organizations and Integrated Care”—will be hosted by Cherene Caraco, CEO of North Carolina’s Promise Resource Network. “She will share the strategy her organization has adopted in advocating for the integration of peer support in a variety of settings,” CAFÉ TAC writes. Certificates of completion are available upon request. For more information and to register, click here.

NARPA’s 2021 (Virtual) Annual Rights Conference Will Present Five Free Webinars

The 2021 annual Rights Conference of the National Association for Rights Protection and Advocacy (NARPA) will consist of five free webinars, in September and October 2021. The five webinars—all of which are 90 minutes long and begin at 2 p.m. ET—are "Advocating for Institutionalized People During COVID: The Massachusetts Experience" (September 13); "The Promise and the Pitfalls of 988: Survivor Advocacy Perspectives" (September 27); "Advocating for Equitable Health Care in a Public Health Emergency" (October 4); "How to Create Change in Police Services: Transparency, Accountability, and Reform" (October 13); and "The Unacceptable Institutionalization of People with Psychiatric Disabilities in Nursing Homes" (October 19). For details and to register, click here.

Registration Is Open for NYAPRS’s Free, Virtual Annual Conference

Registration is now open for NYAPRS’s free, virtual Annual Conference, to be held on September 21, 23, 28 and 30th. Its theme is “United in Hope, Together for Justice and Wellness for All.” The conference will feature the U.S. Assistant Secretary for Mental Health and Substance Use, Dr. Miriam Delphin-Rittmon; NYS Mental Health Commissioner Ann Sullivan; WRAP creator Mary Ellen Copeland; NYS Senate Mental Health Committee Chair Samra Brouk; Helen 'Skip' Skipper of the New York City Criminal Justice Agency; CAHOOTS Director Tim Black; Mental Health America's award-winning youth peer leader Kelly Davis; Keris Myrick, a JED Foundation director and former Director of the Office of Consumer Affairs at the Center for Mental Health Services; and Stand Up for Mental Health's founder, David Granirer. NYAPRS writes, “Look for full program details in the coming days!” To register, click here.

A Peer-led Program Improved the Physical Health of People with Mental Health Conditions, Researchers Found

In a study of a peer-led intervention called the Bridge—which helps individuals with mental health conditions prioritize their health, access health care, and learn to self-manage their health—there was a 50 percent reduction in the use of emergency rooms for those in the intervention group. In the study, published in Psychiatric Services, the researchers found that the Bridge participants—primarily Latinx and Black—used the emergency room 2.5 times less frequently than those in a wait-list control group over six months. “This is important because we often see high rates of emergency department visits in patients with severe mental illnesses,” said  lead researcher Dr. Erin Kelly of Thomas Jefferson University in Philadelphia, who collaborated with scientists in Southern California. An article about the results in Medical Life Sciences News noted: “Participants also reported using routine health care more frequently, and reported more confidence in their ability to manage their health, better relationships with primary care providers, reduced pain and increased detection of chronic health conditions.” For the article, click here.

Save the Date: California Memorial Project to Hold 19th Annual Remembrance Ceremony on September 20

The California Memorial Project, a project of Disability Rights California’s Peer Self-Advocacy Program, will hold its 19th annual Remembrance ceremony on September 20, 2021, at 1 p.m. PT, 4 p.m. ET, “to honor the more than 45,000 people with mental health and developmental disabilities who lived and died at California state institutions and were buried anonymously in mass or unmarked graves. Join us as we share some history, stories, poems, songs, artwork, cultural perspectives, and a moment of silence to celebrate their lives and give them the recognition they deserved. Together we can break the cycle of disrespect and create hope and change for the future of the 6,000 peers who currently live in California state hospitals. For more about this webinar, including how to register and to get the Zoom link, please go to California Memorial Project (CMP) | Disability Rights California and look for our CMP webinar announcement, which will be posted by the end of August. Closed captioning and Spanish and ASL interpreters will be provided.”

Involuntary Commitment and Forced Psychiatric Drugging Harm Individuals and Society

An article by Jim Gottstein, founder and president of the Law Project For Psychiatric Rights, lays out the evidence and legal principles against psychiatric imprisonment and forced drugging. The abstract of the article—“Involuntary Commitment and Forced Psychiatric Drugging in the Trial Courts: Rights Violations as a Matter of Course”—begins: “A commonly held belief is that locking up and forcibly drugging people diagnosed with mental illness is in their best interests as well as society’s as a whole. The truth is far different. Rather than protecting the public from harm, public safety is decreased. Rather than helping psychiatric respondents, many are greatly harmed.” For the 55-page article, published in the Alaska Law Review in 2008, click here.

HALI to Offer Academy of Peer Services Learning Collaborative Beginning August 30

HALI (Hands Across Long Island) will launch its next Academy of Peer Services (APS) study group/learning collaborative on August 30, 2021. The group will meet weekly through November 29, 2021, on Mondays from 3 p.m. to 4 p.m. ET (except for two Tuesdays: September 7 and October 12). “This group is open to all who are interested in taking APS core courses in pursuit of peer specialist certification, as well as those who have taken the courses and want to strengthen their knowledge and support others. The coursework is specific to New York, but also relevant to national certification.” If you are interested in joining the group, email Emily Vaianella at evaianella@hali88.org so she can add you to the email list to receive program updates, and answer your questions. To join the Zoom Meeting: https://us06web.zoom.us/j/83917148115 Meeting ID: 839 1714 8115. By phone? Find your local number here: https://us06web.zoom.us/u/kdAgADXGlP 

Free Webinar on “Supported Employment and Supported Education: Peer Perspectives, Engagement, and Learning from the Field”
On August 31, 2021, at 2 p.m. ET, Doors to Wellbeing will present the next in its monthly series of free one-hour webinars. The topic is “Supported Employment and Supported Education: Peer Perspectives, Engagement, and Learning from the Field.” “How are peer support services and peer experiences used to help individuals with mental health challenges become employed and retain their jobs? What supports and opportunities exist for people with psychiatric disabilities to enhance their education or build a career, whether through GED, college, or developing vocational or trade skills? Join this webinar to hear about evidence-based practices, peer support services, learnings from the field, and personal stories that illustrate the multiple ways peer support specialists and peers can provide valuable support to assist those with psychiatric disabilities find meaningful work, engage in education, and build upon their recovery journeys” For more information and to register, click here.

Free Webinar—“Banished: The Roots of Loneliness in Mental Health”

On September 10, 2021, at 7:30 a.m. ET, the Centre for Mental Health in the UK will host a one-hour webinar called “Banished: The Roots of Loneliness in Mental Health.” “Loneliness is a binding thread that brings together very different experiences of mental ill health. It’s typically seen as [a] benign, non-political issue, which is to do with people not having enough friends or loved ones in their lives; or not enough intimacy in the relationships they do have,” the organizers write. “But what if the roots of loneliness weren't about what people with mental health difficulties are lacking, but about the shadows that mainstream society can't bear to face? In this seminar, Amy Pollard…takes a 200-year step back to set loneliness in mental health in the context of the Enlightenment: the Age of Reason. In this period, ‘madness’ (a word referring both to illogical behavior and mental health difficulties) was cast out into the wilderness. In the 21st century, it's time for a new dynamic to emerge.” For more information and to register, click here.

Psychologist Paula Caplan, Who Challenged—and Changed—the Mental Health Profession, Dies at 74

“Paula Caplan, a pioneering psychologist who exposed how her profession had pathologized a wide range of female traits and social responsibilities, including motherhood, menstruation and even shopping, died on July 21 at her home in Rockville, Maryland,” The New York Times reports. In an op ed in The Washington Post—“Psychiatry’s Bible, the DSM, Is Doing More Harm Than Good”—in 2012, Dr. Caplan wrote: “ ‘In our increasingly psychiatrized world, the first course is often to classify anything but routine happiness as a mental disorder, assume it is based on a broken brain or a chemical imbalance, and prescribe drugs or hospitalization.’ Her experience opened the door to a broader critique of her profession—namely, what she saw as an urge to pathologize everyday human emotions. In fact, she argued, doing so could do more harm than good by encouraging healthy people to think they were sick.” Dr. Paula Caplan, who died of  cancer, was 74. For the New York Times obituary, click here.

TU Collaborative Offers “The Peer Facilitated Community Inclusion Toolkit”

The Temple University Collaborative on Community Inclusion is offering “The Peer Facilitated Community Inclusion Toolkit” for free. “Peers can play a critically important and unique role in supporting increased community participation among individuals with serious mental health issues,” the TU Collaborative writes. “Our toolkit is an excellent resource to help peers explore goals for increasing community participation with the individuals they work with. This toolkit includes various exercises and worksheets that peers can use to help individuals reflect on desired levels of community participation, explore existing supports and resources, and develop community participation goals.” To download the free, 26-page manual, click here.

“30 Illustrations About Mental Health That Seem To Comfort Many By ‘Constant Bagel Therapy’ ”

The author of these comics writes: “If you’re seeking some good old-fashioned light-hearted wit, look no further than Constant Bagel Therapy. (Disclaimer: this account has nothing to do with bagels and everything to do with wordplay.) The self-proclaimed ‘creative nit-wit’ (as told in the account bio) from Leicester City in the United Kingdom illustrates line drawings of comical puns and posts them regularly to over 400k of loyal followers on Instagram.” For the comics, click here.

The August 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “Swimming gives your brain a boost—but scientists don't know yet why it's better than other aerobic activities,” click here. (Courtesy of The Surviving Spirit newsletter) For “How to Calm Your Climate Anxiety: Between wildfires, heat waves and hurricanes, we’re all feeling nervous about the future. But stewing or ignoring the problem won’t ease your burden,” click here. For “How to breathe: Whether your aim is improved health, mental calm or achieving transcendence, breathing techniques can help you get there,” click here. For “The Secrets of ‘Cognitive Super-Agers’: By studying centenarians, researchers hope to develop strategies to ward off Alzheimer’s disease and slow brain aging for all of us,” click here. For “How to Think Outside Your Brain,” click here.

The August 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Police response to mentally ill people is under scrutiny. Denver may offer way forward. A year-old program called STAR sends a social worker and paramedic to low-level emergency calls involving people in crisis,” click here. (Courtesy of Kevin Fitts) For “NYC's Non-Police Mental Health Pilot Increasing Rate of Those Getting Aid, Data Show: NYC's B-HEARD program aims to dispatch social workers with paramedics, instead of cops, for nonviolent mental health calls,” click here. For “2021 PTAC Deflection and Pre-Arrest Diversion Training Summit to Be Held October 12-15 in Chicago,” click here. For “William Darby, Huntsville police officer convicted of murder resigns from HPD: He had been on paid leave since a jury found him guilty of shooting a mentally ill man in 2018,” click here. For “The power of asking, ‘Is there a better way?’ How one reporter’s solutions-focused question helped catapult CAHOOTS, a small local response to police violence, into the national spotlight,” click here. For “Opinion: A new California approach to mental health emergencies: At least one of every four people killed in an interaction with law enforcement has a serious psychological diagnosis,” click here. For “Broken Language: Issue 8 of News Inside takes on the words that define and label incarcerated people,” click here. For “What Words We Use—and Avoid—When Covering People and Incarceration: Journalism is a discipline of clarity. That’s why we’ve solidified our policy about how we talk about people who are currently in or have previously been in prison and jail,” click here. For “Ford Foundation and partners announce $250 million commitment to easing the path from prison to workforce,” click here. For “A Hidden Death: Last year a Eugene man was arrested during a mental health crisis. He died two days after deputies knelt on his back at the Lane County Jail,” click here. For “Checking The Success Of Your State's Efforts To Restore Voting Rights To The Formerly Incarcerated: We learned no more than 1 in 4 of the newly eligible voters had registered for the 2020 election in four key states. Here’s how to examine yours,” click here. For “Monetary Sanctions as a Pound of Flesh: America has established a two-tiered system of justice: one for people with financial means and one for people without,” click here. For “Why are innocent people still losing cash, cars and even homes to police? Our View: Civil asset forfeiture, meant to fight crime by taking profits from drug dealers, often turns cops into bounty hunters who can’t imagine the many legitimate reasons people carry cash,” click here. For “New Jersey High Court Finds Implicit Bias At Play In Jury Selection,” click here. For “Illinois created a program to compensate crime victims. Nearly 50 years later, it’s failing. The state program that’s supposed to help ease the blow of being a crime victim largely isn’t doing that, an investigation by The Trace has found. Few apply. Even fewer get financial relief. Those who do face long waits,” click here. For “How a Story About Philadelphia Became One About All of America: In Philly D.A., a local hero has a lot to teach us about a national crisis,” click here. For “New [Colorado] state law removes court fees for juveniles,” click here. For “NYC Rikers Closure Called Model for Shrinking Jail Populations,” click here. For “How the Federal Government Can Incentivize States To Reverse Mass Incarceration: The Reverse Mass Incarceration Act would supply states that reduce incarceration with federal grants,” click here. For “Many in Jail Can Vote, But Exercising That Right Isn’t Easy,” click here. For “Many dating apps ban people convicted of felonies. Does that make anyone safer? ‘It’s using the justice system as a barometer of someone’s worth,’ a sociologist said,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

HUG ME Ink Issues Call for Proposals for Virtual Peer-A-Palooza

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host the 1st Annual Peer-A-Palooza on September 24 and September 25, 2021, eight hours each day, via Whova. The theme of the conference is “Creating a Zest for Life Through Growth, Resilience, Recovery and Community.” The goals are to empower peers with the necessary tools to grow in their own recovery, to leave the past as the past and move forward with dreams, and to be the change agent they can be in their community.” To submit a proposal, fill out the Call for Proposals by the deadline of August 14 HERE.  

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. To track the vaccinations in the U.S., by state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

RMIT Mad Studies Network, based in Melbourne, Australia, Hosts Monthly Virtual Reading Group

“The RMIT Mad Studies Network brings together anyone interested in Mad Studies, mad ideas, critical thinking about mental distress, the politics of ‘mental health,’ the mental health consumer/survivor/ex-patient movement and alternatives to the contemporary mental health paradigm/system,” according to the RMIT website’s home page. Currently, the RMIT’s main activity is a monthly reading group, now held virtually. The 90-minute groups take place on the third Tuesday of the month at 7 p.m. AEST (Australian Eastern Standard Time), which is 14 hours later than Eastern Daylight Time (5 a.m. EDT on the third Monday of the month). The time difference grows as you move west: 4 a.m. CT, 3 a.m. MT, 2 a.m. PT. For more information, click here.

12th World Hearing Voices Congress to Be Held in Cork, Ireland, September 1-3, 2021

The 12th World Hearing Voices Congress, whose theme is “Solidarity in Times of Adversity: The Global Voice Hearing Community Reconnecting,” will be held September 1-3, 2021. “This year’s Congress will create spaces for voice hearers, family members, carers, practitioners, academics, and all those interested in the principles and values of the International Hearing Voices Movement, to connect and/or reconnect with one another in a post-pandemic world, either in person in Cork, Ireland, or online across the globe,” the organizers write. “If restrictions do not allow to have a hybrid Congress in Cork, then Congress will move fully online!” The online fees for voice hearers/students are £45.00 ($67); for practitioners, £65.00 ($97). If a hybrid Congress can be offered, then the fees will be €80 ($95) for voice hearers/students; €180 ($211) for practitioners. (The monetary conversion rates are as of this writing.) For more information, including a link to register, click here. (Courtesy of Janet Paleo)

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland; the dates will be confirmed this month (June 2021). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

NARPA Free Webinar Series Is Available Online

“In lieu of a face-to-face conference in 2020, NARPA presented a series of webinars related to current events. The last presentation in this series took place in December, withMental Health Courts and Specialized Courts in Canada: Access to Justice from the Perspective of people with psychiatric histories.’ All of the webinars are free and are available for streaming on NARPA's YouTube Channel. For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 2, August 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, July 2021, Volume 18, Number 1

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

On July 8, 10, 15, and 17, You Can Participate in the FREE, Virtual Alternatives 2021 Conference! See the Complete Schedule Here!

The National Coalition for Mental Health Recovery—host of the FREE, virtual Alternatives 2021 conference, now in its 35th year—has published its exciting  program! The conference, which will begin on July 8, will continue on July 10, 15, and 17! For descriptions of the more than 60 workshops, and the presenter bios, click here. For a July 8 and July 10 schedule-at-a-glance with Zoom links to each presentation, click here. (If you register for the conference, you will receive the July 15 and July 17 schedules on or before July 12.) For morning and evening activities, click here. This year, in addition to a full schedule of workshops guaranteed to engage, educate, and inspire participants, the conference will invite attendees to join Action Groups, during which group members will develop important strategic plans to take back to their communities and work on in the days, weeks, and months ahead. The three groups are National and Statewide Advocacy, Crisis Prevention and Alternatives to Institutionalization, and Promoting Racial and Social Justice. The conference theme is  “Connecting, Organizing, Activating!” For the Alternatives conference website, click here. To register, click here. For questions: info@ncmhr.org. 

“New WHO Guidance Seeks to Put an End to Human Rights Violations in Mental Health Care”

On June 10, 2021, the World Health Organization (WHO) recommended that mental health care “should be located in the community and should not only encompass mental health care but also support for day-to-day living, such as facilitating access to accommodation and links with education and employment services. WHO’s new Guidance on community mental health services: promoting person-centered and rights-based approaches further affirms that mental health care must be grounded in a human rights-based approach…‘This comprehensive new guidance provides a strong argument for a much faster transition from mental health services that use coercion and focus almost exclusively on the use of medication to manage symptoms of mental health conditions, to a more holistic approach that takes into account the specific circumstances and wishes of the individual and offers a variety of approaches for treatment and support,’ said Dr. Michelle Funk of [WHO’s] Department of Mental Health and Substance Use, who led the development of the guidance.” For the WHO press release, click here. (Courtesy of Robin Osborne)

“AT&T Launches 988 Hotline Support for Emergency Mental Health and Suicide Prevention Services”; But Some Advocates Question Whether It May Unduly Disrupt Some People’s Lives

“A year ahead of a July 2022 deadline to implement 988 instant access to emergency mental health services, AT&T [along with T-Mobile and Verizon] has launched support for the hotline,” reports 9to5mac.com. For the story, click here. As reported by NPR, “Overall, the record supports the use of a dedicated 3-digit dialing code as a way to increase the effectiveness of suicide prevention efforts, ease access to crisis services, and reduce the stigma surrounding suicide and mental health conditions," the [Federal Communications Commission] explained in the study, prepared in collaboration with SAMHSA.” For the NPR story, click here. But calling a suicide hotline may lead to the police, fearing a threat to themselves, shooting the caller (click here). And “[m]ad & disabled advocates who have experienced mental health crisis intervention, and even some crisis service providers, worry that [the proposal to include] geolocation would serve to further entrench coercion in mental health & crisis response systems, replicating problematic aspects of 911” (click here). And for “Suicide Hotlines Bill Themselves as Confidential—Even as Some Trace Your Call: Every year US National Suicide Prevention Lifeline centers covertly trace tens of thousands of confidential calls, and police come to homes, schools, and workplaces to forcibly take callers to psychiatric hospitals. Some people’s lives get upended,” click here. (Please see below for a free webinar about 988.)

Free Webinar: “Scaling Up 988: On the Road to the Ideal Crisis System”

On July 27, 2021, at 11:30 a.m. ET, the National Council for Mental Wellbeing will present a free, SAMHSA-sponsored webinar: “Scaling Up 988: On the Road to the Ideal Crisis System.” “This session will explore the implementation considerations of 988 for behavioral health providers within the framework outlined in the [209-page] Roadmap to the Ideal Crisis System: Essential Elements, Measurable Standards and Best Practices for Behavioral Health Crisis Response,” published in March 2021 (available here). For more information and to register for the webinar, click here. For questions: kelle.masten@nasmhpd.org

“Likely Broad Impact for a U.S. DOJ Finding on Incarceration of People with Mental Illness”

“A pivotal moment has come in the long and complex effort to reform the U.S. criminal justice system. The U.S. Department of Justice (DOJ) has directed officials in Alameda County, California, to fundamentally change the way it deals with people with mental illness,” writes Ira Burnim, legal director of the Judge David L. Bazelon Center for Mental Health Law. “DOJ did so by issuing a formal “letter of findings,” taking the county to task for failing to meet the needs of people with mental illness and entangling them in the criminal justice system. Policy makers and lawyers are watching the situation closely, and the outcome is likely to have an impact far beyond the Bay Area…The MacArthur Foundation’s Safety and Justice Challenge, which is helping to reduce jail populations across the country, has provided a blueprint…” For the article, click here. At the same time, many cities and towns around the U.S. are changing the way they handle calls involving people with mental health conditions. Three recent examples are Denver; Oakland, California; and Springfield, Illinois. (The Denver article is courtesy of Kevin Fitts; the Oakland article is courtesy of Berta Britz.)

Yale Study of COVID-19’s Mental Health Impact Seeks Focus Group Participants with Physical and/or Mental Health Challenges

A study at Yale University led by people with lived experience is recruiting individuals who live with physical and/or mental health challenges to talk about how their lives have changed since the COVID-19 pandemic started. “The Wisdom project: exploring the impact of COVID-19 on the mental health of persons who experience adverse living conditions” is led by Larry Davidson, PhD, and Ana Florence, PhD. Ana is a Brazilian psychologist, activist, and postdoctoral associate, and Larry is Director of the Yale Program for Recovery and Community Health. If you live with mental and/or physical health challenges and would like to participate, you can email wisdomprojectyale@gmail.com or call 475-355-5393. “All focus groups will be held virtually, and a $50 e-gift card will be provided to each participant,” the researchers say.

Does Disclosing Your Mental Health Condition on Applications Hurt Your Chances? Maybe.

“[E]vidence consistently suggests that disclosing a mental illness on applications is considered by admissions committees [of graduate programs], may be viewed unfavorably, and may diminish one’s chances of getting admitted, even for strong applicants,” according to the online abstract of a recent article—“The Quandary: Disclosing a Mental Illness in Applications to Helping Professional Academic Programs”—by Mark S. Salzer, PhD, director of the Temple University Collaborative on Community Inclusion. In the article, to be published in the APA journal Stigma and Health, Dr. Salzer considers the implications of these findings, “including a call for caution when making a decision about disclosure, as well as implications for admissions’ committees when reviewing such applications to avoid bias, and potential legal liability, as well as how they can demonstrate the values of the field in welcoming and embracing such applicants.” For the abstract, click here. Stigma and Health is a quarterly publication edited by Patrick W. Corrigan, Psy.D. For more about the publication, including links to sample articles, click here.

MHA Offers Its National Certified Peer Specialist Certification

“The National Certified Peer Specialist (NCPS) certification is a voluntary, examination-based certification that allows peers to demonstrate a high level of experience and competencies in peer support,” Mental Health America writes. “The NCPS does not replace state certifications but is an add-on to required state certifications. Individuals who earn the NCPS go above and beyond state certification to show their leadership and commitment to the growth and advancement of the field. Our Career Roadmap shows your path from deciding to work in peer support to earning the NCPS.” For more information, including the benefits of the NCPS, certification requirements, and how the NCPS was developed, click here. And for the National Association of Peer Supporters’ national practice guidelines, click here.

HALI’s “Creative Connections” Campaign Will Meet via Zoom on July 12

On June 12, 2021, from 6 p.m. to 7 p.m. ET, Hands Across Long Island (HALI) will host its next monthly 60-minute Creative Connections Campaign art group on Zoom. “The goal of this campaign is to connect with our community through cards, art, and letters of encouragement that can be delivered to and kept by people held in institutions, and who are feeling particularly isolated,” the organizers write. “To ensure that everyone receives art and letters, our goal is to collect 275 letters/pieces of art each month.” To join on Zoom, click on this link at the time of the meeting: https://zoom.us/j/92231574516. Join by phone: 1-929-205-6099 (meeting ID: 92231574516). (Find your local number: https://zoom.us/u/ar98XWfxR.) “For organizations that would like to participate in our campaign, please contact Stacy Simbrom at ssimbrom@hali88.org and include Emily Vaianella evaianella@hali88.org to schedule a time to speak with us. We encourage you to share this invitation and send your empowering letters and art to Hands Across Long Island, Attn: Emily Vaianella, 159 Brightside Ave., Central Islip, NY 11722.”

