The Key Update, Volume 13, Number 6 -- December 2016

Key Update, December 2016

Volume 13, Number 6

BuzzFeed Publishes Exposé of Large Corporate Operator of Private Psychiatric Hospitals

An intensive, yearlong BuzzFeed News investigation of Universal Health Services (UHS), which operates more than 200 psychiatric facilities across the U.S., “raises grave questions about the extent to which [its] profits were achieved at the expense of patients.” UHS took in nearly $7.5 billion from inpatient care last year—with profit margins of around 30 percent—BuzzFeed reports. The corporation is also under federal investigation for possible Medicare fraud. According to a BuzzFeed article posted on December 7, 2016, “Current and former employees from at least 10 UHS hospitals in nine states said they were under pressure to fill beds by almost any method—which sometimes meant exaggerating people’s symptoms or twisting their words to make them seem suicidal—and to hold them until their insurance payments ran out.” BuzzFeed noted that UHS strongly disputes allegations of civil or criminal fraud, is cooperating with the investigation, and “has not been charged with any wrongdoing.” For the BuzzFeed article about its investigation—“Locked on the Psych Ward—click here.

Do You Qualify for an ABLE Account? If So, You May Want to Set One Up Before December 31!

ABLE accounts “are tax-advantaged savings accounts for individuals with disabilities and their families… For the first time, eligible individuals and their families will be allowed to establish ABLE savings accounts that will not affect their eligibility for SSI, Medicaid and other public benefits.” ABLE accounts can be opened online. For information on eligibility, how an ABLE account might help you or someone you know, and more, click here for the ABLE National Resource Center.

Thanks, Miriam Yarmolinsky

Free Webinar on Peer-run Organizations Serving People with Behavioral Health Conditions and Criminal Justice Involvement on January 19; Related Report Spotlights Exemplary Programs

A free webinar on Peer-run Organizations That Serve Individuals with Behavioral Health Conditions and Criminal Justice Involvement will be hosted by the National Mental Health Consumers’ Self-Help Clearinghouse and the Temple University Collaborative on Community Inclusion on January 19, 2017, at 2 p.m. ET. The presenters will be Rita Cronise of the International Association of Peer Supporters (iNAPS), Ellen Healion of Hands Across Long Island, Steve Miccio of PEOPLe Inc., and Noelle Pollet of Peace Work. Harvey Rosenthal of the New York Association of Psychiatric Rehabilitation Services will moderate. The 90-minute webinar grew out of a survey by the College for Behavioral Health Leadership’s Peer Leader Interest Group, Mental Health America, the Clearinghouse, and the TU Collaborative. The resulting report, Reentry and Renewal, highlights a dozen exemplary programs, provides recommendations, and spotlights needed policy changes and the importance of expanded funding and research. To register for the webinar, click here. To download the free report, click here.

Brennan Report Provides Blueprint for Cutting Prison Population While Maintaining Low Crime Rates

Nearly 40 percent of the U.S. prison population—576,000 people—are behind bars with no compelling public safety reason, according to a new analysis from the Brennan Center for Justice at NYU School of Law. The first-of-its-kind survey provides a blueprint for how the U.S. can drastically cut its prison population while still keeping crime rates near historic lows. According to the report, approximately 79 percent of individuals who are incarcerated experience either substance use disorders or mental health conditions, and 40 percent experience both. “Alternative interventions such as treatment could be more effective sanctions for many of these individuals,” the report states. “Too many people end up in prison in the first place, when alternatives like treatment would work much better,” said Lauren-Brooke Eisen, an author of the document. “Still others are locked up for too long and research shows those sentences are ineffective. When what you’re doing isn’t working, it’s time to rethink it.” For more information and to download the free report, click here.

The State of Mental Health in America 2017 Has Been Published by MHA

Mental Health America (MHA) has published a state-by-state analysis of The State of Mental Health in America. Among the findings: 56 percent of adults with a mental health conditions did not receive treatment in 2017; and, in states with the fewest mental health professionals, there is only one mental health professional per 1,000 people—and this includes psychiatrists, psychologists, social workers, counselors, and psychiatric nurses combined. Most telling, “less access to care means more incarceration. Arkansas, Mississippi, and Alabama had the least access to care and highest rates of imprisonment. There are over 57,000 people with mental health conditions in prison and jail in those states alone. That’s enough to fill Madison Square Garden three times.” For numerous links to all the data, click here.

Only 35% of Medical Treatments Are "Beneficial" or "Likely to Be Beneficial," says BMJ; The Risks of Psychiatric Medications Are of Particular Concern, Researchers Report

Fifty percent of medical treatments are of unknown effectiveness, according to Clinical Evidence, a program of the BMJ—the weekly peer-reviewed medical journal formerly called the British Medical Journal. The BMJ analysis indicates that only 11 percent of treatments are beneficial, with an additional 24 percent likely to be beneficial. With 7 percent, there is a “tradeoff between benefits and harms”; 5 percent are “unlikely to be beneficial”; and 3 percent are “likely to be ineffective or harmful.” People “should be much less afraid of disease & more afraid of treatments. Benefits of most treatments are exaggerated; risks are ignored,” tweeted Allen Frances, MD, author of Saving Normal. For the BMJ report, click here. For a related story, published in Scientific American—“Psychiatrists Must Face Possibility That Medications Hurt More Than They Help”—click here. For another related story—“Study Suggests Long-Term Antipsychotic Use May Result in Poorer Cognitive Functioning”—click here.

SAMHSA and RTI International Launch Substance Abuse and Mental Health Data Archive

The Substance Abuse and Mental Health Services Administration (SAMHSA) and RTI International have launched a redesigned Substance Abuse and Mental Health Data Archive (SAMHDA) “with new designs, streamlined menus, and simplified navigation. We want to offer our users an easy way to get to the data they need for their analyses,” SAMHSA writes. “We will update and expand our resources, tools, and documentation frequently to deliver the most relevant data for your needs.” For the archive, click here.

Thanks, Amy Smith

Free SAMHSA Webinar on CIT and Provider Collaboration on January 10

SAMHSA and Recovery to Practice will sponsor an hour-long webinar on January 10, 2017, at 1 p.m. ET called Safe and Sound: Crisis Intervention Team (CIT) and Provider Collaboration. This webinar is the first of three that will look at specific but varied intersections of criminal justice and behavioral health. It will review the CIT model; explore how providers can support CIT initiatives before, during, and after crisis; and provide examples of how law enforcement officers, people in services, and providers have worked or can work together to create safer and more recovery-oriented outcomes. For details and to register, click here.

An Invitation from a New Research Initiative to Figure Out Why Hearing Voices Groups Work

Www.OurVoicesRaised.org is a new research initiative in which “voice hearers and allies are partnering to find out what makes our Hearing Voices groups so useful,” according to the Foundation for Excellence in Mental Health Care Hearing Voices Research & Development Fund. “Your voice and stories are essential to answering that question. If you are a voice hearer and have been involved in these groups, please consider offering your wisdom.” For more information and/or to participate in the survey, click here.

Thanks, Elizabeth Saenger

Doors to Wellbeing Continues Its Monthly Webinar Series in January

A free webinar on How to Ask for a Raise: The Peer Support Compensation Survey will be hosted by Doors to Wellbeing on January 31, 2017, at 2 p.m. ET. Doors to Wellbeing writes: “This webinar will provide an overview of the national survey of compensation among peer support specialists. This survey provides peer specialists useful information on compensation rates across different types of service organizations and geographical locations. This webinar will use this data to help peer specialists advocate for improved compensation rates.” The webinar is part of the monthly series hosted by Doors to Wellbeing on the last Tuesday of almost every month. For details and to register, click here. The webinar presenters, Allen Daniels and Peter Ashenden, were two of the authors of a National Survey of Compensation Among Peer Support Specialists, published in January 2016. For the survey, click here.

Sustainability and Leadership Transition Bulletin Published by Café TA Center

Passing the Torch: Sustainability and Leadership Transition has been published by the Café TA Center. “One of the greatest challenges that any small nonprofit can face is maintaining its focus and momentum through times of change,” the bulletin begins. “CAFÉ TAC has created two assessment tools to help you determine how ready your organization is for a potentially disruptive transition. One provides an opportunity to review a past transition and determine what went well and what was problematic. The other offers a chance to take stock of how prepared your organization is for the next transition.” For the free bulletin, click here. In addition, the Clearinghouse published a free four-page bulletin on Sustainability in 2009, available here.

Vera Institute Announces Five Participants for Safe Alternatives to Segregation Initiative

On December 19, the Vera Institute of Justice announced that it had chosen the state corrections departments in Louisiana, Minnesota, Nevada, Utah, and Virginia to participate in its Safe Alternatives to Segregation initiative, which is helping state and local corrections agencies around the country reduce their use of solitary confinement. They join five jurisdictions that have been participating in the initiative since April 2015: Nebraska, North Carolina, Oregon, New York City, and Middlesex County, New Jersey. For more information, click here. According to "Solitary Confinement and Mental Illness in U.S. Prisons: A Challenge for Medical Ethics," published in the Journal of the American Academy of Psychiatry and the Law, "Many of the prisoners subjected to isolation, which can extend for years, have serious mental illness, and the conditions of solitary confinement can exacerbate their symptoms or provoke recurrence." For the article, click here. Solitary confinement can also generate symptoms of a mental health condition in people who previously did not have such symptoms. For more information, click here.

Want to Help a Philadelphian Who Is Homeless on the Street? There’s an App for That.

StreetChange, in Philadelphia, is a location-based smartphone tool to help people donate useful items to those who are homeless while also helping to connect them with outreach programs. The creation of researchers at the University of Pennsylvania’s School of Social Policy and Practice, it involves a partnership with the Mental Health Association of Southeastern Pennsylvania (MHASP) and a startup grant from the Barra Foundation. It works like this: MHASP outreach teams engage with homeless individuals who may want to participate. The potential participants answer a few questions about themselves and mention some items they need, such as a warm winter coat, shoes, socks, or a toothbrush. And then…For the most up-to-date information about StreetChange, and to find out how the app helps people acquire the items they need and what happens when they pick them up at the nearest outreach center, click here

Alternatives 2017 to Be Held in Boston August 18-21! Save the Date!

The National Empowerment Center (NEC) will organize and host the 2017 Alternatives Conference at the Boston Park Plaza from Friday, August 18, through Monday, August 21, 2017. “The Alternatives Conference 2017 website is in development and will have further information at www.power2u.org,” NEC writes. “Announcements will be sent when further information is available, which will include the Call for Presentations, an online submission link, hotel reservation information, and a direct link to online room reservations.”

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted.

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 13, No. 6, December 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

 

The Key Update, Volume 13, Number 5 -- November 2016

Key Update, November 2016

Volume 13, Number 5

Translations of Universal Declaration of Human Rights Pass 500—a New Record!

The Universal Declaration of Human Rights, already the world’s most translated document, is now available in more than 500 translations with the addition of North Bolivian Quechua, spoken by some 116,000 people. The text is available in languages and dialects from around the world, from Abkhaz to Zulu. It has also been translated into British and Spanish sign language. “The growing number of translations underscores…the power of its words to resonate strongly across all cultures and languages,” said UN High Commissioner for Human Rights Zeid Ra’ad Al Hussein. The six-page text, including 30 Articles, was adopted by the UN General Assembly on December 10, 1948. It begins: “All human beings are born free and equal in dignity and rights,” while Article 2 states, “Everyone is entitled to all the rights and freedoms set forth in this Declaration, without distinction of any kind, such as race, color, sex, language, religion, political or other opinion, national or social origin, property, birth or other status.” For more information, click here.

Thanks, Jacek Haciak

SAMHSA-sponsored Toolkits Support Full Inclusion of Students with Early Psychosis in Higher Ed

Two new toolkits, sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA), are a must-read for students with early psychosis in higher education, and for their families and others who want to support them. “While ostensibly focused on early psychosis, much of the material would apply to any student with psychiatric disabilities,” writes Nev Jones, Ph.D., lead author of Back to School: Toolkits to Support the Full Inclusion of Students with Early Psychosis in Higher Education. “There is also extensive legal trouble-shooting, co-written with Karen Bower, a national expert on campus mental health law and a former Bazelon Center attorney,” Dr. Jones writes. “There is one section of the student toolkit dedicated explicitly to graduate students.” For the Student and Family Version, click here. For the Campus Staff and Administrator Version, click here.

New Online Tool to Help Workers and Employers Understand Medical and Disability-related Leave

On October 31, 2016, the U.S. Department of Labor unveiled a new online tool to help employees and employers understand the medical and disability leave to which employees may be entitled. The launch of the Medical- and Disability-Related Leave Advisor culminates National Disability Employment Awareness Month, held in October to mark the contributions of America’s workers with disabilities and to educate employers about how to effectively recruit and retain these workers. Effective stay-at-work and return-to-work initiatives for employees who experience unexpected illness or disability are among the options for employers. For more information and to download the new tool, click here.

Thanks, Keris Myrick @KeriswithaK 

SOAR Webinar on Working While Receiving SSA Benefits to Be Held November 30

 

On November 30, 2016, at 3 p.m. ET, the SAMHSA SOAR (SSI/SSDI Outreach, Access and Recovery) Technical Assistance Center, the Social Security Administration (SSA), and SOAR leaders will present a 90-minute webinar filled with “empowering and myth-busting information” entitled Yes, You Can Work! Working While Applying for and Receiving SSA Benefits. The presenters will provide information on SSA work incentives and resources available to applicants and beneficiaries. “We will share our new Yes You Can Work flyer and conversation guide written for providers to use in the field when discussing the benefits of work,” the organizers write. “You will also hear from a local SOAR provider who will share their experience providing integrated SOAR and employment supports in the community.” For more information and to register, click here.

Webinar on Supporting Community-based Reentry Programs to be Held November 30

On November 30, 2016, at 2 p.m. ET, the National Reentry Resource Center will host a 90-minute webinar on Planning for Sustainability--Supporting Community-based Reentry Programs. "This webinar will discuss strategies and recommendations for sustaining reentry programs initiated by community-based organizations. With a particular focus on programs that incorporate mentors, presenters will discuss how to consider sustainability throughout the program-development process beginning in the planning phase. Topics will include leveraging multiple funding streams from public and private sources, asset mapping, and how to build an agency's profile in the field and community." For more information and to register, click here.

iNAPS Hosts Webinar on Hospital to Community: A Process of Inclusion on December 2

The International Association of Peer Supporters (iNAPS) will host a webinar on Hospital to Community: A Process of Inclusion on December 2, 2016, at noon Eastern Time. The presenter will be Gina Calhoun, the national director for wellness and recovery education of the Copeland Center for Wellness and Recovery. iNAPS writes: “In this 1-hour webinar, Gina shares her personal story of transitioning from long-term institutionalization to community living, including her work as a peer support specialist during the closure of Harrisburg State Hospital. Following Gina’s story, we will explore the role of peer support in downsizing, right sizing and closing institutional-based settings…” For more information and for the link to join the free webinar, click here. Gina’s first-person account of her recovery begins on Page 10 of the Spring 2009 edition of the People First newsletter, published by the Mental Health Association of Southeastern Pennsylvania for the Pennsylvania Office of Mental Health and Substance Abuse Services. To read Gina’s story, click on People First 2009 Spring at this link.

 Vigil to Close Rikers Island on December 4 in NYC, Outside Mayor’s Residence

There will be a vigil in front of the New York City mayor’s residence, Gracie Mansion, on December 4, 2016, from 4 p.m. to 5 p.m. at 88th Street and East End Avenue, inside Carl Schurz Park. People will gather at 86th and East End Avenue at 3:30 p.m. and will proceed to 88th Street together, or as close to Gracie Mansion as possible. The goal of the vigil is to make a statement to Mayor Bill de Blasio about the urgency of closing Rikers Island, the infamous correctional facility in New York City. Some 40 percent of individuals incarcerated in Rikers have mental health conditions. As The New York Times has editorialized, “The sensible thing to do with Rikers is to close it.” The event is organized by Just Leadership USA and is supported by faith leaders in New York City. Just Leadership USA was founded and is led by Glenn E. Martin, who served time on Rikers as well as several years in a state prison and has become a nationally known, award-winning advocate for criminal justice reform. In a long interview published by The Atlantic, Martin said, “It seems like such an abomination for us to have this facility continue to operate.” For more information about the event, click hereFor more information about the effort to close Rikers, click here.

RTP to Host Second Webinar on Psychiatric Advance Directives

On December 6, 2016, at 1 p.m. ET, SAMHSA’s Recovery to Practice will host its second webinar on Psychiatric Advance Directives (PADs), following up on a webinar that took place in October. The presenters are Patricia Siebert, a staff attorney at the Minnesota Disability Law Center, and Marie Verna of Rutgers University Behavioral Health Care’s Research and Training Institute. Topics will include best practices for developing and disseminating PADs, roles and approaches for direct service providers for responding to PADs, and understanding the limitations of PADs. For more information and/or to register for this free hour-long webinar, click here. Nearly two dozen additional webinars are archived at SAMHSA’s Recovery to Practice Website, here.

Webinar on SSI/SSDI: A Foundation for Employment, Recovery, Self-Sufficiency, and Social Inclusion!

On December 14, 2016, at 2 p.m. ET, Peerlink National Technical Assistance Center will host a one-hour SOAR Technical Assistance Center Webinar entitled SSI/SSDI: A Foundation for Employment, Recovery, Self-Sufficiency, and Social Inclusion! “The SSI/SSDI Outreach, Access and Recovery Technical Assistance (SOAR TA) Center, funded by SAMHSA, seeks to end homelessness and support recovery through increased access to SSI/SSDI income supports. SOAR extends beyond simply helping people access benefits and also encourages employment as a means to increase individual income and promote recovery in line with the SAMHSA assertion that ‘to recover, people need meaningful work and the ability to enhance their skills through education.’” For more information and to register, click here.

Peerpocalypse, April 24-26, 2017, Is Accepting Workshop Proposals

Peerpocalypse, to be held April 24-26, 2017, in Seaside, Oregon, is “a conference of leaders, emerging leaders, innovators, and peers who want to become more involved in the peer community. Adopting the philosophy that peers bring with them a great deal of knowledge and expertise, the event is about bringing the community together to share information, skills, and experience. The deadline for workshop proposals is December 12.” For additional information, visit www.peerpocalypse.com or contact the organizers, the Mental Health Association of Oregon, at 503.922.2377 or at peerpocalypse@mhaoforegon.org.