Disability Rights California to Present Four Free Webinars in July

Disability Rights California (DRC) will host four free webinars in July 2021 on topics of interest to the disability rights community. These are “Find the legal help and services you need as a person with a Traumatic Brain Injury” (July 15, 2 p.m.-3p.m. PT, 11 a.m.-12 p.m. ET); “What are Deaf Children’s Rights in K – 12 Education?”—presented in American Sign Language (ASL)—(July 21, 1 p.m.-3 p.m. PT, 10 a.m.-12 p.m. ET); “The 123’s & ABC’s of Department of Rehabilitation (DOR)”—presented in ASL—(July 28, 1 p.m.-3 p.m. PT, 10 a.m.-12 p.m. ET); and “Effective Communication under the Americans with Disabilities Act (ADA)—presented in ASL—(July 31, 1 p.m.-3 p.m. PT, 10 a.m.-12 p.m. ET). In addition, OCRA (Office of Clients’ Rights Advocacy), a DRC program, is hosting its first (virtual) self-advocacy conference: “Your Voice, Your Choice: Advocacy Starts with You,” from July 26 through July 30 (10 a.m.-12 p.m. PT each day). The conference is limited to “people served by the regional center and their circle of support”; the webinars are open to everyone. For more information and to register for these events, click here.

“The Conversation on Britney Spears, Conservatorship, and Psychiatric Power” Is Available on YouTube

“The leaked audio testimony from Britney Spears’ June 2021 conservatorship hearing is a clear, compelling articulation of the many ways that individuals labeled ‘mentally ill’ can be stripped of their basic rights and liberties,” according to the text accompanying a new YouTube video of a conversation about Britney Spears’ rights that took place on June 28, 2021. In the video, “Inner Compass Initiative’s executive director Laura Delano discusses conservatorship, psychiatric power, and the significance and broader implications of Spears’ testimony with Law Project for Psychiatric Rights founder Jim Gottstein and UCLA social welfare professor David Cohen.” For Britney Spears’ testimony, click here. For “Britney Spears’ conservatorship shines a light on the legal remedy’s harsh reality,” in the Los Angeles Times, click here. For the YouTube video, click here.

Free Webinar: “Post-Traumatic Growth and Resilience: Practices for Peer Groups” on July 27
On July 27, 2021, at 2 p.m. ET, Doors to Wellbeing will host the next in its monthly series of free webinars: “Post-Traumatic Growth and Resilience: Practices for Peer Groups.” Doors to Wellbeing writes: “Join us for a webinar where you can learn what post-traumatic growth and resilience are, and how resilience and post-traumatic growth impact interactions in a group environment. The session will support participants in developing skills and identifying tools that foster post-traumatic growth in group environments.” For more information and to register, click here.

Rampant Weight Prejudice Harms Mental Health, International Study Confirms

“The harmful impacts of weight stigma can be real and long-lasting,” writes Rebecca Ruhl, the lead researcher in an international study of the impact of weight prejudice, published in the International Journal of Obesity. “They range from emotional distress—depressive symptoms, anxiety, low self-esteem—to disordered eating, unhealthy eating behaviors, lower physical activity, weight gain, increased physiological stress and avoiding health care.” The recent study compared experiences of weight prejudice of nearly 13,996 adults in six countries with “similar societal values” and found that it had been experienced by an average of 58 percent of participants, and many incorporated the prejudice into their self-image. The good news is that, “[i]n national studies, we found that more than 70 percent of Americans support adding body weight as a protected category, alongside categories such as race and age, to existing state civil rights laws. They also support new legislation to make it illegal for employers to discriminate against employees based on weight.” For the article, click here.

“8 Disability Podcasts That Are Well Worth a Listen”

“Social media, blogging, and the growth of journalism and publishing from the disability community have added more ways to connect,” Forbes magazine reports. “Podcasting offers a…particularly enriching way for disabled people to get information, emotional enrichment, and a more personal sense of connection, all from their own homes and devices.” For the Forbes article, which includes descriptions of the eight podcasts—none of which are specifically about mental health conditions—and for advice about starting your own podcast, click here. (Courtesy of Andy Imperato)

Free “National Guidelines for Behavioral Health Crisis Care–A Best Practice Toolkit” Is Available

The Substance Abuse and Mental Health Services Administration’s National Guidelines for Crisis Care–A Best Practice Toolkit “advances national guidelines in crisis care within a toolkit that supports program design, development, implementation and continuous quality improvement efforts,” SAMHSA writes. “It is intended to help mental health authorities, agency administrators, service providers, state and local leaders think through and develop the structure of crisis systems that meet community needs. This toolkit includes distinct sections for: defining national guidelines in crisis care; tips for implementing care that aligns with national guidelines; and tools to evaluate alignment of systems to national guidelines.” To download the free 80-page toolkit, click here. (Courtesy of Elizabeth R. Stone)

Registration Is Open for Peerpocalypse, to Be Held March 14-17, 2022!

The Mental Health and Addiction Association of Oregon (MHAAO) has announced registration for Peerpocalypse 2022, to be held March 14-17, 2022! “MHAAO is pleased to present its first hybrid conference! In-person attendance allows access to pre-conference events, keynote speeches, all workshops, evening events, and the job fair and exhibit hall. Virtual attendance includes access to keynote speeches and all workshops. In-person early registration—[deadline unspecified]—is $300; regular registration is $375. Virtual registration is $200. Lunch meals (sic), CEUs, a T-shirt, a printed program, and a badge are included for both in-person and virtual attendees. Registration must be received no later than February 14, 2022, to receive a T-shirt.” To register, click here.

“30 Wholesome Comics About Mental Health And Everyday Life By ‘Haley Drew This’”

“Artist Haley Weaver a.k.a. Haley Drew This connects the inner and the outer. The individual and the collective. Her comics surrounding issues like mental health, relationships, and selfhood encompass so many aspects of the human experience, you could just say they are about life. Yes, that might sound a little abstract, but Haley's work is multi-dimensional and can't be described with one adjective. So a broad noun will have to do.” For the comics, click here.

The July 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “More Evidence That Spending Money On Others Makes Us Happier Than Spending On Ourselves,” click here. For “Dear Class of 2021: Don’t Do Your Homework. Live Your Life,” click here. For “NPR’s Joy Generator: Feeling blah? Science shows you can boost happiness by taking time for small moments of delight. We’ve got ideas to try out right now. So grab your headphones and let’s play!” click here. For “Edward Diener, Psychologist Known as Dr. Happiness, Dies at 74: Since the 1980s, he was recognized as a leader in measuring what he called ‘subjective well-being.’ And, yes, he was very happy,” click here.

The July 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “More police departments are training officers in de-escalation techniques, but does it work?” click here. For “Millions of People With Felonies Can Now Vote. Most Don’t Know It. In a handful of key states, no more than 1 in 4 formerly incarcerated people registered in time for the 2020 election, a Marshall Project analysis found,” click here. For “Collateral Consequences and the Enduring Nature of Punishment: For some people, punishment can continue years after the sentence ends, even decades,” click here. For “Probation and Parole as Punishment: Community supervision must be transformed in order to help people caught up in the justice system, not hurt them further,” click here. For “Exonerated Defendants Lost 25,000 Years to Wrongful Imprisonment,” click here. For the National Registry of Exonerations Report: “Governments Paid More than $2.9 Billion in Compensation, But More than Half of Those Exonerated Received Nothing,” click here. For “Specialized mental health team partner[s] with Arapahoe Sheriff's deputies: The new Behavioral Health Response Program team members wear plainclothes and arrive to calls unarmed. They work in partnership with deputies,” click here. For “Violent Encounters With Police Send Thousands of People to the ER Every Year: That's probably an undercount. But data from San Jose offers a glimpse of what the national scale of police violence might be,” click here. For “‘Cheap Clicks’: How the Media ‘Stigmatizes’ Suspects,” click here. For “The Juvenile Justice Task Force report gave us a roadmap to reform. Now it’s up to lawmakers to finish the job | Opinion,” click here. For “Building the Prison-to-College Pipeline: Securing a college education for the formerly incarcerated can break intergenerational cycles of poverty and crime,” click here. For “Mentally Ill and Sentenced to Death: After 45 years, Texas’ longest-serving death row inmate was resentenced last week due to a long history of severe mental illness. But state lawmakers this session again declined to ban the death penalty for people like him,” click here. For “What death row looks like when you’re on it,” click here. For “New LA Program To Divert Certain Low-Level Arrestees Away From Jail And Into Treatment,” click here. For “LAPD shootings of unstable people wielding sharp objects a deadly problem,” click here. For “Not That Innocent: Most people on death row are guilty. That doesn’t mean they deserve their fate,” click here. For “I wrote about kids sentenced to life without parole, then the letters from prison started: These treasures offered by desperate people cut off from my world were not discarded as junk; they were received, read, appreciated,” click here. For “After Grace’s Story, Michigan Will Study Its Juvenile Justice System: Gov. Gretchen Whitmer appointed a task force to examine the state’s juvenile justice system and recommend reforms after a Black teen was jailed for not doing her online coursework,” click here. For “Chicago Police Are No Longer Allowed To Chase People For Minor Offenses Under New Policy,” click here. For “Treating All Kids as Kids: Persistent and longstanding racism has fueled harsher treatment of young Black people in the justice system,” click here. For “Commentary: Let’s seek forward-looking justice for Jamal Sutherland,” click here. For “What Did You Call Me? An incarcerated person writes about how dehumanizing language like “inmate” is destructive,” click here. For “The Law Enforcement Suicide Data Collection: The FBI’s New Data Collection on Officer Suicide and Attempted Suicide,” click here. For “The Gun Data Expert Who’s Changing the Way the Media Defines Mass Shootings: Looking for a second career, Mark Bryant sold several revolvers to fund the launch of the Gun Violence Archive,” click here. For “More States Expand the Ballot to Previously Incarcerated,” click here. For “Task force reports racial, economic inequalities permeate juvenile justice system,” click here. For “The Man Rewriting Prison from Inside: Quntos KunQuest has been in Angola for twenty-five years. But his début novel, ‘This Life,’ isn’t the usual story of time behind bars,” click here. For “America’s Rural-Jail-Death Problem: Every day, in small towns and cities across the country, thousands of people are booked into local jails, many for minor crimes. Some never come home,” click here. For “Opinion: ‘We want to differentiate ourselves from television’: News outlets tossing old approaches to covering crime,” click here. For “Judge rips prison officials after inmate dies by suicide,” click here. For “Rise in jail deaths is especially troubling as jail populations become more rural and more female,” click here. For “How race shaped the South’s punitive approach to justice,” click here. For “A New Lease on Life: Comprehensive analysis on recidivism documents widespread research evidence that people convicted of homicide and other crimes of violence rarely commit new crimes of violence after release from long-term imprisonment,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

HUG ME Ink Issues Call for Proposals for Virtual Peer-A-Palooza

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host the 1st Annual Peer-A-Palooza on September 24 and September 25, 2021, eight hours each day, via Whova. The theme of the conference is “Creating a Zest for Life Through Growth, Resilience, Recovery and Community.” The goals are to empower peers with the necessary tools to grow in their own recovery, to leave the past as the past and move forward with dreams, and to be the change agent they can be in their community.” To submit a proposal, fill out the Call for Proposals by the deadline of August 14 HERE.  

 (Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. To track the vaccinations in the U.S., by state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

RMIT Mad Studies Network, based in Melbourne, Australia, Hosts Monthly Virtual Reading Group

“The RMIT Mad Studies Network brings together anyone interested in Mad Studies, mad ideas, critical thinking about mental distress, the politics of ‘mental health,’ the mental health consumer/survivor/ex-patient movement and alternatives to the contemporary mental health paradigm/system,” according to the RMIT website’s home page. Currently, the RMIT’s main activity is a monthly reading group, now held virtually. The 90-minute groups take place on the third Tuesday of the month at 7 p.m. AEST (Australian Eastern Standard Time), which is 14 hours later than Eastern Daylight Time (5 a.m. EDT on the third Monday of the month). The time difference grows as you move west: 4 a.m. CT, 3 a.m. MT, 2 a.m. PT. For more information, click here.

12th World Hearing Voices Congress to Be Held in Cork, Ireland, September 1-3, 2021

The 12th World Hearing Voices Congress, whose theme is “Solidarity in Times of Adversity: The Global Voice Hearing Community Reconnecting,” will be held September 1-3, 2021. “This year’s Congress will create spaces for voice hearers, family members, carers, practitioners, academics, and all those interested in the principles and values of the International Hearing Voices Movement, to connect and/or reconnect with one another in a post-pandemic world, either in person in Cork, Ireland, or online across the globe,” the organizers write. “If restrictions do not allow to have a hybrid Congress in Cork, then Congress will move fully online!” The online fees for voice hearers/students are £45.00 ($67); for practitioners, £65.00 ($97). If a hybrid Congress can be offered, then the fees will be €80 ($95) for voice hearers/students; €180 ($211) for practitioners. (The monetary conversion rates are as of this writing.) For more information, including a link to register, click here. (Courtesy of Janet Paleo)

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland; the dates will be confirmed this month (June 2021). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

NARPA Free Webinar Series Is Available Online

“In lieu of a face-to-face conference in 2020, NARPA presented a series of webinars related to current events. The last presentation in this series took place in December, withMental Health Courts and Specialized Courts in Canada: Access to Justice from the Perspective of people with psychiatric histories.’ All of the webinars are free and are available for streaming on NARPA's YouTube Channel. For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

“Mapping the Disability Experience: Share Your Stories”

“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.” Submissions will be accepted through June 30, 2020. For more information or to participate, click here. Questions? Contact Yochai Eisenberg, PhD, yeisen2@uic.edu (Courtesy of Elizabeth R. Stone)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 18, No. 1, July 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, June 2021, Volume 17, Number 12

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

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Free, Virtual Alternatives 2021 Announces Exciting Keynote Speakers! ALSO NEW: Nominate Peer Leaders for Awards, and Reserve Exhibit Space! Register now!

The National Coalition for Mental Health Recovery—host of the (free!) 2021 (virtual) Alternatives Conference, now in its 35th year—has announced the impressive roster of keynote speakers! For a preview of the speakers and their stirring talks, click here. For descriptions of each Alternatives award and a form where you can make nominations, click here; deadline: June 16. For the Exhibitor Form, click here. This year, in addition to a full schedule of workshops guaranteed to engage, educate, and inspire participants, the conference will invite attendees to join Action Groups, during which group members will develop important strategic plans to take back to their communities and work on in the days, weeks, and months ahead. The three groups are National and Statewide Advocacy, Crisis Prevention and Alternatives to Institutionalization, and Promoting Racial and Social Justice. The conference—whose theme is  “Connecting, Organizing, Activating!”—will take place on four non-consecutive days: July 8, 10, 15, and 17. For the Alternatives conference website, which includes a registration link and much more, click here. For questions: info@ncmhr.org.

Therapists Are Distracted by Social Media While Delivering Virtual Care, Researchers Report; Meanwhile, Telehealth Is Good for the Environment

A survey of 600 therapists found that “a significant proportion admit to being distracted while delivering care. A third admitted to providing lower-quality care to clients during online sessions,” according to MedPageToday.com. “Overall, 39% admitted to checking emails and social media while providing virtual care, and 16% reported substance use before or during sessions.” But nearly half of the therapists surveyed said “they prefer virtual sessions over in-person meetings,” due to convenience and because “video sessions provide therapists with a uniquely intimate look into their clients' daily lives, making it easier for them to assess their mental health.” However, telepsychiatry expert Peter Yellowlees, MD, of UC Davis Health, noting that “[t]here are all sorts of people in this world who call themselves therapists…,” wondered “whether these rates of social media distraction and substance use during virtual sessions would ring true for mental health clinicians with PhDs and MDs.” For the MedPageToday.com article, click here. For a report on the survey, click here. For a related story, “Another Benefit for Telehealth: It’s Good for the Environment: One of the nation’s largest health systems has found that its telehealth platform is not only helping patients and providers, but reducing greenhouse gas emissions and saving trees,” click here.

June 14 Is Next Zoom Meeting of HALI’s “Creative Connections” Campaign

On June 14, 2021, from 6 p.m. to 7 p.m. ET, Hands Across Long Island (HALI) will host its next monthly 60-minute Creative Connections Campaign art group on Zoom. “The goal of this campaign is to connect with our community through cards, art, and letters of encouragement that can be delivered to and kept by people held in institutions, and who are feeling particularly isolated,” the organizers write. “To ensure that everyone receives art and letters, our goal is to collect 275 letters/pieces of art each month.” To join on Zoom, click on this link at the time of the meeting: https://zoom.us/j/92231574516. Join by phone: 1-929-205-6099 (meeting ID: 92231574516). (Find your local number: https://zoom.us/u/ar98XWfxR.) “We encourage you to share this invitation and send your empowering letters and art to Hands Across Long Island, Attn: Emily Vaianella, 159 Brightside Ave., Central Islip, NY 11722.”

Virtual PharmedOut Conference on “Curtailing Commercial Influence on Healthcare” to Be Held June 16-18, 2021 

“Cutting the Cord: Curtailing Commercial Influence on Healthcare” is the theme of PharmedOut’s virtual 2021 conference. The conference, to be held June 16-18, 2021, from 2 p.m. to 6 p.m. ET, “will focus on effective strategies for mitigating the damaging effect of industry influence on medical information and public health,” the organizers write. “PharmedOut is a Georgetown University Medical Center project that advances evidence-based prescribing and educates health care professionals and students about pharmaceutical and medical device marketing practices.” The keynote speaker will be distinguished writer and medical ethicist Harriet Washington. For more information about speakers, topics, registration fees, and to register, click here. “Students and people with more limited means” can pay a reduced fee, “and the organizers will try to accommodate others who cannot afford the full fee.” (Courtesy of Jim Gottstein)

“Mental Health System: Open Letter to the Media” Seeks Signatures

“Everyone who believes that the problematic aspects of the mental health system are not adequately represented in the media is invited to sign this letter,” writes Yulia Mikhailova, who launched this initiative to educate the media. The letter begins: “We, a group of people with first-hand experience of the mental health system, write to express our concern about what we see as one-sided coverage of this system in the media and to draw the attention of civil rights organizations to the systemic discrimination that we witnessed and experienced. We, our loved ones, or inmates in the facilities where we worked, were exploited for monetary gain and victimized in various other ways. We saw how abuse, corruption, and exploitation were covered up, while victims and critics of the system were silenced and marginalized.” For a short version of the letter, which includes a link to a longer version, click here. Questions? Contact Yulia Mikhailova at yuliamikh@gmail.com.

More Cities Get on Board to Minimize or Eliminate Police Role in 911 Calls Involving Mental Health, Homelessness, or Substance Abuse

Thirteen cities “are developing ‘alternative’ or ‘co-response’ programs to minimize or eliminate the role of police officers responding to 911 calls involving mental health, homelessness, or substance abuse,” CNN reports. With guidance from an eight-week program coordinated by Everytown For Gun Safety and What Works Cities, workers in mental health, law enforcement, social work and government from those cities were connected with experts from Eugene, OR, where the CAHOOTS program, developed 30 years ago, is serving as a model. Twelve of the cities are Albany, NY; Albuquerque, NM; Austin, TX; Birmingham, AL; Saint Paul, MN; Providence, RI; Louisville, KY; Boston; Chicago; Phoenix; San Antonio; and Seattle; the 13th city was not identified. Michel Moore, chief of the Los Angeles Police Department, told CNN that “as a society, we gotta stop being cheap when it comes to mental health and safety and realize we've relied on police and fire for too long because other professions need to step up and aren't there.” For the CNN article, which includes links to more information, click here. (Courtesy of Kevin Fitts) For more about the criminal justice system, see the June 2021 Digest of Articles About the Criminal Justice System, below.

NEC Offers Free Virtual eCPR Training to Youth Aged 16-25

From June 21 through June 25, from noon to 2:30 p.m. on each of the five days, the National Empowerment Center (NEC) will offer a free virtual (via Zoom) eCPR (Emotional CPR) training to youth aged 16 to 25. The training has been designed by and for youth. NEC writes: eCPR is a profound process of reclaiming our Connection (to self and others), embodying emPowerment and ultimately feeling Revitalized. The certification training engages your heart and mind in an experiential and unfolding process that includes embracing mutual support.” For more information and to register, click here.

Free Webinar Hosted by Disability Rights California: “LGBTQ+ Communities and Mental Health”

On June 22, 2021, at 2 p.m. ET (11 a.m. PT), Disability Rights California will present a free webinar on “LGBTQ+ Communities and Mental Health: Experiences of Thriving with Courage in the Face of Adversity.” “In honor of Pride Month, we have invited speakers from the LGBTQ+ and mental health communities to share their personal stories of courage, strength and purpose,” the hosts write. For details and to register, click here.

 HUG ME Ink Issues Call for Proposals for Virtual Peer-A-Palooza

Helping to Unite by Generating Mental Empowerment (HUG ME) Ink will host the 1st Annual Peer-A-Palooza on September 24 and September 25, 2021, eight hours each day, via Whova. The theme of the conference is “Creating a Zest for Life Through Growth, Resilience, Recovery and Community.” The goals are to empower peers with the necessary tools to grow in their own recovery, to leave the past as the past and move forward with dreams, and to be the change agent they can be in their community.” To submit a proposal, fill out the Call for Proposals by the deadline of August 14 HERE.  

Former UN Special Rapporteur Denounces “Global Psychiatry’s Crisis of Values”

Dainius Pūras, MD, a Lithuanian psychiatrist and human rights advocate who served as the United Nations Special Rapporteur from 2014 to 2020, has “criticized the excessive systemic reliance on biomedical approaches and coercive practices in psychiatry across the world, advocating for a much-needed emphasis on approaches based on public health and human rights.” In an interview published in Psychiatric Times on June 3, 2021, Dr. Pūras said that “the entire field of global mental health needs to be liberated from obstacles that reinforce [the] vicious cycle of discrimination, stigmatization, institutionalization, coercion, over-medicalization, and helplessness…These are the most serious obstacles that need to be addressed: power asymmetries, overuse of [the] biomedical model and biomedical interventions, and [the] biased use of knowledge and evidence.” To read the interview, click here

Benefits of “Involving Persons with Lived Experience in Service Delivery, Development and Leadership” Are Covered in Recent Article

“Globally, there has been an emphasis on the importance and value of involving people with lived experience of mental health conditions in service delivery, development and leadership,” two South African researchers write in a recently published article in Cambridge University Press. “Such individuals have taken on various roles, from peer support specialists and other specialized professions to leadership in mainstream industries. There are, however, still obstacles to overcome before it is possible to fully include people with lived experience at all levels in the mental health and related sectors.” For the article, “Perspectives: involving persons with lived experience of mental health conditions in service delivery, development and leadership,” click here.

New York Times Names Amanda Morris as Reporting Fellow Focused on Disability Issues
Amanda Morris, an experienced journalist with an impressive résumé, will be joining The New York Times’s National desk as its first reporting fellow focused on disability issues. “Raised by profoundly deaf parents, Amanda identifies with the disability community, having a moderate-to-severe hearing loss,” the announcement reads. “Amanda will report and write stories on a range of issues related to disability as part of the newsroom’s effort to better cover the nearly 20 percent of the U.S. population that lives with some kind of disability. ‘Few avenues exist to develop journalistic expertise on disability issues because such beats do not exist at most news outlets,’ said Ted Kim of The Times. “ ‘The lack of coverage, in turn, results in a lack of awareness about issues that affect a large portion of the country.’ ” For more, click here.

CSGJC Issues Two Useful Publications to Improve the Criminal Justice System’s Response to People with Behavioral Health Conditions

The Council of State Governments Justice Center (CSGJC) recently published two new guides whose goal is to improve interactions between people with behavioral health needs and the justice system. One guide, American Rescue Plan Act of 2021: Guide to Advancing Justice-Related Goals, notes: “The $1.9 trillion American Rescue Plan offers an unprecedented opportunity for state and local leaders to invest in public health and safety programs and promote stronger, more equitable communities. This guide outlines need-to-know information about how state and local leaders can leverage American Rescue Plan funding to advance eight key criminal justice priorities.” For the guide, which includes links to each of the eight priorities—among which is “Reduce criminal justice involvement for people with behavioral health needs”—and the funding opportunities for state and local governments, click here. For a second CSGJC publication, “Using Information-Sharing Protocols During Crisis Situations: Police-mental health collaboration (PMHC) programs support law enforcement agencies around the country in planning and implementing effective public safety responses to people who have mental illnesses,” click here.

BJA Offers FY 2021 Second Chance Act Pay for Success Initiative to Governments

The Bureau of Justice Assistance (BJA) writes: “This program provides funding for state, local, and tribal governments to enhance or implement performance-based and outcomes-based contracts with reentry, permanent supportive housing, or recovery housing providers to reduce recidivism and address the substance use disorders impacting formerly incarcerated people.” The Grants.gov deadline is June 22, 2021. For the announcement and to download the application, click here.

Free Webinar: “Increasing Cultural Competency in Mental Health Care Settings”

On June 29, 2021, at 1:30 p.m. ET, Mental Health America and the National Alliance on Mental Illness will present a free, 90-minute SAMHSA-sponsored webinar on “Increasing Cultural Competency in Mental Health Care Settings.” The hosts write that a “lack of cultural competency in the mental health care space” is one of the many barriers to care. “Racial/ethnic minority individuals often receive lower quality healthcare services, such as fewer diagnostic procedures and negative verbal and nonverbal communication styles from providers. People with other marginalized identities, like LGBTQ+ individuals, are more likely to experience mental health concerns than cisgender, heterosexual people but may receive ineffective care due to a provider’s reluctance to address gender and sexuality. In this webinar, we will focus on how to increase cultural competency on an individual and systemic level.” For a link to register, click here. (Courtesy of Judene Shelley)

“Supporting the Journey Back Outside” Is the Next Free Webinar in Doors to Wellbeing’s Monthly Series

“Supporting the Journey Outside,” the next 60-minute webinar in the monthly series hosted by Doors to Wellbeing, will take place on June 29, 2021, at 2 p.m. ET. Doors to Wellbeing writes: “After a year of COVID-19 precautions, the world is opening up again. Individuals have different feelings about what that means in their lives and some are more hesitant to return to normal and to be around people more regularly. As peer specialists, how do we support our populations in reintegrating to the outdoors after a year?” For details and a link to register, click here.

International Conference on Psychiatric Drug Withdrawal Scheduled for May 2022

The first conference of the International Institute for Psychiatric Drug Withdrawal is tentatively scheduled for May 2022 in Reykjavik, Iceland; the dates will be confirmed this month (June 2021). “The three themes underpinning the conference are safe withdrawal from psychiatric medication, alternatives to psychiatric medication, and the need to question the dominance of medication in mental health care.” Confirmed speakers include Robert Whitaker (journalist and founder of Mad in America), Professor Joanna Moncrieff (psychiatrist and researcher), Laura Delano (co-founder of the Inner Compass Initiative and a person with lived experience), Dr. Carina Håkansson (founder of Family Care Foundation and The Extended Therapy Room Foundation), and Dr. Magnus Hald (Psychiatrist at the Drug-Free Treatment Unit, Norway). For more information, click here.

Some Researchers Are Pushing a New Diagnosis—While Critics Say It Could Lead to “Many Being Prescribed Inappropriate Medications,” Which Is Already a Frequent Occurrence.

“Despite resistance, a group of researchers is investigating the possibility of a new mental health disorder” is the headline of a STAT Health article. The new diagnosis—Sluggish Cognitive Tempo (SCT)—is currently designated a “clinical construct”—just a group of behaviors. “If SCT became an official diagnosis, proponents argue, it could make it easier for those with symptoms of the construct to get the help they need.” Meanwhile, critics warn “that SCT is an outgrowth of misdiagnosis of ADHD that could result in many being prescribed inappropriate medications”—which is already true for many people, whatever their diagnosis. For “Older Adults Frequently Prescribed Inappropriate Medication,” click here. For “Potentially inappropriate prescriptions in patients admitted to a psychiatric hospital,” click here. (“Conclusion: PIP [Potentially Inappropriate Prescribing] is common in psychiatric patients and potentially fatal.”) For the STAT article, click here.

“With Effort, It’s Possible to Forget Certain Memories,” The New York Times Reports

Some memories are painful, and we’d like to forget them. This short New York Times article offers some ways to do that. Two techniques the Times describes are “thought substitution” and “direct suppression,” which involve different areas of the brain. For the article, click here.

“Heart and Brain” Provides Thoughtful, Heartfelt Comic Relief (Pun Intended)

“ ‘The Awkward Yeti’ and all of its work are authored and illustrated by cartoonist Nick Seluk. It was his dream since he was a kid to be funny, and someday he hopes to be.” For “Heart and Brain,” click here.

The June 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “If You Want to Be Happy, Try to Make Someone Else Happy. A new study shows that doing kind things for others is an important path to happiness,” click here. For “The Audacity of Nope: Saying ‘no’ isn’t always nice, but it is necessary,” click here. For “How Food May Improve Your Mood: The sugar-laden, high-fat foods we often crave when we are stressed or depressed, as comforting as they are, may be the least likely to benefit our mental health,” click here. For “There’s a Name for the Blah You’re Feeling: It’s Called Languishing: The neglected middle child of mental health can dull your motivation and focus—and it may be the dominant emotion of 2021,” click here. For “10 ways to care for your mental health in lockdown,” click here. For “It’s Finally Time to Take the Mental Health Impacts of Climate Change Seriously,” click here.

The June 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “It’s working in Eugene, Olympia, Denver: More cities are sending civilian responders, not police, on mental health calls,” click here. For “Prison Reform and Olmstead,” click here. For “A Second Look at Injustice: Ending mass incarceration and tackling its racial disparities require taking a second look at long sentences,” click here. For “Mother called 911 to get help for her son. Hours later, police shot him and he died,” click here. For “A Courts-Focused Research Agenda for the Department of Justice: Recommendations for the Justice Department research agenda to shed more light on how to improve our nation’s vast system of local, state, and federal courts,” click here. For “The Emerging Movement for Police and Prison Abolition: Mariame Kaba, a New York City-based activist and organizer, is at the center of an effort to ‘build up another world,’” click here. For “Video Footage of Death of Black Man in South Carolina Jail Stirs Outrage: The death of Jamal Sutherland after officers tried to remove him from his cell using pepper spray and tasers raised calls for changes in the treatment in custody of the mentally ill,” click here. For “The Death Row Soul Collective,” click here. For “Since 2010, at least 107 have died from prone restraint despite police departments being warned 25 years ago,” click here. For “Police departments adopting facial recognition tech amid allegations of wrongful arrests,” click here. For “The Power and Discretion of the American Prosecutor,” click here. For “Opinion: Inequities are deep and numerous for incarcerated women, and it's time to intervene: We can and must create meaningful change in our criminal justice system and community support programs,” click here. For “Alexandria will remove police from public school hallways,” click here. For “Wrongly Convicted Of Murder, Juan Rivera Uses Settlement Money To Open Barber College With His Former Prison Guard In Rogers Park,” click here. For “Domestic abuse head injuries prevalent among women in prison, study finds,” click here. For “On Parole, Staying Free Means Staying Clean and Sober,” click here. For “Tiny artworks promote creativity and keep incarcerated artists in action,” click here. For “Born In Prison, How One Woman Used Her Trauma To Write The Post Traumatic Prison Disorder Act,” click here. For “Advancing Gender Equity for Justice-Impacted Women in the Aftermath of COVID-19,” click here. For “Childhood Friends Open Pizzeria in Philadelphia Exclusively Employing Formerly Incarcerated Individuals,” click here. For “Adopted from China. Killed in the Poconos: An Asian American Teen Was Having a Mental Health Crisis When Police Killed Him,” click here. For “An Incarcerated Artist Memorializes the ‘Forgotten’ People Killed By COVID in Prison: ‘I refuse to allow these people to be remembered in their moments of misery,’” click here. For “Police Accountability Is a Matter of Life and Death,” click here. For “Philly moved to new police oversight as a report said the current system is in ‘dire need’ of overhaul: The new oversight commission would have more power than the body it is replacing, including the authority to issue subpoenas,” click here. For “New county diversion program, city effort aim to help young people with mental health issues in Lincoln area,” click here. For “Police Reimagined: One Year Later,” click here. For “End the Court Doctrine That Enables Police Brutality,” click here. For “Life Without Parole Is Replacing the Death Penalty—But the Legal Defense System Hasn’t Kept Up: Just ask a Dallas woman who spent a year in jail without talking to a lawyer,” click here. For “Jails, Sheriffs, and Carceral Policymaking,” click here. For “The Endless Trap of American Parole: How can anyone rebuild their lives when they keep getting sent back to jail for the pettiest of reasons?” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

(Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021 (updated on June 3, 2021), The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. To track the vaccinations in the U.S., by state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here

RMIT Mad Studies Network, based in Melbourne, Australia, Hosts Monthly Virtual Reading Group

“The RMIT Mad Studies Network brings together anyone interested in Mad Studies, mad ideas, critical thinking about mental distress, the politics of ‘mental health,’ the mental health consumer/survivor/ex-patient movement and alternatives to the contemporary mental health paradigm/system,” according to the RMIT website’s home page. Currently, the RMIT’s main activity is a monthly reading group, now held virtually. The 90-minute groups take place on the third Tuesday of the month at 7 p.m. AEST (Australian Eastern Standard Time), which is 14 hours later than Eastern Daylight Time (5 a.m. EDT on the third Monday of the month). The time difference grows as you move west: 4 a.m. CT, 3 a.m. MT, 2 a.m. PT. For more information, click here.

First Virtual ESTSS Conference to Be Held June 17-18, 2021

The European Society for Traumatic Stress Studies will host its first virtual conference, on “Trauma and Mental Health during the Global Pandemic,” June 17-18, 2021 (with preconference workshops on June 16). ESTSS writes: “Our invited speakers will present their research and clinical work experiences regarding this complex topic from different perspectives (see Tracks).” For more information, click here.

12th World Hearing Voices Congress to Be Held in Cork, Ireland, September 1-3, 2021

The 12th World Hearing Voices Congress, whose theme is “Solidarity in Times of Adversity: The Global Voice Hearing Community Reconnecting,” will be held September 1-3, 2021. “This year’s Congress will create spaces for voice hearers, family members, carers, practitioners, academics, and all those interested in the principles and values of the International Hearing Voices Movement, to connect and/or reconnect with one another in a post-pandemic world, either in person in Cork, Ireland, or online across the globe,” the organizers write. “If restrictions do not allow to have a hybrid Congress in Cork, then Congress will move fully online!” The online fees for voice hearers/students are £45.00 ($67); for practitioners, £65.00 ($97). If a hybrid Congress can be offered, then the fees will be €80 ($95) for voice hearers/students; €180 ($211) for practitioners. (The monetary conversion rates are as of this writing.) For more information, including a link to register, click here. (Courtesy of Janet Paleo)

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

NARPA Free Webinar Series Is Available Online

“In lieu of a face-to-face conference in 2020, NARPA presented a series of webinars related to current events. The last presentation in this series took place in December, withMental Health Courts and Specialized Courts in Canada: Access to Justice from the Perspective of people with psychiatric histories.’ All of the webinars are free and are available for streaming on NARPA's YouTube Channel. For more information, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

A Service-User-Led Survey of “Experiences of the Intersections of Psychosis, Difficult Events, and Trauma” Seeks Participants with Firsthand Experience

A study developed by researchers at the University of South Florida “aims to better understand the relationships between prior experiences of trauma or adversity and experiences such as hearing voices, unusual beliefs and paranoia, as well as the ways in which these experiences themselves can contribute to trauma or distress.” The researchers, who themselves have lived experience, are seeking respondents “who self-identify as having current or prior experiences that would conventionally be labeled psychosis.” The anonymous survey takes approximately 15 minutes to complete; every 10th respondent will be compensated with a $50 gift card, up to five gift cards. Questions? Contact Dr. Nev Jones at genevra@usf.edu. For more information and/or to participate, click here.

“Mapping the Disability Experience: Share Your Stories”

“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.” Submissions will be accepted through June 30, 2020. For more information or to participate, click here. Questions? Contact Yochai Eisenberg, PhD, yeisen2@uic.edu (Courtesy of Elizabeth R. Stone)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Is Launched to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, Ph.D., and Emily Cutler, a doctoral candidate, have launched a listserv dedicated to building research capacity, leadership, and involvement among peers, survivors, and service users.  Dr. Jones, assistant professor, Department of Mental Health Law & Policy, University of South Florida, was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Do You Supervise Peer Support Workers? Then Researchers Have Some Questions for You

Researchers in the University of South Florida’s Department of Psychiatry and at Magellan Health are investigating the backgrounds, training, and experiences of individuals who currently supervise at least one peer support worker in a behavioral health setting or agency. “To the best of our knowledge, this will be the first comprehensive research study of the landscape of peer support supervision practices in the United States,” writes Dr. Nev Jones, the primary investigator of the study (Protocol Number 00040223). Participants must be at least 18 years old and work in the United States or U.S. territories. An online survey lasting approximately 10 minutes will ask about respondents’ backgrounds, training and preparation for supervision, perspectives and practices, and views on barriers and facilitators to high-quality supervision. There is no monetary compensation. Questions? Contact Dr. Nev Jones (genevra@health.usf.edu) or the co-primary investigator, Dana Foglesong (dfoglesong@magellanhealth.com). To access the survey, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 17, No. 12, June 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Key Update, May 2021, Volume 17, Number 11

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

“The New National Mental Health Crisis Line Wants to Track Your Location”

In July 2022, 988 is scheduled to replace 1.800.273.TALK, the current federally funded National Suicide Prevention Lifeline. But some mental health advocates say that the new number—which will include geolocation technology, as 911 does—has the potential for police showing up at the caller’s door. “Autonomy and choice outweigh any benefits of geolocation services,” said disability rights activist Jess Stohlmann-Rainey of Rocky Mountain Crisis Partners in Denver. “We marginalize and put communities who need us at risk by doing any kind of coercion.” Stohlmann-Rainey is quoted in “The New National Mental Health Crisis Line Wants to Track Your Location,” which notes that calling 911 has been dangerous—even fatal—especially for people of color. For the article, on the Disability Visibility Project website, click here. And for “Suicide Hotlines Bill Themselves as Confidential—Even as Some Trace Your Call,” click here. Also, Mad In America is collecting information about suicide hotlines in order to provide a list of numbers that do not trace or send help without consent under any circumstances. To participate, click here.

Alternatives 2021 Will Include Exciting Action Groups & Inspiring Workshops! Register Now!

The National Coalition for Mental Health Recovery is proud to host the (free!) 2021 (Virtual) Alternatives Conference, now in its 35th year! This year, in addition to a full schedule of workshops guaranteed to engage, educate, and inspire participants, the conference will invite attendees to join Action Groups, during which group members will develop important strategic plans to take back to their communities and work on in the days, weeks, and months ahead. The three existing Action Groups are National and Statewide Advocacy, Crisis Prevention and Alternatives to Institutionalization, and Promoting Racial and Social Justice and Community Integration. (Additional groups may be added.) The conference—whose theme is  “Connecting, Organizing, Activating!”—will take place on July 8, 10, 15, and 17. For a partial list of the workshops (organized by topic area), click here. To register (for free—although donations are welcome!), click here. For the Alternatives conference website, click here. For questions: info@ncmhr.org

Free Webinar: “Mental Health Journey: Voices From Individuals With Lived Experience On Self-Disclosure, Recovery, & Hope,” May 13

On May 13 at 12 p.m. ET, PsychU will host a free, one-hour webinar entitled “Mental Health Journey: Voices From Individuals With Lived Experience On Self-Disclosure, Recovery, & Hope.” PsychU writes: “In this webinar, hear from individuals with lived experience on their self-disclosure challenges and barriers, how they incorporate wellness strategies into their daily lives, and share their individualized recovery journeys and approaches in addressing and overcoming mental health self-stigma.” For details and to register, click here. (Courtesy of Open Minds)

Medical Discrimination Against Marginalized Groups During Covid-19 Is Documented

A recent report by a coalition of civil rights groups and legal scholars—Examining How Crisis Standards of Care May Lead to Intersectional Medical Discrimination Against COVID-19 Patients—“provides an explanation of crisis standards of care policies implemented by states and hospital systems and how they may discriminate against marginalized individuals and communities; the principles that should apply to prevent discrimination; the relevant civil rights legal framework; and recommended strategies to ensure that crisis standards do not discriminate during the pandemic or in the future,” the National Disability Rights Network writes. Jennifer Mathis of the Bazelon Center, another of the participating groups, said, “As people with disabilities, older adults, and people of color continue to contract and die from COVID-19 at disproportionately high rates, we hope that this resource will be used to help ensure fair and non-discriminatory provision of life-saving treatment.” To download a PDF of the free report, click here. To download the free report in Word, click here: [Word].

Free Webinar: “Taking Care of Business: Self-Care and Counteracting Burnout 2021”

On May 14, 2021, at 11:30 a.m. ET, NYAPRS will present a free 75-minute webinar: “Taking Care of Business: Self-Care and Counteracting Burnout 2021.” “Drawing from our own Self Care, Counteracting Burnout and Laughter is the Best Medicine trainings, in this webinar we will help you take a deep breath, assess, intervene, and hopefully smile too! We will offer exercises to assist with clearing your head, feeling grounded, and getting energized. We'll review strategies to cope with remote-working and hopefully laugh a little as we spend 75 minutes together, healing, strategizing and recharging for the challenges that lay ahead!” You can earn 1.25 CE hours. To register, click here.

Racial Disparities in Involuntary Psychiatric Hospitalizations Are the Subject of Two Studies; and “SPLC Report Examines Excessive Use of Florida’s Mental Health Law on Children”

Two studies—one published in Lancet Child & Adolescent Health on April 27, 2021, the other in Lancet Psychiatry in 2019—report on racial disparities in involuntary psychiatric hospitalizations. “Nearly a quarter of all child and adolescent admissions to psychiatric hospitals are involuntary,” according to the new study. Few of the 23 studies in 11 countries on psychiatric admissions for people under 18 that were examined “focused on racial disparities, but those that did revealed that youths admitted involuntarily were almost three times more likely to be Black than white. This mirrors disparities seen in adults…But since previous involuntary hospitalizations increase odds of experiencing another, the study authors write that the disparities found may indicate a cycle of inequality starting in childhood that continues into adulthood.” For the childhood study, click here. For the adult article, click here. (Courtesy of Fran Hazam) And a Southern Poverty Law Center (SPLC) report “reveals that more than 37,000 children [in Florida] are inappropriately forced into psychiatric hospitals each year. The excessive use of Florida’s mental health law, known as the Baker Act, has resulted in the inappropriate and illegal psychiatric hospitalization of thousands of Black and Brown children and children with disabilities each year.” For the SPLC press release, including a link to the report, click here.

Webinar: Award-winning Author Discusses “…Paradoxes of Madness & Philosophy,” May 14, 12 p.m. ET

On May 14 at 12 p.m. ET, the International Society for Psychological and Social Approaches to Psychosis, U.S. Chapter (ISPS-US), will present a webinar entitled “How Can the Uncontainable Be Contained? Paradoxes of Madness & Philosophy.” The presenter is Wouter Kusters, award-winning author of A Philosophy of Madness: The Experience of Psychotic Thinking. ISPS-US writes, “Have you ever met people who reported that ‘asking too many questions’ was what seemed to have led them into madness? Or maybe you noticed yourself that the more you looked into the deeper aspects of existence, the more paradoxical, and maddening, reality seemed to become? If these sorts of issues interest you, and if you think understanding them may help us provide better help to people who are struggling, then you may benefit from joining in the webinar.” For details about the webinar and to register, click here. (ISPS-US writes: “A donation of $5-$40 is requested, though no one turned away for lack of funds.”)  (Courtesy of Kevin Fitts)

Free Interactive Workshop on “Writing as Wellness,” May 14

On May 14, 2021, 2 p.m. ET (1 p.m. CT), HUG ME Ink will host Writing as Wellness. “Writing as Wellness is a free, virtual, 90-minute interactive workshop that will explore how writing can be therapeutic. Through journaling exercises, participants will be able to express themselves from their minds to the paper. This workshop is open for all ages. All you have to bring is yourself, a writing instrument (pen, pencil, marker, etc.) and paper. The workshop is co-hosted by the San Antonio Public Library. Let loose! Be free! Get your WRITE on!” Registration is required; to register, click here.

Temple University Collaborative Publishes New Resources

“Tracking Community Mobility: An R Program for Cleaning and Creating Constructs from GPS Data” is one of the new resources available from the Temple University Collaborative on Community Inclusion. “Researchers have started using Global Positioning Systems (GPS) to examine people’s community mobility,” the TU Collaborative writes. “But GPS data can be messy, and a lot of cleaning needs to happen before measures of community mobility can be generated. This program describes and implements the data cleaning steps and goes on to create several community mobility variables from GPS data.” The newsletter also links to a podcast on the same topic, as well as a six-page guide to the benefits of participating in sports and how to get involved, including how to do so while physically distancing. To read it all, click here.

Free Webinar: “Emotional CPR by and for Youth,” May 19

On May 19, 2021, at 2 p.m. ET, the National Empowerment Center will present a free, 90-minute webinar on eCPR as the latest in its series of youth leadership webinars. “Emotional CPR (eCPR) is…designed by people with lived experience to teach people how to connect with and support those in distress…In this webinar, the presenters will share their experience taking leadership roles with developing the eCPR for Youth curriculum…Participants will gain an understanding of the leadership roles youth can play in mental health education and training.” For more information and to register, click here.

“Having a Bad Trip? This Hotline Can Help You Find Your Chill,” Mic Reports; and “A Psychedelic Drug Passes a Big Test for PTSD Treatment”

On April 14, 2021, the Fireside Project, a San Francisco-based nonprofit, launched the Psychedelic Peer Support Line—6-2FIRESIDE (623.473.7433, call or text), which offers “free and confidential emotional peer support” for people anywhere in the U.S. who “are tripping right now, or need help processing a past trip.” The support line operates Thursday through Sunday, 3 p.m.-3 a.m. PT (6 p.m.-6 a.m. ET) and Monday 3 p.m.-7 p.m. PT (6 p.m.-10 p.m. ET). “[W]e provide peer support only, not medical advice or assessment,” Fireside Project creator Joshua White told Mic, an online publication. “To be clear, though, if a person is in immediate danger to themselves or others, they should call emergency services, not the Psychedelic Peer Support Line,” Mic added, quoting White: “[S]ometimes people just need to be supported during their experience by a peer, someone who has been there before and gets it, and then emergency services may not be necessary.” For the Mic article, click here. For the Fireside Project, click here. And in a related story, to read “A Psychedelic Drug Passes a Big Test for PTSD Treatment: A new study shows that MDMA, known as Ecstasy or Molly, can bring relief when paired with talk therapy to those with severe post-traumatic stress disorder,” click here.

“Taking the Call: A National Conference Exploring Innovative Community Responder Models”; and “Following other cities, Philly will soon send specialists alongside cops to some mental health calls”; and “Feds Fund Mental Health Crisis Teams to Stand In for Police”

On May 20, 2021, at 2 p.m. ET, “Taking the Call will bring people together from across the U.S. to explore how jurisdictions are serving as laboratories for innovation to ensure that emergency calls receive the appropriate response. The [free, 90-minute] conference will explore the opportunities and challenges of these community responder models and whether or how the approach may improve community health, lessen the burden on law enforcement, and reduce unnecessary justice system contact…Taking the Call will also include a [free] virtual gathering on October 20-21, 2021 (more details here).” For details and to register, click here. For the rest of the Council of State Governments Justice Center newsletter, including “Law Enforcement Crisis Response Resources,” “Conducting Follow-up After a Crisis Encounter,” and more, click here. In a related story, for “Following other cities, Philly will soon send specialists alongside cops to some mental health calls: Other jurisdictions are trying more aggressive plans that leave the first response to mental health emergencies entirely up to health-care providers, not police. It could be in Philly’s future,” click here. And in another related story, “Feds Fund Mental Health Crisis Teams to Stand In for Police”—“Dispatching teams of paramedics and behavioral health practitioners would take mental health crisis calls out of the hands of uniformed and armed officers, whose mere arrival may ratchet up tensions. In Eugene, Oregon, such a strategy has been in place more than 30 years, with solid backing from police”— click here.

“Study Highlights Challenges for Mental Health Peer Specialists,” Mad In America Reports; and “Black Peer Support: A Role in Mental Health Recovery,” via Harvard Health Publishing

“Role clarity, supervisor flexibility, peer input, and professional development top [the] list of needed supports for mental health peer specialists,” according to a recent article in Mad In America. “A team of researchers across the United States recently released research in Psychiatric Services in Advance detailing the best ways to support and supervise peer specialists in the mental health workforce. Through semi-structured qualitative interviews with four peer specialists and five supervisors and their personal experience with peer specialists, the authors were able to unpack a number of support and supervision strategies to best support peer specialists.” For the article, click here. And for “Black Peer Support: A Role in Mental Health Recovery”—in which the author writes, “In 2005 I created Black Voices: Pathways 4 Recovery (BV) at The Transformation Center in Roxbury, MA, for people of the African diaspora seeking safe spaces to talk about what it’s like living Black in America. It’s enormously valuable to be in the process of recovery with people who face that same daily reality”—click here. (Note: To participate in a survey of peer support supervisors, see “Do You Supervise Peer Support Workers? Then Researchers Have Some Questions for You” in the “From Previous Editions of the Key Update but Still Fresh” Department, below.)

Free Webinar: “Communication: Healthy Boundaries for Peer Specialists,” May 25

On May 25, 2021, at 2 p.m. ET, Doors to Wellbeing will offer a free webinar as part of its monthly webinar series. Presented by Jane Winterling of the Copeland Center for Wellness and Recovery, the one-hour webinar “will explore the dynamics of establishing healthy personal and professional boundaries through communication skills. The webinar will go over strategies and tools to maintain healthy boundaries between peer specialists and peers receiving services. For more information and to register, click here.