White Paper on Media Coverage of Law Enforcement Use of Force Against People with Disabilities

“Disability is the missing word in media coverage of police violence,” writes the Ruderman Family Foundation in The Ruderman White Paper on Media Coverage of Law Enforcement Use of Force and Disability: A Media Study (2013-2015) and Overview. “Disability intersects with other factors such as race, class, gender, and sexuality, to magnify degrees of marginalization and increase the risk of violence. When the media ignores or mishandles a major factor, as we contend they generally do with disability, it becomes harder to effect change…” In this monograph, the Foundation reports the following patterns: “Disability goes unmentioned or is listed as an attribute without context. An impairment is used to evoke pity or sympathy for the victim. A medical condition or ‘mental illness’ is used to blame victims for their deaths. In rare instances, we have identified thoughtful examinations of disability from within its social context that reveal the intersecting forces that lead to dangerous use-of-force incidents.” They add: “Such stories point the way to better models for policing in the future. We conclude by proposing best practices for reporting on disability and police violence.” To download the free report, click here.

NARPA Issues Call for Papers for Its 2017 Conference

The 2017 Annual Rights Conference of the National Association for Rights Protection and Advocacy will be held September 6-9 in Portland, Maine, at the Holiday Inn by the Bay. The workshop proposal deadline is February 15, 2017. NARPA “is seeking proposals which address strategies, ideas, programs, and emerging practices that support and promote NARPA’s mission and commitment to individual rights, liberty, freedom, and dignity.” For possible topic areas, guidelines, and the application, click here.

Disability Rights WA Publishes Cruel but Not Unusual: Solitary Confinement in WA Jails

“Solitary confinement in Washington’s county jails disproportionately affects people with disabilities,” writes Disability Rights Washington, the state’s protection and advocacy agency. “Many jails go so far as to place inmates with disabilities in solitary confinement because of their disability. This report describes the harmful effects of solitary confinement on people with disabilities, provides an overview of the disproportionate and discriminatory placement of people with disabilities in solitary confinement in Washington’s county jails, and identifies best practices and recommendations for reform.” To download the report and for additional information, click here.

Save the Date! Webinar on Peer-run Organizations Serving People with Behavioral Health Conditions and Criminal Justice Involvement on January 19, 2017

A webinar on Peer-run Organizations That Serve Individuals with Behavioral Health Conditions and Criminal Justice Involvement will be hosted by the National Mental Health Consumers’ Self-Help Clearinghouse and the Temple University Collaborative on Community Inclusion on January 19, 2017, at 2 p.m. ET. The presenters will be Rita Cronise of the International Association of Peer Supporters, Ellen Healion of Hands Across Long Island, and Steve Miccio of PEOPLe, Inc. Harvey Rosenthal, executive director of the New York Association of Psychiatric Rehabilitation Services, will moderate. The 90-minute webinar grew out of a survey of peer-run programs serving people with behavioral health conditions and criminal justice involvement by the College for Behavioral Health Leadership’s Peer Leader Interest Group, Mental Health America, the Clearinghouse, and the TU Collaborative. A registration link will be provided in the December 2016 edition of the Key Update as well as via social media.

Surgeon General Releases Facing Addiction in America

On November 17, Facing Addiction in America, the Surgeon General’s Report on Alcohol, Drugs and Health was published. According to the Surgeon General’s Office, the publication “reviews what we know about substance misuse and how you can use that knowledge to address substance misuse and related consequences. The last chapter of the Report presents a vision for the future, five general messages, their implications for policy and practice, and recommendations for specific stakeholder groups.” For more information and to download the free report, click here.

Prison Activist Resource Center Publishes New Edition of Free Prisoner Resource Directory

The Prison Activist Resource Center (PARC) has just published its Fall 2016 edition of the Prisoner Resource Directory. PARC writes: “[W]e have added a re-entry resources section, a prison writing and art section, and have updated the addresses for many of our listings. Thanks to the thousands of readers who have written letters of support and encouragement, and to those who return our evaluation form enabling us to get a better idea of the true readership of the directory and let us know which direction to take when adding new categories or information. Special thanks to those who pass on the directory to others—our resource directory is widely circulated in jails and prisons with each copy viewed by an average of 15 or more persons.” For more information and to download the free 24-page directory, click here.

How to Call Your Reps When You Have Social Anxiety

"When you struggle with your mental health on a daily basis, it can be hard to take action on the things that matter most to you,” writes Cordelia McGee-Tubb in her blog, Echo Through the Fog. “The mental barriers anxiety creates often appear insurmountable. But sometimes, when you really need to, you can break those barriers down. This week, with encouragement from some great people on the internet, I pushed against my anxiety and made some calls to members of our government. Here’s a comic about how you can do that, too. (Resources and transcript below.)” For the comic blog, click here.

TU Collaborative and MHA Publish Monograph on Community Inclusion from Caregivers’ Perspective

In recognition of National Caregivers Month (November), the Temple University (TU) Collaborative on Community Inclusion and Mental Health America have published Community Inclusion from the Perspective of Caregivers, based on a 2016 survey of nearly 500 caregivers of individuals with mental health conditions. The TU Collaborative writes: “Caregivers want providers, community institutions and the public to help foster more community inclusion for their loved ones, and for themselves. They call on policy makers and legislators to address structural issues, such as poverty, lack of transportation, and entrenched discrimination, and they implore educators, employers and the general public to become more educated about mental health issues, and to be more supportive, understanding and compassionate.” For more information and to download the free monograph, click here.

10 Comics About Mental Health Conditions Range from Funny to Not-So-Funny and Back Again

“Comics don't always have the best track record when it comes to portraying [mental health conditions],” writes Lauren Davis, who compiled this collection. “In superhero stories, [mental health conditions are] often associated with violence and villainy. There are, however, other, often personal, comics that can open your eyes…Just a heads up: many of these comics deal with self-harm, suicide, and other issues that can be triggering to some individuals.” To check out the 10 comics, click here.

THE FOLLOWING TWO ITEMS ARE FROM THE OCTOBER 2016 KEY UPDATE BUT STILL FRESH:

Doors to Wellbeing Presents Webinar on Creating and Managing a Peer-run Business

As part of its monthly webinar series on the last Tuesday of every month, Doors to Wellbeing will present a free webinar on Creating and Managing a Peer-run Business on November 29 at 2 p.m. ET. The webinar promises to cover “the 3 W’s (why, what, where) you want to start a peer-run or owned business,” “how to start,” and how to “identify your best supporters and what’s in it for them.” To register, click here.

Alternatives 2017 to Be Held in Boston August 18-21! Save the Date!

The National Empowerment Center (NEC) will organize and host the 2017 Alternatives Conference at the Boston Park Plaza from Friday, August 18, through Monday, August 21, 2017. “The Alternatives Conference 2017 website is in development and will have further information at www.power2u.org,” NEC writes. “Announcements will be sent when further information is available, which will include the Call for Presentations, an online submission link, hotel reservation information, and a direct link to online room reservations.)

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted.

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 13, No. 5, November 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

Peerpocalypse, to be held April 24-26, 2017, in Seaside, Oregon, is “a conference of leaders, emerging leaders, innovators, and peers who want to become more involved in the peer community. Adopting the philosophy that peers bring with them a great deal of knowledge and expertise, the event is about bringing the community together to share information, skills, and experience. The deadline for workshop proposals is December 12.” For additional information, click here or contact the organizers, the Mental Health Association of Oregon at  503.922.2377 or at peerpocalypse@mhaoforegon.org.

The Key Update, Volume 13, Number 4 -- October 2016

Key Update, October 2016

Volume 13, Number 4

FDA Rules Allow Medical Device Makers to Keep Injuries Under Wraps

Manufacturers of medical devices must inform the U.S. Food and Drug Administration (FDA) whenever they discover that one of their products may have caused an injury. But, according to the Minneapolis Star Tribune, the FDA “has accepted late reports that cover hundreds of thousands of incidents, sometimes years after the fact, and has created a program that lets device makers keep the details out of view.” These “secret summaries” leave everyone in the dark, unless they go through a lengthy Freedom of Information Act process. In addition, allowing manufacturers to privately summarize large numbers of adverse events long after the deadline “could give them a way to hide safety issues,” according to the Star Tribune. “Whenever you have thousands of reports and you list them as one...that’s not transparency at all,” Madris Tomes, a former FDA official, told the newspaper. Tomes left the FDA to found a search engine, Device Events, that tracks device performance. “Physicians might change their minds if they knew how many problems there really were,” she said. For the article, click here. For information about a Citizens Petition filed by attorney Jonathan Emond in August 2016 to prevent the FDA from going through with its proposed reclassification of the device used to deliver electroconvulsive treatment (ECT) from Class III to Class II, click here.

Thanks, @JeanneLenzer1

Free Guide to Voting Rights for People with Psychiatric Disabilities

In time for Election Day, the Bazelon Center for Mental Health Law, the Autistic Self-Advocacy Network, the National Disability Rights Network and Schulte Roth and Zabel LLP are offering a free 55-page booklet entitled Vote. It’s Your Right. A Guide to the Voting Rights of People with Mental Disabilities. “The opportunity to participate in the democratic process is a fundamental right, yet many Americans with disabilities face barriers to exercising their rights as citizens. [This guide] explains how federal laws protect the voting rights of people with disabilities, with a chart of state laws affecting the voting rights of people with disabilities.” To download a free copy, click here.

The U.S. Takes Steps to Strengthen Parity in Insurance Coverage for Mental Health and Substance Use Conditions

On October 27, the federal Mental Health and Substance Use Disorder Parity Task Force, created by President Obama in March 2016, issued its final report, which includes a series of actions and recommendations to help ensure better implementation of parity, to enhance understanding of how parity works, and to ensure appropriate oversight and enforcement of parity protections. The actions include a $9.3 million allocation from the Centers for Medicare & Medicaid Services to help states enforce parity protections; the beta version of a new parity website to help people find the appropriate federal or state agency to help with their parity complaints and appeals; a guide from the Substance Abuse and Mental Health Services Administration and the Department of Labor to help people understand their rights; and other actions. For the government fact sheet, which includes a link to the full report, click here.

STAR Center Hosts a National Networking Call for People of Color on November 9 at 2 p.m. ET

The STAR Center has launched Equity and Inclusion in Leadership: A National Networking Call for People of Color “who are interested in increasing the number of people in organizational leadership roles who are African-American, Native American/American Indian/Alaskan Native, Latino/Hispanic or Asian/Pacific Islanders.” The next call is on November 9 at 2 p.m. ET; the calls will convene every month. The STAR Center writes: “Our hope is that this opportunity for people of color to network and support each other’s leadership efforts across the country and in our target states/regions will make a measurable and remarkable difference towards eliminating the leadership and health disparities we currently experience across the country.” To register, click here.

Could Peer-run Crisis Respites Take the Place of Inpatient Psychiatric Beds?

Hospital emergency rooms are a “mental health dumping ground,” according to a recent MedPageToday article reporting on an online survey of 1,716 emergency physicians nationwide. Rebecca Parker, MD, president of the American College of Emergency Physicians, told MedPageToday that “…almost one-quarter of our poll responded that they have patients waiting two to five days for a psychiatric bed.” But many people who have experienced psychiatric hospitalization believe that there is a much better alternative: peer-run crisis respites, which have a proven track record. “I believe we have a significant opportunity to promote peer-run respites as a response to the ugly problems that ERs currently face,” said Val Marsh, executive director of the National Coalition for Mental Health Recovery, whose membership includes numerous statewide peer-run organizations and others. For a partial list of studies demonstrating the effectiveness of peer-run crisis services, click here. For a Clearinghouse publication about peer-run crisis respites, click here. For the MedPage Today article, click here.

Peerlink NTAC Offers a Free Webinar on Estate Planning and Empowerment

This free one-hour webinar on Estate Planning and Empowerment, on November 17 at 2 p.m. ET, will show how every person can benefit from having an estate plan, said Peerlink National Technical Assistance Center (NTAC). “Without one,” Peerlink NTAC writes, “the laws of the state in which you live will determine who will care for your children if you die or become incapacitated, and who will get your stuff: not just money, but other belongings as well.” The webinar will show how an estate plan “ensures that your wishes will be heard and your choices followed, and how it often makes people feel empowered to take on other life challenges.” For more information and to register, click here.

Higher Rates of Substance Use and Mental Health Conditions Are Reported among LGBT Individuals

For the first time, a new report from the Substance Abuse and Mental Health Services Administration (SAMHSA) focuses on patterns of substance use and mental health conditions among adults of different sexual orientations. Overall, the report finds that adults who identify as lesbian, gay or bisexual have a higher prevalence of substance use and mental health conditions than adults who identified as heterosexual. However, lesbian, gay or bisexual adults were significantly more likely than heterosexual adults to receive needed treatment. “This report offers unprecedented insight into the behavioral health needs of lesbian, gay, and bisexual Americans — people critical to our community whose health concerns have often been overlooked,” said SAMHSA deputy principal administrator Kana Enomoto. “SAMHSA is working on efforts to reduce the impact of substance use and mental illness among LGBTQ Americans.” For more information and to download the free report, click here.

TU Collaborative Creates Manual on Welcoming Work Environments

The Temple University Collaborative on Community Inclusion has published a manual entitled Creating Welcoming Mental Health Work Environments: Recommendations for Fully Embracing and Supporting Clinical Staff with Mental Illnesses. “This document focuses on strategies for creating more welcoming work environments within mental health agencies for staff members with mental health conditions,” the TU Collaborative writes. “It provides readers — those who have been diagnosed with a mental health issue as well as agency CEOs, board members, supervisors, managers, and anyone else that might derive benefit from our suggestions — with a set of ideas and strategies that can be implemented to better support agency colleagues by creating and maintaining a positive, supportive, and welcoming work environment that enhances work life for all employees.” To download the free manual, click here.

Doors to Wellbeing Presents Webinar on Creating and Managing a Peer-run Business

As part of its monthly webinar series on the last Tuesday of every month, Doors to Wellbeing will present a free webinar on Creating and Managing a Peer-run Business on November 29 at 2 p.m. ET. The webinar promises to cover “the 3 W’s (why, what, where) you want to start a peer-run or owned business,” “how to start,” and how to “identify your best supporters and what’s in it for them.” To register, click here.

SAMHSA Publishes Bulletin on Selected Community-Level Approaches to Disaster Behavioral Health

This issue of SAMHSA’s Supplemental Research Bulletin “travels across the United States and through all stages of disaster preparedness, response, and recovery in examining community-level approaches to disaster behavioral health. While not meant to be comprehensive, the issue zeroes in on approaches that exemplify the benefits of a community-level approach, looking at research on how they are structured and how effective they are.” For more information and to download Stronger Together — Selected Community-Level Approaches to Disaster Behavioral Health, click here.

Recovery in the Bin Is a UK-Based User-led Group for People with a Psychiatric Diagnosis

Recovery in the Bin describes itself as “non-religious and unassociated/unaffiliated to any mental health organisation. We’d like to keep it that way.” Among the other statements on the group’s home page is the following: “We believe that there are core principles of ‘recovery’ that are worth saving, and that the colonisation of ‘recovery’ undermines those principles, which have hitherto championed autonomy and self-determination. These principles cannot be found in a one size fits all technique, or calibrated by an outcome measure.” The website’s home page, which includes a link to the group’s 20 key principles, is https://recoveryinthebin.org/

Thanks, @AnneCooke14

Tumblr Moves Ahead with Its Campaign to Promote Mental Health Awareness

The social media platform Tumblr is inviting users to participate in the creation of a Community Quilt centered on mental health awareness, through a collaboration with ThriveNYC and Chirlane McCray, first lady of New York City. The project is part of its Post It Forward campaign, whose goal is to counter the prejudice associated with mental health conditions. Tumblr users can create and submit original artistic swatches and panels to be included in a quilt installation that will be on display in New York City and online here. Mental Health Weekly writes: “Each patch represents a creative expression around changing the conversation around mental health and an individual’s relationship with mental illness, whether battling it themselves or helping others with their struggles. For every patch a user submits, Tumblr will donate $1 to one of three different charities who support mental health, up to a total aggregate donation of $20,000. The user submitting the patch will be given an option of choosing which charity — the National Alliance on Mental Illness, The Trevor Project or The Steve Fund — their original panel will benefit.” To submit a panel, click here.

In the Fight Against Demonizing People with Mental Health Conditions at Halloween, Good News and Bad News

Determined advocacy recently won some battles in the fight to stop inflaming the prejudice associated with mental health conditions around Halloween. After a concerted effort by a variety of mental health stakeholders — including people with lived experience, family members, allies and friends (and thanks to all who responded to the action alert in the September 2016 Key Update!) — two North American theme park chains either cancelled their exhibits featuring "a psychiatric patient with demonic powers" (Cedar Fair Entertainment Co.) or swapped out “grunting inmates" and "maniacal inmates" for zombies (Six Flags). But this is a fight that never seems to be won: Spirit Halloween stores said that, for this year, they will continue to sell their Asylum Wall Kits (click here); and there is a lot of additional Halloween paraphernalia out there that is just as bad or worse (click here). Even New York City’s Metropolitan Museum of Art got into the act, with a replica of the Bates Hotel from Alfred Hitchcock’s movie Psycho (click here), on view from April 19, 2016, through Halloween. For media coverage of the successful advocacy initiatives, see Mental Illness Is a Health Condition, Not Halloween Entertainment (click here), Mental Illness Is Not a Horror Show (click here), and Powerful Advocacy Has Shut Down Halloween “Attractions” That Ramp Up Prejudice (click here).

Alternatives 2017 to Be Held in Boston August 18-21! Save the Date!

The National Empowerment Center (NEC) will organize and host the 2017 Alternatives Conference at the Boston Park Plaza from Friday, August 18, through Monday, August 21, 2017. “The Alternatives Conference 2017 website is in development and will have further information at www.power2u.org,” NEC writes. “Announcements will be sent when further information is available, which will include the Call for Presentations, an online submission link, hotel reservation information, and a direct link to online room reservations.” The Alternatives conference is sponsored in part by SAMHSA.

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted.

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 13, No. 4, October 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

 

 

The Key Update, Volume 13, Number 3 -- September 2016

Key Update, September 2016

Volume 13, Number 3

Action Alert: Mobilize to Shut Down Horrendous Haunted House Exhibit That Inflames Prejudice

A new Halloween virtual reality (VR) exhibit at three North American amusement parks “admits visitors to a mental hospital where a psychiatric patient with demonic powers is on the loose,” the Los Angeles Times reported. At the time, the exhibit was called Fear VR: 5150—the California code for a 72-hour involuntary psychiatric commitment. “The VR experience follows a demonically possessed patient named Katie, who unleashes chaos throughout the hospital and takes mental control of the medical staff,” the LA Times reported. The three amusement parks—Knott’s Berry Farm and Great America in California and Wonderland in Canada—are operated by Cedar Fair Entertainment Co. Responding to an email, a Knott’s Berry Farm (KBF) spokesperson wrote: “It is never our intent to be disrespectful to any individual or group. The virtual reality experience is actually built around zombie-like monsters and paranormal activity in a hospital setting.” Following additional advocacy, the KBF spokesperson wrote again to say, “Cedar Fair recognizes that the press depiction of our experience, while inaccurate, has raised concerns around the insensitivity to the stigmas surrounding mental health. Part of the confusion stems from the use of the code 5150 in the experience’s original name. For that reason, the name has been changed to FearVR.” But the “experience” is apparently unchanged. In a somewhat different take, on Google, the Great America description of the exhibit reads: “...Strapped to a hospital wheelchair, you're at the mercy of maniacal hospital staff.” But the link is dead. Advocacy works! Please email mouimet@cedarfair.com, pbender@cedarfair.comzimmerman@cedarfair.com, pr@knotts.com, investing@cedarfair.com and media@cedarfair.com and urge that they cancel or completely revamp the exhibit. Zombies would be good! For the LA Times article, click here. For a follow-up story in the Voice of OC, which highlights the power of advocates’ voices, click here.