PRA Offers Colorful Images to Share in Honor of Mental Health Month

Policy Research Associates (PRA) offers three icons to recognize Mental Health Month. PRA created these images for use in May 2020, and the images are still available for free. PRA wrote: “Download the images and send them to a friend, colleague, or loved one in an email, a text, or a social media message to let them know that you’re thinking of them and are proud of them for taking care of their mental health!” To learn more about the campaign and to download the three colorful images—“You Are Strong,” “You Got This,” and “Proud of You for Taking Care of You”—click here.

UCLA to Host #WOW21: Whole Health Includes Mental Health Virtual Conference

On May 13 at 5 p.m. PT (8 p.m. ET), UCLA will host #WOW21: Whole Health Includes Mental Health—The Conversation Continues Virtually. “#WOW2021’s goal is to ensure that any comprehensive conversation about health always includes mental health…Further, #WOW aims to raise awareness and reduce stigma associated with mental illness. Proceeds benefit mental health research, education, and clinical care programs at UCLA. A donation of any size will provide admittance to the event.” For more information and to donate and register, click here.

Peer Support and Other Resources, Such as Webinars, May Help Youth Cope with Mental Health Issues

“Half of all Youth MOVE chapters offer informal youth peer support programs.” For more information, click here. And “May is children’s mental health awareness month,” writes the National Training and Technical Assistance Center for Child, Youth, and Family Mental Health (NTTAC), a SAMHSA-funded initiative, which “works to ensure all young people and families get the support they need to thrive.” For more about NTTAC and its services, click here. In addition, recordings of three youth-related webinars are available for free viewing. The three are “Workforce Development of Youth Peer Counselors,” about how Washington State is encouraging youths, aged 17 to 26, to explore careers as certified peer counselors (click here); “Incorporating Youth Leadership into Treatment,” about empowering youth to see how their resilience is leadership (click here); and “Empowering Youth as Mental Health Peer Specialists,” about how to engage youth as mental health peer specialists (click here). (Courtesy of Jeremy Countryman and Amey Dettmer, respectively)

Seven Graphic Artists—Six if You Don’t Count Allie Brosh—Explore How It Feels to Have a Mental Health Condition

Six graphic novels and memoirs, most of which are at least partly autobiographical, convey the experience of having a mental health condition. Among the six are Depresso, or: How I Learned to Stop Worrying and Embrace Being Bonkers!, by Brick; Fun Home: A Family Tragicomic, by Alison Bechdel—which was later adapted into a Tony Award-winning musical; and Marbles: Mania, Depression, Michelangelo, + Me,” by Ellen Forney. All six come with a price tag. But two comics about depression by Allie Brosh—which have previously appeared in the Key Update—are available for free. For “Adventures in Depression,” click here; for “Depression Part Two,” click here. Both are excerpted from Brosh’s book “Hyperbole and a Half,” which is available for sale.

The May 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “Don’t Wish for Happiness. Work for It. If you want to improve your well-being, you need to make a plan and act on it,” click here. For “When the Doctor Prescribes Poetry: ‘This crisis affects more or less everyone, and poetry can help us process difficult feelings like loss, sadness, anger, lack of hope,’” click here. For “How to Buy Happiness: The joys of money are nothing without other people,” click here. For “More Birds Make You As Happy As More Money,” click here. For “Regular Exercise May Help Protect Against Severe Covid: People who tended to be sedentary were far more likely to be hospitalized, and to die, from Covid than those who exercised regularly,” click here. For “The Healing Power of Music: Music therapy is increasingly used to help patients cope with stress and promote healing,” click here.

The May 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Punitive Excess: America’s criminal legal system is unduly harsh. Experts explain how we got here and solutions that will benefit everyone,” click here. For “Brett Kavanaugh Rules Children Deserve Life in Prison With No Chance of Parole: The Trump-appointee who asked not to be judged by his high school year book has a different point of view for kids who aren’t Tobin, Squi, and PJ,” click here. For “Can the ‘Wisdom of a Second Look’ Curb America’s Appetite for Harsh Sentences?” click here. For “The Language Project,” click here. For “Crime, the Myth: It’s up to society to say what is and isn’t a crime, and it varies more than one might think,” click here. For “A Year of Disaster at Old Colony: Suicide Attempts, Self-Harm, and Covid,” click here. For “Prisons and jails will separate millions of mothers from their children in 2021: The most important statistics about the incarceration of mothers and pregnant women,” click here. For “From incarceration to the Washington Legislature, Rep. Tarra Simmons hits her stride in first term in Olympia,” click here. For “Who Is Serving and Protecting Assault Victims? Most rape crisis and domestic-violence programs wouldn’t survive without government funding that ties them to the police—and it’s left advocates trapped in a toxic dynamic,” click here. For “Marvin Scott III died in Texas police custody. His family will protest until the officers involved are arrested. Though seven of the sheriff’s officers have been fired after initially being put on administrative leave and another resigned while under investigation, the family and protesters say they don’t plan to stop until the officers have been charged with a crime,” click here. For “Police Group Says Qualified Immunity Makes Americans ‘Less Safe,’” click here. For “The Case for Ending All Traffic Stops (Updated),” click here. For “It’s Time to Kick Armed Cops Off the Road: We should not have to live in a world where the police can kill young men like Daunte Wright for committing traffic violations,” click here. For “The Myth of the Dangerous Traffic Stop Is Killing Black Men in America,” click here. For “Supreme Court rulings on traffic stops reinforce structural racism in policing: The court was well aware of what it was doing,” click here. For “Get Police Out of the Business of Traffic Stops,” click here. For “You’ve Heard About Gerrymandering. What Happens When It Involves Prisons? Counting people where they’re imprisoned takes political power away from cities and transfers it to rural areas,” click here. For “The Long Shadow of Virginia’s Death Penalty: Virginia made history when it abolished capital punishment. But for those who were proximate to the state’s 113 executions, closure remains complicated,” click here. For “Incarceration touches millions with loved ones behind bars. And it’s making many of them sick,” click here. For “Opinion: We’re making progress on the ‘what’ of reimagining safety. But what about the ‘how’?” click here. For “I’m in a Police Union That Holds Bad Cops Accountable: The Ethical Society of Police isn’t afraid to speak out against police misconduct,” click here. For “Undanced Dances During a Pandemic: From inside a California prison come choreographies of the mind,” click here. For “Can The Death Penalty Be Fixed? These Republicans Think So: A growing number of conservative lawmakers want to overhaul capital punishment, or end it,” click here. For “As New Police Reform Laws Sweep Across the U.S., Some Ask: Are They Enough? States have passed over 140 police oversight bills since the killing of George Floyd, increasing accountability and overhauling rules on the use of force. But the calls for change continue,” click here. For “Oregon Department of Corrections sued for charging prisoners for artificial limbs, other medical equipment,” click here. For “Opinion: Prolonged solitary confinement is torture. It’s time for all states to ban it,” click here. For “With dozens of reforms already in place, NJ presses for policing changes: AG has ordered training, rewritten use-of-force rules and said videos recorded by police should be public. Governor says he’s willing to go further,” click here. For “When communities try to hold police accountable, law enforcement fights back: Civilian oversight is undermined by politicians and police, who contend citizens are ill-equipped to judge officers,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

ACTION ALERT: Contact Your Legislators to Demand Covid-19 Vaccine for Homebound People

People who are homebound have been largely overlooked in the campaign to vaccinate people against Covid-19. At this writing, some states, such as Maryland, Connecticut, and Massachusetts, have mobile vaccination vans ready to take the vaccine to people in their homes. And other states, such as Rhode Island, Pennsylvania, New York, and Mississippi, have plans in place to vaccinate homebound adults but only in certain parts of their respective states, although they hope to expand statewide. But other states are farther behind: New Jersey has three vans ready to go, but “it could be weeks before they’re on the road,” according to a recent article. And California is even less prepared to vaccinate its homebound population. Providing Covid-19 vaccinations is a reasonable accommodation under the Americans with Disabilities Act. If your state is not already vaccinating its homebound residents, contact your state and federal legislators to demand that this change. To find your state legislators, click here. To find your federal legislators, click here.

ADVOCACY WORKS! Charles Helmer’s Forced Electroshock Scheduled for April 23 Was Canceled!

Thanks to you and the countless others who responded to MindFreedom International’s Shield program to help prevent the continued use of forced electroshock (also known as electroconvulsive treatment, or ECT) on Charles Helmer, a 22-year-old Minneapolis man, Charles’s forced electroshock scheduled for April 23 was canceled! Charles’s mother, Ann Fuller, wrote to MFI: "Hey, they stopped ECT on Charles temporarily!!!! YEAH!!! Hopefully for good...Thank you all for your effort & kindness. Much appreciated! Ann & Charles xo.” Again, thank you for your efforts to help Charles! Along with the work of many others, your efforts helped!

(Virtual) 2021 Disability & Intersectionality Summit (DIS) Conference Info

The theme of the Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, click here. (Courtesy of Dan Fisher)

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. Comparatively, the US is doing well on vaccinations, as of this writing ranking fourth in the world, behind only Israel and the U.K. To track the vaccinations in the U.S., by state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

RMIT Mad Studies Network, based in Melbourne, Australia, Hosts Monthly Virtual Reading Group

“The RMIT Mad Studies Network brings together anyone interested in Mad Studies, mad ideas, critical thinking about mental distress, the politics of ‘mental health,’ the mental health consumer/survivor/ex-patient movement and alternatives to the contemporary mental health paradigm/system,” according to the RMIT website’s home page. Currently, the RMIT’s main activity is a monthly reading group, now held virtually. The 90-minute groups take place on the third Tuesday of the month at 7 p.m. AEST (Australian Eastern Standard Time), which is 14 hours later than Eastern Daylight Time (5 a.m. EDT on the third Monday of the month). The time difference grows as you move west: 4 a.m. CT, 3 a.m. MT, 2 a.m. PT. For more information, click here.

First Virtual ESTSS Conference to Be Held June 17-18, 2021

The European Society for Traumatic Stress Studies will host its first virtual conference, on “Trauma and Mental Health during the Global Pandemic,” June 17-18, 2021 (with preconference workshops on June 16). ESTSS writes: “Our invited speakers will present their research and clinical work experiences regarding this complex topic from different perspectives (see Tracks).” For more information, click here.

New Jersey Mental Health Players Virtually Perform “Racism and Mental Health”

On May 13, 2021, at 12:30 p.m. ET, the New Jersey Mental Health Players (NJMHPs) will create a virtual performance on “Racism and Mental Health.” “People of color and all those whose lives have been marginalized by those in power…experience overt racism and bigotry far too often, which leads to a mental health burden that is deeper than what others may face,” the Mental Health Association in New Jersey writes. “The NJMHP program combines performance art and advocacy. Our virtual performance is 45 minutes and mimics the live show with a few new added features.” For more information and to register, click here.

12th World Hearing Voices Congress to Be Held in Cork, Ireland, September 1-3, 2021

The 12th World Hearing Voices Congress, whose theme is “Solidarity in Times of Adversity: The Global Voice Hearing Community Reconnecting,” will be held September 1-3, 2021. “This year’s Congress will create spaces for voice hearers, family members, carers, practitioners, academics, and all those interested in the principles and values of the International Hearing Voices Movement, to connect and/or reconnect with one another in a post-pandemic world, either in person in Cork, Ireland, or online across the globe,” the organizers write. “If restrictions do not allow to have a hybrid Congress in Cork, then Congress will move fully online!” The online fees for voice hearers/students are £45.00 ($67); for practitioners, £65.00 ($97). If a hybrid Congress can be offered, then the fees will be €80 ($95) for voice hearers/students; €180 ($211) for practitioners. (The monetary conversion rates are as of this writing.) For more information, including a link to register, click here. (Courtesy of Janet Paleo)

MHA Offers Free “May Is Mental Health Month” Toolkit

Mental Health America writes: “The COVID-19 pandemic has had a profound impact on the mental health of people of all ages. Now, more than ever, it is critical to reduce the [prejudice and discrimination] around mental health struggles, because that…often prevents individuals from seeking help. In 2021, we will continue with our theme of Tools 2 Thrive, providing practical tools that everyone can use to improve their mental health and increase their resiliency regardless of their personal situation.” This campaign is supported by contributions from Janssen: Pharmaceutical Companies of Johnson & Johnson and Otsuka America Pharmaceutical Inc. For more information and to download the free toolkit, click here.

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

NARPA Free Webinar Series Is Available Online

“In lieu of a face-to-face conference in 2020, NARPA presented a series of webinars related to current events. The last presentation in this series took place in December, withMental Health Courts and Specialized Courts in Canada: Access to Justice from the Perspective of people with psychiatric histories.’ All of the webinars are free and are available for streaming on NARPA's YouTube Channel. For more information, click here.

Here's Your Chance to Help Transform Mental Health Services Research in the U.S.!

If you’ve ever served on an advisory board for a research or evaluation project, provided even limited consultation, or partnered as a peer-run organization in such research, you’re eligible to participate in a national survey aimed at better understanding researchers’ and stakeholders’ experiences of participatory research! The anonymous, 10-20 minute survey includes both closed- and open-ended questions about your experiences with such research, perspectives on barriers, and potential targets for policy change and resource development. Findings will be used to inform future projects focused on building stakeholder research capacity and strengthening participatory research in the U.S. All participants will receive a $20 Amazon gift card. This new study is connected to “Building Capacity for Stakeholder Involvement and Leadership in Mental Health Services Research,” included in the August 2020 Key Update, which involved detailed interviews. Principal Investigator Dr. Nev Jones (genevra@usf.edu) writes, “We are still doing interviews ($50 per interview) so feel free to contact me about that too.” The survey IRB ID# is 001319; the project including this survey was developed with the PCORI-funded PathED Collaborative, co-led by Drs. Nev Jones (genevra@usf.edu) and Linda Callejas (callejas@usf.edu). For more information and/or to participate, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

A Service-User-Led Survey of “Experiences of the Intersections of Psychosis, Difficult Events, and Trauma” Seeks Participants with Firsthand Experience

A study developed by researchers at the University of South Florida “aims to better understand the relationships between prior experiences of trauma or adversity and experiences such as hearing voices, unusual beliefs and paranoia, as well as the ways in which these experiences themselves can contribute to trauma or distress.” The researchers, who themselves have lived experience, are seeking respondents “who self-identify as having current or prior experiences that would conventionally be labeled psychosis.” The anonymous survey takes approximately 15 minutes to complete; every 10th respondent will be compensated with a $50 gift card, up to five gift cards. Questions? Contact Dr. Nev Jones at genevra@usf.edu. For more information and/or to participate, click here.

“Mapping the Disability Experience: Share Your Stories”

“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.” Submissions will be accepted through June 30, 2020. For more information or to participate, click here. Questions? Contact Yochai Eisenberg, PhD, yeisen2@uic.edu (Courtesy of Elizabeth R. Stone)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Is Launched to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, Ph.D., and Emily Cutler, a doctoral candidate, have launched a listserv dedicated to building research capacity, leadership, and involvement among peers, survivors, and service users.  Dr. Jones, assistant professor, Department of Mental Health Law & Policy, University of South Florida, was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Do You Supervise Peer Support Workers? Then Researchers Have Some Questions for You

Researchers in the University of South Florida’s Department of Psychiatry and at Magellan Health are investigating the backgrounds, training, and experiences of individuals who currently supervise at least one peer support worker in a behavioral health setting or agency. “To the best of our knowledge, this will be the first comprehensive research study of the landscape of peer support supervision practices in the United States,” writes Dr. Nev Jones, the primary investigator of the study (Protocol Number 00040223). Participants must be at least 18 years old and work in the United States or U.S. territories. An online survey lasting approximately 10 minutes will ask about respondents’ backgrounds, training and preparation for supervision, perspectives and practices, and views on barriers and facilitators to high-quality supervision. There is no monetary compensation. Questions? Contact Dr. Nev Jones (genevra@health.usf.edu) or the co-primary investigator, Dana Foglesong (dfoglesong@magellanhealth.com). To access the survey, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 17, No. 11, May 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

Key Update, April 2021, Volume 17, Number 10

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.  

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

This edition of the Key Update includes two important ACTION ALERTS: (1) Contact Your Legislators to Demand Covid-19 Vaccine for Homebound People, and (2) Help MindFreedom International Stop Forced Electroshock! (ALERT UPDATE: Charles Helmer’s Forced Electroshock Scheduled for 4/23 Is Canceled!)

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

ACTION ALERT: Contact Your Legislators to Demand Covid-19 Vaccine for Homebound People

People who are homebound have been largely overlooked in the campaign to vaccinate people against Covid-19. At this writing, some states, such as Maryland, Connecticut, and Massachusetts, have mobile vaccination vans ready to take the vaccine to people in their homes. And other states, such as Rhode Island, Pennsylvania, New York, and Mississippi, have plans in place to vaccinate homebound adults but only in certain parts of their respective states, although they hope to expand statewide. But other states are farther behind: New Jersey has three vans ready to go, but “it could be weeks before they’re on the road,” according to a recent article. And California is even less prepared to vaccinate its homebound population. Providing Covid-19 vaccinations is a reasonable accommodation under the Americans with Disabilities Act. If your state is not already vaccinating its homebound residents, contact your state and federal legislators to demand that this change. To find your state legislators, click here. To find your federal legislators, click here.

One-Third of Covid Survivors Were Later Diagnosed with Mental Health Conditions or, Rarely, Neurological Issues

A study of more than 236,000 people who had recovered from Covid-19 found that many had mood disorders, anxiety, substance use disorders, insomnia, and, in rarer cases, severe conditions like stroke and dementia within six months, according to People magazine, reporting on a study published in Lancet Psychiatry. For the People article, which includes a link to the Lancet Psychiatry study, click here.

ADVOCACY WORKS! Charles Helmer’s Forced Electroshock Scheduled for April 23 Was Canceled!

Thanks to you and the countless others who responded to MindFreedom International’s Shield program to help prevent the continued use of forced electroshock (also known as electroconvulsive treatment, or ECT) on Charles Helmer, a 22-year-old Minneapolis man, Charles’s forced electroshock scheduled for April 23 was canceled! Charles’s mother, Ann Fuller, wrote to MFI: "Hey, they stopped ECT on Charles temporarily!!!! YEAH!!! Hopefully for good...Thank you all for your effort & kindness. Much appreciated! Ann & Charles xo.” Again, thank you for your efforts to help Charles! Along with the work of many others, your efforts helped! For those who didn’t see the original Action Alert, “Charles Helmer was discharged on March 22, 2021, from Fairview Riverside Psychiatric Clinic at the University of Minnesota, and court-ordered to live in a group home and to report every other week for forced electroshock. His most recent forced treatment was on April 9, 2021; he is next scheduled to be force-shocked on April 23. This is in spite of his own—and his mother’s—efforts to prevent it…For a MindFreedom International press release about MFI’s campaign to help Charles Helmer, click here. For “ECT: Dangerous on Either Side of the Pond,” published in Psychiatric Times on April 5, 2021, click here.”

Deadline for Proposals to Present a Workshop at (Free) Alternatives 2021 is April 23!

The National Coalition for Mental Health Recovery is proud to host the (free!) 2021 (Virtual) Alternatives Conference, now in its 35th year! The conference—whose theme is  “Connecting, Organizing, Activating!”—will take place on July 8, 10, 15, and 17. You are invited to submit a workshop proposal through April 23 on one of these topics: Advocacy; Preventing Crisis; Protecting Rights; Promoting Social Justice and Social Inclusion; Youth Empowerment; Healing Through the Arts, Holistic Health, Wellness, and Spirituality; and Economic Empowerment. For the NCMHR announcement, which includes details about submitting workshop proposals and more, click here. For questions: info@ncmhr.org

BPC Recommends Expanded Role for Peer Support Specialists in Integrated Health Care

A new report by the Bipartisan Policy Center (BPC) Behavioral Health Integration Task Force—“Tackling America’s Mental Health and Addiction Crisis Through Primary Care Integration: Task Force Recommendations”— highlights the effectiveness of peer support. The 124-page report, published in March 2021, includes numerous mentions of peer support, such as the following (pp. 68-69): “One provider type that should be considered for coverage under Medicare is peer support specialists…These professionals use their lived experience and training to help patients navigate care systems and sustain recovery, especially in patients with severe mental health conditions or substance use disorders. Evidence suggests that peer support services benefit staff as well…Peer support staff have proven to be a valuable tool for providers in improving patient-provider relationships and promoting shared decision making with respect to medications and treatment plans…In addition, adding peer support staff offers an opportunity to diversify the workforce to better reflect communities served by the primary care practices.” To download the free report, click here.

Check Out the TU Collaborative’s New Publication: “Family Leisure Planning and Covid-19”

The TU Collaborative has a new publication: “Our new document, ‘Family Leisure Planning and Covid-19,’ shares information about the benefits of engaging in family leisure as well as resources for planning memorable activities at home!” For the 16-page document, click here. For the TU Collaborative newsletter, click here.

“New Paper on How to Stop Antipsychotic Drugs Deemed ‘Historic Breakthrough,’” But Is Scooped by Peer-Written Paper, Published in 2007

“Researchers have published the first scientific paper looking at how patients can safely come off antipsychotic medication while minimizing the risk of withdrawal effects,” according to a report in Metro UK. “The paper, [‘A Method for Taping Antipsychotic Treatment That May Minimize the Risk of Relapse’], described as a ‘historic breakthrough,’ suggests that extremely slow tapering with small reductions over months or even years could make it less likely for patients to relapse.” For the Metro UK article, click here. For the free study, published in Schizophrenia Bulletin on March 23, 2021, click here. And for the free, 41-page “Harm Reduction Guide to Coming Off Psychiatric Drugs,” published in 2007, which also advises, “Usually it is best to go slow and taper off gradually,” click here.

NARPA Issues Call for Papers for Its 2021 (Virtual) Conference

“The National Association for Rights Protection and Advocacy (NARPA) is seeking proposals that address strategies, ideas, programs, and emerging practices that support and promote NARPA’s mission and commitment to individual rights, racial equity, justice, liberty, freedom, and dignity.” The workshop proposal deadline is May 4, 2021. NARPA’s 2021 conference, to be presented in Fall 2021, will offer six free, 90-minute webinars. (NARPA adds, “please consider making a tax-deductible contribution because NARPA does not accept government or corporate funding.”) CEUs and CLEs will be available. At this writing, the Application for Workshops is not yet posted at www.narpa.org, although it soon will be available there. For more information, contact NARPA at narpa4rights@gmail.com or 256.650.6311. 

New Psychiatric Services Paper Calls for “Building a Pipeline of Researchers with Significant Psychiatric Disabilities…”
“We have got to start actively recruiting, hiring and mentoring students and researchers with significant psychiatric disabilities and intersectional disadvantage at every level,” writes Nev Jones, Ph.D., as she shared on Twitter a new paper of which she is the lead author: “Lived Experience, Research Leadership, and the Transformation of Mental Health Services: Building a Researcher Pipeline.” “Critically, this requires a much deeper reckoning with ableism in academic spaces and what it means to support emerging researchers with ongoing disability/challenges; recognizing how hard it is to sit through classes and meetings in which your community is also the objectified ‘target,’” she continued. “It means supporting those same students, later on, to get extramural grants, faculty positions, tenure or promotion and start breaking the glass ceiling we see so firmly in place now. Mental health services journal editors, funding bodies and conference organizers can all play a role by prioritizing the full inclusion and amplifying the voices and visibility of researchers with significant psychiatric disabilities.” For the complete paper, published online on March 11, 2021, click here.

(Virtual) 2021 Disability & Intersectionality Summit (DIS) Issues Call for Papers

The Disability & Intersectionality Summit (DIS)—"a biennial national conference that centers the multiple oppressions that shape the lived experiences of disabled individuals, as told by disabled people, in a setting organized by disabled activists”—has issued a call for proposals. The deadline is May 1, 2021. This year’s theme is “Disabled Community Care and Survival: Strategies and Brilliance.” The organizers write: “This year’s DIS 2021 will have presentations scheduled from June - December.” For more about the Summit, including a link to submit proposals, click here. (Courtesy of Dan Fisher)

(Virtual) Mini Conference on Hoarding and Cluttering to Be Held April 16-17, 2021

The Mental Health Association of San Francisco is sponsoring a Virtual Mini Conference on Hoarding and Cluttering on April 16-17, 2021, from 3 p.m. to 7 p.m. ET (noon to 4 p.m. PT). The theme is “Redefining Crazy: It’s the System, Not the People.” “The goal of this virtual conference is to convene peers, experts, stakeholders, scientists, policy leaders, providers, researchers, and community advocates in a collaborative and actionable learning environment to advance innovation and highlight the work and values of diverse leaders across sectors to discuss matters and new information on hoarding and cluttering,” the organizers write. For more information, click here.

Temple University (TU) Article Highlights Impact of Community Inclusion on Social Determinants of Mental Health, While a Previous TU Paper Focuses on Supporting Social Workers with Mental Health Conditions

“Community inclusion emerged from a vibrant disability rights community that fought to counter isolation and exclusion…,” writes Mark Salzer, Ph.D., director of the Temple University Collaborative on Community Inclusion. “Individuals with serious mental illnesses do not participate in their communities to the same degree as others, and the lack of participation takes a toll on their economic stability, place in society and the community, and exposure to unsafe neighborhoods and physical environments, all of which ultimately affect health. Promotion of community inclusion and participation…should be considered a medical necessity.” For the article, published in Psychiatric Services on March 18, 2021, click here. Dr. Salzer was a co-author—with lead author Loran Kundra, JD, MSS—of “Out of the Shadows: Supporting Social Workers with a Mental Illness,” published in Social Work in Mental Health in 2019. The authors write: “This article sets forth a new approach to supporting these social workers which involves one-on-one peer support, peer education, advocacy opportunities, assistance with requests for job accommodations, a speaker’s bureau, and organizational consultation on peer issues within agencies.” For the abstract, click here.

“Our ‘Normal’ Responses to Mental Health Crises Are Not Working,” as Reported by Current Affairs, The Washington Post, The Guardian, the ABA Journal, and the Coloradoan

“People with mental health issues are 16 times more likely to be in a police encounter than other civilians,” Current Affairs reports. “[W]hen we continue to invest in police, prosecutions, courts, jails, and prisons—instead of true mental health intervention and response—our communities are not made safer or healthier. Instead, people die. But police shootings and killings don’t tell the full story of the impact of the criminalization of mental health issues on the people, families, and communities most targeted by police, especially Black and Brown people.” For the Current Affairs article, click here. For “Reimagine Safety: We rely too much on the police. Rather than defunding the police, we need to reimagine public safety. When we need help, we need someone other than armed officers to call for help. We can make neighborhoods safer just by changing the physical environment,” click here. For “These US cities defunded police: 'We're transferring money to the community': More than 20 major cities have reduced police budgets in some form, and activists are fighting to ensure that is only the start,” click here. For “Police are often first responders to mental health crises, but tragedies are prompting change,” published by the ABA Journal, click here. For “How a Colorado Town Is Untangling Behavioral Health Care from the Criminal Justice System,” click here. (Note: This important issue has previously been covered at length in the Key Update, most recently in March 2021, February 2021,and November 2020, as well as frequently in the Key Update’s Criminal Justice Digest.)

In a Related Story, “New Funding is Available for Mental Health Mobile Crisis Teams”

“The new COVID-19 relief bill—the American Rescue Plan, H.R. 1319 [which President Biden signed into law on March 11, 2021]—provides new federal funding for mental health mobile crisis teams,” the Bazelon Center for Mental Health Law writes. “Mental health mobile crisis teams are highly effective, both as an alternative to the police responding to individuals with mental illness and as a way to meet the urgent needs of individuals with mental illness or substance use disorder.” For the complete statement, click here.

RMIT Mad Studies Network, based in Melbourne, Australia, Hosts Monthly Virtual Reading Group

“The RMIT Mad Studies Network brings together anyone interested in Mad Studies, mad ideas, critical thinking about mental distress, the politics of ‘mental health,’ the mental health consumer/survivor/ex-patient movement and alternatives to the contemporary mental health paradigm/system,” according to the RMIT website’s home page. Currently, the RMIT’s main activity is a monthly reading group, now held virtually. The 90-minute groups take place on the third Tuesday of the month at 7 p.m. AEST (Australian Eastern Standard Time), which is 14 hours later than Eastern Daylight Time (5 a.m. EDT). The time difference grows as you move west: 4 a.m. CT, 3 a.m. MT, 2 a.m. PT. For more information, click here.

Free Webinar: “Child & Adolescent Mental Health Crisis Service,” April 26

A free, 90-minute SAMHSA-sponsored webinar—“Child & Adolescent Mental Health Crisis Service”—presented by Mental Health America will be held on April 26, 2021, at 2 p.m. ET. “Rates of youth facing mental health challenges, including suicidality, are rising across the country. Often, communities lack youth-specific resources to help the individual in their moment of crisis and beyond. Alachua County [Florida] Crisis Center’s team will discuss how youth-focused crisis interventions that integrate families, schools, and communities can create lasting change.” For more information and to register, click here. For questions, contact kelle.masten@nasmhpd.org. (Courtesy of Judene Shelley)

On April 27, Doors to Wellbeing Will Offer a Free Webinar as Part of Its Monthly Series

On April 27, 2021, at 2 p.m. ET, Doors to Wellbeing will host its next monthly 60-minute webinar: “Wellness Maintenance for Transition Aged Youth (TAY) Peer Professionals.“ Doors to Wellbeing writes: “This webinar is designed for transition-aged youth peer professionals between the ages of 18-25 who are looking to gain work, life, and wellness balance as they navigate adulthood and the workplace.” For more information and to register, click here.

Free Webinar: Recovery Through Personal Care Services,” April 28

A free, 90-minute SAMHSA-sponsored webinar—“Recovery Through Personal Care Services”—will take place April 28, 2021, at 2:00 p.m. ET. “As our mental health system shifts its culture from institutional, professionally directed-services, PCAs [Personal Care Attendants] enable individuals with behavioral health challenges to integrate into the community. PCAs facilitate the transition from professionally directed to self-directed care. In this manner, the use of PCAs for behavioral health can further each person’s resiliency, hope and choice.” The presenters will be Dan Fisher, MD, PhD, and R. Drake Ewbank, QHMA, PSS, PSW, PCA. For more information and to register, click here. Questions? Contact kelle.masten@nasmhpd.org (Courtesy of Judene Shelley)

HALI’s “Creative Connections” Campaign Hosts Monthly Zoom Workshops

On May 6 at 3:30 p.m. ET, Hands Across Long Island (HALI) will host its next monthly 90-minute Creative Connections workshop on Zoom. “The purpose of the [Creative Connections] Campaign is to reach our community in institutions through letters and art to express that we love, we care, and we stand with our community; to reimagine the ways we can connect with others through art and letter-writing; and to bring awareness to the challenges our community faces. After exploring and navigating [the] barriers our community faces, we will collaborate to create blackout poetry that will be delivered to someone held in an institution. [Use] a book, magazine, or any page with writing that you wouldn’t mind parting with, a marker or pen, and yourself! You’re welcome to create in whatever medium you enjoy and join us in conversation.” No registration is necessary. Click on the Zoom link or cut and paste it into your browser: https://zoom.us/j/93732941287?pwd=clhmeVY3ck9kSGtwWS90WXB0ZWdrdz09 (Passcode: 035115), or join by phone: 1.929.205.6099; Meeting ID: 937 3294 1287. If you are joining from outside the U.S., find your local number here: https://zoom.us/u/aelMZEF8Cl

MHA Offers Free “May Is Mental Health Month” Toolkit

Mental Health America writes: “The COVID-19 pandemic has had a profound impact on the mental health of people of all ages. Now, more than ever, it is critical to reduce the [prejudice and discrimination] around mental health struggles, because that…often prevents individuals from seeking help. In 2021, we will continue with our theme of Tools 2 Thrive, providing practical tools that everyone can use to improve their mental health and increase their resiliency regardless of their personal situation.” This campaign is supported by contributions from Janssen: Pharmaceutical Companies of Johnson & Johnson and Otsuka America Pharmaceutical Inc. For more information and to download the free toolkit, click here.

“Selling Side Effects: Big Pharma’s Marketing Machine”

“Americans pay more for drugs and medical devices than any other country,” according to an article on drugwatch.com. “Big Pharma follows potential patients everywhere—on TV, in print and online. Companies spend billions advertising to doctors to get them [to] prescribe their brand-name drugs and devices. They also spend billions paying criminal and civil settlements resulting from fraudulent marketing. Do these practices empower patients or expose them to newer, riskier and more expensive drugs and devices?” For the article, published in 2016 but last modified on March 18, 2021, click here.

NARPA Free Webinar Series Is Available Online

“In lieu of a face-to-face conference in 2020, NARPA presented a series of webinars related to current events. The last presentation in this series took place in December, with ‘Mental Health Courts and Specialized Courts in Canada: Access to Justice from the Perspective of people with psychiatric histories.’ All of the webinars are free and are available for streaming on NARPA's YouTube Channel. For more information, click here.

12th World Hearing Voices Congress to Be Held in Cork, Ireland, September 1-3, 2021

The 12th World Hearing Voices Congress, whose theme is “Solidarity in Times of Adversity: The Global Voice Hearing Community Reconnecting,” will be held September 1-3, 2021. “This year’s Congress will create spaces for voice hearers, family members, carers, practitioners, academics, and all those interested in the principles and values of the International Hearing Voices Movement, to connect and/or reconnect with one another in a post-pandemic world, either in person in Cork, Ireland, or online across the globe,” the organizers write. “If restrictions do not allow to have a hybrid Congress in Cork, then Congress will move fully online!” The online fees for voice hearers/students are £45.00 ($67); for practitioners, £65.00 ($97). If a hybrid Congress can be offered, then the fees will be €80 ($95) for voice hearers/students; €180 ($211) for practitioners. (The monetary conversion rates are as of this writing.) For more information, including a link to register, click here. (Courtesy of Janet Paleo)

Canadian Senate Expands Assisted Dying to Include Mental Health Conditions, While Disability Rights Groups Oppose It, Global News Reports

“Intolerably suffering Canadians who are not near the natural end of their lives now have the right to seek medical assistance in dying. And that will eventually include people suffering solely from grievous and irremediable mental illnesses,” the Global News reported on March 19, 2021. “People suffering solely from mental illnesses will have to wait two years to gain the same right [as “intolerably suffering Canadians who aren’t near death”]…But disability rights groups have strenuously opposed the bill, arguing it devalues the lives of people with disabilities, particularly those who are Black, racialized, Indigenous or otherwise already marginalized and face discrimination in the health system. They fear such vulnerable people will be pressured—either directly or indirectly through societal attitudes and lack of support services—to end their lives prematurely.” For the Global News article, click here. For a related article, from 2015, in The New Yorker—"The Death Treatment: When should people with a non-terminal illness be helped to die?”—click here.

“20 Comics That Capture Life with Anxiety and Depression”

“At GoComics, creators share their struggles with anxiety, depression, and more with an aim to relate to readers who may be going through the same thing. Sometimes it’s with a laugh; other times it's with a poignant character moment; but the comics always ease the stigma associated with a diaspora of mental health issues.” For the comics, click here.

The April 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “Over 3 Million People Took This Course on Happiness. Here’s What Some Learned. It may seem simple, but it bears repeating: sleep, gratitude and helping other people,” click here. For “What Can You Do Once You’re Vaccinated?” click here. For “How to Start Healing During a Season of Grief: There is no singular way to respond to heartache or sorrow. Find the strategy that works best for you,” click here. For “If You Stay Mentally Well Your Entire Life, You’re Not Normal,” click here.

The April 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Mass Incarceration Draws Its Own Maps and Creates a Country in Its Image: Prison gerrymandering, in which incarcerated people are designated as residents of the areas where a prison or jail is located, is a system of strategic disenfranchisement,” click here. For “5 Discussions That Shaped the Justice Reform Movement in 2020,” click here. For “The pandemic slowed courts, leaving behind case backlogs. Now public defenders are ‘emptying the ocean with a teaspoon,’” click here. For “Missing the Mark: Data Reporting & Quality Scorecard,” click here. For “10 Artists Who Shed Light on Mass Incarceration,” click here. For “How transparent is Allegheny County Jail compared to other PA jails? We requested their mental health policies to find out. Compared to the other five largest PA counties, ACJ was far less transparent in providing its mental health policies. PublicSource appealed ACJ’s decision to the Pennsylvania Office of Open Records, but the appeal was denied,” click here. For “North Carolina sends 6-year-olds to court. Why some say it’s time for change,” click here. For “Civil asset forfeiture: I'm a grandmother, not a drug lord. Why can police take my property? It shouldn't take six years and the threat of legal action to be treated fairly. I hadn't been accused of any crime. I shouldn't have been punished,” click here. For “America's surge in violence: Why we must reduce violent crime for prison reform to work. We simply won’t shed our status as the planet’s leading incarcerator without reducing violence,” click here. For “Deprivatization—not continual fines—is the solution to health care incompetency in Arizona prisons,” click here. For “The Enormous Cost of Parole Violations in New York,” click here. For “The pandemic’s unintended consequence—bail reform in Cuyahoga County: Leila Atassi,” click here. For “Study finds not prosecuting misdemeanors reduces defendants’ subsequent arrests: Results support Suffolk DA Rollins’s move to dismiss lower-level offenses,” click here. For “Sarpy Board approves UNMC inmate mental health fellowship program,” click here. For “After crime plummeted in 2020, Baltimore will stop drug, sex prosecutions: State’s Attorney Mosby stopped non-violent prosecutions for the coronavirus, but then violent crime dropped 20 percent,” click here. “For “The Way We Think About Mass Shootings Ignores Many Black Victims: High-casualty shootings didn’t disappear during the pandemic—they nearly doubled,” click here. For “What is Life is a podcast that gives people serving life without the possibility of parole in Pennsylvania a chance to tell their story in their own voice, click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. To track vaccinations in the U.S. compared to other countries, by U.S. state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Journalist Seeks Sources for Book on Mental Health Coercion

Rob Wipond, an independent investigative journalist, writes: “I’m working on a book for U.S. publisher BenBella about people’s experiences of psychiatric coercion, detention, and involuntary treatment. One of my main goals is to show the general public how people can be subjected to this kind of intimidating power and authority in many other situations, too. For example, have you ever felt pressured to submit to psychological or psychiatric evaluations, programs, or treatments at a school, long-term care facility, or workplace? When applying for welfare or vocational training? When in conflict with a landlord or shelter staff? Or maybe you received an unexpected police Wellness Check? Or the hospital where you were detained was later found guilty of fraud? Or perhaps you experienced repercussions of a psychiatric detention when the incident was brought up later during a child custody case or when you tried to cross a border? Whatever the situation, I’d like to hear from you! Please complete my survey or contact me using the contact form on my website. "Anonymity is available on request. I’m also interested in hearing from anyone who has worked in this field or witnessed such situations, such as social workers, psychiatric nurses, police, peer support workers, and other professionals.” 

First Virtual ESTSS Conference to Be Held June 17-18, 2021

The European Society for Traumatic Stress Studies will host its first virtual conference, on “Trauma and Mental Health during the Global Pandemic,” June 17-18, 2021 (with preconference workshops on June 16). ESTSS writes: “Our invited speakers will present their research and clinical work experiences regarding this complex topic from different perspectives (see Tracks).” For more information, click here.

New Jersey Mental Health Players Virtually Perform “Racism and Mental Health”

On April 29 and May 13, 2021, at 12:30 p.m. ET, the New Jersey Mental Health Players (NJMHPs) will create a virtual performance on “Racism and Mental Health.” “People of color and all those whose lives have been marginalized by those in power…experience overt racism and bigotry far too often, which leads to a mental health burden that is deeper than what others may face,” the Mental Health Association in New Jersey writes. “The NJMHP program combines performance art and advocacy. Our virtual performance is 45 minutes and mimics the live show with a few new added features.” For more information and to register for one of the three dates, click here.

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

Here's Your Chance to Help Transform Mental Health Services Research in the U.S.!

If you’ve ever served on an advisory board for a research or evaluation project, provided even limited consultation, or partnered as a peer-run organization in such research, you’re eligible to participate in a national survey aimed at better understanding researchers’ and stakeholders’ experiences of participatory research! The anonymous, 10-20 minute survey includes both closed- and open-ended questions about your experiences with such research, perspectives on barriers, and potential targets for policy change and resource development. Findings will be used to inform future projects focused on building stakeholder research capacity and strengthening participatory research in the U.S. All participants will receive a $20 Amazon gift card. This new study is connected to “Building Capacity for Stakeholder Involvement and Leadership in Mental Health Services Research,” included in the August 2020 Key Update, which involved detailed interviews. Principal Investigator Dr. Nev Jones (genevra@usf.edu) writes, “We are still doing interviews ($50 per interview) so feel free to contact me about that too.” The survey IRB ID# is 001319; the project including this survey was developed with the PCORI-funded PathED Collaborative, co-led by Drs. Nev Jones (genevra@usf.edu) and Linda Callejas (callejas@usf.edu). For more information and/or to participate, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

A Service-User-Led Survey of “Experiences of the Intersections of Psychosis, Difficult Events, and Trauma” Seeks Participants with Firsthand Experience

A study developed by researchers at the University of South Florida “aims to better understand the relationships between prior experiences of trauma or adversity and experiences such as hearing voices, unusual beliefs and paranoia, as well as the ways in which these experiences themselves can contribute to trauma or distress.” The researchers, who themselves have lived experience, are seeking respondents “who self-identify as having current or prior experiences that would conventionally be labeled psychosis.” The anonymous survey takes approximately 15 minutes to complete; every 10th respondent will be compensated with a $50 gift card, up to five gift cards. Questions? Contact Dr. Nev Jones at genevra@usf.edu. For more information and/or to participate, click here.

“Mapping the Disability Experience: Share Your Stories”

“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.” Submissions will be accepted through June 30, 2020. For more information or to participate, click here. Questions? Contact Yochai Eisenberg, PhD, yeisen2@uic.edu (Courtesy of Elizabeth R. Stone)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

NYAPRS Announces 17th Annual Executive Seminar: April 20, 22, and 28

NYAPRS has announced that its 17th Annual Executive Seminar will be held virtually on April 22, 22, and 28, 2021. “During these multi-faceted challenging times, the Executive Seminar will provide topics addressing each challenge and how organizations can move forward and take charge of their future,” NYAPRS writes. “Topics will include ‘No More Conference Rooms: How to Run an Agency with Reduced Physical Offices’; ‘Organizational COVID-19 Response: Health Equity in Action’; ‘Taking Charge to Recharge Our Workforce’; ‘Engagement, Connection and Communication in a Virtual Workplace’; and many more!.” For more information and to register, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Advances Peer Research Capacity, Leadership, and Involvement

Nev Jones, Ph.D., and Emily Cutler, a doctoral candidate, have launched a listserv dedicated to building research capacity, leadership, and involvement among peers, survivors, and service users.  Dr. Jones, assistant professor, Department of Mental Health Law & Policy, University of South Florida, was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Do You Supervise Peer Support Workers? Then Researchers Have Some Questions for You

Researchers in the University of South Florida’s Department of Psychiatry and at Magellan Health are investigating the backgrounds, training, and experiences of individuals who currently supervise at least one peer support worker in a behavioral health setting or agency. “To the best of our knowledge, this will be the first comprehensive research study of the landscape of peer support supervision practices in the United States,” writes Dr. Nev Jones, the primary investigator of the study (Protocol Number 00040223). Participants must be at least 18 years old and work in the United States or U.S. territories. An online survey lasting approximately 10 minutes will ask about respondents’ backgrounds, training and preparation for supervision, perspectives and practices, and views on barriers and facilitators to high-quality supervision. There is no monetary compensation. Questions? Contact Dr. Nev Jones (genevra@health.usf.edu) or the co-primary investigator, Dana Foglesong (dfoglesong@magellanhealth.com). To access the survey, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 17, No. 10, April 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

Key Update, March 2021, Volume 17, Number 9

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

“Why is ‘electroshock’ therapy still a mainstay of psychiatry?”

Electroconvulsive therapy (ECT), a.k.a. shock treatment, “damages memory and cognition, and brings no lasting relief,” according to a recent article in Aeon. “So why is it still a mainstay of psychiatry?” asks John Read, a professor of clinical psychology at the University of East London. One answer: at least partly because its proponents think that brain damage—which autopsies have repeatedly shown—might be a good thing. “The idea that ECT causes brain damage was so obvious to the early proponents that they incorporated it into an explanation for how ECT worked,” Read writes. The article notes that other studies have shown that “ECT accelerates senile dementia,” and that “there’s no evidence of any benefits beyond the end of the course of treatments, and no evidence that ECT prevents suicide…Furthermore, some people kill themselves because of the damage done to them by ECT.” For the article, click here.

Deadline March 15 to Submit Proposals for First Virtual ESTSS Conference

The European Society for Traumatic Stress Studies will host its first virtual conference, on “Trauma and Mental Health During the Global Pandemic,” June 17-18, 2021 (with preconference workshops on June 16). ESTSS writes: “Our invited speakers will present their research and clinical work experiences regarding this complex topic from different perspectives (see Tracks).” Abstract submission is open until March 15th, 2021. For more information, click here.

How Homelessness Is Criminalized, Which Leads to Tragedies

On October 23, 2019, police officers in Albany, Oregon, killed James Plymell III, an unarmed homeless man. Such tragedies are not uncommon. “Plymell’s crimes involved sleeping in public parks, littering, drinking in public or being intoxicated—the kind of infractions that housing advocates and legal experts say cities and towns use to criminalize homelessness, poverty, addiction and the behavior of people with mental health issues,” High Country News noted. Paul Boden, director of the Western Regional Advocacy Project, said: “Sleeping, sitting and standing still, by massive percentages, were the top three criminal offenses people are being hit with. Sleeping, sitting and standing still—who doesn’t do that?” A 2014 report by the National Law Center on Homelessness and Poverty (NLCHP) reported that “indicators of both homelessness and the criminalization of homelessness have increased steadily in recent years.” According to the High Country News article, “In 2019, an estimated 568,000 people in the U.S. experienced homelessness. And the issue is particularly severe on the West Coast.” However, said Donald Whitehead, executive director of the National Coalition for the Homeless, “There is not one city in the entire United States where there is enough shelter for people that are homeless.” Although James Plymell was white, Black people who are homeless are at even higher risk, according to “Police Violence, Homelessness, and Black Lives,” by endhomelessness.org. For the High Country News article, click here. For the NLCHP report, click here. For the endhomelessness.org article, click here. For “State of Homelessness: 2020 Edition,” click here.

Journalist Seeks Sources for Book on Mental Health Coercion

Rob Wipond, an independent investigative journalist, writes: “I’m working on a book for U.S. publisher BenBella about people’s experiences of psychiatric coercion, detention, and involuntary treatment. One of my main goals is to show the general public how people can be subjected to this kind of intimidating power and authority in many other situations, too. For example, have you ever felt pressured to submit to psychological or psychiatric evaluations, programs, or treatments at a school, long-term care facility, or workplace? When applying for welfare or vocational training? When in conflict with a landlord or shelter staff? Or maybe you received an unexpected police Wellness Check? Or the hospital where you were detained was later found guilty of fraud? Or perhaps you experienced repercussions of a psychiatric detention when the incident was brought up later during a child custody case or when you tried to cross a border? Whatever the situation, I’d like to hear from you! Please complete my survey or contact me using the contact form on my website. "Anonymity is available on request. I’m also interested in hearing from anyone who has worked in this field or witnessed such situations, such as social workers, psychiatric nurses, police, peer support workers, and other professionals.” 

Free Webinar: “Sailing on Self-Management, the Organization of Empowerment” on March 16

On March 16, 2021, at 2 p.m. ET, the National Empowerment Center (NEC) will host a free, 90-minute webinar on “Sailing on Self-Management, the Organization of Empowerment.” NEC writes: “Over the last ten years, Max Huber has studied self-managed crisis alternatives (a.k.a. peer respites or consumer run programs)…In this webinar, Max will discuss the main findings of his research and the implications for further development of self-managed alternatives, both in practice and in policy. There will be ample room for questions and discussion.” For more information and to register, click here.

Free Webinar: “Definitions and Tools to Prevent Abuse/Neglect”

On March 16 at 2 p.m. ET (11 a.m. PT), Disability Rights California will present a free webinar on “Definitions and Tools to Prevent Abuse/Neglect.” The hosts write: “Whether you live in your own home, group home, nursing home or residential facility like a board and care home you have rights that protect you from being abused, neglected or targeted for a crime. California Mental Health Law defines what is abuse, neglect and crime, who you should report the abuse/neglect to, and who is a mandated reporter.” (The webinar will be repeated in Spanish on March 25.) For details and to register, click here.