Action Alert Part 2: PSYCHO-PATH Haunted Aslyum Created by Another Theme Park Chain

Now comes a competing theme park chain, Six Flags, with PSYCHO-PATH Haunted Asylum! “The inmates of the Asylum have broken loose and will have you screaming in sheer terror as they taunt and torture their newest victims” (click here). To contact Six Flags, click here or write Six Flags New England John Winkler, Park President, Route 159, 1623 Main St, P.O. Box 307, Agawam, MA 01001, and urge that they revamp the exhibit to a ghosts-ghouls-goblins-zombies-other-Halloween-monsters experience.

HHS Issues Game-Changing Rules That Promise Increased Research Transparency

The U.S. Department of Health and Human Services has taken a step toward creating more transparency in clinical research, NPR has reported. Sharing the article on Twitter, prominent psychiatrist @AllenFrancesMD, author of Saving Normal, wrote, "Wonderful new rules force much more honest reporting of clinical research so that negative results don't get buried." According to NPR, "Since 2007, scientists have been required to post results of experiments on a government website, https://clinicaltrials.gov/. But many top universities and drug companies have failed to meet those standards, according to academic studies and investigative journalists." The new rules take effect in January 2017; researchers will have 90 days to comply. For the NPR article, click here.

Participants Are Sought for Study on Peer Involvement/Leadership in Early Intervention Policy/Programs

An international peer-led study based at Stanford University is seeking participants for a survey aimed at understanding and bringing to the forefront the experiences of peers/service users who work or volunteer in early-intervention-in-psychosis settings or related initiatives (e.g., an early intervention planning or advisory council). Targeted participants include peer support specialists, peer youth workers and others, as well as individuals involved in early intervention research, program development, policy or evaluation. A lead researcher writes: “As many of you know, early intervention services are rapidly gaining tremendous traction in the U.S. (and already have in many countries around the world). Unfortunately, peer/user leadership remains (often seriously) under-supported, peer leadership limited, and no study, to date, has sought to capture the perspectives of those peers who actually work or volunteer in these services or related initiatives across national borders.” This research hopes to change that. For more information and a link to the survey, click here.

SAMHSA Makes Available Many Resources to Prevent Suicide at the Community Level

“September marks National Suicide Prevention Month,” SAMHSA writes, “but suicide is a pressing public health issue throughout the year. Disasters may increase suicidal thoughts, planning, and attempts. Individuals affected by disaster may also experience several risk factors for suicide, such as job or financial loss, loss of relationships, and lack of social support and health services. Following are resources you can use to ensure that suicide prevention is part of your disaster preparedness and response efforts; to refer people to sources of information and support; and to develop suicide prevention programs for college students, senior living communities, and American Indians and Alaska Natives.” For links to the many materials and resources, click here.

Report on Smart Solutions to Our Growing Female Prison Population Is Available

The Oregon Justice Resource Center has issued An Alternative to Women’s Prison Expansion in Oregon: Presenting Smart Solutions to Our Growing Female Prison Population and Identifying Who Has the Power to Reduce It. “The relentless growth in Oregon’s women’s prison population over the last 40 years shows why Oregonians can no longer hope to incarcerate their way out of problems such as trauma, addiction, mental illness, homelessness and poverty,” the report notes. Three of its suggested six “fixes” are “Expanding eligibility and use of the family sentencing alternative pilot program,” “Streamlining the clemency process,” and “Early release for terminally/severely ill, permanently incapacitated or elderly prisoners.” For the other solutions and the rest of the document, click here.

Thanks, @pdxlawgrrrl

New Resources, Including a Webinar, Are Available from the TU Collaborative on Community Inclusion

Temple University Collaborative on Community Inclusion has published three new guides: Addressing Sexuality and Intimacy Interests of Persons with Mental Health Conditions: Recommendations for Program Administrators (for more information and to download, click here), Adding Recreation to Your Coping Toolbox: An 8-Week Protocol (to download, click here), and Peer Facilitated Community Inclusion Toolkit (click here). In addition, the TU Collaborative will sponsor a one-hour webinar, Supporting College Students with Psychiatric Disabilities, on October 11 at noon ET. For more information and to register, click here.

National Drug Court Institute Issues Report on Drug Courts, Mental Health Courts, Others

The National Drug Court Institute recently issued Painting the Current Picture: A National Report on Drug Courts and Other Problem-Solving Courts in the United States. Besides drug courts, the 88-page report covers DUI courts, veterans treatment courts, mental health courts (MHCs), and other specialized courts. According to the report, “Evidence is convincing that MHCs significantly reduce criminal recidivism compared to probation and other community-based dispositions for offenders with mental health disorders (DeMatteo et al., 2013; Goodale et al., 2013; Heilbrun et al., 2012).” However, critics have raised such concerns as forced medication and/or civil commitment requirements, lack of referral sources/mental health agencies for treatment mandates, stigmatization, longer “sentence” mandates, overcriminalization of individuals with mental health conditions, and coercion to plead guilty. For the report, click here. For criticism of mental health courts, click here.

CBT Is as Effective as 2nd-Generation Antidepressants in Relieving Mild to Severe Depression

Comparing Talk Therapy and Other Depression Treatments with Antidepressant Medicines: A Review of the Research for Adults is a new “plain language”publication available from the Agency for Healthcare Research and Quality (AHRQ). It is “based on an AHRQ systematic review that found cognitive behavioral therapy [CBT] is as effective as second-generation antidepressants in relieving symptoms of mild to severe major depressive disorder. Second-generation antidepressants generally lead to a higher risk of adverse events (including nausea, vomiting, diarrhea, fatigue, headache, insomnia and weight gain) when compared with behavioral therapy.” The publication can be downloaded here. A publication for clinicians is also available (click here).

Thanks, Fran Hazam

Announcing Early Career Data Connections via Live & Learn and the TU Collaborative

Live & Learn writes: “This [Early Career Data Connections] initiative facilitates connections between early career investigators and researchers at the Temple University Collaborative on Community Inclusion of Individuals with Psychiatric Disabilities to provide those early in their careers access to large, federally funded data sets to conduct publishable analyses that can advance the research agenda…Our focus is on promoting opportunities for researchers with lived experience of the topics they study, or those who incorporate such perspectives into their research.” For more information, click here.

 

Scientific American Reports on How the FDA Manipulates the Media

A recent report in Scientific American notes that the “U.S. Food and Drug Administration [FDA] has been arm-twisting journalists into relinquishing their reportorial independence.” “[T]he FDA assures the public that it is committed to transparency,” the article continues, “but the documents show that, privately, the agency denies many reporters access—including ones from major outlets such as Fox News—and even deceives them with half-truths to handicap them in their pursuit of a story. At the same time, the FDA cultivates a coterie of journalists whom it keeps in line with threats.” For the story, click here.

 

Thanks, Carl Elliott @FearLoathingBTX

Report on Segregation of People with Mental Health Conditions in Prison Recommends Solutions

A report by the AVID (Amplifying Voices of Inmates with Disabilities] Prison Project, published on September 8, 2016, focuses on the work of the protection and advocacy (P&A) system to promote the rights of individuals with mental health conditions in solitary confinement, including both non-litigation and litigation strategies. The report, Locked Up and Locked Down: Segregation of Inmates with Mental Illness, includes “federal and state recommendations to build on the momentum gained by the P&As and their partners.” For the free report, click here.

Thanks, Howard Trachtman

New Rules Granting People in MA Psychiatric Hospitals Daily Outdoor Access Spark Some Resistance

Despite rules recently issued by the Massachusetts Department of Mental Health requiring hospitals to allow people with mental health conditions access to the outdoors, up to 20 hospitals (about a third of psychiatric hospitals statewide) plan to seek waivers, citing lack of space. “The rules present a tug-of-war over patients’ rights, doctors’ judgment, and the logistical demands of running a hospital in an urban environment,” according to a STAT News article. An interviewee who had been confined on a psych unit and had repeatedly been denied outdoor access told STAT, “I feel like my stay would have been cut in half if I had had access to fresh air.” For the article, click here. In related research, scientists have found that contact with nature has a positive physical impact, resulting in better mental health (click here).

Thanks, Elizabeth Saenger

An Opera Based on the Life of Elyn Saks Can Be Viewed for Free Online

An opera about Elyn Saks, the MacArthur Award-winning law professor whose memoir chronicled her recovery from a diagnosis of schizophrenia, is available for free viewing on the Mental Health America website. Saks co-wrote the libretto for “The Center Cannot Hold” with composer/psychiatrist Kenneth B. Wells. “I am delighted and just a little overwhelmed to have Ken make an opera out of my story,” Saks told MHA. “I feel as if Ken has captured my experience and my voice.” To view the opera, click here and scroll down to “View the Full Opera.”

THE FOLLOWING TWO ITEMS ARE STILL RELEVANT AND IMPORTANT!

Time and Location Change for March and Rally to Close Rikers Island Tomorrow, September 24, in NYC

Tomorrow, September 24, at 1 p.m., people will gather at a march and rally with the goal of shutting down Rikers Island, an infamous correctional facility in New York City. As The New York Times has editorialized, “The sensible thing to do with Rikers is to close it.” Just Leadership USA, which is organizing the event, is helmed by Glenn E. Martin, who served time on Rikers as well as several years in a state prison and has become a nationally known advocate for criminal justice reform. In a long interview published by The Atlantic, Martin said, “It seems like such an abomination for us to have this facility continue to operate.” For the revised details about the event, click here.

Save the Date! March for Dignity & Change in Mental Health in Washington, DC, October 10!

Join the march against the dehumanization of, and discrimination and prejudice against, people living with mental health conditions on October 10 in Washington, DC. To learn more, see www.DestinationDignity.org.

 

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted.

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 13, No. 3, September 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

The Key Update, Volume 13, Number 2 -- August 2016

Key Update, August 2016

 Volume 13, Number 2

 

Action Alert: Urge Your Senators to Support S. 2680 Without Amendments or Changes!

 Please contact your U.S. Senators by this Friday, September 2, and urge them to support S. 2680 (the Mental Health Reform Act of 2016) without amendments or changes. H.R. 2646 (the Helping Families in Mental Health Crisis Act of 2016) recently passed the House of Representatives nearly unanimously. The Senate bill is better than the House bill and it is important that it pass “as is,” according to the National Coalition for Mental Health Recovery (NCMHR). NCMHR notes that, among its provisions—and unlike H.R. 2646—S. 2680 does not expand forced treatment; includes representation of people with lived experience; does not mention “anosognosia”; incorporates mental health recovery language throughout the bill; and calls for better education about the Health Insurance Portability and Accountability Act (HIPAA) rather than providing a path to relaxing HIPAA confidentiality protections, as does H.R. 2646. Numerous other disability rights advocacy organizations support S. 2680. These include the Consortium for Citizens with Disabilities (click here), the National Association of State Mental Health Program Directors (click here), and the Autistic Self Advocacy Network (click here). For more about what is wrong with mandated outpatient treatment (also known as Assisted Outpatient Treatment or Involuntary Outpatient Commitment), see “Forced Mental Health Treatment Will Not Prevent Violent Tragedies,” by Phyllis Solomon, Ph.D., of the University of Pennsylvania (click here). For information about how to contact your Senators, click here. (For the most recent text of S. 2680 that is available online, click here and then scroll down past Sec. 608 of the version that is largely crossed out until you get to the clean text.)

 

“National Restraint Data Are Riddled with Errors,” Report Says

Although seclusion and restraint are now understood to be traumatizing and only to be used as a last resort “when less-restrictive measures have failed and safety is at severe risk” (to quote the Substance Abuse and Mental Health Services Administration), restraint is actually used much more frequently, a recent exposé by MedPage Today/VICE News asserts. However, because of the many problems and inconsistencies with the data, it seems to be impossible to tell what is really going on. According to the MedPage Today article, the latest figures from the Centers for Medicare and Medicaid Services (CMS), covering 2014, indicate that the national average is 0.41 hours of restraint per 1,000 patient hours. Meanwhile, MedPage Today reports that the “restraint rates shifted drastically across hospitals nationwide from the last six months of 2013 to the full 2014 data, ranging from decreases of 800 hours for every 1,000 (Park Ridge Health in North Carolina) to increases of 60 hours for every 1,000 (Frisbee Memorial Hospital in New Hampshire). And CMS now says these [figures] are likely wrong.” For the article, click here. For SAMHSA’s Alternatives to Seclusion and Restraint, click here.

Thanks, Val Marsh @valncmhr

Hillary Clinton Releases Her Mental Health Agenda

On August 29, Hillary Clinton released her “comprehensive plan to support Americans living with mental health problems and illnessesby integrating our healthcare systems and finally putting the treatment of mental health on par with that of physical health.” The plan includes progressive statements about the importance of peer support to recovery, and promises “a full range of housing and employment support for individuals with mental health problems, to help them lead independent and productive lives.” It also includes increasing crisis intervention training for police officers, and expanding funding for the Protection and Advocacy for Individuals with Mental Illness (PAIMI) program. (It is not perfect, and you are invited to form your own judgment. However, as Voltaire said, “The perfect is the enemy of the good.”) To read Hillary’s plan, click here. (Note: We will share Donald Trump’s mental health platform as soon as it is available.)

Updated Directory of Peer Specialist Certification and Training Programs Is Available for Free

“As of July 2016, 41 states and the District of Columbia have established programs to train and certify peer specialists and two states are in the process of developing and/or implementing a program,” according to a newly revised directory published by the Texas Institute for Excellence in Mental Health and the University of Texas at Austin. The directory—Peer Specialist Certification and Training Programs, National Overview 2016—continues: “A review…is needed so that states developing training/certification programs may look to those that are more established for advice and guidance, while established programs may benefit from understanding the similarities and differences between existing programs. This information may also be useful to policymakers and program developers as they create the infrastructure necessary to support the peer specialist workforce to remain relevant and financially sustainable in a changing healthcare environment.” To download the free document, click here.

Locked Wards Are “No Safer,” New Study Reports

Locked inpatient wards do not reduce suicide attempts or unauthorized absence among individuals with mental health conditions, according to a 15-year observational study of some 145,000 people in 21 German psychiatric hospitals from 1998 to 2012. “In fact, a locked-door policy probably imposes a more oppressive atmosphere, which could reduce the effectiveness of treatments, resulting in longer stays in hospital,” said the lead author of the study, published online in Lancet Psychiatry. “The practice may even lend motivation for patients to abscond.” For more information, click here.

Vera Institute Releases Report on Women in Jails

 According to a new report from the Vera Institute of Justice, women in jail are the fastest growing correctional population in the U.S. The number of women in prison has increased 14-fold in 44 years, from under 8,000 in 1970 to nearly 110,000 in 2014. The report examines the “surprisingly little research” on women in jail, “explores how jail can deepen the societal disadvantages they face, and provides insight into what drives women’s incarceration and ways to reverse the trend.” For more information and to download a free copy of the report, Overlooked: Women and Jails in an Era of Reform, click here. For an article in Marie Claire entitled “The Number of Women in Jail is Up 1,260%--What Are They Doing wrong?” click here.

Researchers Seek Peer Providers for Study on Job Satisfaction

Are you a peer provider working in a mental health setting? Researchers from the Department of Disability & Addiction Rehabilitation at the University of North Texas are conducting a confidential half-hour Internet survey to better understand your job satisfaction. You must be over age 18, living in the community, and employed either part time or full time as a peer provider. Participants will receive a $10 gift card. “Your participation may help to improve training programs and other services for peer providers,” the researchers say. Questions? Contact Jessica Brooks, Ph.D., 940.565.4938, jessica.brooks@unt.edu. To participate, click here.

Thanks, Jessica Wolf, Ph.D.

March and Rally to Close Rikers Island Planned for September 24 in NYC

On September 24 at 2 p.m., people will gather at a march and rally with the goal of shutting down Rikers Island, an infamous correctional facility in New York City. As The New York Times has editorialized, “The sensible thing to do with Rikers is to close it.” Just Leadership USA, which is organizing the event, is helmed by Glenn E. Martin, who served time on Rikers as well as several years in a state prison and has become a nationally known advocate for criminal justice reform. In a long interview published by The Atlantic, Martin said, “It seems like such an abomination for us to have this facility continue to operate.”  For details about the event, click here.

Ninth Annual World Hearing Voices Congress in Boston August 16-18, 2017

It’s not too soon to start planning to attend the Ninth Annual World Hearing Voices Congress, to be held at Boston University August 16-18, 2017! “The Hearing Voices Movement will be celebrating its 30th Anniversary on U.S. soil!...Topics range from groups, personal testimony, and voice dialogue, to research, artistic endeavor and more! The Hearing Voices Movement consists of over 30 national networks from around the world joined by shared goals and values, including a fundamental belief that…hearing voices is not, in itself, an indication of illness [click here].” In fact, it may not be experienced as auditory at all, according to a study by Drs. Nev Jones and Tanya Luhrmann: click here. “All are welcome, with a special invitation extended to fellow voice hearers. Stay tuned for more information by subscribing to our newsletter at http://www.hearingvoicesusa.org. Interested in sponsoring or underwriting this event? Email 2017Congress@hearingvoicesusa.org.” In a related story, The New York Times recently gave respectful coverage to the Hearing Voices Network as well as Open Dialogue in “An Alternative Form of Mental Health Care Gains a Foothold.”

Researchers Describe a “New Zero-Risk Treatment for Mania” 

A Norwegian study reported in Psychiatric Times notes that people who experience mania may benefit from darkness. More than 20 years ago, the National Institute of Mental Health found that, in a very small sample—one person—darkness was able to replace the need for medication as treatment for mania. Subsequently, researchers found that it is “blue light” that needs to be blocked in order to get the darkness effect. Wearing amber-colored safety glasses is one way to accomplish this. For the Psychiatric Times story, with links to more information, click here.

Reducing Incarceration by Rethinking America’s Approach to Violence

On August 23, The Justice Policy Institute (JPI) published Defining Violence: Reducing Incarceration by Rethinking America's Approach to Violence. “While the national conversation and policy reforms have focused on reducing the incarceration of people convicted of nonviolent offenses, just under half the people in prison have been convicted of a violent crime. In Defining Violence, JPI says it's impossible the U.S. will be able to lower its incarceration rate significantly without changing how the justice system treats violent crimes. Defining Violence surveys the current debate in state legislatures and Congress on criminal justice reform...” For more information and to download the free report and other documents, click here.    