Copeland Center to Present Free “WRAP® and Talking About Tobacco” Webinar on March 18

The second webinar in the “Talking About Tobacco” series—"WRAP® and Talking About Tobacco”— will be held on March 18, 2021, 3 p.m. to 4:30 p.m. ET. “Presenters Gina Calhoun, Chacku Mathai, and Rita Cronise will provide an orientation to the Wellness Recovery Action Plan (WRAP®) and discuss how WRAP® can be used for exploring options for wellness, including the use of tobacco and the impacts that use might have on one’s life. The presenters will share elements of their own stories related to tobacco use, and audience members will be able to contribute their own ideas about wellness tools and action plans throughout the orientation to WRAP®.” For the flyer, which includes more information and a link to register, click here. (After registering, you will receive a confirmation email about how to join the meeting.)

New Jersey Mental Health Players Virtually Perform “Racism and Mental Health”

On March 18, April 29, and May 13, 2021, at 12:30 p.m. ET, the New Jersey Mental Health Players (NJMHPs) will present a free virtual performance on “Racism and Mental Health.” “People of color and all those whose lives have been marginalized by those in power…experience overt racism and bigotry far too often, which leads to a mental health burden that is deeper than what others may face,” the Mental Health Association in New Jersey writes. “The NJMHP program combines performance art and advocacy. Our virtual performance is 45 minutes and mimics the live show with a few new added features.” For more information and to register for one of the two dates, click here.

APA Creates App to Help People Develop a Psychiatric Advance Directive

The American Psychiatric Association recently announced the development of a mobile app to help people create a psychiatric advance directive (PAD) to guide their treatment in a mental health crisis. The APA writes: “Informational videos in the app—My Mental Health Crisis Plan—explain to users what PADs are and how they work. The app also includes state-specific requirements, such as signatures or witnesses, for completing the PAD.” For the APA press release, click here. For the National Resource Center on Psychiatric Advance Directives, click here. For the Temple University Collaborative on Community Inclusion’s guide to creating a psychiatric advance directive, comprising two documents, click here and click here.

Free NYAPRS Webinar: Connection Between Race and Solitary Confinement in NYS Prisons

On March 19, 2021, at 12 p.m. ET, NYAPRS will present a free 90-minute webinar on “The Connection Between Race and Solitary Confinement in New York State Prisons.” The presenters will give powerful personal testimony of experiences in the Box & why NYAPRS has joined them to fight to pass the Humane Alternatives to Long-Term (HALT) Solitary Confinement Act. To register, click here.

Free Webinar: “Trauma and Adversity in Mental Health Services”

On March 19 at 1:30 p.m. ET, Noel Hunter, the author of “Trauma and Madness in Mental Health Services,” will present a free, 90-minute webinar on “Trauma and Adversity in Mental Health Services: What it means to be trauma-informed in the age of medicalized managed care.” Hunter writes: “This presentation will explore what is meant when referring to ‘trauma,’ and ways in which various biases and conflicts may hinder implementation of a truly trauma-informed approach in clinical settings. An overview of the research as it pertains to rates of adversity in people diagnosed with mental illness; findings within the neurological and psychological research on the cognitive and neurocognitive effects of trauma, and the ways in which mental health professionals can practice more trauma-informed care will be provided.” For more information and to register, click here.

New Research Evaluates Feasibility and Effectiveness of Emotional CPR

A research study evaluating the feasibility and effectiveness of the National Empowerment Center’s peer-led training program, Emotional CPR (eCPR), has been published in the Journal of Participatory Medicine. The researchers write: “Findings indicate that it is feasible for people with a lived experience of a mental health condition to develop a program and train people to deliver eCPR with fidelity…Promising evidence indicates that eCPR, a peer-developed and peer-delivered program, may increase feelings of belonging while increasing supportive behaviors toward individuals with mental health problems and improving clinical outcomes related to positive and negative affect and feelings of loneliness.” For more information on eCPR, visit https://emotional-cpr.org. For the full article, click here.

“Gender Inclusive Peer Support Workshop” on March 23

On March 23 at 1 p.m. ET, Peer Support Space will present a 90-minute “Gender Inclusive Peer Support Workshop.” The goals of the workshop are “to learn skills and information to help create safer, affirming spaces for our trans, nonbinary, genderqueer, and nonconforming community members. We are asking peer support providers to prioritize this important education because it can be life saving for our LGBTQ+ community. Mental health space holders and other professionals are welcome too. To make the workshop accessible, we are providing it on a donation basis (of any amount). Fifty percent of the donations will go to the facilitator and 50 percent will go to Peer Support Space's resources supporting gender diverse communities.” Registrants will receive the zoom link. To register, click here. Questions or accessibility needs? Contact Dandelion@peersupportspace.org (Courtesy of Oryx Cohen)

“Empathetic Phone Call Program Reduces Loneliness, Depression & Anxiety In Older Adults: Study”

“A four-week, telephone-based, empathy-focused program delivered during the summer of 2020 reduced loneliness, depression, and anxiety in homebound, largely single, adults who require meals from a community-based provider,” according to a new study published in JAMA Psychiatry and reported by Forbes. Some 63 percent of the participants were 65 years old; nearly four out of five were women. More than half lived alone. “ ‘Empathy was functionally defined as prioritizing listening and eliciting conversation from the participant on topics of their choice,’ the researchers wrote.” It was unclear if the benefits would continue after four weeks. For the Forbes article, click here.

Free Webinar: “Workforce Development of Youth Peer Counselors”

On March 30, 2021, at 2 p.m. ET, Doors to Wellbeing will host a free webinar on “Workforce Development of Youth Peer Counselors.” “Join SPARK (Students Providing and Receiving Knowledge) for a webinar on how Washington State is encouraging youths (17- to 26-year-olds) to explore careers as Certified Peer Counselors. This program, started at New Horizons Alternative High School in Pasco, Washington, has partnered with Washington Health Care Authority to help build workforce development of youth peer counselors and provide access to the 40-hour Certified Peer Counselor (CPC) training after graduation.” For more information and to register, click here.

Peer Ink Magazine Seeks Submissions on Mental Health Awareness Month Theme

HUG ME Ink, a nonprofit organization whose mission is to advocate and educate on mental health awareness through the arts, is seeking original poems, stories, articles or artwork for upcoming issues of its quarterly peer-to-peer publication, Peer Ink. The theme of the May issue will be Mental Health Awareness Month; the submission deadline is March 31, 2021. To submit articles, stories, and poems, “send a Word document on any topic you feel would benefit peers…Send artwork (e.g., photography, drawings, etc.) as a JPEG or PNG file. Please include your name, age, city and state, and a short bio (photo optional) and send to hugmeink@gmail.com.” To read the December 2020 issue and for advertising rates, click here.

NYAPRS Announces 17th Annual Executive Seminar: April 20, 22, and 28

NYAPRS has announced that its 17th Annual Executive Seminar will be held virtually on April 22, 22, and 28, 2021. “During these multi-faceted challenging times, the Executive Seminar will provide topics addressing each challenge and how organizations can move forward and take charge of their future,” NYAPRS writes. “Topics will include ‘No More Conference Rooms: How to Run an Agency with Reduced Physical Offices’; ‘Organizational COVID-19 Response: Health Equity in Action’; ‘Taking Charge to Recharge Our Workforce’; ‘Engagement, Connection and Communication in a Virtual Workplace’; and many more!” For more information and to register, click here.

Netflix and Zoom Move Toward Inclusion of People with Disabilities

Netflix will invest $100 million over the next five years “in organizations that help bring underrepresented communities into the television and film industries and in programs to train and hire new talent at the company,” Disability Scoop reports. This commitment follows a study, by a researcher at the University of Southern California’s Annenberg School for Communication and Journalism, which found that characters with disabilities accounted for just 5.3% of leads and 4.7% of the main cast in films and series on Netflix.” “When all speaking characters were factored, only 2.1% had disabilities. This is far short of reflecting the 27.2% of the population who have disabilities, the report noted.” For the Netflix article, click here. At the same time, Zoom has announced that, by autumn of 2021, it will add automatic closed captioning to its free accounts. For the Zoom article, click here.

“New Instrument Developed to Assess Workplace Depression”

The new Occupational Depression Inventory (ODI) is a nine-item questionnaire assessing work-related depression, Psychiatric News reports. “The ODI assesses the nine DSM-5 criteria for major depression, including cognitive impairment, psychomotor alterations, and suicidal ideation. Consistent with DSM-5 diagnostic criteria for major depression, ODI respondents are asked to report on symptoms experienced over the past two weeks, but symptoms are specifically framed with such phrases as ‘because of my job’ or ‘at work,’ ” the article notes. The 2,200 people in the test sample—in France, New Zealand, and the U.S.—were primarily schoolteachers. “This may limit the generalizability, but teachers are a good reference since their work experiences fall on a broad spectrum from literally hostile to exceptionally life fulfilling,” one of the ODI developers said. For the article, click here.

“30 Wholesome Comics About Mental Health And Everyday Life By ‘Haley Drew This’ ”

Haley Weaver’s “comics surrounding issues like mental health, relationships, and selfhood encompass so many aspects of the human experience, you could just say they are about life,” according to boredpanda.com. “Yes, that might sound a little abstract, but Haley's work is multi-dimensional and can't be described with one adjective. So a broad noun will have to do.” For the comics, click here.

“Human Rights Protections for Children in the U.S. Justice System—2020 National State Ratings Report”

Human Rights for Kids, a bipartisan advocacy organization founded in 2017, has created “the first ever national review and rating of how well or how poorly states are doing at protecting the human rights of children in the justice system.” They write: “Our findings reveal that the overwhelming majority of the nation—42 states—have made minimal to no efforts to create a legal framework to protect the human rights of children in the justice system. The worst offenders include Alabama, Georgia, Maryland, Mississippi, Tennessee, and Wyoming.” The best states at protecting the human rights of kids are California, North Dakota, and Arkansas, according to the report. To read the article, which includes a link to the report, click here. (Note: Scroll down for the monthly digest about the criminal justice system, in which many individuals with mental health conditions are incarcerated.)

The March 2021 Digest of Articles Offering Healthy Lifestyle Advice, Including Ways to Cope During the Pandemic

For “The Pandemic Brought Depression and Anxiety. Reaching Out Helped: Connecting with others on social media has helped ease the fear and loneliness of pandemic living,” click here. For “Imlonely: How a YouTube music channel became a mental health hub,” click here. For “A Counterintuitive Way to Cheer Up When You’re Down: When you most need to get happier, try giving happiness away,” click here. For “Mediterranean Diet Could Keep Aging Brains Sharp,” click here. (The following three articles are courtesy of Doug Briscoe of www.mentallyfit.info): For “10 Ways to Deal with Feelings of Isolation as a Home-based Employee,” click here. For “From Fired to Hired: How to Deal with Sudden Job Loss,” click here. For “5 breathing exercises for anxiety: try these breathing techniques to calm your mind. These breathing exercises help relieve anxiety by bringing awareness and control to your breath,” click here.

The March 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “The Problems With Public Defense Are Big, But They’re Fixable: A growing number of public defenders are refusing to submit to a brutal and soul-crushing system,” click here. For “In the first six months of health care professionals replacing police officers, no one they encountered was arrested. DPD Chief Pazen, who is fond of the STAR program, says it frees up officers to do their jobs: fight crime, click here. For “A State-by-State Look at Coronavirus in Prisons: The Marshall Project is collecting data on COVID-19 infections in state and federal prisons. See how the virus has affected correctional facilities where you live,” click here. For “U.S Marshals Act Like Local Police with More Violence and Less Accountability: The federal agency’s teams have killed an average of 22 suspects and bystanders a year,” click here. For “Mental health crisis feared in Colorado jails and prisons due to COVID-19 lockdowns: Coronavirus outbreaks at correctional and detention facilities account for 1 in every 24 cases in the state,” click here. For “Colorado jail deputies failed to check on inmate after he made suicidal comments. They didn’t find his body for 8 hours. The mother of 27-year-old Jackson Maes is suing the Saguache County Sheriff’s Office,” click here. For “To truly reform criminal justice, women need more access to diversion programs | Opinion,” click here. For “As California preps to ‘transform’ its youth prisons, can counties take up the slack?” click here. For “Policing by the Numbers,” click here. For “What 120 Executions Tell Us About Criminal Justice in America: The Marshall Project tracked every execution in America for more than five years. For condemned people, the path to death grew longer, more winding and erratic,” click here. For “The Carceral Force of Prosecutor Associations, Explained,” click here. For “Victoria Law’s ‘Prisons Make Us Safer’ Looks At Resistance Behind Bars: This new book dismantles myths about mass incarceration,” click here. For “The Government Has Not Explained How These 13 People Were Selected to Die: The federal death penalty cannot be fixed. It’s time to end it,” click here. For “Man with mental illness disappeared hours after release from Cuyahoga County Jail, family accuses jail of switching meds,” click here. For “Civil Forfeiture Does Not Seem To Reduce Drug Use or Help Fight Crime: A new study provides further evidence that property seizures are driven by financial motives rather than public safety concerns,” click here. For “Reforming Juvenile System For Girls Requires Stories, Three Experts Say,” click here. For “Death Penalty Information Center Adds 11 People to Innocence List: New Analysis of Death Row Exonerations Shows that Official Misconduct Was More Likely in Cases with Innocent Black and Latinx Defendants,” click here. For “Should Public Defenders Be Tweeting? Once in the shadows, public defenders have found their voice on Twitter. But criminal justice reform advocates and formerly incarcerated people question whether they’re the ones to tell these stories,” click here. For “What Biden’s Win Means for the Future of Criminal Justice: Joe Biden ran on the most progressive criminal justice platform of any major party candidate in generations. So what can he actually do?” click here. For “Rigging the jury: How each state reduces jury diversity by excluding people with criminal records,” click here. For “Opinion: Study finds cognitive bias in how medical examiners evaluate child deaths,” click here. For “No charges against officers involved in Daniel Prude’s death,” click here. For “Navy veteran in mental health crisis died after police knelt on his neck for nearly five minutes, his family says,” click here. For “Lawyers who were ineligible to handle serious criminal charges were given thousands of these cases anyway: In the only state with no public defenders, people charged with murder and other serious crimes can get assigned attorneys who are legally ineligible to take on their cases. The state claims it was unaware,” click here. For “The nation’s oldest juvenile lifer, Joe Ligon, left a Pa. prison after 68 years. He won release through a legal maneuver that has given hope to hundreds of other juvenile lifers all serving lifetime parole,” click here. For “Prosecutors Must Add Sentencing Review Units to Their Offices,” click here. For “People’s Paper Co-op is Freeing Incarcerated Women, Helping Them Re-enter Society,” click here. For “In Pursuit Of Healing: Restorative Justice Program In Barron County Fosters Forgiveness,” click here. For “We Asked People Behind Bars How They Feel About Getting Vaccinated: A Marshall Project survey of the incarcerated showed widespread interest in the coronavirus vaccine as well as pervasive distrust of the prison medical system,” click here. For “The ‘Hidden Punishment’ of Prison Food: In Maine, inmates are growing vegetables and making meals from scratch to replace the deadly diets they have long been served,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. Comparatively, the US is doing well on vaccinations, as of this writing ranking fourth in the world, behind only Israel and the U.K. To track the vaccinations in the U.S., by state, and worldwide, click here.

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

U Penn Researcher Invites Participants for a Study of Inpatient Psychiatric Treatment

“The purpose of this study is to gain a better understanding of former patients’ experiences with inpatient psychiatric care…as well as how these experiences may impact outcomes,” writes Principal Investigator Morgan Shields, Ph.D., of the University of Pennsylvania. “Findings from this study will provide important data for developing future research on this topic. Moreover, the hope is that results from this study will inform programs and policies to improve the quality of care in these settings…The survey is open to anyone who has had a psychiatric hospitalization within the past five years, is 18+ in age, and is in the U.S.” Participants who complete a 20-minute questionnaire can enter a lottery for one of 10 $20 gift cards. For details and questions and/or to participate, click here

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

Applications Open for 2021-22 Rosalynn Carter Fellowships for Mental Health Journalism; and Schneider Disability Reporting Competition Announces Winners

Applications for journalists who are U.S. citizens and residents are now being accepted for the Rosalynn Carter Fellowships for Mental Health Journalism. “The yearlong, non-residential fellowships aim to equip journalists with resources to produce compelling and balanced reporting on mental health and substance use, and to develop a diverse cohort of journalists who can effectively report on the topics across evolving and emerging platforms,” according to the announcement. The application deadline is April 7, 2021. Said former U.S. First Lady Rosalynn Carter, “[People with lived experience of a mental health condition] are valuable members of society, and their stories deserve to be told.” For more information and to apply, click here. In a related story, “ProPublica Illinois, the Chicago Tribune, and the Argus Leader win top prizes in the 2020 Schneider Disability Reporting Competition.” For details and links to the winning stories, click here.

Study of “Experiences in Accessing Mental Health Treatment” Seeks Parent/Guardian Participants  

Two outpatient therapists at Children’s Friend Inc. have launched an anonymous survey of the experiences of families accessing mental health treatment for their children. “The purpose of this research is to explore the experiences in, and barriers to, accessing mental health services for parents who are caring for children with mental health conditions, medical conditions, and/or rare disease. We intend to compare three groups: caregivers of children with one or more mental health conditions, caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare disease.” To be eligible, “you are a parent or guardian of a child under the age of 18, with a mental health condition, a medical condition, and/or a rare disease, and the child lives in your home.” For more information and/or to participate, click here. Questions? Email Kim Hager, LICSW: khager@childrensfriend.org  

Here's Your Chance to Help Transform Mental Health Services Research in the U.S.!

If you’ve ever served on an advisory board for a research or evaluation project, provided even limited consultation, or partnered as a peer-run organization in such research, you’re eligible to participate in a national survey aimed at better understanding researchers’ and stakeholders’ experiences of participatory research! The anonymous, 10-20 minute survey includes both closed- and open-ended questions about your experiences with such research, perspectives on barriers, and potential targets for policy change and resource development. Findings will be used to inform future projects focused on building stakeholder research capacity and strengthening participatory research in the U.S. All participants will receive a $20 Amazon gift card. This new study is connected to “Building Capacity for Stakeholder Involvement and Leadership in Mental Health Services Research,” included in the August 2020 Key Update, which involved detailed interviews. Principal Investigator Dr. Nev Jones (genevra@usf.edu) writes, “We are still doing interviews ($50 per interview) so feel free to contact me about that too.” The survey IRB ID# is 001319; the project including this survey was developed with the PCORI-funded PathED Collaborative, co-led by Drs. Nev Jones (genevra@usf.edu) and Linda Callejas (callejas@usf.edu). For more information and/or to participate, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

A Service-User-Led Survey of “Experiences of the Intersections of Psychosis, Difficult Events, and Trauma” Seeks Participants with Firsthand Experience

A study developed by researchers at the University of South Florida “aims to better understand the relationships between prior experiences of trauma or adversity and experiences such as hearing voices, unusual beliefs and paranoia, as well as the ways in which these experiences themselves can contribute to trauma or distress.” The researchers, who themselves have lived experience, are seeking respondents “who self-identify as having current or prior experiences that would conventionally be labeled psychosis.” The anonymous survey takes approximately 15 minutes to complete; every 10th respondent will be compensated with a $50 gift card, up to five gift cards. Questions? Contact Dr. Nev Jones at genevra@usf.edu. For more information and/or to participate, click here.

“Mapping the Disability Experience: Share Your Stories”

“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.” Submissions will be accepted through June 30, 2020. For more information or to participate, click here. Questions? Contact Yochai Eisenberg, PhD, yeisen2@uic.edu (Courtesy of Elizabeth R. Stone)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Is Launched to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, Ph.D., and Emily Cutler, a doctoral candidate, have launched a listserv dedicated to building research capacity, leadership, and involvement among peers, survivors, and service users.  Dr. Jones, assistant professor, Department of Mental Health Law & Policy, University of South Florida, was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Do You Supervise Peer Support Workers? Then Researchers Have Some Questions for You

Researchers in the University of South Florida’s Department of Psychiatry and at Magellan Health are investigating the backgrounds, training, and experiences of individuals who currently supervise at least one peer support worker in a behavioral health setting or agency. “To the best of our knowledge, this will be the first comprehensive research study of the landscape of peer support supervision practices in the United States,” writes Dr. Nev Jones, the primary investigator of the study (Protocol Number 00040223). Participants must be at least 18 years old and work in the United States or U.S. territories. An online survey lasting approximately 10 minutes will ask about respondents’ backgrounds, training and preparation for supervision, perspectives and practices, and views on barriers and facilitators to high-quality supervision. There is no monetary compensation. Questions? Contact Dr. Nev Jones (genevra@health.usf.edu) or the co-primary investigator, Dana Foglesong (dfoglesong@magellanhealth.com). To access the survey, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 17, No. 9, March 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

Key Update, February 2021, Volume 17, Number 8

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

 The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

APA Apologizes to Black, Indigenous, and People of Color (BIPOC) for the Harm It Has Caused—and Continues to Cause—Them.

On January 18, 2021, the American Psychiatric Association (APA) admitted that, “[s]ince the APA’s inception, practitioners have at times subjected persons of African descent and Indigenous people who suffered from mental illness to abusive treatment, experimentation, victimization in the name of ‘scientific evidence,’ along with racialized theories that attempted to confirm their deficit status. Similar race-based discrepancies in care also exist in medical practice today as evidenced by the variations in schizophrenia diagnosis between white and BIPOC patients, for instance. These appalling past actions, as well as their harmful effects, are ingrained in the structure of psychiatric practice and continue to harm BIPOC…” The APA wrote that it is “committed to identifying, understanding, and rectifying our past injustices, as well as developing anti-racist policies that promote equity in mental health for all.” To read the APA press release, click here. (Courtesy of Oryx Cohen)

Disability Rights Advocates Make Recommendations to HHS Secretary-Designate Becerra

“Several weeks ago, a coalition of primarily national advocacy groups for Americans with disabilities met with Xavier Bercerra, President Biden’s nominee to serve as the nation’s next Secretary of Health and Human Services,” NYAPRS writes. “We all emphasized the need to take all efforts to  protect the lives of people in institutional and congregate settings and to transition people out of these settings, as well as to bolster, not undermine, the Affordable Care Act. NYAPRS joined with the Bazelon Center for Mental Health Law in urging Secretary-Designate Bercerra to reverse policies of the past Administration...At the same time, we urged him to step up hospital, prison and jail diversion and re-entry initiatives, including expanding the use of mental health rather than police first responders, to resume previous policies to advance strong enforcement of Olmstead ‘most integrated setting’ requirements, and to address widespread racism in mental health and criminal justice systems across the nation.” For details of their demands, click here. And for “COVID‐19 makes clear why deinstitutionalization is essential,” by NYAPRS executive director Harvey Rosenthal, published in Mental Health Weekly, click here.

TU Collaborative to Host a Virtual Story Slam on February 11, 2021, at 4 p.m. ET

The Temple University Collaborative on Community Inclusion invites you to its “virtual StorySlam, on February 11, 2021, at 4 p.m. ET! Our topic this time around is ‘Love is Love.’ There are so many different kinds of love to celebrate! Whether you have a story about a dear friend, a romantic partner, a family member, or even a pet, we would love for you to join us! Stories should be true to your life and experiences! We ask that stories do not exceed 5 minutes in length.” Questions? Kyra.baker@temple.edu. To register, click here.

Everything You Always Wanted to Know About Covid-19 Vaccinations But Were Afraid to Ask; and See How the U.S. Is Doing Compared to the Rest of the World  

On January 27, 2021, The New York Times published “Answers to All Your Questions about Getting Vaccinated for Covid-19.” Among the important facts: “You shouldn’t try to stave off discomfort [by taking painkillers] before getting the [Covid-19] shot”; side effects after the second shot are worse than after the first shot; there is no risk of developing Covid-19 from the Pfizer or Moderna vaccines; and “Both the Pfizer and Moderna vaccines reach about 50 percent efficacy 10 to 14 days after the first shot. You’ll get peak protection…about a week after you get the second dose.” To read the interactive article, click here. Please note that some sources advise not even taking painkillers—with the possible exception of Tylenol—after receiving the vaccination because they might interfere with your immune response (click here). One rare side effect the Times doesn’t mention is a “Covid arm” rash several days after the Moderna vaccine. For a USA Today story about it, click here. Comparatively, the U.S. is doing well on vaccinations, as of this writing ranking fifth in the world in regard to daily doses administered per 100 people. To track the vaccinations in the U.S., by state, and worldwide, click here.

Rand Corp. Recommends Ways to Transform Mental Health Care in the U.S.

The Rand Corporation recently published an eight-page research brief on “Transforming Mental Health Care in the United States.” Rand writes: “The U.S. mental health system has reached a moment when a historic transformation to address persistent problems appears realistic. These problems include high levels of unmet need for care, underdevelopment of community-based supports that can help avoid unnecessary emergency care or police engagement, and disparities in access and quality of services.” The paper offers “Goals for a Mental Health System Centered on the Patient Journey” followed by “15 strategies for transforming mental health care in the United States into a patient-centered system.” To read the research brief, click here.

U Penn Researcher Invites Participants for a Study of Inpatient Psychiatric Treatment

“The purpose of this study is to gain a better understanding of former patients’ experiences with inpatient psychiatric care…as well as how these experiences may impact outcomes,” writes Principal Investigator Morgan Shields, Ph.D., of the University of Pennsylvania. “Findings from this study will provide important data for developing future research on this topic. Moreover, the hope is that results from this study will inform programs and policies to improve the quality of care in these settings…The survey is open to anyone who has had a psychiatric hospitalization within the past five years, is 18+ in age, and is in the U.S.” Participants who complete a 20-minute questionnaire can enter a lottery for one of 10 $20 gift cards. For details and questions and/or to participate, click here

Disability Rights California Invites You to Its Past, Present, and Future (Free) Webinars

Disability Rights California (DRC) writes: “You are cordially invited to join us in our virtual disability rights trainings. Our webinars are twice a week, on Tuesdays at 2 p.m. ET (11 a.m. PT) in English and Thursdays at 7 p.m. ET (4 p.m. PT) in Spanish. Our free trainings provide information and resources on different topics related to mental health, self-advocacy, our legal rights (based on California law) and access to services that are informative and empowering. We welcome all peers (people with lived experience), service providers, family members and people in the community.” To view the webinars, click here.

Regional Peer Worker Support Circle to Meet Every Other Week

The Regional Peer Worker Support Circle (RPWSC) is “a safe and welcoming virtual forum for mutual support, story sharing, discussion, and networking that unites peers from different professional and personal backgrounds.” Meetings will focus on a variety of topics, such as compassion fatigue, role clarity, systemic racism, self-care, and doing peer work amidst the pandemic. Although priority will be given to peer workers in the Northeast and Caribbean region (i.e., New Jersey, New York, Puerto Rico, and the US Virgin Islands), it is not limited to individuals within the region. The first hour-long session, on Zoom, will begin on Friday, February 12, 2021, at 4 p.m. ET, and continue every other Friday at 4 p.m. ET through the end of August 2021: February 12 & 26, March 12 & 26, April 9 & 23, May 7 & 21, June 4 & 18, July 2, 16 & 30, August 6 & 20. For details and to sign up, click here. Registrants will receive a Zoom meeting link as the date approaches. (Courtesy of Jacek Haciak)

Free Webinar: “Talking about Tobacco” on February 18, 2021

On February 18, 2021, from 3 p.m. to 4:30 p.m. ET, you are invited to participate in “a new conversation about tobacco use and peer support.” The organizers write, “The webinar will include personal stories by the presenters related to their own tobacco use, common misconceptions about tobacco and nicotine, the continuum of use (quitting is not a realistic goal for everyone and reduction in use can be beneficial for almost anyone), effective methods for regaining control over tobacco use, and the ways in which peer support can offer a non-judgmental space for talking about and exploring changes related to tobacco use. We also describe how people with mental health conditions, people of color, and people in other marginalized communities have been targeted by the billions of dollars the tobacco industry spends on advertising each year and ways in which these groups have routinely been subjected to oppressive and coercive treatment related to tobacco use.” For the flyer, including a link to register, click here.


(Free!) Double Feature: Healing Voices & Medicating Normal Followed by Discussion

On February 20 at 1 p.m. ET, “Join the creators of Healing Voices for a virtual community screening of Medicating Normal, a 76-minute documentary film exploring our current mental health care system's reliance on psychiatric drugs to deal with trauma, grief, and distress. There will be an interactive community discussion immediately after the film focused on using film and community organizing as a means of activism, especially in the wake of a global pandemic…In addition to this live event, you will be sent a FREE link to the film Healing Voices to watch BEFORE attending the screening of Medicating Normal.” For more information and free tickets, click here. And for “Will antidepressant medications ever require informed consent? That question is at the heart of the new documentary Medicating Normal,” click here.

Free Webinar: “Healing from Past and Current Trauma,” February 22

On February 22, 2021, from 6 p.m. to 7:30 p.m. ET, SRQ Strong will present a free webinar on “Healing from Past and Current Trauma.” “Unemployment, poverty, lack of access to basic health services, years of neglect, and racism—all have a negative impact on health and well-being. Our communities are suffering from cumulative trauma, compounded by the pandemic. Dr. Lisa Merritt from the Multicultural Health Institute, SRQ Strong’s Helen Neal-Ali, and Charlene Johnson of Newtown and Erianna Sanders of Bradenton will discuss the current crisis in the community and share strategies for empowering residents to heal from past and current traumas.” For more information and to register, click here. (Courtesy of Deb Trueheart)

Vibrant Emotional Health Seeks Peer Supporters to Work Part-time (Remotely) for Pilot Program

Vibrant Emotional Health—formerly the Mental Health Association of New York City—is seeking peer supporters with a health care background for the national Disaster Distress Helpline’s new Healthcare Peer Support Communities pilot program. (Peer supporters whose background is only in mental health are not eligible.) Peer supporters will work within a Facebook group dedicated to health care workers impacted by Covid-19. “The peer supporter will engage peers in meaningful discussion on relevant topics and provide timely and trusted resources. Peer supporters will receive free trainings in evidence-informed models of peer support and disaster emotional care, in order to utilize foundational principles and best practices. Peer supporters will also work closely with a designated DDH crisis center to connect peers to a trained crisis counselor when a member is, or appears to be, in emotional distress”—e.g., experiencing suicidal thoughts—“for follow-up care and support.” The position involves 28 (flexible) hours per month at $18/hour. For more about the position, click here and then scroll down to Disaster Distress Helpline and click on “Healthcare Peer Supporters (Per-Diem).”

“It Wasn’t the First Time the NYPD Killed Someone in Crisis. For Kawaski Trawick, It Only Took 112 Seconds.” And, in Louisiana, a Sheriff’s Deputy Dies By Suicide After Calling Out Police Brutality and Demanding a Revolution in Law Enforcement

ProPublica recently reported on the tragic death of Kawaski Trawick, a 32-year-old Black man who was “a personal trainer and aspiring dancer who had struggled with addiction and other mental health issues.” “[S]ince the NYPD started its current de-escalation training five years ago, at least 16 people who were experiencing a mental health crisis, including Trawick, have been killed by the police...Fourteen have been people of color,” reported ProPublica. “Trawick was alone in his apartment when an officer pushed open the door. He was holding a bread knife and a stick. ‘Why are you in my home?’ he asked. He never got an answer.” For the article, click here. For “ ‘Constant breaking of your heart’: How Utah police respond to mental health crises,” click here. For “Family called police to help a mentally ill teen—cops shot him to death after he surrenders,” click here. And for “In videos posted before his death, Lafayette sheriff's deputy called for police reform,” click here. (For more about the criminal justice system, scroll down for the monthly criminal justice digest.)

“State of Mental Health” Survey “Takes the Pulse of Millennials & Gen Zers”

Project Healthy Minds released its “State of Mental Health Survey: Taking the Pulse of Millennials and Gen Zers in America,” a national survey of more than a thousand 18- to 34-year-olds. Nearly all (96 percent) of the respondents report experiencing anxiety, with almost half (48 percent) saying they are anxious frequently or all the time. Forty percent cited work/financial security as the primary sources of anxiety. Two out of three consider mental health when evaluating jobs and employers, but the majority of young adults have never seen a therapist, with 32 percent saying it’s too expensive, and 21 percent concerned about prejudice and discrimination or afraid to talk to someone. Project Healthy Minds—whose advisers include former deputy attorney general Sally Yates, distinguished mental health researcher Dr. Bernice Pescosolido, and Dr. Thomas Insel, former director of the National Institute of Mental Health—notes that the Covid-19 pandemic “continues to raise fears about the future.” For more about the survey, click here. And for “Will the Pandemic Result in More Suicides? It’s too soon to know. But some recent data, especially from specific groups, is cause for worry,” click here.

Doors to Wellbeing to Host Free Webinar on “Gender Inclusive Facilitation Skills for Peer Specialists”

On February 23, 2021, at 2 p.m. ET, Doors to Wellbeing will present a free webinar on “Gender Inclusive Facilitation Skills for Peer Specialists.” “Creating a safe learning environment for support groups and educational workshops is an important job for peer specialists,” Doors to Wellbeing writes. Learning objectives include “to identify at least three ways to navigate the use of gender-neutral pronouns, to design inclusive personal and group introductions, and to list at least three tools to prepare for greater gender diversity with attendees and create a toolbox of gender-neutral language.” To register, click here.

Free Webinar on “Growing Through: Peer Support for Life’s Most Difficult Moments,” March 2

On March 2, 2021, at 1 p.m. ET, you are invited to participate in a 90-minute webinar on peer-based crisis support. The organizers write: “How can peer supporters bring their best and integrate their values at times of crisis and intensity? Join us for a conversation on ‘Peer Support for Life’s Most Difficult Moments’ and the Growing Through advanced peer specialist training program. Growing Through is a strengths-based approach to support skills based in the growth/recovery model of mental health, humanistic psychology, peer coaching, and trauma-informed care. Using mindfulness, non-clinical language, and best practices for suicide prevention, along with the expertise of those ‘who have been there,’ Growing Through trainings give people the skills and confidence to support others in times of intensity or distress, including effectively sharing one’s own journey.” To register, click here.

“Becoming More Comfortable with Ridicule, Rejection and the Disdain of Others” Is Good for Our Mental Health

“We should step off the path of conformity–as to conform means to seek social validation through the ideal of external success–and we should re-orient our life so as to bring more order, harmony, and strength to our psyche.” This was the advice of Academy of Ideas in “Why Caring What Others Think Breeds Mental Illness.” The author quotes ancient and medieval philosophers such as Epictetus, who wrote, “Put up with being laughed at on occasion…”; and Montaigne, who wrote, “Whatever it be…that has inscribed in us this condition of living by reference to others, it does us much more harm than good.” To overcome an obsession with worrying about the opinions of other people, Cato and Diogenes purposely behaved in ways that were likely to trigger their disapproval. The article notes: “[T]he world does not end when someone shames us, and no harm really comes to us when others disapprove of our ways so long as we are comfortable with the actions we take.” For more, click here. (Courtesy of Kevin Fitts)

Acceptance and Commitment Therapy (ACT) May Help with Anxiety and Other Mental Health Issues

In a New York Times opinion piece posted on March 12, 2020—right before Covid-19 changed everyone’s world—the author wrote about Acceptance and Commitment Therapy (ACT), which had helped her deal with her anxiety. ACT helps people “recognize how they often overreact to unpleasant feelings, to see their unpleasant feelings as just feelings—not reality—and to accept that parts of life are hard and that that’s OK…[It] doesn’t suggest that we need to change the thoughts that bubble up and cause us pain. Instead, it says, negative feelings are an inevitable part of life, and we can best deal with them by accepting them, learning from them, and then acting in accordance with our larger life goals.” For the New York Times article, click here. For the abstract of a study published in the journal Psychosis—“My voices are just part of me, they don’t own me”: a qualitative investigation of Acceptance and Commitment Therapy groups for people experiencing psychosis,” click here. For more about ACT in Psychology Today, click here.

Applications Open for 2021-22 Rosalynn Carter Fellowships for Mental Health Journalism; and Schneider Disability Reporting Competition Announces Winners

Applications for journalists who are U.S. citizens and residents are now being accepted for the Rosalynn Carter Fellowships for Mental Health Journalism. “The yearlong, non-residential fellowships aim to equip journalists with resources to produce compelling and balanced reporting on mental health and substance use, and to develop a diverse cohort of journalists who can effectively report on the topics across evolving and emerging platforms,” according to the announcement. The application deadline is April 7, 2021. Said former U.S. First Lady Rosalynn Carter, “[People with lived experience of a mental health condition] are valuable members of society, and their stories deserve to be told.” For more information and to apply, click here. In a related story, “ProPublica Illinois, the Chicago Tribune, and the Argus Leader win top prizes in the 2020 Schneider Disability Reporting Competition.” For details and for links to the winning stories, click here.

New Study Measures “The Paradox of Self-Stigma.” Also, “What Is Self-Stigma and Why Does It Hurt?” Suggests Ways to Combat It.

The aim of a study recently published in Annals of General Psychiatry was “to develop and validate a brief tool to measure stereotype endorsement, righteous anger, and non-disclosure across different groups of stigmatized persons...” Using focus groups with mental health professionals and people with lived experience, the researchers ended up with “a short but psychometrically rigorous tool designed to measure self-stigma and related constructs in French language, developed in collaboration with users.” They call it “a first step towards implementing and evaluating programs aimed at reducing negative consequences of self-stigma.” For the open-access study, click here. (Courtesy of Elizabeth R. Stone) And for “What Is Self-Stigma and Why Does It Hurt?,” which includes information about how to combat self-stigma, click here. But “stigma” that is not “self-stigma” should be called by another name: See “Let’s Call Mental Health Stigma What It Really Is: Discrimination” (click here).

“ ‘Peer Respites’ Provide an Alternative to Psychiatric Wards During Pandemic”

A recent Kaiser Health News (KHN) article reported on the benefits of peer-run crisis respites “as the nation grapples with a severe shortage of psychiatric beds that has been exacerbated by the pandemic.” However, even before the pandemic, studies showed the benefits of peer-run crisis respites. For example, research published in Psychiatric Services found that “guests had fewer hospitalizations and accounted for lower Medicaid spending for nearly a year after a respite stay than people with similar conditions who did not stay in a respite.” And another study, of Second Story, the peer respite covered by KHN, found that visitors spent less time in the hospital and emergency room the longer they stayed in the respite.” A third study, by DePaul University School of Nursing researchers, found that “persons in a mental health crisis may be better served in an alternative recovery-oriented, homelike environment instead of a traditional emergency department” (click here). For the KHN article, click here. For more about peer respites, including “Resources for Starting a Peer-run Crisis Alternative in Your Area,” and a “Directory of Peer Respites,” and links to more studies, click here.

Six Comics That Explore Living with a Mental Health Condition

There are a lot of comics that explore mental health conditions, but here are six graphic novels and memoirs that describe how it feels to live with one. Most are at least partly autobiographical. For more, click here.

The February 2021 Digest of Articles Offering Healthy Lifestyle Advice

For “To Create a Healthy Habit, Find an Accountability Buddy: Whether it’s a person or an app that sends us reminders, we make better choices when we’re being watched (even by ourselves),” click here. For “Just Move: Scientist Author Debunks Myths About Exercise And Sleep,” click here. For “Street Trees Close to the Home May Reduce the Risk of Depression: Researchers show positive effect of urban nature on mental health,” click here. For “Is It Really Too Late to Learn New Skills? You missed your chance to be a prodigy, but there’s still growth left for grownups,” click here. For “Therapists Are on TikTok. And How Does That Make You Feel? Mental health professionals are going viral on the app, captivating an anxious generation,” click here.

The February 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest; it includes many opportunities to participate in exciting research!)

For “He's Too Mentally Ill to Execute. Why Is He Still on Death Row After 45 Years? Raymond Riles has been on death row longer than anyone in America. He's one of many who have languished there for decades with severe mental illnesses,” click here. For “Alpena criminal justice system struggles with lack of resources for those with mental illness,” click here. For “Second chances stalled: Advocates wait for pardons on Gov’s desk to be signed. ‘[Pardon recommendations] could sit on his desk for two years. He has no accountability to do it or he has nobody pushing him,’ Rev. Michelle Simmons tells Generocity contributor Brandon Dorfman in this deep dive into PA's pardons logjam,” click here. For “Jailed juveniles find a collective voice through a collaborative play,” click here. For “Oregon Program Gets Renewed National Attention as a Policing Alternative,” click here. For “Albuquerque’s vision for non-police first responders comes down to earth,” click here. For “Local Spending on Jails Tops $25 Billion in Latest Nationwide Data: Costs increased despite falling crime and fewer people being admitted to jail,” click here. For “AG Becerra, LA County Enter into Groundbreaking Settlements to Protect the Rights of Youth in the Juvenile Justice System,” click here. For “California to phase out Division of Juvenile Justice, creating an opportunity for substantial reform,” click here. For “Trump’s criminal justice commission produced some helpful results. Biden should build on them, click here. For “THE NYPD FILES: Still Can’t Breathe: How NYPD officers continue to use chokeholds—which can be deadly and are explicitly prohibited by the department—on civilians, while officers with substantiated claims of abuse go without any meaningful punishment,” click here. For “New report: Austin police training videos reinforce racial stereotypes, bias,” click here. For “Maurice Chammah: The Rise and Fall of the Death Penalty: The author of Let the Lord Sort Them talks about violence, redemption, and culpability in a broken system,” click here. For “One of Joe Biden's first steps should be to fix Donald Trump's broken criminal justice reform. After the photo ops ended, the former president's vaunted First Step Act was barely implemented. The new administration must change that,” click here. For “Virginia moves toward banning capital punishment, in a shift for prolific death penalty state,” click here. For “Biden Moves to End Federal Private Prisons as Part of Racial Equity Plan,” click here. For “How Do You Deradicalize a Cop? As law enforcement agencies search their ranks for extremists, deeper questions have emerged about the racist, conspiratorial thinking embedded in those institutions,” click here. For “Trump’s Pardons Show The Process Has Always Been Broken: Donald Trump’s volatile approach to granting clemency epitomizes a system that many have long hoped to change,” click here. For “When should boys who go to prison get a second chance? | Commentary,” click here. For “Vera Institute reports on ‘People in Jail and Prison in 2020’ and finds US total now well below two million,” click here. For “Police officials should ban chokeholds on suspects, limit or ban ‘no-knock raids,’ and protect cops who report misconduct, concludes a new report from a national, bipartisan task force on policing,” click here. For “I Did 340 Pushups a Day to Prepare for the TV Version of Prison. Then I Got There. After a steady diet of shows like ‘Oz,’ I was convinced that prison would be a paradise for monsters. Turns out, the abuse I experienced came directly from the system,” click here. For “Nearly 20 Million Americans Have a Felony Record. What Happens After They’ve Served Their Time?” click here. For “ 'You just want to...have a chance': Ex-offenders struggle to find jobs amid COVID-19,” click here. For “ ‘It always escalated to the chair’: Allegheny County Jail used the restraint chair more than any other county jail in PA. Experts say the device is safe if used correctly, but some former jail staff and incarcerated people are concerned it’s used punitively and without enough oversight,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here.

Study of “Experiences in Accessing Mental Health Treatment” Seeks Parent/Guardian Participants  

Two outpatient therapists at Children’s Friend Inc. have launched an anonymous survey of the experiences of families accessing mental health treatment for their children. “The purpose of this research is to explore the experiences in, and barriers to, accessing mental health services for parents who are caring for children with mental health conditions, medical conditions, and/or rare disease. We intend to compare three groups: caregivers of children with one or more mental health conditions, caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare disease.” To be eligible, “you are a parent or guardian of a child under the age of 18, with a mental health condition, a medical condition, and/or a rare disease, and the child lives in your home.” For more information and/or to participate, click here. Questions? Email Kim Hager, LICSW: khager@childrensfriend.org  

2021 (Virtual) Global Mental Health Research Without Borders Conference to Be Held April 5-7, 2021

“The National Institute of Mental Health and Grand Challenges Canada are sponsoring the 11th Global Mental Health Research Conference on April 5-7, 2021, which will bring together researchers, innovators, and other stakeholders from around the globe. The [virtual] conference will showcase findings from cutting-edge science and explore new opportunities for groundbreaking research. Stay tuned for details!” (Courtesy of Janet Paleo)

Here's Your Chance to Help Transform Mental Health Services Research in the U.S.!

If you’ve ever served on an advisory board for a research or evaluation project, provided even limited consultation, or partnered as a peer-run organization in such research, you’re eligible to participate in a national survey aimed at better understanding researchers’ and stakeholders’ experiences of participatory research! The anonymous, 10-20 minute survey includes both closed- and open-ended questions about your experiences with such research, perspectives on barriers, and potential targets for policy change and resource development. Findings will be used to inform future projects focused on building stakeholder research capacity and strengthening participatory research in the U.S. All participants will receive a $20 Amazon gift card. This new study is connected to “Building Capacity for Stakeholder Involvement and Leadership in Mental Health Services Research,” included in the August 2020 Key Update, which involved detailed interviews. Principal Investigator Dr. Nev Jones (genevra@usf.edu) writes, “We are still doing interviews ($50 per interview) so feel free to contact me about that too.” The survey IRB ID# is 001319; the project including this survey was developed with the PCORI-funded PathED Collaborative, co-led by Drs. Nev Jones (genevra@usf.edu) and Linda Callejas (callejas@usf.edu). For more information and/or to participate, click here.

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

A Service-User-Led Survey of “Experiences of the Intersections of Psychosis, Difficult Events, and Trauma” Seeks Participants with Firsthand Experience

A study developed by researchers at the University of South Florida “aims to better understand the relationships between prior experiences of trauma or adversity and experiences such as hearing voices, unusual beliefs and paranoia, as well as the ways in which these experiences themselves can contribute to trauma or distress.” The researchers, who themselves have lived experience, are seeking respondents “who self-identify as having current or prior experiences that would conventionally be labeled psychosis.” The anonymous survey takes approximately 15 minutes to complete; every 10th respondent will be compensated with a $50 gift card, up to five gift cards. Questions? Contact Dr. Nev Jones at genevra@usf.edu. For more information and/or to participate, click here.

“Mapping the Disability Experience: Share Your Stories”

“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.” Submissions will be accepted through June 30, 2020. For more information or to participate, click here. Questions? Contact Yochai Eisenberg, PhD, yeisen2@uic.edu (Courtesy of Elizabeth R. Stone)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here.

(Courtesy of Oryx Cohen)

Free Resources for Peer Worker Supervisors Are Posted on the iNAPS Website

The International Association of Peer Supporters (iNAPS) has posted an array of resources for supervisors of peer support staff. The sources of the 18 disparate resources include the Transformation Center, the National Association of State Mental Health Program Directors (NASMHPD), the Café TA Center, the Philadelphia Department of Behavioral Health and Intellectual disAbility Services (DBHIDS), the Carter Center, the Georgia Mental Health Consumer Network, SAMHSA-HRSA and the Center for Integrated Health Solutions, and other organizations and individual experts. For the peer support supervision resources, click here.

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Is Launched to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, Ph.D., and Emily Cutler, a doctoral candidate, have launched a listserv dedicated to building research capacity, leadership, and involvement among peers, survivors, and service users.  Dr. Jones, assistant professor, Department of Mental Health Law & Policy, University of South Florida, was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Do You Supervise Peer Support Workers? Then Researchers Have Some Questions for You

Researchers in the University of South Florida’s Department of Psychiatry and at Magellan Health are investigating the backgrounds, training, and experiences of individuals who currently supervise at least one peer support worker in a behavioral health setting or agency. “To the best of our knowledge, this will be the first comprehensive research study of the landscape of peer support supervision practices in the United States,” writes Dr. Nev Jones, the primary investigator of the study (Protocol Number 00040223). Participants must be at least 18 years old and work in the United States or U.S. territories. An online survey lasting approximately 10 minutes will ask about respondents’ backgrounds, training and preparation for supervision, perspectives and practices, and views on barriers and facilitators to high-quality supervision. There is no monetary compensation. Questions? Contact Dr. Nev Jones (genevra@health.usf.edu) or the co-primary investigator, Dana Foglesong (dfoglesong@magellanhealth.com). To access the survey, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 17, No. 8, February 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

Key Update, January 2021, Volume 17, Number 7

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion!

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM

The Key Update is compiled, written, and edited by Susan Rogers, Director, National Mental Health Consumers’ Self-Help Clearinghouse.

***

The Language That Clinicians Use Affects Recovery, Harvard Researchers Say

For decades, pharmaceutical companies have pitched the idea that depression is caused by a chemical imbalance. Now, a new study by Harvard researchers, in the Journal of Affective Disorders, suggests that, as clinical neuroscience language replaces psychotherapy vocabulary, expectations change and outcomes worsen for individuals in treatment. “Chemical explanations of mental health appear to benefit pharmaceutical companies far more than patients,” according to a Big Think article, which includes a link to the study abstract. “More recent studies indicate that participants who are told that their depression is caused by a chemical imbalance or genetic abnormality expect to have depression for a longer period, report more depressive symptoms, and feel they have less control over their negative emotions,” the researchers write. For the article, click here. And for “Let’s avoid talk of ‘chemical imbalance’: it’s people in distress,” in Psyche, which notes that “the growing endorsement of biological causation” has contributed to the prejudice and discrimination associated with mental health conditions, click here.