Planning Continues for Alternatives 2016

Keynote speakers at Alternatives 2016, the 30th annual conference organized by and for individuals with mental health conditions, range from seasoned veterans to youth leaders. The speakers during Monday evening’s History Panel will be Mike Finkle, executive director of On Our Own of Maryland (the state where the first Alternatives conference was held, in 1985); Joseph Rogers, the founder and executive director of the National Mental Health Consumers’ Self-Help Clearinghouse, the first national technical assistance center serving the movement for social justice of individuals with psychiatric histories; and Sally Zinman, a founder of the California Network of Mental Health Clients (the first statewide consumer/survivor network) and currently executive director of the California Network of Mental Health Peer Run Organizations (CAMHPRO). For details about the other plenary session speakers, click here. For more information about the conference, to be held in San Diego September 19-23, click here.

Study Says “Being Transgender Is Not a Mental Disorder”

Although some influential sources continue to categorize being transgender as a mental disorder, a new study has found that “the social rejection and violence that many transgender people experience appear to be the primary source of their mental distress, as opposed to the distress being solely the result of being transgender,” Time magazine reports. “Stigma associated with both mental disorder and transgender identity has contributed to the precarious legal status, human rights violations and barriers to appropriate care among transgender people,” said the study’s author, quoted in Time. The study, involving interviews with 250 transgender people, was published in Lancet Psychiatry in July. For the Time article, click here. For an article in The New York Times entitled “Transgender on the Force,” about New York City police officers, click here.

Thanks, STAR Center @ConsumerStar

Baltimore Police Department Cited for Unreasonable Force Against People with Mental Health Conditions

In a report that is harshly critical of the Baltimore Police Department (BPD), the U.S. Department of Justice Civil Rights Division cited the Department for using “unreasonable force against individuals with a mental health disability and those in crisis.” On page 80 of the 164-page report, it said that the BPD “fails to make reasonable modifications when interacting with individuals with mental health disabilities.” To download a free copy of the report, published on August 10, click here.

SAMHSA Sponsors Free Webinar for Peer Recovery Coaches Helping People Who Have Opiod Use Disorders

On September 9, 2016, at noon ET, SAMHSA will sponsor a free 90-minute webinar called “What Peer Recovery Coaches Need to Know about Medication-Assisted Recovery for People with Opioid Use Disorders.” For more information and to register, click here.

A National Study of Challenges Facing Nonprofit Fundraising Is Available

UnderDeveloped—A National Study of Challenges Facing Nonprofit Fundraising “reveals that many nonprofit organizations are stuck in a vicious cycle that threatens their ability to raise the resources they need to succeed…The question is how do nonprofits break the cycle and begin laying the groundwork for sustainable fundraising success.” For this free 36-page document, which includes suggested solutions (beginning on page 23), click here. For another document on the same subject, Fundraising Bright Spots: Strategies and Inspiration from Social Change Organizations Raising Money from Individual Donors, click here.

Lobotomy Files: Forgotten Soldiers Is a Special Report by the WSJ

“The U.S. lobotomized some 2,000 veterans.” So begins a special report by The Wall Street Journal. It continues: “The U.S. government lobotomized roughly 2,000 mentally ill veterans—and likely hundreds more—during and after World War II, according to a cache of forgotten memos, letters and government reports unearthed by The Wall Street Journal. Besieged by psychologically damaged troops returning from the battlefields of North Africa, Europe and the Pacific, the Veterans Administration performed the brain-altering operation on former servicemen it diagnosed as depressives, psychotics and schizophrenics, and occasionally on people identified as homosexuals.” For the report, click here.

Researchers Seek Study Participants Who Live With, or Care for Someone With, Tardive Dyskinesia

The Tardive Dyskinesia Group writes: “We are looking for people who live with tardive dyskinesia or loved ones who care for someone with tardive dyskinesia. We are looking for 25+ people to provide information and talk about their experiences with this movement disorder. It will be a 3-part study with a professional opinion research company. Compensation may be available for full completion. Please email us at TardiveDyskinesiaGroup@yahoo.com or message us at https://www.facebook.com/TardiveDyskinesiaGroup/ or call 703.398.3713 and leave us a message.”

Thanks, NYAPRS E-News

NYAPRS 34th Annual Conference to Be Held September 14-16

The 2016 annual conference of the New York Association for Psychiatric Rehabilitation Services (NYAPRS) will be held September 14-16, 2016, at the Hudson Valley Resort & Spa in Kerhonkson, N.Y. The theme is “Advancing Whole Health & Healthy Communities: The Pathway to Population Health.” To register and for more information, click here.

Save the Date! March for Dignity & Change in Mental Health in Washington, DC, October 10!

Join the march against the dehumanization of, and discrimination and prejudice against, people living with mental health conditions on October 10 in Washington, DC. To learn more, see www.DestinationDignity.org.

 

Gun Violence Archive Provides Information about Gun-Related Violence in the U.S.

The Gun Violence Archive (GVA) is a not-for-profit corporation formed in 2013 to provide free online public access to accurate information about gun-related violence in the United States. GVA will collect and check for accuracy, comprehensive information about gun-related violence in the U.S. and then post and disseminate it online at www.gunviolencearchive.org.

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 13, No. 2, August 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

The Key Update, Volume 13, Number 1 - July 2016

Key Update, July 2016

Volume 13, Number 1

New UN Resolution on Mental Health and Human Rights Has Been Adopted

The United Nations Human Rights Council recently adopted a Resolution on Mental Health and Human Rights; it highlights the prejudice toward, discrimination and violence against, and forced treatment of “persons with mental health conditions or psychosocial disabilities,” and “the right of everyone to full inclusion and effective participation in society.” Portugal and Brazil led the effort to pass the resolution, which was cosponsored by at least 61 countries. Calling the resolution “good news,” Professor Peter Kinderman, president of the British Psychological Society, said: “If we used a ‘rights’ approach rather than a ‘disease’ approach to mental health, we would come to some very different decisions about involuntary detention, forcible treatment, the use of inappropriate diagnoses and excessive reliance on the use of medication, and even on the relationship between mental health and welfare systems.” For the resolution, click here. For more information, click here.

Thanks, Judge Ginger Lerner-Wren @JudgeWren

Doors to Wellbeing Continues Its Monthly Webinar Series: Next One Is Today (July 26)!

Doors to Wellbeing is continuing its monthly webinar series with three free webinars, all at 2 p.m. ET. On July 26, the topic is “Supporting CPS Staff in Direct Advocacy Work,” presented by Elisha Coffey, Fran Hazam and Yvette Pate, all of the Mental Health Association of Southeastern Pennsylvania. On August 30, the subject is “Mental Wellness During Unemployment for Peers,” presented by Rachelle Weiss of Doors to Wellbeing. And on September 27, Lori Ashcraft of Recovery Innovations Recovery Opportunity Center will present “The Spirit of Bouncing Beyond.” For more information and to register, click here. For a link to archived webinars, click here.

33,000+ Annual Gun Deaths in the U.S. Are Analyzed; Washington Post Tracks Fatal Shootings of Civilians by Police

FiveThirtyEight—a website that focuses on opinion poll analysis, politics, economics, and sports blogging—has created an interactive graphic “exploring the more than 33,000 annual gun deaths in America and what it would take to bring that number down. See our stories on suicides among middle-age menhomicides of young black men and accidental deaths, or explore the menu for more coverage.” For the analysis, click here. In a related story, The Washington Post is documenting “shootings in which a police officer, in the line of duty, shoots and kills a civilian…The Post is not tracking death of people in police custody, fatal shootings by off-duty officers or non-shooting deaths.” According to the Post, 537 people have been shot and killed by the police so far in 2016. For the story, click here. At the same time, the Marshall Project recently published “13 Important Questions About Criminal Justice We Can’t Answer—and the government can’t either.” For that article, click here.

Recommendations Are Published for Ending Discrimination Associated with Mental Health and Substance Use Conditions

The National Academies has published a 138-page manual—Ending Discrimination Against People with Mental and Substance Use Disorders: The Evidence for Stigma Change—that includes recommendations for how to reduce discrimination and prejudice against individuals with mental health and/or substance use disorders. The sixth and final recommendation is that the “Substance Abuse and Mental Health Services Administration should work with partners to design, support, and assess the effectiveness of evidence-based peer programs to support people with mental and substance use disorders along the path to recovery and to encourage their participation in treatment.” To download the manual, click here.

A Rich Variety of Pre-Conference Institutes Will Precede the iNAPS Conference

From August 22 through 25, prior to the 2016 conference of the International Association of Peer Supporters (iNAPS)—in Philadelphia at the Sheraton Society Hill August 26-28, 2016—an array of pre-conference events will take place in and around Philadelphia. For more information about the conference, click here. For information about the pre-conference institutes, click here. Among the institutes is Bluebird’s Flying Arts Fest on August 23: click here.

Prison Activist Resource Center Offers Free Prisoner Resource Directory

A 24-page resource directory is available for free download from the Prison Activist Resource Center, “a prison abolitionist group…committed to exposing and challenging the institutionalized racism, sexism, ableism, heterosexism, and classism of the Prison Industrial Complex.” Each of the resources includes a mailing address and phone number. PARC’s contact information is PO Box 70447, Oakland, CA 94612, 510.893.4648, and they try to respond to individual requests. The directory is organized under such headings as nationwide and state-based organizations; groups that focus on the death penalty, LGBT issues, health care issues, religious/spiritual issues, and other topics; and prison-based newsletters and prisoner magazine services. It includes United Nations Standard Minimum Rules for the Treatment of Prisoners, also called the Mandela Rules. To download the directory, click here. For the Mandela Rules, click here.

Call for Submissions: Essays by Individuals with Disabilities on Rites of Passage

Award-winning author Belo Miguel Cipriani, who wrote Blind: A Memoir and Midday Dreams, is seeking submissions for a collection of essays by individuals with disabilities that focus on rites of passage. He offers “first kiss, first day of school, getting married, and parenting” as examples but is “open to whatever first experience someone is willing to share.” Essays must be between 5,000 and 7,000 words and focus on one event. They should not be about “overcoming a disease.” The deadline is September 1, 2016. For additional guidelines, submission information, and other details, click here.

Free Media Guide to Help Reporters Cover Stories That Have a Mental Health Angle

If you are a journalist, have connections to journalists, or are seeking such connections, here is a guide “to raise awareness among news organizations, journalists, journalism students and professors, and news story informants on how to improve reporting on mental health issues. If you write entertainment reviews or sports stories that sometimes involve people with mental illness, this guide is relevant for you too.” For the guide, click here. For more information, click here.

 

Café TA Center Presents New Online Peer Supervision Training

The Café TA Center is offering a free slide show on Peer Supervision, which “provides information for both peers managing other peers, as well as non-peer professionals and clinicians tasked with supervising peer specialists. Through a series of modules, it provides foundational information on peer support and its growth out of the consumer/survivor/ex-patient movement, training for non-peers supervising peers support workers, information for peers supervising other peers, advice on group supervision, and a series of scenarios to help illustrate how various concepts work in practice.” For more information and to download the training, click here.

August 1 Is the Deadline to Apply to Help Develop the MHA National Peer Specialist Credential

Mental Health America (MHA) and the Florida Certification Board (FCB) are looking for volunteer subject matter experts to help develop the written exam for MHA’s new National Certified Peer Specialist (NCPS) credential. “This credential has been peer initiated, conceived, and developed, including peer staff at FCB,” writes Patrick Hendry, MHA’s vice president of peer advocacy, supports, and services, who is himself a peer. In a response to questions about why an organization that is not peer-run was leading this project, Hendry wrote, in part: “One of the leading criticisms about MHA creating a national peer credential is that many people feel this should be done by a peer-run organization. For many years I thought that this would be the case. Unfortunately no peer organization has accomplished this yet.” He also wrote: “All of our staff members who have worked on this certification are peers,” and “We started this project using the iNAPS National Standards, the SAMHSA Core Competencies and the Canadian standards as our starting place and we believe we have stayed true to those well-conceived documents.” Download the MHA National Certified Peer Specialist RDS Report for details. To volunteer, complete the MHA-FCB Item Writer Nomination Form by August 1, 2016.

CDC Reports on Occupations That Have the Highest Rates of Suicide

The Centers for Disease Control and Prevention (CDC) has released a new report about which occupational groups have the highest suicide rates. According to one of the authors of the report, “Knowing suicide rates by occupation provides employers and other prevention professionals with an opportunity to focus on suicide prevention programs and messages.” The CDC says that manual laborers, farmers, lumberjacks and fishermen have the highest suicide rates, along with carpenters, miners, electricians and construction workers, followed closely by mechanics. The report covered only 17 states, reviewing about 12,300 of the more than 40,000 deaths by suicide in the U.S. in 2012. According to CBS News, “Dentists, doctors and other health care professionals had an 80 percent lower suicide rate than the farmers, fishermen and lumberjacks. The lowest rate was in teachers, [other] educators and librarians.” From 2000 to 2012, suicide rates increased 21 percent for Americans who are least 16 years old. For the CBS News report and a link to the CDC research, click here.

Free SAMHSA Webinar on “Effectiveness of Peer Support Services: Highlights from the Research”

On August 18 at 2 p.m. ET, the Substance Abuse and Mental Health Services Administration will sponsor a free 90-minute webinar on the “Effectiveness of Peer Support Services: Highlights from the Research.” “We anticipate attendees to be those who have a stake in understanding the evidence base for peer recovery services and in making the case to funders and decision-makers for the value and effectiveness of these services as well as researchers,” SAMHSA writes. For more information or to register, click here.

Thanks, Judene Shelley

JLUSA Fellowship Opportunities for Advocates with a Background of Criminal Justice Involvement

Just Leadership USA is seeking applications for its 12-month Leading with Conviction (LwC) fellowships. LwC is “an advanced leadership training for formerly incarcerated, mid-senior level leaders with a specific and proven track record in advocacy and community organizing…Fellows must have at least three to five years [of] post-criminal justice involvement…All Fellows MUST have demonstrated a minimum three-year track record of leadership with a specific commitment to advocacy and community organizing, not only social services.” Applications are due by September 16, 2016, at 11:59 p.m. ET. For more information or to apply, click here. Questions? Write to applications@justleadershipusa.org.

2016 NARPA Annual Rights Conference to Be Held in Phoenix August 25-28

The 2016 annual conference of the National Association for Rights Protection and Advocacy will take place at the Pointe Hilton Squeak Peak Resort in Phoenix, Arizona, August 25-28. The conference theme is “Rights Under Siege: Fighting Back.” Among the keynote speakers is Robert Whitaker, author of Psychiatry Under the Influence: Institutional Corruption, Social Injury, and Prescriptions for Reform and Mad in America. Continuing Legal Education (CLE) units are available. The registration form is on the NARPA website at www.narpa.org or email narpa@aol.com for more information.

Report on Mental Health Advocacy in California: Perspectives of Advocates and Decision-Makers

In partnership with the California Association of Mental Health Peer-Run Organizations (CAMHPRO), Live & Learn Inc. conducted a survey on the impact of stakeholder advocacy on decisions affecting public mental health systems in California. The California Mental Health Stakeholder Advocacy Survey was designed by people with personal experience of the mental health system and related advocacy work from CAMHPRO, Live & Learn Inc., and Shifa Consulting. The objective was to pilot an approach to help CAMHPRO evaluate the impact of consumer advocacy in the state and to document the activities that advocates engage in (e.g., legislative testimony, demonstrations, campaigns). For the report, click here.

NYAPRS 34th Annual Conference to Be Held September 14-16

The 2016 annual conference of the New York Association for Psychiatric Rehabilitation Services (NYAPRS) will be held September 14-16, 2016, at the Hudson Valley Resort & Spa in Kerhonkson, N.Y. The theme is “Advancing Whole Health & Healthy Communities: The Pathway to Population Health.” To register and for more information, click here.

Save the Date! March for Dignity & Change in Mental Health in Washington, DC, October 10!

Join the march against the dehumanization of, and discrimination and prejudice against, people living with mental health conditions on October 10 in Washington, DC. To learn more, see www.DestinationDignity.org.

 

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 13, No. 1, July 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

The Key Update, Volume 12, Number 12 - June 2016

Key Update, June 2016

Volume 12, Number 12

Tell Your Congressional Representatives: Vote No on HR 2646!

Important! On June 15, the “Helping Families in Mental Health Crisis Act” (H.R. 2646) was unanimously voted out of the House Energy & Commerce Committee, 53-0. The National Coalition for Mental Health Recovery (NCMHR) writes: “The House leadership has indicated that they will take up H.R. 2646 in July. This is the time for every advocate to recruit other advocates and to call their representatives in Congress…. Tell them to oppose H.R. 2646 because it will do more harm than good.” Joseph Rogers, executive director of the National Mental Health Consumers’ Self-Help Clearinghouse, adds: “This is a great opportunity to educate your legislators. Let them know about your local organizing efforts, that you are part of a movement for social change, and that H.R. 2646 significantly fails to reflect social justice.” To read the NCMHR’s Call to Action, go to www.ncmhr.org. To read an action alert by Intentional Peer Support, click here. To read the version of H.R. 2646 that was passed by the Energy & Commerce Committee, click here.

Boston Globe Article May Inflame Public’s Fears of Individuals with Mental Health Conditions

Please consider writing a letter to the Boston Globe in response to its June 23rd article that ran under the heading “The Desperate and the Dead: Families in Fear” followed by “Closing psychiatric hospitals seemed humane, but the state failed to build a system to replace them. Families are living with the tragic consequences.” The article sensationalizes the extremely rare tragedies involving individuals with mental illnesses and seems designed to exacerbate the discrimination and prejudice associated with mental health conditions. For the article, click here. For the guidelines to submit a letter to the Boston Globe, click here. The sooner you respond, the better your chances of publication.

Report Published on Accommodations for Individuals with Disabilities in the Criminal Justice System, and President Obama Announces Plans to Help Justice-Involved Individuals

A new report from the Amplifying Voices of Inmates with Disabilities (AVID) Prison Project of Disability Rights Washington (DRW), a protection and advocacy (P&A) agency, aims to highlight the difficulties that individuals with disabilities face as they seek to access programs and services in state prison systems. “By no means exhaustive, this report provides an overview of the protections afforded to [justice-involved individuals] with disabilities under the ADA as well as examples in which P&As have advocated effectively on behalf of [such individuals]. This advocacy is multi-modal, ranging from routine monitoring, to informal and individual advocacy, to systemic litigation.” For more information and to download the report—which was a collaboration involving a number of other state P&As along with the National Disability Rights Network—click here. Also, on June 24, President Obama announced “new actions to reduce recidivism and promote reintegration of formerly incarcerated individuals.” For more information, click here. In addition to read an amazing Mother Jones report, “My Four Months as a Private Prison Guard,” click here.

Thanks, Fran Hazam

Free Webinar on “Peers in the Workforce: Invasion, Innovation, or Integration?”

On June 28 at 2 p.m. ET, Doors to Wellbeing will host a free webinar on “Peers in the Workforce: Invasion, Innovation, or Integration?” “Over the past decade, there has been significant growth in peer services in the behavioral health workforce. Has this growth been perceived as an invasion or innovation to the recovery workforce? This session will illustrate varying perspectives, including certification through education and training, workforce development, organizational readiness and structure, and accreditation, and volunteerism…Join this session to gain new perspectives on how to grow and enhance the recovery workforce.” To register, click here.

Two Free 90-Minute Webinars on June 30 Will Cover Justice-Involved Individuals

On June 30 at 2 p.m. ET, the Substance Abuse and Mental Health Services Administration (SAMHSA) and the National Reentry Resource Center and Coalition for Juvenile Justice will host two different webinars on justice-involved individuals. SAMHSA is offering “Recovery after Incarceration: Peer Supports as a Critical Re-Entry Service.” “This webinar will review emerging evidence about the value of peer specialists and recovery coaches in supporting individuals transitioning from incarceration. It will highlight effective approaches to help individuals develop and advance towards their recovery and wellness goals, access services, navigate systems, and achieve successful community integration.” For more information and to register, click here. “Addressing the Housing Needs of Youth and Young Adults in Contact with the Justice System” will cover “current data and trends on youth and young adult homelessness, how homelessness intersects with the juvenile and adult criminal justice systems, and lessons learned and promising strategies to connect youth and young adults in contact with the justice system to safe, stable, and affordable housing.” For more information and to register, click here.

Psychiatric Medication Discontinuation/Reduction Study Seeks Survey Participants by July 1

Have you come off, or tried to come off, psychiatric medications in the past five years? A research study on the experience of stopping psychiatric medications, conducted by Live & Learn, is seeking participants. The deadline for participation is July 1. “[The] study aims to understand the process of coming off psychiatric medications in order to better support those who choose to do so,” the researchers write. They are hoping for broad participation from a variety of individuals. “We need to make sure there is racial and ethnic diversity of respondents so the research results can reflect the experiences of all our communities,” said project director Laysha Ostrow, Ph.D. Like the rest of the project team, Ostrow has lived experience with psychiatric treatment and coming off psychiatric medications. Questions? Please contact Ostrow at contact@LiveLearnInc.net, or call her at 213.373.3850. For more information or to respond to the survey, click here. For an article about the survey, click here

July 5 Is the Deadline to Comment on an Ill-Conceived SSA Rule

The Social Security Administration has set July 5, 2016, as the deadline to comment on a proposed a change in its regulations that would result in entering into the National Instant Criminal Background Check System anyone who needs financial help from a representative payee. As a result, these individuals would be prohibited from gun ownership, despite the fact that people with mental health conditions are much more likely to be the victims of violence than the perpetrators, and that “only 3%-5% of violent acts can be attributed to individuals living with a serious mental illness.” For more information or to comment, click here.

Thanks, Matt Canuteson

Researchers Publish “Corruption of Clinical Trials Reports: A Proposal”

“There is a disconnection between the FDA’s drug approval process and the reports we see in medical journals,” according to a June 22 Health Care Renewal blog. “Pharmaceutical corporations exploit this gap through adulterated, self-serving analyses, and the FDA sits on its hands. I suggest we need a new mechanism to fix the problem—by independent analyses of clinical trials data. When they analyze and publish their clinical trials in medical journals, pharmaceutical corporations have free rein to shape the analyses…. [T]he FDA does not challenge the reports that flood our medical journals, both before and after FDA approval. It is no secret that these publications are routinely biased for marketing effect, but the FDA averts its gaze….Now, a detailed example of deliberate corporate bias has finally been documented, through materials released in litigation….This example concerned a clinical trial of an antidepressant drug in children and adolescents.” To read more, click here.

Thanks, @AllenFrancesMD

SAMHSA Recruits Applicants for Its Program to Achieve Wellness Grants

SAMHSA is inviting applications from programs that have demonstrated exceptional achievements in integrating effective wellness practices into services for people in recovery from behavioral health disorders. Three programs will be selected and highlighted as models that other communities can adopt and implement. “The goal…is to identify and showcase innovative programs and practices that put the concept of wellness into action. Recognized programs will be those that create meaningful improvements in the lives of people in recovery from mental and/or substance use disorders and effectively work to address the increased rates of chronic illness and premature death experienced by this population.” Among eligible applicants are “national organizations, community-based organizations (including providers, peers, and peer providers), communities, states, and tribes in the United States, the District of Columbia, and U.S. Territories.” Applications are due by July 6, 2016. For more information, click here.

Newsletter on Practicing Recovery: The Importance of Family in Diverse Communities Is Available

The latest edition of a newsletter published by SAMHSA’s Recovery to Practice Initiative offers articles on “Practicing Recovery: The Importance of Family in Diverse Communities.” It includes articles entitled “Honoring Diverse Families,” by Chacku Mathai, director of the STAR Center;  “Combining Evidence-based Practice with Cultural, Spiritual, and Traditional Interventions,” by D. Joel Beckstead, PhD, APBB, clinical director, Desert Visions Youth Wellness Center; and “Family Support Is Key to Whole Health in African American Families,” by Deidra Dain, guest writer. To download the free newsletter, click here.

iNAPS Conference Adds a Third Day

The International Association of Peer Supporters (iNAPS) has added a third day! The conference, whose theme is “Collaborating for Unity,” will be held in Philadelphia at the Sheraton Society Hill from August 26-28, 2016. It will be preceded by pre-conference events from August 22 through August 25. For more information, click here. For the latest edition of the iNAPS newsletter, click here.

SAMHSA Publishes “Know Your Rights: Parity for Mental Health and Substance Use Disorder Benefits”

A brand-new brochure entitled “Know Your Rights: Parity for Mental Health and Substance Use Disorder Benefits,” published in June 2016, gives an overview of the Mental Health Parity and Addiction Equity Act of 2008, lists some of the common limits placed on mental health and substance use disorder benefits and services, and includes resources for additional information on parity. To download SAMHSA’s free fact sheet, click here.

 

Webinar on Supporting Recovery with the Cultural Formulation Interview to Be Sponsored by NYAPRS

On July 6 at 2:30 p.m. ET, the New York Association of Psychiatric Rehabilitation Services (NYAPRS) will sponsor a 90-minute webinar called “Using the Cultural Formulation Interview to Support Recovery Outcomes.” NYAPRS writes: “Don’t miss this very timely presentation by experts Dr. Roberto Lewis-Fernandez and Oscar Jiménez-Solomon MPH of the Center for Excellence in Cultural Competence at NYS Psychiatric Institute, who will inform us about the Cultural Formulation Interview (CFI), a new research-based tool that helps practitioners and people in recovery to have conversations about cultural identities, preferences, care expectations. This webinar is hosted by Luis O. Lopez of the Center for Practice Innovations at Columbia University.” For more information or to register, click here.

Exposé on Johnson & Johnson to Become a Movie

A Huffington Post article detailing Johnson & Johnson’s scandalous marketing techniques for one of its medications—the antipsychotic Risperdal—will become a movie called, like the article, “America’s Most Admired Lawbreaker.” The article, by muckraking journalist Steven Brill, outlined how, “[o]ver the course of 20 years, Johnson & Johnson created a powerful drug, promoted it illegally to children and the elderly, covered up the side effects and made billions of dollars.” According to the article about the new movie in The Hollywood Reporter, “The drug company was investigated and agreed to pay more than $2 billion in penalties and settlements but made a reported $30 billion in sales of the drug worldwide.” For Steven Brill’s article, click here. For the article about the movie, click here.

Thanks, @KevinFitts

Webinar on “Reframing Recovery” Is on July 21

Peerlink National Technical Assistance Center will host a free, one-hour webinar on “Reframing Recovery” on July 21, 2016, at 2 p.m. ET.  “Reframing recovery challenges perceptions and ideals around mental health recovery, including how we, as a community, define it. Too often, our ability to recover is questioned, challenged, and defined by others. With visuals, frank discussion, narratives, and thought-provoking statements, participants are challenged to reframe how they see recovery from mental health challenges.” The presenters will be Robyn Priest and Donita Diamata of Peerlink. To register, click here.

 

New Yorker Shares Archived Stories about Mental Health Conditions and Treatment

The New Yorker writes: “This week, we bring you some of the best New Yorker writing about the complexities of psychoanalysis. In ‘Man Goes to See a Doctor,’ Adam Gopnik shares what he learned during his years of Freudian analysis; in ‘The Impossible Profession,’ Janet Malcolm profiles a psychoanalyst, seeing the process from his point of view. In other stories, Evan Osnos chronicles the rise of psychoanalysis in China; Andrew Solomon recalls his personal struggle with depression; Joan Acocella reads Adam Phillips, Britain’s foremost psychoanalytic writer; and Louis Menand explores the perplexing and enlightening intellectual history of psychiatry.” For links to these stories, click here.

Brave New Fellows Program Offers 1-Year Paid Fellowship for Social Justice Activists Who Can Relocate to California

The Brave New Fellows Program “is a one-year paid fellowship for activists from communities of color and/or economically marginalized communities. The fellowship offers on-the-job training and work experience in creating and distributing films for social justice activism. Each fellow receives $772 a week for the duration of the fellowship, medical and dental insurance, and holidays/hiatus pay.” Fellows work full time (M-F, 9 a.m. to 6 p.m.) in the Culver City, California, office of Brave New Films. Completed applications are due by 6 p.m. PT on August 5. For more information or to apply, click here.

Thanks, Elizabeth Saenger

NYAPRS 34th Annual Conference to Be Held September 14-16

The 2016 annual conference of the New York Association for Psychiatric Rehabilitation Services (NYAPRS) will be held September 14-16, 2016, at the Hudson Valley Resort & Spa in Kerhonkson, N.Y. The theme is “Advancing Whole Health & Healthy Communities: The Pathway to Population Health.” To register and for more information, click here. (The deadline to apply for a scholarship (for New Yorkers only!) is August 1. For the application, click here.

SAMHSA/NIDILRR Offer Free Online TA on Employment from the Center for Psychiatric Rehabilitation

Thanks to funding support from SAMHSA and NIDILRR, the Center for Psychiatric Rehabilitation at Boston University is offering free online technical assistance to organizations that want to build capacity to address organizational and individual barriers around employment. This is an opportunity for providers to work with national subject matter experts from across the country. For more information, click here or contact Rick Forbess, project director, at rforbess@bu.edu.

Thanks, NYAPRS E-News

Save the Date! March for Dignity & Change in Mental Health in Washington, DC, October 10!

Join the march against the dehumanization of, and discrimination and prejudice against, people living with mental health conditions on October 10 in Washington, DC. To learn more, see www.DestinationDignity.org.

 

Researchers Discover Evidence of Racial, Class Discrimination among Psychotherapists

“Psychotherapists discriminate against prospective patients who are black or working class, a new study shows. Among middle-class people who contacted a therapist to schedule an appointment, the study found that 28 percent of whites and 17 percent of blacks received appointment offers. Appointment offer rates for both black and white working-class therapy seekers were 8 percent.” To read more, click here.

 

Thanks, Howard Trachtman

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 12, No. 12, June 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

The Key Update, Volume 12, Number 11 - May 2016

Key Update, May 2016

Volume 12, Number 11

“New and Expanded Medical Definitions Create More Patients” (and a Lucrative Drug Market)

A May 22, 2016, a Milwaukee Journal Sentinel article shone a spotlight on the pharmaceutical industry’s aggressive marketing strategy to try to create a demand for their products. Listing “intermittent explosive disorder,” “binge-eating disorder” and “low testosterone” among other diagnoses, Illness Inflation: A Watchdog Report notes, “None of these conditions was considered part of mainstream medicine just 20 years ago.” The drugs sold to treat these newly defined conditions “often carry serious health risks,” the report adds. For more, click here. In a related story, the U.S. Food and Drug Administration (FDA) warns of new, albeit rare, impulse-control problems associated with the mental health drug aripiprazole (Abilify, Abilify Maintena, Aristada). “[C]ompulsive or uncontrollable urges to gamble, binge eat, shop, and have sex have been reported….These uncontrollable urges were reported to have stopped when the medicine was discontinued or the dose was reduced.” For more, click here. To see another related story—Another Study Finds Link Between Pharma Money and Brand-name Prescribing—click here. And to see Failure to Report: A STAT Investigation, about how “prestigious medical research institutions have flagrantly violated a federal law requiring public reporting of study results, depriving patients and doctors of complete data to gauge the safety and benefits of treatments,” click here. (Note: The STAT investigation was included in the December 2015 edition of the Key Update.) 

Doors to Wellbeing Offers a Spring Webinar Series; the May Webinar Is Today at 2 p.m. ET!

The Doors to Wellbeing National Consumer Technical Assistance Center has been offering a Spring webinar series. In April, the topic was Workforce Integration: Why It Matters. On May 31 at 2 p.m. ET, the topic will be Peer Support with Veterans—Shoulder to Shoulder. And on June 28, the topic will be Invasion or Innovation: Peers in the Workforce. For more information, to view the archived April webinar and/or to register for the May and June Webinars, click here.

 

NIMH Seeks Feedback on “The State of Mental Illness Research and NIMH’s Role”

The National Institute of Mental Health (NIMH) is soliciting comments from the general public on “the state of mental illness research and NIMH's role in the development of this research. Your feedback will be used in developing briefing materials that will represent the full diversity of perspectives on mental illness research for the incoming NIMH director. Please provide comments by June 30, 2016. NIMH welcomes feedback from investigators, investigator-sponsors, clinicians, advocates, and any other stakeholders...” For more information and to submit your comments, click here.

Thanks, @LaurenSpiro

Deadline to Submit a Workshop Proposal at Alternatives 2016 Has Been Extended to June 3!

The deadline to submit proposals for workshop presentations at Alternatives 2016 (#AltCon16) has been extended to June 3! For more information and to submit a proposal, click here. The conference, organized by Peerlink National Technical Assistance Center (@PeerlinkTA), will be held at the Town & Country Resort & Convention Center in San Diego, California, from September 19 to 23. For more information about the conference, including hotel and travel, click here.

New Parenting with a Disability Toolkit Is Available from the NCD

On May 5, 2016, the National Council on Disability (NCD) and the Christopher & Dana Reeve Foundation released Parenting with a Disability: Know Your Rights Toolkit. “Currently, 35 states include disability as grounds for termination of parental rights….In every state, the presence of a disability can be arbitrarily used when determining the ‘best’ interests of a child.” The new toolkit builds on NCD’s 2012 report, Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children. To download both the new toolkit and the enhanced 2012 report, click here.

BRSS TACS First Friday Will Cover Recovery-Oriented Crisis Response

On June 3, 2016, at 12 p.m. ET, BRSS TACS (Bringing Recovery Supports to Scale Technical Assistance Center Strategy) will host a free teleconference about Recovery-Oriented Crisis Response. “First Fridays with BRSS TACS is a free monthly opportunity to meet with nationally recognized leaders to discuss recovery-related topics in an open and informal setting.” Join BRSS TACS on June 3 to learn more about this important subject and to submit your questions to presenters Oryx Cohen, chief operating officer of the National Empowerment Center Technical Assistance Center, and Phillip Valentine, executive director of the Connecticut Community for Addiction Recovery. For more information and to register, click here.

Have You Taken Antidepressant or Antipsychotic Medication? Then Please See Below.

Internationally known researcher Dr. John Read is seeking your responses to an anonymous online survey gathering information on people’s experiences taking antidepressant and antipsychotic medication. “The information you share in the survey will be combined with the data provided by other participants and used to produce academic research articles that publicize the results,” according to the survey introduction. Dr. Read is a member of the Executive Committee of the International Society for Psychological and Social Approaches to Psychosis (ISPS); a professor at Swinburne University of Technology in Melbourne, Australia; and the editor of the ISPS journal Psychosis. For an article about this and other such studies, click here. To participate in Dr. Read’s new survey, click here.

To Observe Gun Violence Awareness Day, #WearOrange on June 2

On June 2—National Gun Violence Awareness Day—wear orange. “Wear Orange was created to make it easier for people to show their support for common sense solutions that will save lives,” the organizers explain on the www.wearorange.org website. The annual event began in remembrance of Hadiya Pendleton, a 15-year-old who was shot and killed a week after she marched in President Obama’s second inaugural parade.  Her friends chose orange to remember her “because that’s what hunters wear in the woods to protect themselves and others.” The organizers write: “What started in a south side high school to celebrate Hadiya has turned into a nationwide movement to honor all lives cut short by gun violence. Wear Orange is also a celebration of life—and a call to action to help save lives from gunfire.” For more information, click here.

SAMHSA Voice Award Deadline Has Been Extended to June 3

SAMHSA writes: “The deadline for submitting [Voice Award] family/consumer/peer leader nominations has been extended until Friday, June 3, 2016.” To submit a nomination, click here.

New Report Covers Criminal Justice Policy Reforms in 46 States in 2014-2015

 On May 26, 2016, the Vera Institute published Justice in Review: New Trends in Sentencing and Corrections 2014-2015. “In 2014 and 2015, 46 states enacted at least 201 bills, executive orders, and ballot initiatives to reform at least one aspect of their sentencing and corrections systems,” the Vera Institute writes. “[M]ost of the policy changes focused on three areas: creating or expanding opportunities to divert people”—especially individuals who have substance abuse or mental health conditions and/or who are homeless—“away from the criminal justice system; reducing prison populations by enacting sentencing reform, expanding opportunities for early release from prison, and reducing the number of people admitted to prison for violating the terms of their community supervision; and supporting reentry into the community from prison…this report serves as a practical guide for other state and federal policymakers looking to effect similar changes in criminal justice policy.” For more information and to download the free report, click here. Also available for free download is the American Friends Service Committee’s Inalienable Rights: Applying international human rights standards to the U.S. criminal justice system. For more information and to download a free copy, click here.

Newsletters of iNAPS and the Café TA Center Offer Many Resources

The newsletters of the International Association of Peer Supporters (iNAPS) and the Café TA Center offer a variety of information on upcoming events (such as the tenth annual iNAPS conference, to be held in Philadelphia August 26-27—Early Bird Registration ends June 1!) as well as valuable resources! To download the iNAPS newsletter, click here. To download the Café TA Center newsletter, click here.

WFMH International Conference Seeks Workshop Proposals

 The World Federation for Mental Health International Conference, to be held October 17-19, 2016, in Cairns, Australia, has issued a call for abstracts. The deadline is June 17. For guidelines and details or to submit an abstract, click here.

Thanks, Janet Paleo

Bazelon, UMass Medical School Highlight Opportunities to Promote Employment for People with Mental Health Conditions

A new brief by UMass Medical School and the Bazelon Center for Mental Health Law outlines policy opportunities that can be leveraged to help people with psychiatric disabilities get and keep jobs, and recommendations to address current barriers to employment. For information about the authors’ recommendations and to download a free copy of Policy Opportunities for Promoting Employment for People with Psychiatric Disabilities, click here. For A Practical Guide for People with Mental Health Conditions Who Want to Work, published by the Temple University Collaborative on Community Inclusion, click here. For additional Temple University Collaborative employment resources, click here.

U.S. DOE Urges Removal of Barriers Preventing People with Criminal Records from Pursuing Higher Education

On May 9, 2016, the U.S. Department of Education (DOE) urged America’s colleges and universities to remove barriers that can prevent the estimated 70 million citizens with criminal records from pursuing higher education, including considering the chilling effect of inquiring early in the application process whether prospective students have ever been arrested. The Department made the recommendation in a new resource guide, Beyond the Box: Increasing Access to Higher Education for Justice-Involved Individuals, which encourages alternatives to inquiring about criminal histories during college admissions and provides recommendations to support a holistic review of applicants. “The college admissions process shouldn’t serve as a roadblock to opportunity, but should serve as a gateway to unlocking untapped potential of students,” U.S. Secretary of Education John B. King Jr. said. For Beyond the Box, click here. For the DOE press release, click here. To read about someone who “found that once he attained a college education—he now holds four degrees, including a doctorate in education—he was able to overcome some of the obstacles that kept him unemployed and on the verge of returning to prison,” click here.

Webinar on Building the Foundation for Your Peer-Run Organization Is on June 15

Peerlink National Technical Assistance Center will host a free, one-hour webinar on Developing & Implementing Policies & Procedures: Building the Foundation for Your Peer-Run Organization on June 15, 2016, at 2 p.m. ET.  “It can be difficult to develop and implement policies for your peer-run organization while allowing peer workers flexibility to assist others in their recovery. This webinar will address establishing accountability, fidelity to models, and protections in and for your organization, peer workers, and those served.” To register, click here.

Quashed Report Warned of Prison Health Crisis

“A government report, blocked from publication a decade ago, presciently warned of an advancing, double-barreled health crisis of mental illness and substance abuse that has currently swamped the nation’s vast prison systems,” says a May 23rd article in USA Today. The report had “urged government and community leaders to formulate a treatment strategy for thousands of [individuals who had mental health or substance use conditions] that also would assist them after release or risk worsening public health care burdens.” It was blocked by officials of the George W. Bush administration, according to then-Surgeon General Richard Carmona. In 2014, USA Today noted that, based on Justice Department statistics, some 1.2 million individuals in state, local and federal custody reported some kind of mental health issue. This constituted 64 percent of people in local jails, 56 percent of people in state prisons and 45 percent of those in federal prisons. For the article, click here.

Thanks, @NYAPRS

“Beware of advice—even this.”

This brain-twisting guidance from acclaimed poet Carl Sandburg is just one piece of advice offered to writers on the @AdviceToWriters Twitter feed, highly recommended if you are a writer or aspire to be one. Even if you don’t consider yourself a “writer,” you may find the information useful. The concise, tweeted advice is available at greater length on the Advice to Writers website if you click here.

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 12, No. 11, May 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

The Key Update, Volume 12, Number 10 - April 2016

Key Update, April 2016

 Volume 12, Number 10

Do You Want to Present a Workshop at Alternatives 2016? Submit a Proposal!

The deadline to submit proposals for workshop presentations at Alternatives 2016 (#AltCon16) is May 23! For more information and to submit a proposal, click here. The conference, organized by Peerlink National Technical Assistance Center (@PeerlinkTA), will be held at the Town & Country Resort & Convention Center in San Diego, California, from September 19 to September 23! For more information about the conference, including hotel and travel, click here.

Minority Job Applicants with Criminal Justice Backgrounds to Benefit from Landmark Settlement Against U.S. Census Bureau

On April 20, 2016, the U.S. Census Bureau settled a class action lawsuit involving discriminatory employment obstacles for minority job applicants with criminal justice backgrounds. “African American and Latino plaintiffs’ applications for more than a million temporary jobs to assist the 2010 census were rejected by the Census Bureau’s flawed screening process, which included use of an often inaccurate and incomplete FBI arrest and convictions database,” an article in Afro reported. Because African Americans and Latinos are arrested at much higher rates than whites, often for the same crimes, the plaintiffs asserted that the Census Bureau was violating Title VII of the 1964 Civil Rights Act. One of the goals of the lawsuit—Anthony Gonzalez, et al., v. Penny Pritzker, Secretary, U.S. Department of Commerce—is “to end the cycle of mass incarceration,” said Kristen Clarke, president and executive director for the Lawyers’ Committee for Civil Rights under Law. At least a million people may benefit, the lawyers said. The plaintiffs’ lead attorney said that the Census Bureau has since changed its hiring practices. For more information and a link to the lawsuit, click here.

Thanks, ReentryUSA @ReentryUSA2

SAMHSA to Present Webinar on Creating a Culture of Wellness

On May 4 at 2:30 p.m. ET, the Substance Abuse and Mental Health Services Administration will sponsor a free webinar on Creating a Culture of Wellness: A 360 Degree View. “Achieving health and wellness calls for a focus on integrated care,” SAMHSA writes, “but is your organization truly incorporating health and wellness into everything you do? Join this webinar to learn how to use a self-assessment tool to increase your organization’s awareness of the key components of a wellness-focused culture. Learn how to engage in a reflective process to identify what you should keep doing, stop doing, and start doing to truly have a culture of wellness, and hear from a SAMHSA Primary and Behavioral Health Care Integration (PBHCI) grantee who has used this tool to assess and implement wellness across their agency.” For more information and to register, click here.

Positive Memories Can Help Treat Mental Health Problems

Positive memories can help generate positive emotions, say researchers at the University of Liverpool. A goal was to investigate individuals’ emotional reactions to the imagery of a positive social memory using the “social Broad Minded Affective Coping (BMAC)” technique. The study found that that “safe/warm” and “relaxed” positive mood and “feelings of social safeness” increased following the social BMAC, while negative mood decreased. “These results suggest that the BMAC has the potential to be a practical and effective method for boosting mood amongst individuals with specific mental health problems such as anxiety or depression,” said the lead researcher. The study was published on April 20, 2016, in the journal Psychology and Psychotherapy: Theory, Research and Practice. For a news release and a link to the study, click here.

Thanks, Psychiatric Rehabilitation Association @PsychRehab

MHA Wants Your Input to Help Develop Its National Certified Peer Specialist Credential

Mental Health America (MHA) is seeking input on the draft core competencies for its National Certified Peer Specialist (NCPS) credential, described by Patrick Hendry of MHA as “the first national, fully accredited certification program recognizing peer specialists qualified to work in both public and private whole health practices.” MHA, which is developing this program in partnership with the Florida Certification Board, recently released its National Certified Peer Specialist Core Competencies for public comment. The overwhelming majority of the respondents approved the draft performance domains and competencies/job tasks without changes, said Hendry, MHA’s vice president of peer advocacy, supports, and services. The remaining feedback informed the final set of Mental Health America’s core competencies for the NCPS credential. MHA now seeks individuals involved in the peer support movement to rate each of the 55 competency/job task statements for importance and frequency. “This feedback will allow us to develop the NCPS examination blueprint,” Hendry said. For the survey, click here. In a related story, the International Association of Peer Supporters has created “National Practice Guidelines for Peer Supporters.” For these guidelines, click here.

Media Shine Spotlight on Abuse of Individuals with Mental Health Conditions in Jails and Prisons

There is a growing emphasis by the print and broadcast media on covering the abuse, torture, and deaths of individuals with mental health conditions in jails and prisons. Most recently, 60 Minutes aired a piece on the horrific treatment such individuals receive in New York City’s notorious Rikers Island; for the segment, click here. In its May 2, 2016, edition, the New Yorker ran a story entitled Madness: In Florida prisons, mentally ill inmates have been tortured, driven to suicide, and killed by guards. For the article, click here. The New Yorker ran an online follow-up story: A Whistle-Blower Behind Bars (click here). It also covered the suicide of Kalief Browder, a young man who died by suicide after his release from Rikers Island, where he had been held for three years without being convicted of a crime (click here). The New York Times ran An Inmate Dies, and No One is Punished, about Leonard Strickland, “a prisoner with schizophrenia who got into an argument with guards, and ended up dead” (click here). Meanwhile, Just Leadership USA has launched a campaign to close Rikers Island. For more about the campaign, click here and click here.

Webinar on “Improving Relationships Between Police and the Mental Health Community” on May 25

A free two-hour webinar presented by the National Empowerment Center on Improving Relationships Between Police and the Mental Health Community will take place on May 25, 2016, at 1 p.m. ET. The webinar will include “best practices from both the police and mental health peer perspective. Research, collaboration models, and approaches to building better relationships, as well as tools and strategies for safely collaborating with police, will be offered with the ultimate goal of improving the relationship between mental health peers and police and reducing negative outcomes.” For more information and to register, click here. And for a related New York Times story—For Police, a Playbook Involving Conflicts with Mental Illness—click here.

BRSS TACS First Friday Will Cover Understanding Trauma and Promoting Resilience in Vulnerable Children

On May 6, 2016, at 12 p.m. ET, BRSS TACS (Bringing Recovery Supports to Scale Technical Assistance Center Strategy) will host a free teleconference about Understanding Trauma and Promoting Resilience in Vulnerable Children. “First Fridays with BRSS TACS is a free monthly opportunity to meet with nationally recognized leaders to discuss recovery-related topics in an open and informal setting.” Join BRSS TACS on May 6 to learn more about this important subject and to submit your questions to presenter Carmela J. DeCandia, Psy.D., director of Child and Family Initiatives with the Center for Social Innovation and a licensed clinical child psychologist with specialties in child and adolescent development, family homelessness, trauma, program development, and assessment. For more information and to register, click here.

Pathways RTC Publishes Annual Research Review on Early Psychosis Intervention

The latest issue of Focal Point, the annual research review published by Pathways RTC, is available for free download. This issue explores early psychosis intervention services. To download the free 32-page publication, click here.

 SAMHSA to Sponsor a Webinar on Crisis Services and Community Integration

On May 9 at 3:30 p.m. ET, the Substance Abuse and Mental Health Services Administration (SAMHSA) will sponsor a free, 90-minute webinar on Crisis Services and Community Integration, focusing on the requirements of the Americans with Disabilities Act and the Olmstead decision regarding crisis services for people with psychiatric disabilities. Jennifer Mathis, deputy legal director of the Bazelon Center for Mental Health Law, will begin with an overview of the legal framework governing state obligations. Two other presenters will cover, respectively, the essential elements and practices of an effective mental health crisis system and an initiative to improve crisis services as part of efforts to comply with Georgia’s Olmstead settlement. For more information and to register, click here.

Justice Department Names April 24-30, 2016, Its First Annual National Reentry Week

As part of its commitment to reducing policy barriers to successful reentry to the community from jails and prisons, the U.S. Department of Justice has designated April 24-30, 2016, as the first National Reentry Week. Recognizing this historic occasion, the Legal Action Center calls for ensuring “that all people with conviction histories are eligible for and receive effective reentry services, not just those with offenses categorized as nonserious, nonsexual, and nonviolent.” For more about National Reentry Week, click here. For the Legal Action Center’s When Coming Home Means Being Shut Out: Expanding Reentry to All Types of Offenses, click here. (The mission of the Legal Action Center is “to fight discrimination against people with histories of addiction, HIV/AIDS, or criminal records, and to advocate for sound public policies in these areas.”)

Thanks, Fran Hazam

Café TA Center Publishes Newsletter on Supported Education

Issue 44 of Focus, the newsletter of the Café Technical Assistance Center, covers Supported Education: Examining the Evidence. It includes links to SAMHSA’s Supported Education Evidence-Based Practices Kit and a variety of other useful information on the subject of supported education. For the newsletter, click here.

 

Transitions RTC to Host Webinar on College Accommodations for Students with Psychiatric Disabilities

Tools for School: College Accommodations for Students with Psychiatric Disabilities, a free webinar presented by Transitions RTC, will take place on May 3, 2016 at 12 p.m. ET. The webinar will cover “getting an accommodation: what you should know; thinking outside the box on accommodations; and advocating with Disability Services Offices.” The presenter will be Laura DiGalbo, M.Ed., CRC, LPC. For more information and to register, click here.

Half of Those Killed by Police Are Individuals with Disabilities, New Report Says

A new report on Media Coverage of Law Enforcement Use of Force and Disability from the Ruderman Family Foundation notes that “Disability is the missing word in media coverage of police violence. Disabled individuals make up a third to half of all people killed by law enforcement officers. Disabled individuals make up the majority of those killed in use-of-force cases that attract widespread attention. This is true both for cases deemed illegal or against policy and for those in which officers are ultimately fully exonerated. The media is ignoring the disability component of these stories, or, worse, is telling them in ways that intensify stigma and ableism.” The report is available for free download: click here. For a New York magazine article about the report, click here.

Thanks, Disability Rights International @DRI_advocacy

ISEPP Posts Invitation to Share Your Story of Psychiatric Drug Withdrawal in a Documentary

“The producers of Middlemarch Films are looking for volunteers to share their stories of psychiatric drug withdrawal in a full-length documentary that takes a critical view of psychiatry and psychiatric drugs,” writes Chuck Ruby, Ph.D., executive director of the International Society for Ethical Psychology & Psychiatry. “As well as showing the failures of the medical model, they hope to show inspiring stories of healing outside of it. They are looking for people who are willing to share their stories, and in particular they would like to hear from people who are in the process of getting off their psychiatric medications and are seeking a different way forward. If you are interested, please contact either Lynn Cunningham at lynn_p_cunningham@yahoo.com, 917.282.0710, or Wendy Ractliffe at wenractliffe@gmail.com, 207.590.9529.” For more, click here. (Editor’s note: No endorsement of withdrawing from psychiatric medication is intended. Individuals who choose to take psychiatric medications—or, indeed, any medications—should educate themselves about the risk/reward ratio and make informed decisions in collaboration with a trusted medical professional.)

Thanks, @KevinFitts

TU Collaborative Seeks Volunteers for a Research Study

The Temple University Collaborative on Community Inclusion is seeking volunteers for a research study “to learn more about how we can support students with mental health issues to help them succeed in school.” To be eligible, you need to be between the ages of 18 and 50, “have a diagnosis of schizophrenia-spectrum disorder, bipolar disorder or depression; be currently receiving mental health services; be currently enrolled full-time in a two- or four-year college, university, or tech/vocational school in the continental US, in a non-online degree program; want to get help with school related to your mental health issues in at least two areas; and have access to a computer, the Internet, and a cellphone.” Participants will receive $20 for each completed survey, for a total of $60 if all three surveys are completed. For more information, contact 215.204.3257 or kpizz@temple.edu, or click here. For the survey, click here.

Theater Company Sponsors Playwriting Competition on Mental Health Theme

The Adirondack Shakespeare Company (ADK Shakespeare) is sponsoring its first Dramatic Writing Competition, on the subject of “mental illness.” ADK Shakespeare writes: “We regard this subject as being quite broad, encompassing a wide spectrum that would include both the Prince of Denmark and Willy Loman, but would stretch well beyond…” There are two categories: full-length works and shorts/one-acts. The submission fee is $10 for short plays and $30 for full-length works. For submission guidelines and information about prizes, click here.

Thanks, Howard Trachtman

A Mental Health Blog Picks “The 25 Best Twitter Feeds to Follow.”

If you are on Twitter—and if you aren’t, why aren’t you?—here are the “25 Best Twitter Feeds to Follow,” according to a UK-based mental health blog that tweets as @EmoVoid. Among the recommendations are mainstream sites such as NIMH (@NIMHgov) and the American Psychiatric Association (@APAPsychiatric), as well as @PsychCentral and @HealthyPlace. Others are individuals’ Twitter feeds on mental health-related topics. (Disclaimer: I can’t personally recommend these sites and I only follow two of them.) To the EmoVoid list, which is available here, I would like to add (at a very bare minimum) @Mad_In_America, the Pulitzer Prize-winning Marshall Project (@MarshallProj), and the @VeraInstitute. (The latter two sites cover criminal justice issues, which often overlap with mental health issues.) And you can follow me at @SusanRogersMH.

Thanks, Café TA Center @CafeTAC

Comic Strips Capture the Experience of Depression and Anxiety

Laughter is the best medicine, as evidenced by the work of two graphic artists about what it feels like to deal with depression and anxiety. Cartoonist Nick Seluk turned Sarah Flanigan’s story into a comic after Flanigan shared her story of struggling with depression and anxiety with him. “I wish everyone knew that depression is not something that people can just ‘snap out of.’ I mean, if I could ‘snap out of it,’ I would have by now,” Flanigan wrote. For Seluk’s comic and its provenance, click here. And there is also the prodigiously talented Allie Brosh, who draws Hyperbole and a Half. For Brosh’s Adventures in Depression, click here; for Depression Part Two, click here.

 

Canadian Tattoo Artist Transforms Scars into Art to Help Heal Trauma

A Vancouver, BC, tattoo artist is helping to heal people who are scarred from suicide attempts, abuse and traumatic surgeries by designing tattoos around the scars, CBC News reported. Auberon Wolf, who herself has been tattooed to cover scars from self-harm as a teenager, says that the process can be more therapeutic than the finished product. One client, calling it “bloodletting in a really safe way,” said that having Wolf tattoo her kept her from suicide. However, a University of British Columbia nursing professor cautioned that, while inscribing art on the body to work through trauma might ground someone and be “positive” and “hopeful,” some people may react differently and “it's really good to go into it thoughtfully and to get that careful, informed consent.” For the story, click here.

Thanks, Leah Harris @leahida

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 12, No. 10, April 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

 

The Key Update, Volume 12, Number 9--March 2016

Key Update, March 2016

Volume 12, Number 9

Sign the Petition—And Submit a Comment—to keep the ECT Device in Class III!

It’s not too late to sign the MindFreedom International petition to stop the Food and Drug Administration from “down-classifying the shock device to a Class II device.” Please sign here! And you only have until March 28 to submit a comment on the FDA website, at this link. ECT is a controversial procedure that even proponents admit can cause adverse cognitive effects [that] can persist for an extended period, and that they characterize routine treatment with ECT in community settings.” The device is currently in Class III. For information about the three classes, click here. For testimony by Daniel B. Fisher, M.D., Ph.D., in 2011, the last time the FDA threatened to reclassify the equipment, click here. For information about Doctors of Deception: What They Don’t Want You to Know about Shock Treatment, which the International Journal of Risk and Safety in Medicine called “brilliant analysis,” click here. For additional information, click here. Again, to comment, click here. To sign the petition, click here.

Webinar on Welcoming Work Environments Presented by TU Collaborative on March 29

The Temple University Collaborative on Community Inclusion invites you to participate in a free, hour-long webinar on March 29 at 2 p.m. ET. The webinar will focus on “strategies for creating more welcoming work environments within mental health agencies for staff members with mental health conditions.” For details and to register, click here.

BRSS TACS First Friday in April Will Cover The ACA and Outreach in Frontier States

On April 1, 2016, at 12 p.m. ET, BRSS TACS (Bringing Recovery Supports to Scale Technical Assistance Center Strategy) will host a free teleconference about The Affordable Care Act (ACA) and Outreach in Frontier States. “First Fridays with BRSS TACS is a free monthly opportunity to meet with nationally recognized leaders to discuss recovery-related topics in an open and informal setting.” Join BRSS TACS on April 1 to hear about the ACA and outreach in frontier states, and to submit your questions to presenter Sue Bergeson, vice president of consumer affairs, OptumHealth. For more information and to register, click here.

March Newsletter of the TU Collaborative on Community Inclusion Focuses on Criminal Justice Issues

Reintegration of individuals with mental illnesses into community life following incarceration is the focus of the latest edition of the Temple University Collaborative on Community Inclusion newsletter. Included are links to a monograph entitled Returning to the Community: Reentry Barriers following Incarceration among Individuals with Serious Mental Illnesses, an infographic that details the results of a study on the community participation patterns of individuals with serious mental health conditions after their release from jail compared to a control group, and much more! For the newsletter, click here.

SAMHSA Seeks Applications for Its 2016 Voice Awards

The Substance Abuse and Mental Health Services Administration (SAMHSA) is seeking nominations for its 2016 Voice Awards. This year, “the Voice Awards will focus on the role that family support—between parents, children, spouses/partners, siblings, and other close family relationships—plays in inspiring hope and resilience for people experiencing a mental and/or substance use disorder….Special consideration will be given to consumer/peer leaders who promote partnerships with family members as an essential part of recovery [and] to film and television productions that portray the positive impact that family members can have on their loved one’s path to recovery.” Nominations are due by April 22, 2016. For more information, click here.

New Website Is a Place to Learn About Mental Health and Substance Use Disorder Parity Information

ParityTrack “aims to be the central site for mental health and substance use disorder parity information and to offer an exclusive look at parity issues.” It works to help people understand their rights under the federal and state parity laws and to “feel empowered to exercise those rights.” The website—sponsored by a variety of organizations, including the Kennedy Forum and the Scattergood Foundation—includes three main sections: Parity Reports, Know Your Rights, and Get Support. The site is available here.

Webinar on Community Inclusion Policy Development Will Discuss Two New Publications

A webinar co-sponsored by Mental Health America and the Temple University Collaborative on Community Inclusion, on April 4 at 1 p.m. ET, will discuss two new publications: Behavioral health Managed Care Entities: Important Partnerships in Promoting Community Inclusion, available here, and Community Participation and Inclusion: Shifting Perspectives on Quality Measures, available here. To register, click here.

Free Telephone Support Group for Parents with Mental Health Challenges

Child and Family Connections Inc. is hosting a free, weekly, telephone or web-based Parent Support Group for parents with mental health conditions anywhere in the U.S. “It is hosted by an experienced and caring parent and behavioral health professional with lived experience who gently guides the discussion in a healing and supportive direction with a people-first, recovery-centric approach,” according to the agency’s website. “Parents may join the call as frequently or infrequently as they’d like and may choose to remain anonymous or to introduce themselves. No registration or commitment is required, but for many parents, the group becomes a vital part of their support system and a consistent part of their lives.” The hour-long calls take place Wednesdays with Elizabeth at 6 p.m. ET, 5 p.m. CT, 4 p.m. MT, 3 p.m. ET; and Saturdays with Sue at 4 p.m. ET, 3 p.m. CT, 2 p.m. MT, 1 p.m. PT. The toll-free number is 888.601.3515 or log on by clicking here. For more information, click here.

SAMHSA Publication on Practicing Recovery Available for Free Download

This month, SAMHSA published Practicing Recovery: Implementing and Measuring a Recovery Orientation, by Larry Davidson, Ph.D. This four-page document describes “several tools have been developed to help agencies and practitioners learn about the profound changes required to implement recovery-oriented practices.” “Recovery-oriented practices move beyond the conventional policies and structures of most behavioral health agencies, necessitating a transformation of behavioral health services,” Davidson writes. “This transformation, according to the U.S. Department of Health and Human Services (2005), will require ‘profound change—not at the margins of a system, but at its very core.’” To download the free document, click here.

New Publication Documents the Unfair Impact of the Criminal Justice System on LGBT People

A 180-page report entitled Unjust: How the Broken Criminal Justice System Fails LGBT People is available for free download. “The report documents how pervasive stigma and discrimination, biased enforcement of laws, and discriminatory policing strategies mean that LGBT people are disproportionately likely to interact with law enforcement and to have their lives criminalized. LGBT people are also treated unfairly once they enter the system; the report shows how they overrepresented in jails and prisons and face abuse while incarcerated. Finally, the report sheds light on the fact that LGBT people face unique and considerable challenges in the struggle to rebuild their lives after experiences with law enforcement—and particularly after time spent in a correctional facility.”  For more information and to download the free report, authored by the Movement Advancement Project and the Center for American Progress in partnership with the Advancement Project, Forward Together, and Just Leadership USA, click here.

Robert Wood Johnson Foundation Change Leadership Programs Are Seeking Applicants

The Robert Wood Johnson Foundation is looking for clinicians, researchers, doctoral students, community leaders and professionals to apply for one of four new, funded leadership opportunities to build a Culture of Health in America. Applications are due on April 19, 2016. For details, including about an information webinar to be held on March 30 at 12 p.m. ET, click here.

Researchers Find That Drum Circles Might Improve Mental Health

According to Effects of Group Drumming Interventions on Anxiety, Depression, Social Resilience and Inflammatory Immune Response among Mental Health Service Users, published on March 14, 2016, in PLoS One, “10 weeks of group drumming provided significant benefits for a group of people who had sought help for mental health issues. What’s more, the improvements persisted for at least three months after the sessions concluded.” As an article in Pacific Standard Magazine reported about group drumming, “Researchers in London have found evidence of a surprisingly effective treatment for anxiety and depression, one that even alters the inflammatory immune responses that may underlie these disorders.” For the Pacific Standard article and a link to the study, click here.

Thanks, Jeff Friedman @JMFriedman

EVER-Changing World, Fourth International Conference, to Be Held June 8-9, 2016

For the first time, the Experts Conference, held in the Netherlands for the past three years, will take place in the United States, at the College of Saint Rose, in Albany, New York, on June 8-9. The conference focus has expanded “to explore the role of the peer support movement in diverse countries as well as for those who come to the U.S. and Europe as refugees and immigrants. Speakers include those working in mental health, peer support, and/or with refugees and immigrants in Europe, Africa and the United States.” For more information and to register, click here.

Chartbook on Health Care for Blacks Documents Disparities in Care, Including Mental Health Care

In February, the Agency for Healthcare Research and Quality, operating under the U.S. Department of Health and Human Services, published its 98-page Chartbook on Health Care for Blacks, a 2015 National Healthcare Quality and Disparities Report. The report paints a grim picture of the health care provided to African-Americans: two of its findings were that “Blacks receive [a] poorer quality of care, especially on measures of…person centeredness and care coordination” and “[s]uicide prevention and mental health care for Blacks is worsening, with many disparities and no reductions in disparities over time.” To download a free copy, click here.

Free Online Curriculum for Primary Care Providers Working in Mental Health Settings

A free online course entitled Primary Care Providers Working in Mental Health Settings: Improving Health Status in Persons with Mental Illness has been made available by the SAMHSA-HRSA Center for Integrated Health Solutions and the Addiction Technology Transfer Center. The goal is to acquaint primary care providers  with the importance of creating access to primary care within behavioral health settings, strategies for recognizing the physical signs of behavioral health concerns (and vice versa) and to maximize their role on the care team. For more information and to register, click here. (Continuing education credits are available for a small fee.)

VA Announces Additional Steps to Reduce Veteran Suicide

On March 8, 2016, the Department of Veterans Affairs (VA) announced new steps to reduce veteran suicide. The steps follow a February 2 Summit, Preventing Veteran Suicide – A Call to Action. “We know that every day, approximately 22 veterans take their lives,” said VA under secretary for health Dr. David Shulkin. “We must and will do more, and this Summit, coupled with recent announcements about improvements to enhance and accelerate progress at the Veterans Crisis Line, shows that our work and commitment must continue.” For information about the VA’s plans, click here.

Can Getting Excited Help People Handle Anxiety?

A recent article in The Atlantic indicates that, instead of suggesting that people calm down, telling them to get more excited might be more helpful for people dealing with anxiety. Research on a technique called “anxious reappraisal” indicates that, because anxiety and excitement have more in common than anxiety and calmness, it’s easier for most people to move from “charged-up, negative feelings to “charged-up, positive ones” than it would be to get to the “charged-up, positive” place from a calm position. This was demonstrated by a study published in 2014 in the Journal of Experimental Psychology, also reported in The Atlantic. For more, click here.

Alternatives 2016 Will Take Place September 21-25 in San Diego!

Alternatives 2016 (#AltCon16), organized by Peerlink National Technical Assistance Center (@PeerlinkTA) from September 21 to 25, will be held at the Town & Country Resort & Convention Center in San Diego, California! Check the Peerlink website for more information as it becomes available: http://www.peerlinktac.org/

The next two items were included in February but are still relevant:

Comments Are Sought until March 31 on Draft Competencies for Whole Health Peer Specialists

Mental Health America is seeking comments on its draft core competencies for Whole Health Peer Specialists, who promote physical as well as emotional wellness. The certification “is designed to build upon and enhance traditional peer specialist training and core competencies … and add the additional competencies necessary to enable peers to work alongside any other health care team(s),” such as in emergency rooms and with private practitioners, including primary care physicians, according to Mental Health America (MHA). “Whole Health Peer Specialist is not a new classification,” said Patrick Hendry, MHA’s vice president of consumer advocacy. “What is new is that this is the first national certification, it takes peer support to new levels of skills and knowledge, and it is oriented to preparing people to work in the private sector.” The core competencies, published on February 15, are available here. To provide feedback, fill out MHA’s online survey—available here— by March 31, 2016. For additional information, click here.

“Healing Voices” Documentary to Have Global Premiere on April 29, 2016

“Healing Voices,” a “new feature-length documentary which explores the experiences commonly labeled as ‘psychosis’ through the real-life stories of individuals working to overcome extreme mental states and integrate these experiences into their lives in meaningful ways,” will have its global premiere on April 29, 2016. “The film follows three subjects – Oryx, Jen, Dan – over a period of nearly five years and features interviews with notable personalities, including Robert Whitaker, Dr. Bruce Levine, Will Hall, Marius Romme, and others.” For more information and to see the trailer, click on the following link: www.HealingVoicesMovie.com. The film makers are planning a “One Night, One Voice” global event to mark the VOD (Video-On-Demand) release of the movie. Click here for information about screening packages. For additional information about licensing or tax-deductible donations, click here or contact pj@digitaleyesfilm.com.

 

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215.636.6312, or by phone at 800.553.4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 12, No. 9, March 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

The Key Update, Volume 12, Number 8 - February 2016

Key Update, February 2016

Volume 12, Number 8

How to Keep People with Mental Health Conditions from Landing in Prison and “Human Toll of Jail”

“Early intervention programs may be the key to preventing people with serious mental illness from ending up in prison,” according to a new report by the Vera Institute of Justice. Examples include “programs that help homeless clients find housing, and offer enough flexibility to allow them to enroll in school or vocational training and foster a sense of empowerment,” write the authors of First-Episode Incarceration: Creating a Recovery-Informed Framework for Integrated Mental Health and Criminal Justice Responses. For more information and a link to the report, click here. The Vera Institute has also launched a website called The Human Toll of Jail, which “aims to put a human face to the uses and abuses of jails in the United States. Along with every story featured here, Vera brings information about and links to the research, policy analyses, and best practices that address the larger questions and issues.” More than a half million Americans with mental health conditions are incarcerated on any given day – about the same number of people warehoused in psychiatric institutions in the 1950s, Vera notes. For the website, click here. At the same time, the American Friends Service Committee has compiled Reports and Testimonies on the Use of Torture in U.S. Prisons, available here, and a web page on Impacts of Incarceration, available here. 

Comments Are Sought on Draft Competencies for Whole Health Peer Specialists

Mental Health America is seeking comments on its draft core competencies for Whole Health Peer Specialists, who promote physical as well as emotional wellness. The certification “is designed to build upon and enhance traditional peer specialist training and core competencies … and add the additional competencies necessary to enable peers to work alongside any other health care team(s),” such as in emergency rooms and with private practitioners, including primary care physicians, according to Mental Health America (MHA). “Whole Health Peer Specialist is not a new classification,” said Patrick Hendry, MHA’s vice president of consumer advocacy. “What is new is that this is the first national certification, it takes peer support to new levels of skills and knowledge, and it is oriented to preparing people to work in the private sector.” The core competencies, published on February 15, are available here. To provide feedback, fill out MHA’s online survey—available here— by March 31, 2016. For additional information, click here.

Emotional CPR Webinar to Be Presented on March 8

A webinar on Emotional CPR (eCPR)—an educational program designed to teach people to assist others through an emotional crisis by Connecting, emPowering, and Revitalizing—will be presented on March 8 at 3 p.m. ET. Its theme will be Creating a Culture of Recovery and Empowerment. The presenters will be eCPR co-developer Daniel Fisher, M.D., Ph.D., along with two other eCPR trainers, Flora Releford and Stella Archer. Dan “first imagined eCPR when he was helped out of a catatonic state by two young naval corpsmen whose authentic, caring ways restored his wish to live,” according to information posted on Facebook. He became a psychiatrist, a co-founder of the National Empowerment Center, a member of the President’s New Freedom Commission on Mental Health, and a professor of psychiatry at the University of Massachusetts. To register, click here.

BRSS TACS First Friday in March Will Cover “What If I Am the Only Peer on My Team?”

On March 4, 2016, at 12 p.m. ET, BRSS TACS (Bringing Recovery Supports to Scale Technical Assistance Center Strategy) will host a free teleconference that answers the question What If I Am the Only Peer on My Team? Leading the Way in Traditional Behavioral or Integrated Healthcare Settings. “First Fridays with BRSS TACS is a free monthly opportunity to meet with nationally recognized leaders to discuss recovery-related topics in an open and informal setting.” Join BRSS TACS on March 4 to hear about peer leadership and submit your questions to presenter LaVerne Miller of Policy Research Associates. For more information and to register, click here.

Free Guide to Using Your Employer-Sponsored Health Plan to Cover Behavioral Health Services

The Substance Abuse and Mental Health Services Administration (SAMHSA) recently published Parity of Mental Health and Substance Use Benefits with Other Benefits. The guide examines “what the Mental Health Parity and Addiction Equity Act means for people with employer-sponsored health plans who need treatment for substance abuse or mental illness. [It] discusses key elements of health care legislation particularly as it relates to filing a claim, denial of a claim, and the appeals process.” To download the digital version, click here.

APA Issues Call for Papers for a Special Issue on Complementary and Alternative Medicine for Holistic Mental Health Care

The American Psychological Association (APA) is inviting submissions to Psychological Services for a special issue “devoted to all aspects of holistic care, including but not limited to culture-based approaches, evidence-based approaches, mindfulness, acupuncture, yoga, Ayurveda, traditional healing practices, nutritional and herbal approaches, meditation, physical care (e.g., exercise), indigenous approaches, mind-body medicine, religious and spiritual approaches, and ecological treatments.” The deadline for receipt of papers is August 31, 2016. For the call for papers, which includes detailed guidelines, click here.

Thanks, Mad in America

National Storytelling Network Seeks Applications for Brimstone Award

“The National Storytelling Network is accepting applications for the 2016 Brimstone Award for Applied Storytelling, an annual award that recognizes the transformational properties of storytelling and the ways storytelling can promote change in individuals and communities. Grants of $5,000 will be awarded in support of model storytelling projects that are service-oriented, based in a community or organization, and are replicable (to some extent) in other places and situations….Projects may involve various kinds of stories, including traditional tales and myths as well as personal and ad hoc narratives….Areas of interest include health care, environmental education/activism, community development, law, multicultural awareness, organizational development, leadership, intergenerational initiatives, empowerment of the disabled, substance abuse prevention, and educational curriculum at all levels.” The preliminary proposal deadline is April 28, 2016. For details, click here.

Thanks, Matt Canuteson

Are Pictures Worth a Thousand Words in the Struggle Against Prejudice and Discrimination?

Cartoonists are posting online drawings to combat the prejudice and discrimination associated with mental health conditions, the BBC reports. Mental Health Week: How drawings on social media are changing the conversation includes drawings by such artists as "Robot Hugs," "Sylvia Reuter," and "Ruby etc." Although they take different approaches to the subject, each has the goal of opening up the conversation, combating isolation, forging connections, and giving people hope. For more, click here. Although the BBC did not include her, Allie Brosh has been doing the same thing for a long time with Hyperbole and a Half. For Brosh's Adventures in Depression, click here. For Depression Part Two, click here.

Rosalynn Carter Fellowships for Mental Health Journalism Seeks Applications for 2016-17

Applications are being accepted for six one-year journalism fellowships with the Carter Center’s Mental Health Program. The program is open to journalists who are U.S. citizens or residents working in all media forms with a minimum of three years of professional experience. “These fellowships aim to enhance public understanding of mental health issues and reduce stigma and discrimination against people with mental illnesses through balanced and accurate reporting,” the Carter Center writes. Each fellow is awarded a $10,000 stipend and provided with two required expense-paid trips to the Carter Center to meet with program staff and advisers. Fellows are not required to leave their employment. The deadline is April 6, 2016. The application is available at http://mhjapply.cartercenter.org.

Exercise and Meditation -- Together -- Help Beat Depression, Rutgers Study Finds

A combined program of meditation and aerobic exercise can reduce depression, according to a new Rutgers study. The study, published in Translational Psychiatry in February, found that the mind and body combination—done twice a week for only two months—reduced the symptoms for a group of students by 40 percent. “We…saw such a meaningful improvement in both clinically depressed and non-depressed students,” said lead author Brandon Alderman, an assistant professor at Rutgers. The researchers discovered that a combination of mental and physical training (MAP) enabled students with major depressive disorder not to let problems or negative thoughts overwhelm them. “Scientists have known for a while that both of these activities alone can help with depression,” said Rutgers professor Tracey Shors, who also worked on the study. “But this study suggests that when done together, there is a striking improvement in depressive symptoms along with increases in synchronized brain activity.” For the press release, click here. For the study, click here.

Thanks, Mad in America

Three Newsletters Offer In-Depth Information on Mental Health and/or Criminal Justice Reform Issues

Three newsletters that offer a wealth of information on various topics related to mental health and/or criminal justice reform are published by Mad in America, the Marshall Project, and the International Association of Peer Supporters, respectively. Mad in America’s mission is “to serve as a catalyst for remaking psychiatric care in the United States (and abroad)”; the Marshall Project is a nonprofit news organization that focuses on the American criminal justice system; and the International Association of Peer Supporters (iNAPS) is a nonprofit organization dedicated to promoting the use of peer support services worldwide. For the February 23rd edition of the Mad in America newsletter, click here. To subscribe, click here. For the February 26th Opening Statement from the Marshall project, click here. To subscribe, click here. For the latest edition of the iNAPS newsletter, click here. To subscribe, click here. (You do not need to join iNAPS in order to receive its free newsletter; however, membership is encouraged. Membership information is included at the bottom of the iNAPS newsletter.)

New Social Media Site Aims to Help People Deal with Stress

Koko, a new app that runs on mobile devices, “helps you navigate through stressful thoughts and find your way forward,” according to its website: http://itskoko.com/. The app “asks users to choose a topic of concern (think: school, work, relationships, family) and write, in a few sentences, the worst-case outcome of their worries….Whatever the user types into the box then shows up on a card, that other users swipe through like Tinder profiles. If someone sees a problem they can address, they click a bright pink button that says ‘Help rethink this.’ A little text box pops up and gives the user prompts like, ‘What’s a more optimistic take on this situation?’ Or ‘This could turn out better than you think because…’ [A]n algorithm watches out for trigger words that indicate someone is dangerous to themselves or others.” For a wired.com article about Koko, click here.

Virtual Reality Can Combat Depression by Fostering Self-Compassion

A study that helped individuals to step outside of their own reality has shown success in combatting depression. Researchers at University College London and the University of Barcelona developed a way for people experiencing depression to enter a virtual reality as life-size avatars. Wearing virtual-reality glasses and body sensors, the participants watched their avatars mimic their body movements, in a process called “embodiment.” First, the participant’s avatar encounters an avatar of a crying child, and says kind and compassionate things to the child, who has been programmed to respond positively. Then the adult adopts the role of the child, and hears and sees the adult avatar say these same kind things. Many of the subjects felt that participating helped reduce their symptoms of depression. “We’ve created an artificial situation which allows them to hear themselves be self-compassionate, and they think, ‘Actually this makes me feel good,’ ” said Chris Brewin, a clinical psychologist at University College London and the study’s lead author.  Although the study was small, Brewin believes that, if more research confirms the results, it could be a revolutionary way to treat depression. The study was published in the British Journal of Psychiatry Open this month. For more, click here.

Essay Contest for Youth to Combat Prejudice and Discrimination Associated with Bipolar Disorder

The International Bipolar Foundation (IBF) is sponsoring an essay contest for young people aged 13 to 19. Participants will answer the question Are People Who Live with Bipolar Disorder Stigmatized in Your Community? IBF writes: “Chances are someone you know has this mental illness or cares for someone who does. Learning about bipolar disorder can help you understand the impact this disease has on those affected by it so you can respond to them with care and sensitivity.” The deadline is March 30. For details, click here.

Thanks, Carol Coussons de Reyes

Not Too Late to Comment on Whether ECT Device Should Be Reclassified from Class III to Class II

There is still time to submit comments to the Food and Drug Administration (FDA) on whether it should reclassify the device used to administer electroconvulsive therapy (ECT), a controversial procedure that even proponents admit can cause “adverse cognitive effects [that] can persist for an extended period, and that they characterize routine treatment with ECT in community settings.” The device is currently in Class III; the proposal is to reclassify it to Class II. For information about the three classes, click here. For testimony by Daniel B. Fisher, M.D., Ph.D., in 2011, the last time the FDA threatened to reclassify the equipment, click here. For information about Doctors of Deception: What They Don’t Want You to Know about Shock Treatment, which the International Journal of Risk and Safety in Medicine called “brilliant analysis,” click here. For additional information, click here. The comment period is open until March 28, 2016. To comment, click here.

“Healing Voices” Documentary to Have Global Premiere on April 29, 2016

“Healing Voices,” a “new feature-length documentary which explores the experiences commonly labeled as ‘psychosis’ through the real-life stories of individuals working to overcome extreme mental states and integrate these experiences into their lives in meaningful ways,” will have its global premiere on April 29, 2016. “The film follows three subjects – Oryx, Jen, Dan – over a period of nearly five years and features interviews with notable personalities, including Robert Whitaker, Dr. Bruce Levine, Will Hall, Marius Romme, and others.” For more information and to see the trailer: www.HealingVoicesMovie.com. The film makers are planning a “One Night, One Voice” global event to mark the VOD (Video-On-Demand) release of the movie. Click here for information about screening packages. For additional information about licensing or tax-deductible donations, click here or contact pj@digitaleyesfilm.com.

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215-636-6312, or by phone at 800-553-4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 12, No.8, February 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH

 

 

 

The Key Update, Volume 12, Number 7 - January 2016

Key Update, January 2016

Volume 12, Number 7

FDA Seeks Comments on Whether ECT Device Should Be Reclassified from Class III to Class II

The Food and Drug Administration (FDA) is once again seeking comments on whether it should reclassify the device used to administer electroconvulsive therapy (ECT), a controversial procedure that even proponents admit can cause “adverse cognitive effects [that] can persist for an extended period, and that they characterize routine treatment with ECT in community settings.” The device is currently in Class III; the proposal is to reclassify it to Class II. For information about the three classes, click here. For testimony by Daniel B. Fisher, M.D., Ph.D., in 2011, the last time the FDA threatened to reclassify the equipment, click here. For information about Doctors of Deception: What They Don’t Want You to Know about Shock Treatment, which the International Journal of Risk and Safety in Medicine called “brilliant analysis,” click here. For additional information, click here. The comment period is open until March 28, 2016. To comment, click here.

Apply by February 1 for the Behavioral Health and Justice Leadership Academy

Applications are due by February 1, 2016, for Policy Research Associates (PRA) Behavioral Health and Justice Leadership Academy. “The goal,” PRA writes, “is to improve public health and public safety outcomes for people with mental and substance use disorders in the justice system by supporting leaders to implement effective strategies in their cities and counties. Twenty-five individuals will be selected to participate in the initiative, which will feature a two-day meeting in May 2016.” For more information or to apply, please download the solicitation for applications.

SAMHSA Hosts Webinar on Hospital Diversion and Alternatives in Crisis Response

On February 2, 2016, at 1 p.m. ET, the Substance Abuse and Mental Health Services Administration (SAMHSA) will host a free one-hour Recovery to Practice webinar on Hospital Diversion and Alternatives in Crisis Response. The presenters are two staff members of RI International, Inc., a Phoenix-based agency, who “will present their ‘next generation crisis response services,’ which include an array of approaches for managing mental health crisis in non-hospital settings. The programs include the ‘Living Room,’ in which peers, nurses and doctors work side by side with individuals in crisis, and Recovery Response Centers that offer more intensive support and services.” For more information and to register, click here.

BRSS TACS First Friday in February Will Be on Peer-Run Respites

On February 5, 2016, at 12 p.m. ET, BRSS TACS (Bringing Recovery Supports to Scale Technical Assistance Center Strategy) will host a free teleconference on Peer-Run Respites. “First Fridays with BRSS TACS is a free monthly opportunity to meet with nationally recognized leaders to discuss recovery-related topics in an open and informal setting.” Join BRSS TACS on February 5 to hear about peer-run respites and submit your questions to Steve Miccio, executive director of PEOPLe, Inc. To register, click here. (See the item below for more information about peer-run crisis respites.)

Live & Learn Launches Peer Respite Resource Website

In January 2016, Live & Learn launched PeerRespite.net, “a website dedicated to information and resources regarding peer respites in the U.S.” As part of the initiative, recruitment is open for the 2015 Peer Respites Essential Features Survey (click here for the survey). For more information about peer-run crisis respites, see the National Empowerment Center’s website on Crisis Alternatives (click here) and the Clearinghouse’s publication entitled Focus on Peer-Run Crisis Respite Services (click here).

NASMHPD to Host Webinar on Maximizing Medicaid Coverage for Peer Support Services

The National Association of State Mental Health Program Directors (NASMHPD) will host a free 90-minute webinar on February 11, 2016, at 2:00 p.m. ET., on Maximizing Medicaid Coverage for Peer Support Services. The webinar will draw on lessons learned from the state of Georgia. NASMHPD writes: “The state of Georgia has been very successful in securing diverse Medicaid coverage for peer support services in different settings, including mental health, addiction recovery, whole‐health and parent/ youth peer support activity. The presenter will highlight strategies for: working with state Medicaid officials; certification; creating job descriptions; addressing code of ethics issues; exploring varied roles and responsibilities in behavioral health and general health settings; and other details to help facilitate the process of securing Medicaid coverage for diverse peer support services. Time will be provided for the speaker to respond to audience questions.” To register, click here.

Thanks, iNAPS Update #2, January 2016

Three More Opportunities to Contribute to Peer Support Research

The University of Illinois at Chicago and the University of Detroit Mercy are sponsoring online surveys about peer supporters’ career development and their work experience, respectively. The University of Illinois at Chicago Career Development Survey “asks about peer specialists’ career development; interest in and opportunities for advancement; current work climate; and perceptions of discrimination and stigma.” For more information, visit www.bhpcd.org. For the survey, click here. Questions or comments? Cherise Rosen, Ph.D. (crosen@psych.uic.edu)  or Nev Jones, Ph.D. (jones.genevra@gmail.com ) or Jessica Wolf, Ph.D. (jwolfds@gmail.com). Next, the University of Detroit Mercy survey, Work Experiences of Peer Support Specialists, “is specifically designed to better understand peer support specialists’ experiences of supervision.” To participate, click here. For questions, email Dr. Kristen Abraham (abrahakm@udmercy.edu). In addition, Doors to Wellbeing National Technical Assistance Center has launched a survey entitled What Type of Peer Specialist Toolkit Do You Want to See? Doors to Wellbeing writes: “We want to provide you with the tools you need to complete the projects you value. We are doing this survey so you can tell us what those projects are so we can get you the information you need to help you achieve your program’s dreams.” To participate, click here.

NARPA Issues Request for Proposals for 2016 Annual Rights Conference

The National Association for Rights Protection and Advocacy (NARPA) is seeking workshop proposals for its 2016 conference, to be held August 25-28 at the Pointe Hilton Squaw Peak Resort in Phoenix, Arizona. Robert Whitaker, award-winning author of Mad in America and Anatomy of an Epidemic, will keynote the conference, whose theme is Rights Under Siege: Fighting Back. Proposals should address “strategies, ideas, programs, and emerging practices that support and promote NARPA’s mission and commitment to individual rights, liberty, freedom and dignity.” To submit a proposal, click here.

ODEP Website Offers Resources to Help People “Stay at Work/Return to Work”

The federal Office of Disability Employment Policy has made available a number of online Stay At Work/Return To Work (SAW/RTW) strategies to address the high unemployment rate of Americans with disabilities. ODEP writes: “Successful RTW strategies, if sufficiently promoted, can result in higher incomes for recovering workers, lower benefits costs for the American taxpayer, and lower personnel costs for employers.” The website is available here. For more information, see A Practical Guide for People with Mental Health Conditions Who Want to Work, by the Temple University Collaborative on Community Inclusion, available here.

TU Collaborative Launches New Web Page on Parenting with a Mental Health Condition and a Guide to Self-Directed Care Programming

The Temple University Collaborative on Community Inclusion recently launched a new “Parenting Tool.” The Collaborative writes: “This website will allow parents with children ages birth-to-18 to get information and strategies for improving their parenting, and, in addition, will provide you with a great deal of information about parenting with a psychiatric disability through its age-specific educational curriculum.” For the website, which includes a video introduction, click here. In addition, the Collaborative is offering A Guide to Creating Self-Directed Care Programming, available here. The manual provides “a detailed review of a novel and successful self-directed care program that is currently being offered in Pennsylvania.”

National Survey of Compensation Among Peer Support Specialists Is Available

The College for Behavioral Health Leadership recently published a report on its 2015 National Survey on Compensation Among Peer Support Specialists. “The findings of this study illustrate that there is diversity among the current national structure for the wages of peer specialists,” according to the Executive Summary. “This includes significant differences in average compensation rates between those who work all different hours ($15.42) and only full-time ($16.36).” The report addresses a number of other disparities, including among types of employers, geographically, and male vs. female (with men receiving on average more than $2 more per hour than women). For the report on the study, click here.

 

iNAPS Newsletter Offers a Wealth of Information; Deadline for Conference Proposals Approaches

The January 2016 newsletter of the International Association of Peer Supporters (iNAPS) is out! It includes an array of information, including the call for papers for its 10th annual national conference, to be held August 26-27, 2016, in Philadelphia. The deadline for proposals is Feb. 15, 2016. For information about the conference, including the call for proposals, click here. The conference is “also seeking peer-created art and photography related to the conference theme of Collaboration for Unity. Submit ideas only for contributions (no original artwork please) in an email with Conference Art in the subject line to info@naops.org.” The newsletter is available here.

SAMHSA’s 2015 Barometer Tracks Behavioral Health in the U.S.

On January 26, 2016, the Substance Abuse and Mental Health Services Administration (SAMHSA) published its annual National Behavioral Health Barometer. Among topics covered are “the prevalence rates of youth and adult substance use, serious mental [health conditions], suicidal thoughts, and people seeking treatment for these disorders,” SAMHSA writes. “The Barometer shows this data at the national level, and for each of the 50 states and the District of Columbia. The Barometer also includes analyses using several demographic categories such as gender, age, income level, health insurance status and race/ethnicity.” To view and download copies of the national or any state Behavioral Health Barometer, click here.

SAMHSA Offers Free Mobile Resources and a Podcast Series to Support Behavioral Health

SAMHSA is offering free mobile apps that address “some of the toughest mental health and substance use challenges, including suicide prevention, bullying prevention, behavioral health following a disaster, and underage drinking prevention.” To download the free resources, click here. At the same time, SAMHSA’s new podcast series, Resiliency in Disaster Behavioral Health, covers What Is Community Resilience? Behavioral Health Reactions and Ways to Enhance Resilience, Pre-Disaster Organizational Resilience, and Resiliency among First Responders. For more information, click here.

Active Minds Healthy Campus Award Seeks Applications

Active Minds writes: “The Active Minds Healthy Campus Award – the only national recognition of its kind – celebrates leadership, innovation, collaboration, and excellence in campus health. Winners have their successes shared broadly, through a concerted national media relations campaign, to inspire change across the nation. The award recognizes U.S. colleges and universities that are prioritizing health and making great progress toward creating a campus that promotes the health and well-being of its students.” Applications are due February 16 by 5 p.m ET. For more information or to apply, click here.

Presidential Candidates Urged to Reveal Mental Health Policy Positions

Mental health advocate AJ French has issued a challenge to the presidential candidates to answer eight questions about their positions on mental health policy. “Campaigns have not yet addressed issues that are important to persons with psychiatric disabilities,” said French, “and this is an opportunity to engage voters regarding mental health policy.” Among groups that support this initiative are the National Coalition for Mental Health Recovery and Next Steps NFP, a peer-run advocacy organization in Illinois. “People who are affected by decisions should have a voice in those decisions,” said Next Steps head organizer Fred Friedman. “They also need information so they can intelligently speak on those issues. The eight questions are AJ’s attempt to gain that information.” For more information and a link to French’s website with the eight questions, click here. For additional information, click here.

Twitter Campaign Seeks to Fight Prejudice Associated with Mental Health Conditions

Composer, author, and mental health advocate Rachel Griffin recently launched a Twitter campaign whose goal is to combat the prejudice attached to mental health conditions. The campaign, #imnotashamed, quickly gained traction, attracting attention from the media, including the Washington Post (click here). Among the multitude of tweets are “If you’ve made it this far, you’re a survivor. That’s definitely a reason to celebrate. #imnotashamed”; “I suffered in silence for so long before asking for help. Don’t wait. You are worth it. #imnotashamed”; and “#imnotashamed because without all my experiences, both good and bad, I would not be me.” Griffin’s associated Twitter account, @teamnotashamed, has amassed nearly 1,800 followers. Meanwhile, Griffin is writing the book, music and lyrics for a musical set on a psych ward – We Have Apples – and she has a YouTube channel where you can see more of her music. She has also created two videos, Sh*t People Say to People with Mental Illness, and Sh*t Therapists Say, in which she acts out multiple parts. To participate in the anti-prejudice campaign, use the hashtag #imnotashamed.

 “Healing Voices” Documentary to Have Global Premiere on April 29, 2016

“Healing Voices,” a “new feature-length documentary which explores the experiences commonly labeled as ‘psychosis’ through the real-life stories of individuals working to overcome extreme mental states and integrate these experiences into their lives in meaningful ways,” will have its global premiere on April 29, 2016. “The film follows three subjects – Oryx, Jen, Dan – over a period of nearly five years and features interviews with notable personalities, including Robert Whitaker, Dr. Bruce Levine, Will Hall, Marius Romme, and others.” For more information and to see the trailer: www.HealingVoicesMovie.com. The film makers are planning a “One Night, One Voice” global event to mark the VOD (Video-On-Demand) release of the movie. Click here for information about screening packages. For additional information about licensing or tax-deductible donations, click here or contact pj@digitaleyesfilm.com.

 

National Technical Assistance and Networking Teleconferences Are on Hiatus for Now

The National Mental Health Consumers’ Self-Help Clearinghouse is no longer operating under a grant from the Substance Abuse and Mental Health Services Administration. Although we are keeping our doors open – including publishing our monthly e-newsletter, the Key Update – we are suspending our monthly national technical assistance and networking calls for the time being. We will keep you posted!

Consumer-Driven Services Directory

The Clearinghouse welcomes all programs in which consumers play a significant role in leadership and operation to apply for inclusion in its Directory of Consumer-Driven Services. The directory, accessible at http://www.cdsdirectory.org, is searchable by location, type of organization, and targeted clientele, and serves as a free resource for consumers, program administrators and researchers. Apply online at http://www.cdsdirectory.org/database/cds.php, via fax at 215-636-6312, or by phone at 800-553-4KEY (4539). To receive an application by mail, write to srogers@mhasp.org or Susan Rogers, Clearinghouse, 1211 Chestnut Street, Suite 1100, Philadelphia, PA 19107.

About The Key Update

The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 12, No. 7, January 2016, http://www.mhselfhelp.org. To subscribe, please send a message to: subscribe thekey. To unsubscribe, please send a message to: unsubscribe thekey. For content, reproduction or publication information, please contact Susan Rogers at srogers@mhasp.org or 800.553.4539 x3812, 267.507.3812 (direct). Follow Susan on Twitter at @SusanRogersMH