Free Webinar: “What Do I Do After a Mental Health Hospitalization: A Guide for Discharge and Aftercare Planning”

On January 12, 2021, at 2 p.m. ET, Disability Rights California will host a free webinar entitled “What Do I Do After a Mental Health Hospitalization: A Guide for Discharge and Aftercare Planning.” “Join us as we explore: What is a Treatment Plan? What Steps are Necessary for You to be Discharged from the Facility? The Components of Discharge Planning. How to Plan Effective and Realistic Aftercare Goals. Tips to Help Us Stay Engaged in Aftercare.” For more information and to register, click here. (Courtesy of Elizabeth R. Stone)

Doors to Wellbeing Will Host Two Free Webinars This Month (on Jan. 12 and Jan 26), and Publishes Its New Quarterly Newsletter

On January 12, 2021, at 2 p.m. ET, Doors to Wellbeing will host a “special webinar event”: “WRAP: An Approach to Person-Led Crisis and Post Crisis Planning.” The webinar will include “a discussion about shared decision making based on the principles and tools emphasized in the WRAP approach.” And on January 26, 2021, at 2 p.m. ET, there will be a webinar on “Enhancing Quality of Care with Psychiatric Advanced Directive (PAD) and Peer Support.” It will include the core elements of a PAD, and how peer specialists can aid a PAD’s development. For more information and to register, click here. And click here for the National Resource Center on Psychiatric Advance Directives. Also, for the “Advance Self-Advocacy Plan, A Guidebook for Creating a Mental Health Advance Plan or Psychiatric Advance Directive,” published by the Temple University Collaborative on Community Inclusion, click here. And for Doors to Wellbeing’s new quarterly newsletter, the first issue of which highlights Live & Learn, Inc., “a [peer-run] California-based social enterprise specializing in partnerships between community members/service users and behavioral health researchers in public and academic settings,” click here.

Free Mad In America Webinar on “Recovery and Evidence: A New Paradigm”

On January 14, 2021, at 1 p.m. ET, Mad In America will host a 90-minute webinar on “Recovery and Evidence: A New Paradigm.” “Major topics will include the history of community mental health, recovery-oriented practices, evidence-based practices and system change. [The presenter] will address the importance of people with mental health challenges in defining recovery, and contrast this with the way professionals, researchers and others have defined it. He will then describe how evidence-based practices are determined, along with examples of key practices. Finally, he will address some of the misconceptions surrounding evidence-based practices and ways to respond to objections and also take advantage of opportunities to increase their adoption.” For more information and to register, click here.

TU Collaborative Offers Guidelines for Increasing Community Inclusion of People with Mental Health Conditions

“ ‘Hard To Be Out There If We Are Focused on Here’: Moving From Center-Based Communities To Community Inclusion,” published by the Temple University Collaborative on Community Inclusion, explains that achieving the full community participation of individuals with mental health conditions “requires a change in perspective and three concerted sets of actions”: (1) the recognition that people who are socially isolated should have places to go—but, beyond that, these places should help people connect to their communities; (2) the commitment of clubhouses, peer centers, recovery centers, and other such places and agencies to support individuals as they explore community-based interests; and (3) that such agencies partner with congregations, colleges, civic associations, recreational programs, employers, arts organizations, and similar institutions to develop genuinely welcoming communities. To download the free 14-page guide, click here.

NEC Will Present Two Virtual eCPR Trainings in January: One (Free) for Youth and Another (with a Sliding Fee Scale) for Adults

The National Empowerment Center will present two Emotional CPR (eCPR) trainings in January. The free training (over Zoom) for youth (aged 16-25) will be presented in partnership with the Zia Young Adult Access Center. This training will be spread over five days: January 18, 19, 20, 21, and 22, from 3 p.m. to 5:30 p.m. ET. The training for adults (limited to 12 participants), with a sliding fee scale, will take place on January 12, 15, and 25, from noon to 4 p.m. ET. “eCPR is a profound process of reclaiming our Connection (to self and others), embodying emPowerment and ultimately feeling Revitalized…While the original intent of eCPR was to assist others through crisis (and the training still accomplishes this)…the consistent feedback is that it helps us become better listeners and supporters; it changes our perception of not only ourselves but of the world around us; it teaches us how to tap into our well of compassion and enhance all our relationships.” For more information and/or to register for the youth training, click here. For more information and/or to register for the adult training, click here.

A NY Times Report on “More Residential and Welcoming” Psychiatric Facilities Overlooks the Fact that Community-Based Treatment Is Far Superior

“Research into the health effects of natural and man-made surroundings is spurring the development of psychiatric facilities that feel more residential and welcoming,” according to a recent article in The New York Times (click here). But studies have shown that community-based treatment is superior to inpatient treatment. In fact, “[o]n June 22, 1999, the United States Supreme Court held in Olmstead v. L.C. that unjustified segregation of persons with disabilities constitutes discrimination in violation of Title II of the Americans with Disabilities Act.” An Olmstead amici brief (click here) co-authored by the National Mental Health Consumers’ Self-Help Clearinghouse and the Bazelon Center for Mental Health Law included “personal accounts illustrating the benefits of living in the community as opposed to institutional care.” And a European mental health organization noted, “Community-based services enable people with mental disorders to maintain family relationships, friendships and jobs while receiving treatment, which facilitates early treatment and rehabilitation” (click here).

Free NDRN Webinar: “Alternative Emergency Response to Mental Health Crisis”

On January 19, 2021, at noon ET, the National Disability Rights Network (NDRN) will host a one-hour webinar on “Alternative Emergency Response to Mental Health Crisis.” NDRN writes: “Some jurisdictions are realizing that conventional law enforcement responses to mental health matters too often do not turn out well. In the aftermath of tragedy, different response models are gaining favor in the country. Join this webinar for a robust discussion of these alternatives from NDRN staff and guests with lived experience.” For more information and/or to register, click here. (Courtesy of Jacek Haciak)

Guide to “Understanding Psychosis and Schizophrenia” for Young People Is Available for Free Download

“Understanding Psychosis: Voices, Visions and Distressing Beliefs—A Guide for Young People and Their Supporters” has been adapted from “Understanding Psychosis and Schizophrenia” by its editor, prominent British psychologist Anne Cooke. The 20-page manual is “about why people sometimes hear voices when there is no one there, feel very suspicious of others, or believe things that others find unusual or strange. Some people use the word psychosis to describe these experiences. We will work our way through these things and talk about where to find help.” The manual busts the “brain disease” myth and other false assumptions about mental health conditions that are “untrue and unhelpful.” It includes “understanding your own experience and what helps you.” For the manual, click here. For the original 180-page publication, “Understanding Psychosis and Schizophrenia,” which has previously been included in the Key Update, click here.

National Low Income Housing Coalition Publishes Free “Advocates Guide 2020”

“Advocates Guide 2020: A Primer on Federal Affordable Housing & Community Development Programs,” has been published by the National Low Income Housing Coalition. The free 493-page manual “comprises hundreds of pages of useful resources and practical knowhow, written by leading experts in the affordable housing and community development field with a common purpose: to educate advocates and affordable housing providers of all kinds about the programs and policies that make housing affordable and accessible to low-income people across America…For many years, the ‘Advocates’ Guide’ has been the leading authoritative reference for advocates and affordable housing providers seeking a quick and convenient way to understand affordable housing programs and policies.” To download the free guide, click here. (Courtesy of Elizabeth R. Stone)

“80 Awesome Mental Health Resources When You Can’t Afford a Therapist”

“Sure, pretty much everyone could benefit from therapy. But not everyone can afford it,” writes Greatest.com. “Thankfully, there’s a whole world of free or affordable mental health care out there designed to help you with just about every issue. Whether your issue is kicking an addiction, managing your emotions, finding a group of like-minded peers, or recovering from trauma, affordable help is available. Even better? Some of these resources are available whenever you need them. We’ve rounded up 80 of the very best affordable (or free) mental health resources.” For the list, including links to each and details, click here. (Courtesy of Surviving Spirit Newsletter)

January 2021 Edition of Free PARC “National Prison Resource Directory” Is Out

The Prison Activist Resource Center has published the January 2021 edition of its “National Prison Resource Directory. “Our 24-page resource guide is used by over 50,000 prisoners a year all across the United States,” writes PARC, a prison abolitionist group based on Oakland, California “committed to exposing and challenging the institutionalized racism, sexism, ableism, heterosexism, and classism of the Prison Industrial Complex.” To download the free guide, click here. (For the monthly digest of articles about the criminal justice system, scroll down.)

TU Collaborative Hosts “Collab Chats” Podcast Series

The Temple University Collaborative on Community Inclusion writes: “ ‘Collab Chats’ is our podcast series to introduce listeners to research findings and its application for increasing opportunities for individuals with mental illnesses to live and participate in the community. We will feature work from the Temple University Collaborative as well as research from other NIDILRR [National Institute on Disability, Independent Living, and Rehabilitation Research]-funded Rehabilitation Research and Training Centers. The latest edition, on October 30, 2020, was a conversation with  Miranda Spencer, a staff editor at Mad In America, about her article ‘Voting While ‘Mentally Ill’: A Legacy of Discrimination.’ ” For the article, click here. For the Collab Chats archive, click here.

Diversion, Instead of Detention, Works for Youth with Behavioral Health Issues, Study Finds

A study of the Ohio Behavioral Health Juvenile Justice (BHJJ) Initiative, in which 5,300 youth have been enrolled since 2006, has found that, from 2017 through 2019, 81 percent of the participants (aged 10-17) “successfully completed the state's juvenile diversion program, and…79 percent of youth reduced their contact with police while in treatment,” according to Case Western Reserve University researchers. “Nearly half of the boys and more than a quarter of the girls in the program have both substance abuse and mental health disorder[s]…‘and have experienced a great deal of trauma,’ ” an article in The New Indian Express notes. “ ‘Ohio's Behavioral Health Juvenile Justice Initiative was intended to transform and expand the local systems’ options to better serve these youths.’ ” The program is cost-effective, costing about $5,200 per child, as opposed to $196,000 per child in a state-run detention institution, the article notes. For more information, click here.

Free Webinar on Innovation, Collaboration, and Partnership between Crisis Services and 1st Responders in Harris County, Texas”

On January 28, 2021, at 2:30 p.m. ET,  a SAMHSA-sponsored webinar on Innovation, Collaboration, and Partnership between Crisis Services and 1st Responders in Harris County, Texas” will be presented. “The Harris Center for Mental Health and IDD… has a long history of effective and innovative collaboration with first responders,” according to the promotional material for the webinar. The presentation will cover some of the Center’s innovative programs, and how the “Harris Center was able to coordinate with first responder partners to bring these programs to fruition, and the outcomes they are seeing in their community due to these collaborations.” For details and to register, click here. (Courtesy of Judene Shelley)

CNN Offers “A Guide to Helping and Getting Help During the Coronavirus Crisis”

CNN writes: “The coronavirus pandemic is overwhelming, and one of the most excruciating parts for many people is the feeling of utter helplessness in the face of widespread suffering and hardship. CNN’s Impact Your World has compiled a list of donation opportunities and tips to help those affected by the crisis. Click on a category or scroll down to browse a list of organizations, resources and ideas. Need help? Most categories also include resources for financial, emotional or social support.” For the free guide, click here. (For “The January 2021 Digest of Articles Offering Healthy Lifestyle Advice, Including Ways to Cope During the Pandemic,” scroll down.)

“How does the environment influence consumers’ perceptions of safety in acute mental health units?”

A new study exploring “how the physical and social environment of acute mental health units influences consumers’ perception and experience of safety” has found that a “supportive environment”—“experienced when consumers had privacy, felt safe from other consumers and had meaningful activities to participate in within the acute mental health unit”—was vital in promoting recovery. The qualitative study, which involved interviews with 15 individuals who had been in an acute mental health unit, concluded that “[p]ersonal spaces should address consumers' privacy needs without compromising staff access,” and “[m]eaningful activities link consumers to their lives outside of the hospital and can enhance recovery.” For the abstract, click here. (Courtesy of Nev Jones)

Robot Dogs Could Be a Helpful Alternative to Real Therapy Dogs, Researchers Say

Robotic animals may be better than real-life therapy dogs in helping children and youth to increase their feelings of well-being, improve their motivation, and reduce their stress levels, according to a new study by University of Portsmouth researchers. The study, published in The International Journal of Social Robotics, has found that, because robot dogs can’t trigger allergies, and because they can be thoroughly cleaned, don’t get tired or stressed, can work for long periods of time, and can be very lifelike, they might be a better choice for children than real dogs. “Although lots of people in schools and hospitals benefit greatly from receiving visits from a therapy dog, we have to be mindful of the welfare of the therapy dog,” said Olivia Barber, who owns a therapy dog herself, and is first author of the paper. “Visits can be stressful and incredibly tiring for therapy dogs, meaning that we should be exploring whether using a robotic animal is feasible.” For the University of Portsmouth press release, which includes details and a link to the study, click here.

Mental Health Issues Are Often Featured in “Dilbert,” A Comic Strip Drawn by Scott Adams

“ ‘Dilbert’ portrays corporate culture as a Kafkaesque world of bureaucracy for its own sake and office politics that stand in the way of productivity, where employees' skills and efforts are not rewarded, and busy work is praised,” Wikipedia writes. “Much of the humor emerges as the audience sees the characters making obviously ridiculous decisions that are natural reactions to mismanagement.” So, obviously, the comic strip, drawn by Scott Adams, is a great place to find mental health themes. For lots of examples, click here.

The January 2021 Digest of Articles Offering Healthy Lifestyle Advice, Including Ways to Cope During the Pandemic

For “The Mysterious Link Between COVID-19 and Sleep: The coronavirus can cause insomnia and long-term changes in our nervous systems. But sleep could also be a key to ending the pandemic,” click here. For “What You Need to Know About Getting Tested for Coronavirus: Long lines, slow results and inconsistent advice have left many of us confused about when and how to get tested. We talked to the experts to answer your questions,” click here. For “When Can We Start Making Plans? We asked Dr. Anthony S. Fauci and other experts when they thought life would start to feel more normal,” click here. For “Small Number of Covid Patients Develop Severe Psychotic Symptoms: Most had no history of mental illness and became psychotic weeks after contracting the virus. Cases are expected to remain rare but are being reported worldwide,” click here. For “Nurtured by Nature: How the pandemic has intensified our connection to the outdoors,” click here. For “For a Healthier 2021, Keep the Best Habits of a Very Bad Year: Our 7-Day Well Challenge will show you how to build on the healthy habits you learned during pandemic life,” click here. For “Don't Let The Pandemic Winter Get You Down: 9 Creative Ways To Socialize Safely,” click here.

The January 2021 Digest of Articles about the Criminal Justice System, in Which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “How Thousands of American Laws Keep People ‘Imprisoned’ Long After They’re Released: Across the country, people with felony convictions face a daunting web of small obstacles to rebuilding normal lives. What will it take to fix?” click here. For “How States Transformed Criminal Justice in 2020, and How They Fell Short: This year of crises, revisited. Nearly 90 state-level bills and initiatives. 17 themes. 7 maps,” click here. For “End the Cops’ Cannibalization of Our Budgets: ‘Defund the police’ is not an austerity measure. It’s a demand that we put police department budgets to better use,” click here. For “What Language Game Are the Defunders Playing? The national conversation about police reform has devolved into a never-ending argument over words,” click here. For “Resentencing Units Can Rectify, Rehabilitate, and Restore: A concerted effort to review, resentence, and release is the right thing to do for those who have been unjustly sentenced. It is also the right thing to do for our community,” click here. For “Is the Legal System an Effective Solution to Domestic Violence? FKA Twigs has highlighted a problem that 1 in 3 American women face. But it is still rare for aggressors to face charges, convictions or financial penalties,” click here. For “Defund the crime beat” ‘Let’s be honest: Crime coverage is terrible. It’s racist, classist, fear-based clickbait masking as journalism,’” click here. For “’No Choice but to Do It’: Why Women Go to Prison: Many of the 230,000 women and girls in U.S. jails and prisons were abuse survivors before they entered the system. And at least 30 percent of those serving time on murder or manslaughter charges were protecting themselves or a loved one from physical or sexual violence,” click here. For “From rehabilitation to penal communication: The role of furlough and visitation within a retributivist framework,” click here. For “What To Expect When You Visit Someone In Prison,” click here. For “Systemic Racial Bias in the Criminal Justice System Is Not a Myth,” click here. For “Why Is Karl Taylor Dead? Our prisons are our mental wards. One fatal case in New York shows where that can lead,” click here. For “The Man I Saw Them Kill: The Trump administration has resumed federal executions after a 17-year hiatus. I witnessed the latest one,” click here. For “Exclusive: Read Elizabeth Warren’s Scathing Report on ‘Corrupt’ Prison Audits: ‘The result has been the rubber-stamping of dangerous facilities and the waste of millions of taxpayer dollars,’” click here. For “1 in 5 Prisoners in the U.S. Has Had COVID-19 [Compared to 1 in 20 in the general population]: Even as the first Americans begin to receive COVID-19 vaccines, the spread of the virus behind bars shows no signs of slowing,” click here. For “Some of Our Best Work of 2020: From the sweeping impacts of COVID-19 to the protests against racial injustice, 2020 was a year like no other,” click here. For “Firefighting After Prison: Can California’s formerly incarcerated make firefighting a career?” click here. For “Abused, then condemned: For women on death row, a history of gendered violence is the norm. A majority of the women sentenced to capital punishment have experienced ongoing abuse since childhood,” click here. For “Congress clinches deal to restore Pell grants for prisoners 26 years after ban: The compromise also includes language to simplify the application for federal financial aid and grant more than $1 billion in loan forgiveness for HBCUs,” click here. For “Program allows incarcerated students to further education,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

Here's Your Chance to Help Transform Mental Health Services Research in the U.S.!

If you’ve ever served on an advisory board for a research or evaluation project, provided even limited consultation, or partnered as a peer-run organization in such research, you’re eligible to participate in a national survey aimed at better understanding researchers’ and stakeholders’ experiences of participatory research! The anonymous, 10-20 minute survey includes both closed- and open-ended questions about your experiences with such research, perspectives on barriers, and potential targets for policy change and resource development. Findings will be used to inform future projects focused on building stakeholder research capacity and strengthening participatory research in the U.S. All participants will receive a $20 Amazon gift card. This new study is connected to “Building Capacity for Stakeholder Involvement and Leadership in Mental Health Services Research,” included in the August 2020 Key Update, which involved detailed interviews. Principal Investigator Dr. Nev Jones (genevra@usf.edu) writes, “We are still doing interviews ($50 per interview) so feel free to contact me about that too.” The survey IRB ID# is 001319; the project including this survey was developed with the PCORI-funded PathED Collaborative, co-led by Drs. Nev Jones (genevra@usf.edu) and Linda Callejas (callejas@usf.edu). For more information and/or to participate, click here.

Study of “Experiences in Accessing Mental Health Treatment” Seeks Parent/Guardian Participants  

Two outpatient therapists at Children’s Friend Inc. have launched an anonymous survey of the experiences of families accessing mental health treatment for their children. “The purpose of this research is to explore the experiences in, and barriers to, accessing mental health services for parents who are caring for children with mental health conditions, medical conditions, and/or rare disease. We intend to compare three groups: caregivers of children with one or more mental health conditions, caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare disease.” To be eligible, “you are a parent or guardian of a child under the age of 18, with a mental health condition, a medical condition, and/or a rare disease, and the child lives in your home.” For more information and/or to participate, click here. Questions? Email Kim Hager, LICSW: khager@childrensfriend.org  

2021 (Virtual) Global Mental Health Research Without Borders Conference to Be Held April 5-7, 2021

“The National Institute of Mental Health and Grand Challenges Canada are sponsoring the 11th Global Mental Health Research Conference on April 5-7, 2021, which will bring together researchers, innovators, and other stakeholders from around the globe. The [virtual] conference will showcase findings from cutting-edge science and explore new opportunities for groundbreaking research. Stay tuned for details!” (Courtesy of Janet Paleo)

National Survey Seeks Input from Certified Peer Specialists

“Routine peer support has shown to increase individuals’ hope, sense of personal control, ability to make positive changes, and decreased psychiatric symptoms,” writes Dr. Karen Fortuna of the Geisel School of Medicine at Dartmouth. “Despite these benefits, the organizational structure of peer support is not known. Dartmouth College is initiating a national survey of trained Certified Peer Specialists to help us understand the organizational structure of peer support services.” For more information and/or to participate in the 15-minute survey, click here. (Courtesy of Judene Shelley)

A Service-User-Led Survey of “Experiences of the Intersections of Psychosis, Difficult Events, and Trauma” Seeks Participants with Firsthand Experience

A study developed by researchers at the University of South Florida “aims to better understand the relationships between prior experiences of trauma or adversity and experiences such as hearing voices, unusual beliefs and paranoia, as well as the ways in which these experiences themselves can contribute to trauma or distress.” The researchers, who themselves have lived experience, are seeking respondents “who self-identify as having current or prior experiences that would conventionally be labeled psychosis.” The anonymous survey takes approximately 15 minutes to complete; every 10th respondent will be compensated with a $50 gift card, up to five gift cards. Questions? Contact Dr. Nev Jones at genevra@usf.edu. For more information and/or to participate, click here.

“Mapping the Disability Experience: Share Your Stories”

“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.” Submissions will be accepted through June 30, 2020. For more information or to participate, click here. Questions? Contact Yochai Eisenberg, PhD, yeisen2@uic.edu (Courtesy of Elizabeth R. Stone)

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents

“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.” To participate or for more information, click here.

Survey Seeks Respondents Who Are in Administrative/Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

Free Resources for Peer Worker Supervisors Are Posted on the NAPS Website

The National Association of Peer Supporters (NAPS) has posted an array of resources for supervisors of peer support staff. The sources of the 18 disparate resources include the Transformation Center, the National Association of State Mental Health Program Directors (NASMHPD), the Café TA Center, the Philadelphia Department of Behavioral Health and Intellectual disAbility Services (DBHIDS), the Carter Center, the Georgia Mental Health Consumer Network, SAMHSA-HRSA and the Center for Integrated Health Solutions, and other organizations and individual experts. For the peer support supervision resources, click here.

“Experiences with Hospitalization” Survey Seeks Participants

“The purpose of this survey is to help us understand people's lived experience with voluntary and involuntary treatment because of suicidal thoughts. It was created by people with lived experience…We are planning to use this information to facilitate discussions with suicidologists and the suicide prevention community about the impact of the use of these interventions, particularly within marginalized populations. We feel the voice of people with lived experience with these interventions has not had adequate opportunity to be heard, and hope that by completing this survey anonymously, people who have been most impacted can find a safe way to share their experiences. Please note that this is not a research project.” For more information and/or to participate, click here. (Courtesy of Leah Harris)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

Virtual Group Aims to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, Ph.D., and Emily Cutler, a doctoral candidate, have launched a listserv dedicated to building research capacity, leadership, and involvement among peers, survivors, and service users.  Dr. Jones, assistant professor, Department of Mental Health Law & Policy, University of South Florida, was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Do You Supervise Peer Support Workers? Then Researchers Have Some Questions for You

Researchers in the University of South Florida’s Department of Psychiatry and at Magellan Health are investigating the backgrounds, training, and experiences of individuals who currently supervise at least one peer support worker in a behavioral health setting or agency. “To the best of our knowledge, this will be the first comprehensive research study of the landscape of peer support supervision practices in the United States,” writes Dr. Nev Jones, the primary investigator of the study (Protocol Number 00040223). Participants must be at least 18 years old and work in the United States or U.S. territories. An online survey lasting approximately 10 minutes will ask about respondents’ backgrounds, training and preparation for supervision, perspectives and practices, and views on barriers and facilitators to high-quality supervision. There is no monetary compensation. Questions? Contact Dr. Nev Jones (genevra@health.usf.edu) or the co-primary investigator, Dana Foglesong (dfoglesong@magellanhealth.com). To access the survey, click here.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

PsychAlive Offers a Variety of Webinars on Mental Health Topics, Many Free, Others $15

PsychAlive is a free, nonprofit resource created by the Glendon Association, whose mission is “to save lives and enhance mental health by addressing the social problems of suicide, violence, child abuse and troubled interpersonal relationships.” Psychalive.org offers a variety of upcoming and archived webinars, many of which are free, while others are available for $15. Among the myriad topics are “From Anxiety to Action: How to Stay Sane While Fighting Climate Change,” “How to Overcome Insecurity,” “Powerful Tools to Fight Depression,” and “Understanding and Overcoming Adverse Childhood Experiences.” To check out the webinars, click here.

Doors to Wellbeing Offers “State Selfies: A Picture of Peer Services Reported by Peers”

Doors to Wellbeing’s “Peer Album” is a directory of nearly 600 peer-run organizations throughout the U.S. They invite updates and offer instructions for providing them and add, “If your entry has not made this first draft, we encourage you to re-submit.” For the 158-page directory, click here.

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About The Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is now affiliated with the Temple University Collaborative on Community Inclusion!

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 17, No. 7, January 2021. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH