Key Update, January 2024, Volume 20, Number 7

To subscribe to the monthly Key Update, send an email to selfhelpclearinghouse@gmail.com with Subscribe in the subject line.

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion.

TO CONTACT: THE CLEARINGHOUSE: SELFHELPCLEARINGHOUSE@GMAIL.COM  … SUSAN ROGERS: SUSAN.ROGERS.ADVOCACY@GMAIL.COM … JOSEPH ROGERS: JROGERS08034@GMAIL.COM 

THE KEY UPDATE IS COMPILED, WRITTEN, AND EDITED BY SUSAN ROGERS, DIRECTOR, NATIONAL MENTAL HEALTH CONSUMERS’ SELF-HELP CLEARINGHOUSE.

NOTE: THE "FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!" DEPARTMENT, WHICH IS DIRECTLY BELOW THE MONTHLY CRIMINAL LEGAL SYSTEM DIGEST, INCLUDES ITEMS THAT HAD BEEN POSTED "ABOVE THE FOLD" IN EARLIER EDITIONS BUT ARE STILL RELEVANT. THESE INCLUDE ONGOING RESEARCH STUDIES THAT ARE STILL SEEKING PARTICIPANTS, AS WELL AS UPCOMING WEBINARS AND CONFERENCES, AND OTHER ITEMS OF CONTINUED INTEREST. DON'T MISS IT!

DEADLINE ALERT: Please note that there is a webinar tomorrow (Dec. 20)! And there are opportunities and upcoming deadlines throughout the Key Update, including in the “…But Still Fresh!” Department!

NEWS

“Traumatic Memories Are Represented Differently Than Regular Sad Memories in the Brains of People With PTSD, New Research Shows”

Brain scans of 28 people diagnosed with Post-Traumatic Stress Disorder (PTSD) found that their brains processed “sad” memories, such as the death of a loved one, differently from traumatic memories, such as sexual assaults or terrorist attacks, according to a new study by researchers at Yale and Mt. Sinai. “We observed that brain regions known to be involved in memory are not activated when recalling a traumatic experience,” said a co-author of the study. “This finding…focuses the goals of returning traumatic memories into a brain state akin to regular memory processing.” For a press release about the study, click here.

“Idaho Keeps Some Psychiatric Patients in Prison, Ignoring Decades of Warnings About the Practice”

“A temporary program for ‘dangerously mentally ill’ patients has continued for five decades, despite calls from critics to provide better care. Soon, Idaho will be the only state still using prisons to house patients who face no criminal charges,” according to a recent article by ProPublica. For the article, click here.

“2024 Disability Freedom & Justice Caravan” Kicks Off on April 5

From April 5 to September 29, 2024, “we the people with disabilities, and our allies, will cross America visiting cities, honoring people and places significant to us, and take action to bring justice to our people,” according to an announcement by I Love You, Lead On, founded in memory of Justin Dart, who is considered the “father” of the Americans with Disabilities Act. A goal is “voter education, engagement, and registration to educate our community and the public on issues important to us—and where elected officials stand on these issues—leading up to critical elections in November 2024.” For more information, click here. (Courtesy of Braunwynn Franklin)

“Psychiatrists Call for Transition to Social Rather Than Biological Treatments”

“Leading scholars write that psychiatric disturbances are social in nature and that current treatments often cause more harm than good; [they] highlight alternative social approaches to mental health,” according to a recent article in Mad In America. For the article, click here.

WEBINARS, TRAININGS, AND PODCASTS

“Alternatives to Suicide: A Harm Reduction Approach”

On December 20, 2023, at 3 p.m. ET, the Cafe TA Center will present “a conversation about alternative approaches to suicide driven by genuine openness, recovery values, and authentic peer connection,” For more information and to register, click here.

“The Psychological Origins of Stigma & Bias”

On January 3, 2024, at 1 p.m. ET, Mindspring Mental Health Alliance will present a free, one-hour webinar on “The Psychological Origins of Stigma & Bias.” Mindspring writes: “How does cultural bias impact treatment, prevention & recovery? Discuss the origins of understanding mental illness, how misinformation is spread, and how stigma impacts individuals and communities…” For more information and to register, click here. For additional free Mindspring webinars, click here.

NCAPPS Newsletter Promotes Two Upcoming Webinars and a Podcast

The National Center on Advancing Person-Centered Practices and Systems (NCAPPS) has announced two webinars and a podcast: On January 9, 2024, at 3 p.m. ET, NCAPPS team members and the Disability Employment Technical Assistance Center will present a one-hour webinar on “The Role of Person-Centered Planning for Employment Support.” On January 10, at 2 p.m. ET, CMS will present a 90-minute webinar on “Person-Centered Service Planning in HCBS (Home and Community-Based Services): Requirements and Best Practices.” The podcast, by the Boggs Center on Developmental Disabilities, available now, is on “moving toward an authentically person-centered system of supports and services for people with disabilities.” For details and to register for the two webinars and to listen to the podcast, click here.

C4 Innovations Presents “Changing the Conversation Webinar Series”

“ ‘Changing the Conversation’ is the official C4 Innovations podcast, where hosts and guests discuss critical and timely topics focused on equity, substance use, mental health, homelessness, and trauma. Day One: January 17, 2024, 1:00-2:00 p.m. ET. Register for day one here. Day Two: January 24, 2024, 1:00-2:00 p.m. ET. Register for day two here.

Recovery Resilience Solutions Hosts “Viva La Evolution” Podcast

“Viva la Evolution,” featuring Lori Ashcraft, includes podcasts and interviews, including interviews with Dr. Mark Ragins (“Learning and teaching about the possibility of recovery”), Dr. George Woods (“The healing power of relationship”), and Gloriana (“How recovery happens”), among others. To listen to the podcasts, and to learn more about other resources offered by Recovery Resilience Solutions, click here.

PENTAC Presents a “Transformational Peer Support Series”

On January 25, February 8, and February 15, 2024, from 1 p.m. to 2:30 p.m. ET, PENTAC will host a three-part training, created by Achara Consulting, during which “peer support workers will be challenged and equipped to provide higher level, transformative peer support services.” To register, click here. Questions? sherry@peersupportfl.org

“Navigating Authentic Advocacy: Uplifting Black and Queer Communities”

On January 30, 2024, at 2 p.m. ET, Doors to Wellbeing will present a one-hour webinar on “Navigating Authentic Advocacy: Uplifting Black and Queer Communities.” Doors to Wellbeing writes: “Black and Queer individuals experience unique challenges and systemic barriers that have significant impact on their mental health, well-being, access and quality of behavioral health care received, and more…Explore tangible strategies for how to engage in authentic advocacy that promotes equity, inclusion, justice, and diversity and the pivotal role of peer support…” For more information and to register, click here. 

“Mental Health Recovery: Does Setting Goals Help?”

On January 31, 2024, at 9 a.m. ET, Mid West ARIES (Advancing Recovery in Ireland Education Service), in partnership with Mental Health Ireland, will present a free, one-hour webinar on “Mental Health Recovery: Does Setting Goals Help?” For more information and to register, click here. For information about additional free Mid West ARIES webinars, click here.

CONFERENCES

International Online Conference on Stress, Anxiety and Depression (SAD 2024)

The theme of the International Live, Virtual Conference on Stress, Anxiety, and Depression (SAD 2024), starting January 19, 2024, is Frontiers in Research on Stress, Depression & Anxiety Management. “The speakers’ contributions include all types of original, published or unpublished, experimental, constructive or theoretical work/findings in the field of SAD Occurrence & Management.” For more information and to register, click here.

Sixth (Online) World Mental Health Congress to Be Held April 15-16, 2024

“Breaking Barriers, Building Resilience: Nurturing Mental Health in a Changing World” is the theme of the Sixth World Mental Health Congress, a virtual event to be held April 15-16, 2024. For more information and to register, click here.

Psychosis Is the Topic for the 2024 Online Law & Mental Health Conference

The 2024 online Law & Mental Health Conference on psychosis will be June 10, 11, and 12, 2024. Topics will include: “What is psychosis exactly – from a medical or clinical perspective, from a legal or criminal perspective, and from the perspective of those who have experienced psychosis? What are our best practices with psychosis for treatment, for housing, for families and friends, for courts, jails, and hospitals? How can those who have psychosis practice self-care and find mutual aid?” Among the speakers will be investigative journalist Rob Wipond, author of Your Consent Is Not Required: The Rise in Psychiatric Detentions, Forced Treatment, and Abusive Guardianships. For more information and to register, click here.

Save the Date! NARPA Announces Its 2024 Annual Rights Conference, September 4-7!

The National Association for Rights Protection and Advocacy (NARPA) has announced that its 2024 conference will be held September 4-7 in downtown Portland, Oregon, at the Embassy Suites by Hilton! Check NARPA’s website for the upcoming Request for Proposals, and for information to make early reservations. For more information, contact narpa4rights@gmail.com

OPPORTUNITIES

2023 National Survey on Health and Disability Seeks Participants

The University of Kansas Institute for Health and Disability Policy Studies — funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) of the Administration for Community Living — is seeking adults with disabilities to complete the 2023 National Survey on Health and Disability (NSHD). “The NSHD gives voice to the concerns of people with disabilities and documents their experiences with a variety of issues, including access to health care, insurance coverage, housing, transportation, Long COVID, employment, education, and more. The survey is open to U.S. adults 18 and older with any disability and/or health condition. Participants may complete the survey by phone. For more information, please call 855-556-6328 (Voice/TTY) or email healthsurvey@ku.edu.” To access the survey, click here.

RESOURCES

“Solving Homelessness Through Better Information”

At the link below are six reports about how to address homelessness in the Portland, Oregon, region. Although the reports, by Homeless Strategic Initiatives of Portland, are geared specifically for the Portland area, many of their lessons are broadly applicable. For the reports, click here. (Courtesy of Jacek Haciak)

Testimony on ECT by Acclaimed Author Linda Andre Is Available on YouTube

The 2000 presentation on ECT by shock survivor Linda Andre to a legislatively mandated committee chaired by the Vermont Department of Mental Health is now available on YouTube. Linda Andre wrote the acclaimed and authoritative book Doctors of Deception: What They Don't Want You to Know About Shock Treatment (2009), called “brilliant analysis” and “a masterpiece of scientific writing” by the International Journal of Risk and Safety in Medicine. For the 33-minute video, click here. (Courtesy of Laura Ziegler and Jim Gottstein)

SAMHSA TIP 59: “Improving Cultural Competence”

“The primary objective of this TIP [Treatment Improvement Protocol] is to assist readers in understanding the role of culture in the delivery of behavioral health services (both generally and with reference to specific cultural groups).” For the free, 341-page manual, click here.

“The State of Mental Health in America”

“Millions of adults in the U.S. experience serious thoughts of suicide, with the highest rate among multiracial individuals,” according to Mental Health America’s report on “The State of Mental Health in America.” Among other “2023 Key Findings” is that “[o]ver half (54.7%) of adults with a mental illness do not receive treatment, totaling over 28 million individuals,” and “[o]ver 1 in 10 youth in the U.S. are experiencing depression that is severely impairing their ability to function at school or work, at home, with family, or in their social life.” In addition, “59.8% of youth with major depression do not receive any mental health treatment.” To download a free copy of the report, click here.

World Mental Health Report: Transforming Mental Health for All

“The World Mental Health Report: Transforming Mental Health for All is designed to inspire and inform better mental health for everyone everywhere. Drawing on the latest evidence available, showcasing examples of good practice from around the world, and voicing people’s lived experience, it highlights why and where change is most needed and how it can best be achieved. It calls on all stakeholders to work together to deepen the value and commitment given to mental health, reshape the environments that influence mental health, and strengthen the systems that care for mental health.” For the free, 296-page report by the World Health Organization (WHO), click here.

The January 2024 Digest of Articles Offering Healthy Lifestyle Advice

For “4 Tips for Booze-Free Holiday Fun,” click here. For “How to put your envy to good use: Envious feelings can eat you up, but it doesn’t have to be that way. Here’s how to transform envy into a guide and motivator,” click here. For “36 foods that may help lower your cancer risk: Looking for a list of cancer-fighting foods to add to your grocery list? Our expert says you can reduce – but not eliminate – your cancer risk by focusing on plants and making healthy food choices,” click here. For “Protein and Older Adults,” click here. For “Napping: Benefits and Tips,” click here. “Memory loss: 7 tips to improve your memory,” click here. For “It’s Not Too Late to Get in Better Shape,” click here. For “Is Sparkling Water Bad for Your Teeth,” click here. For “U.S. Rate of Suicide by Firearm Reaches Record Level,” click here. For “Why short-term memory falters and how to improve yours: There are simple tricks — and some pretty complicated ones, as well — to hang onto that thought,” click here. For “Things You Should Never Say To Your Partner,” click here. For “How to Exercise With Your Kids (Work out as a Family!),” click here. For “How to Protect Your Brain Health During Menopause: A leading expert explains how declining hormones at menopause impact the brain, and what you can do to improve your brain health and lower the risk for Alzheimer’s disease,” click here. For “Are you a chronic people-pleaser? Here's how to be kinder to yourself,” click here. For “How a bench and a team of grandmothers can tackle depression,” click here. (For another story about Friendship Benches, from the July 2023 Key Update, click here.) For “Amid a mental health crisis, toy industry takes on a new role: building resilience,” click here. For “The Top 9 Health Benefits of Flaxseed: One serving of flaxseed provides a good amount of protein, fiber, and omega 3 fatty acids. It may help lower the risk of some cancers, help maintain a health weight, and reduce cholesterol and blood pressure,” click here. For “Our 7 Best Tips to Build an Exercise Habit,” click here

The January 2024 Digest of Articles about the Criminal Legal System, in which Many Individuals with Mental Health Conditions Are Incarcerated (and the Key Update continues after this Digest)

For “Jailed for Their Own Safety, 14 Mississippians Died Awaiting Mental Health Treatment: Local officials often say they have no choice but to jail people awaiting treatment for mental illness and substance abuse — even if they’re not charged with a crime. But some people have died in the system that's supposed to protect them,” click here. For “My Family Saw a Police Car Hit a Kid on Halloween. Then I Learned How NYPD Impunity Works. ProPublica Deputy Managing Editor Eric Umansky’s family saw an unmarked NYPD cruiser hit a Black teenager. He tried to find out how it happened, and instead found all of the ways the NYPD is shielded from accountability,” click here. For “How Police Have Undermined the Promise of Body Cameras,” click here. For “Winnable criminal justice reforms in 2024: We list some high-impact policy ideas for state legislators and advocates who are looking to reform their criminal justice system without making it bigger, [including] "Fund and implement alternative response systems for calls involving people who have disabilities or who are experiencing mental health crises,” click here. “Gideon at 60: Summarizing A Snapshot of State Public Defense Systems and Paths to System Reform,” click here. For the 87-page “Gideon at 60,” click here. For “Sentenced to Life for an Accident Miles Away: A draconian legal doctrine called felony murder has put thousands of Americans—disproportionately young and Black—in prison,” click here. For “The Felony Murder Reporting Project,” click here. For “Four Suicides in L.A. and the Mental Health Problem in Law Enforcement: Four suspected suicides in the Los Angeles Sheriff’s Department highlight a problem affecting agencies across the country,” click here. For “For Years, Prison Life Was Isolated From Tech. Now Tech Is Beginning to Define It. Introducing Time, Online, a new Future Tense package that explores how technology is changing prison as we know it,” click here. For “High-profile attacks on Derek Chauvin and Larry Nassar put spotlight on violence in federal prisons,” click here. For “Report: Bureau Of Prisons Not Getting Value From Accreditation Agency,” click here. For “Audit of the Federal Bureau of Prisons’ Contract Awarded to the American Correctional Association,” click here. For “Police Misconduct Costs Cities Millions Every Year. But That’s Where The Accountability Ends. If not for inconsistent and shoddy record-keeping, we might know if settlements make a difference in police misconduct” (2021), click here. For “DA charges six officers on scene of Christian Glass’ shooting death: Six officers were charged with failure to intervene as a former deputy shot and killed the 22-year-old inside his car in Silver Plume in June 2022,” click here. For “Massachusetts becomes fifth state in nation to make prison calls free,” click here. For “‘Prison Within a Prison’: New Mandate Offers Lifeline for Deaf People in Custody: The new rule, which goes in effect in January 2024, applies to phone companies serving prisons, jails and detention facilities nationwide,” click here. For “No, Criminal Justice Reform Isn’t Driving Rising Crime: States around the country are enacting common-sense, bipartisan reforms that will help break the cycle of poverty, crime and incarceration, making our system fairer and our communities safer,” click here. For “Police Commission rules LAPD shooting of mentally ill man was not justified,” click here. For “These Missouri inmates run their own corner of the prison. The warden is OK with that,” click here. For “I Did It Norway: Some American prisons are singing a European tune” (2017), click here. For “Secretive White House Surveillance Program Gives Cops Access to Trillions of US Phone Records: A WIRED analysis of leaked police documents verifies that a secretive government program is allowing federal, state, and local law enforcement to access phone records of Americans who are not suspected of a crime,” click here. For “I Spent 3 Years in Solitary Confinement. Why Isn’t Philanthropy Doing More to End this Torture? A movement to end solitary confinement is gaining momentum, but criminal justice donors feel their money is better spent elsewhere. That’s a mistake,” click here. For “Minnesota lawmakers changed felony murder laws, which could mean the release of prisoners: One-third of prisoners in for murder were imprisoned under the felony murder doctrine,” click here. For “Can It Be Murder If You Didn’t Kill Anyone? A distinctly American legal doctrine holds getaway drivers and lookouts as responsible for a death as the actual killer. California is having second thoughts (2018),” click here. For “‘We need more high-impact learning practices in prison,’” click here. For “How Medical Examiners Shield Violent Cops From Scrutiny: They wield the important power of determining a victim’s manner of death—but they’re susceptible to both political pressure and racial bias,” click here. For “High fees, long waits cast shadow over new criminal expungement laws: A clear record helps people seeking employment, housing and education,” click here. For “How Criminal Records Hold Back Millions of People: More than 70 million Americans with arrest records face barriers to find work or a decent place to live,” click here. For “Building a Better Beat: A New Approach to Public Safety Reporting,” click here. For “NYU Policing Project aims to change Minneapolis public safety and policing: A new contract with the NYU Policing Project could see a shift away from MPD and toward community-based groups for public safety,” click here. For “US prison deaths soared in 2020, new study finds: While the total deaths in U.S. prisons jumped 77% in 2020, not all death increases are directly attributed to the Covid-19 pandemic,” click here. For “Women coming home from prison get little help rebuilding,” click here. For “Why Black Women With Incarcerated Loved Ones Face Loneliness: Nearly 1 in 2 Black women have a loved one who is incarcerated. From the initial arrest to sentencing to release, navigating the changes can be isolating,” click here. For “Michigan Enacts Laws to Reform Its Juvenile Justice System: In the aftermath of revelations from ProPublica, a government task force pushed for changes. New laws aim to keep low-level offenses out of court, provide more resources to young offenders and eliminate fines,” click here.

FROM PREVIOUS EDITIONS OF THE KEY UPDATE BUT STILL FRESH!

CONFERENCES

SHARE! Peer Workforce Conference Issues Call for Proposals

The Fourth Annual SHARE! Peer Workforce (online) Conference, on January 31, 2024 (12 p.m.-8:30 p.m. ET), has issued a call for proposals (deadline: January 5, 2024). “Bridging Research and Practice, a virtual Peer Workforce conference, brings together researchers and peer workers to share best practices in peer services…Registration is $50 with scholarships available.” For more information, to submit a proposal and/or to register, click here. (Courtesy of Beckie Child)

An Infinite Mind Hybrid Conference Is February 16-18

An Infinite Mind will host its annual hybrid conference in Orlando, Florida–”or live in your own living room!”–February 16-18, 2024. The organizers write: “Healing Together is our one-of-a-kind annual conference for people living with dissociation and DID, their loved ones, and mental health professionals.” For information about the conference, click here.

Suicide Research Symposium Announces to Be Held April 17-19, 2024

The third annual free, virtual Suicide Research Symposium, cohosted with the American Foundation for Suicide Prevention, will be held April 17-19, 2024. For more information, click here. (Courtesy of Beckie Child)

Trauma Summit 2024 to be held in Belfast and Virtually!

On June 17-18, 2024, the Action Trauma Network–a not-for-profit organization that promotes awareness of psychological trauma and trauma recovery throughout the world–will present its Trauma Summit 2024, in Belfast and online! For more information and to register, click here

OPPORTUNITIES

SAMHSA Is Recruiting Peer Grant Reviewers. Do You Qualify?

“SAMHSA's three Centers are always looking for qualified grant peer reviewers who can evaluate applications for discretionary grants,” SAMHSA writes. “SAMHSA peer reviewers must have related program experience and education.” (SAMHSA's Office of Recovery has confirmed that peer reviewers do not need a graduate degree.) One incentive to apply is that “[r]eviewers will receive $140 per application reviewed and returned to SAMHSA in the timeline specified for each program.” For details about qualifications for peer reviewers and how to apply, click here.

TU Collaborative Seeks Input on Its Community Integration Calendars

The Temple University Collaborative on Community Inclusion writes: “Each year, we release a calendar resource designed to help individuals engage more in the community!” The TU Collaborative is considering adding a guided component and would like your input on how to structure it. For more information and to participate in an anonymous survey, click here.

“Are You a Leader with a CMHC? Partner with the Temple University Collaborative!”
“The Clinical Treatment Act is a new law to encourage participation of low-income and minoritized healthcare recipients in research as a matter of equity. The Temple University Collaborative on Community Inclusion seeks to partner with community mental health centers (CMHCs) across the U.S. to help get information about current and future research studies to service recipients in various programs. In return we are also available to support your organization with free trainings and other supports. Please contact Professor Bryan McCormick (bryan.mccormick@temple.edu) about this important partnership opportunity.” To read this announcement online, click here.

RESOURCES

“Mental Health Crisis Services: Promoting Person-Centred (sic) and Rights-based Approaches”

The World Health Organization (WHO), which published this 80-page “Technical Package” in 2021, writes: “By showcasing good practice mental health services from around the world this guidance supports countries to develop and reform community-based services and responses from a human rights perspective, promoting key rights such as equality, non-discrimination, legal capacity, informed consent and community inclusion. It offers a roadmap towards ending institutionalization and involuntary hospitalization and treatment and provides specific action steps for building mental health services that respect every person’s inherent dignity.” For the manual, click here

Frontiers in Psychology Adds to Its Archive of Articles About Open Dialogue

The latest addition to Frontiers in Psychology’s trove of articles about Open Dialogue is “Open Dialogue services around the world: a scoping survey exploring organizational characteristics in the implementation of the Open Dialogue approach in mental health services.” For the article, published online on November 10, 2023, click here. For all 21 articles, click here. (Courtesy of Ann Kasper)

Prison Activist Resource Center (PARC) Directory Offers Helpful Resources

“PARC mails a free national directory of resources to prisoners, their friends and family members. This year, we have expanded the content and the directory is now 28 pages listing nearly 300 organizations serving folks on the inside!! Thank you to all of our community partners for supporting the mailing of this directory.” For the PARC website, which includes a link to the Directory, click here.

OPPORTUNITIES TO PARTICIPATE IN RESEARCH

Researchers Seek to Better Understand the Day-to-Day Social Experiences of People Diagnosed with Serious Mental Health Conditions

The Temple University Collaborative on Community Inclusion seeks participants diagnosed with serious mental health conditions to participate in a paid research study of their “day-to-day experiences of social isolation and loneliness…so that we can develop better interventions for people in the future.” Eligible participants will complete an intake interview (for a $20 gift card) and an exit interview (for a $30 gift card). Four one-minute surveys will be sent via smart phone in the 14 days between interviews. Questions? Contact drrp@temple.edu or (215) 204-3230. 

TU Collaborative Seeks Youth with Serious Mental Health Conditions to Share Their Perceptions About Participating in Research

If you’re 18 to 30 years old, have been diagnosed with a serious mental health condition, and are willing to complete a one-time interview of 30 to 60 minutes via phone or Zoom on your feelings about participating in research, the Temple University Collaborative on Community Inclusion hopes to hear from you. Participants will receive a $20 e-gift card. Interested? Email elizabeth.thomas@temple.edu, text "INTERESTED" to (267) 845-5165, or call (215) 204-1699. 

Research Opportunity for Young Adult Peer Supporters

The Mental Health Services Research Lab of the Temple University College of Public Health invites youth peer support workers ages 18-30 who are currently working full-time or part-time in a peer support role to participate in a survey that aims to gather information about their workplace experiences. Questions? Contact Elizabeth Thomas at 215.204.1699 or elizabeth.thomas@temple.edu, or Haley Payne at haleypayne097@gmail.com. Those who complete the survey may be entered into a raffle to win cash prizes! For the Informed Consent Form and the survey, click here.

EPICC Works to Help Parents with Mental Health Conditions Connect with Their Kids

Engaging Parents and Increasing Connections with Children (EPICC) is a 10-week program created by the Temple University Collaborative on Community Inclusion that is focused on helping parents with serious mental health conditions connect with their children through meaningful activities. For details and to apply, click here.

Young Adults with Psychiatric Diagnoses Are Sought for Study on Community Participation

The Temple University Collaborative on Community Inclusion is recruiting young adults (ages 18-30) with a diagnosis of schizophrenia, bipolar disorder, or major depression to take part in ConnectionsRx, designed to support engagement in meaningful community activities. Participants will be enrolled in the peer-led study for six months, and receive support to help meet community participation goals. Interviews (approximately 60 minutes each) will take place on Zoom. Participants will receive a $30 Amazon or Visa gift card (to a maximum of $90) for each survey completed. For the website, click here. Questions? Write to ConnectionsRx@temple.edu. 

South Southwest MHTTC Launches Youth and Young Adult Peer Supporters Survey

“Are you a peer specialist who provides peer support to other people under the age of 30? We want to hear from you! Please fill out the survey to assist the South Southwest Mental Health Technology Transfer Center (South Southwest MHTTC) in learning more about youth peer support across the country! The intent is to be able to include these peer supporters in research, training, and technical assistance activities surrounding youth peer support. The form should take 5-10 minutes to fill out, and can be done from a phone or a computer browser. To take the survey, click here.” Questions? Write to southsouthwest@mhttcnetwork.org.

Are You Interested in Pursuing Graduate School and/or a Research Career? Read Below.

Stephania Hayes (UC Davis), Shannon Pagdon (Columbia/NYS Psychiatric Institute/University of Pittsburgh), and Nev Jones (University of Pittsburgh) write: “We are gathering information from people with lived experience in the Coordinated Specialty Care (CSC) or early psychosis space (including peer specialists, current/former CSC participants, and CSC youth coordinators) who are potentially interested in pursuing graduate school and/or a research career. All of us identify as having lived experience, work in CSC, and are invested in supporting the next generation of scholars who also have lived experience. We would like to create a discussion group and/or other supports for people interested in this career path. The link below leads to a very brief survey that will help us understand the level of interest in such supports, as well as areas of career interest. (Please note that this is not a research study.)” To participate in the anonymous survey, click here.

“Help Us Map the Landscape of Lived Experience and Family Involvement in 988 Policy and Related Crisis Response System Planning!”

“As 988 implementation rolls out alongside additional efforts to strengthen crisis response systems throughout the U.S., it's important to gauge the extent to which direct stakeholders (i.e., individuals who use or have used mental health crisis services and their families) have been involved in related policy, implementation and evaluation at the local, regional, state or federal levels. To map out involvement nationally, Mental Health America (lead: Kelly Davis), Nev Jones (University of Pittsburgh) and Keris Myrick (National Association of Peer Supporters) have developed a survey aimed at documenting the extent of stakeholder involvement, the forms this involvement has taken, and, where available, what concerns stakeholders have raised. Any individual with knowledge of lived experience and family involvement is eligible to participate; individuals completing the survey do not have to have lived experience themselves.” For more information and to access the survey, click here.

Survey Seeks Respondents Who Have Taken Mental Health Courses Involving Their Own Diagnoses

Have you taken a mental health course that covers a diagnosis you have? If so, you are invited to participate in a brief, anonymous, online survey--designed by a University of Pittsburgh MSW student--about what it's like for students with lived experience to study their own diagnoses in a classroom. The survey covers students' experiences of studying such subjects as "abnormal psychology," "psychopathology," and diagnosis and assessment when their own diagnoses are covered. "The goal of the project is to better understand what it feels like to take courses in which someone’s diagnosis is being taught/defined/discussed. There is currently no literature or reporting on the experiences of students in the above circumstances, or the associated impact." Interested? Please click here. Questions? Please email the project lead, Charlie Clement, at cjc204@pitt.edu

Peer Support in Higher Education Survey Seeks Respondents

“Peer support programs are growing on college campuses across the U.S. Mental Health America, Doors to Wellbeing, and the Temple University Collaborative on Community Inclusion want to better understand the availability of peer support in higher education as well as the experiences and needs of students accessing peer support programs…We hope to use this research to support the expansion of peer support in higher education, including developing a national database of peer support programs in higher education and documenting pressing issues in campus programs…You may also indicate if you are interested in having your school’s peer support program listed in a national database of peer support programs in higher education.” For more information and to complete the survey, click here

Supported Education Survey Needs Your Help

Do you operate a program that provides dedicated supported education services for individuals with psychiatric disabilities/mental health conditions? If so, you are invited to complete the survey at the link below. The primary goal of the survey is to help create a National Supported Education Database (NSEdD) that will be "a searchable listing of diverse supported education programs and services for individuals experiencing psychiatric disabilities and/or mental health challenges...across the US and its territories." The NSEdD project is sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and co-administered by the five SAMHSA-funded national consumer and consumer-supporter technical assistance centers, in collaboration with research partners Drs. Nev Jones (University of Pittsburgh) and Mark Salzer (Temple University). For a link to the survey, which includes a definition of supported education, click here. For a flyer with information about the survey, click here.  

National Survey on Student Rights, Discrimination, and Accommodations in Higher Education Seeks Respondents  

"Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psych disability rights in higher ed? Mental Health America (lead: Kelly Davis) and collaborators Dr. Nev Jones (University of Pittsburgh), Stefanie Kaufman-Mthimkhulu (Project LETS) and Brit Vanneman Esq. (Bazelon Center for Mental Health Law) have developed "a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the U.S. Data will be used to inform national advocacy efforts and future projects, and in reports, presentations and publications." For eligibility and to access the survey, click here.

If You've Had, or Been Labeled with, "Negative Symptoms" in the Context of Psychosis...

"If you have experienced or been labeled with 'negative symptoms' in the context of psychosis, please consider contributing an anonymous account of your views and experiences," Dr. Nev Jones writes. "Currently, there is nowhere one can go to find lived experience perspectives/accounts on this topic—even though 'negative symptoms' regularly feature in research and clinical trials. Help us change this!" This survey is a companion to Psychosis Outside the Box; for that survey, click here. For more information and/or to share your story about "negative symptoms," click here.

“Are You Between the Ages of 21 and 60 and Drink Alcohol?”

"Researchers at the National Institutes of Health (NIH) are seeking adults--[both smokers and non-smokers]--to study whether a gene and smoking may affect drinking alcohol. Volunteers should be healthy and drug-free, and not seeking treatment for alcohol-related problems. Research participation includes three outpatient visits at the NIH Clinical Center in Bethesda, MD; alcohol consumption; brain scans (MRI), blood draws, and filling out questionnaires. There is no cost to participate and compensation may be provided." For more information, click here. (Courtesy of Fran Hazam)

TU Collaborative Seeks Participants for Its Parenting Through Leisure Project; See Also the TU Collaborative's Parenting Resources, Including Information on Custody Issues

The Temple University Collaborative on Community Inclusion is seeking parents with lived experience of a mental health condition to participate in a paid research study. The TU Collaborative writes: "Our program, Parenting Through Leisure, focuses on helping parents with a serious mental illness participate in leisure activities with their child. We are looking for individuals who are 18 and older; are an adult parent with a diagnosis of schizophrenia-spectrum disorder, bipolar disorder, or depression; have a child who is 7 to 15 years old and is interested in participating in family leisure with you; have legal visitation rights, joint custody or full custody of the child, with at least weekly contact; and have a desire to engage in more leisure activities with their child." For details about the study and the remuneration as well as other benefits to eligible participants, and a link to sign up, click here. Questions? Please contact TUCollab@temple.edu. And for the TU Collaborative's Parenting web page--which includes links to many resources for parents with lived experience, including information about custody laws and a model family reunification statute--click here.

Survey Seeks Respondents Who Are in Administrative/ Leadership Positions in the Mental Health Field

If you are in an administrative/leadership position in the mental health arena, “the Group for the Advancement of Psychiatry (GAP) Committee on Psychiatric Administration and Leadership invites you to participate in the International Survey on Administrative Psychiatry. The survey has two purposes: 1. To identify the concerns and needs of mental health professionals/psychiatrists in administrative and leadership positions. 2. To determine training needs in administrative psychiatry. We ask you to complete this brief, [15- to 20-minute] questionnaire to help us in developing recommendations for action. We also want to let you know that, if you fill out this questionnaire, you permit the committee to use your anonymous data for scientific work.” Peer providers are included. For the survey, click here. (Courtesy of Oryx Cohen)

International Survey on Antipsychotic Medication Withdrawal Seeks Respondents

“Have you taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications? And did you ever stop taking antipsychotics, or try to stop taking them? Are you 18 years or older? If yes, you can take this survey about antipsychotic withdrawal and attempts to withdraw, including if you stopped taking them completely or if you tried to come off and still take them. The survey aims to improve mental health services by better understanding medication withdrawal. Lead researcher is Will Hall, a therapist and Ph.D. student who has himself taken antipsychotics. Service users/survivors/consumers from around the world also gave input. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal. Questions? Please contact will.hall@maastrichtuniversity.nl.”  For more information or to take the survey, click on www.antipsychoticwithdrawalsurvey.com

RESOURCES

WHO and UN Publish Landmark Report on “Mental Health, Human Rights and Legislation”

The World Health Organization (WHO) and the United Nations’ Office of the High Commissioner for Human Rights (OHCHR) have jointly issued an important report on “Mental Health, Human Rights and Legislation: Guidance and Practice.” To view a video about the launch, click here. To download the 208-page publication, click here. ACTION ALERT: Share it with elected officials and mental health policymakers! (Courtesy of Janet Paleo) (The October 9, 2023, launch of the joint publication was announced in the September 2023 edition of the Key Update.)

“The Lived Experience of Depression: a Bottom-up Review Co-written by Experts by Experience and Academics”

"This journey in the lived experience of depression can also help us to understand the nature of our own emotions and feelings, what is to believe in something, what is to hope, and what is to be a living human being." For the article, click here. (Courtesy of Ann Kasper)

Movement History of the Consumer/ Client/ Survivor/ Expatient/ Ex-Inmate/ User Community 

This 647-page comprehensive history and timeline, mostly compiled by award-winning mental health advocate Pat Risser (b. 1952, d. 2016), begins: “The history of the Consumer/ Client/ Survivor/ Ex-patient/ Ex-Inmate/ User Community is deeply enmeshed in and with other civil and human rights movements. To understand the depth of this intertwining, it is necessary to cover the history of slavery, women, children, people with disabilities, education, labor and other factors that play a role in creating who we are today.” To download the document, click here. (Courtesy of Judene Shelley)

“Report on Improving Mental Health Outcomes” Is Published

The Report’s Executive Summary begins: “The mental health system’s standard treatments are colossally counterproductive and harmful, often forced on unwilling patients. The overreliance on psychiatric drugs is reducing the recovery rate of people diagnosed with serious mental illness from a possible 80% to 5% and reducing their life spans by 20 years or so…” To download the free, 55-page report—by James B. (Jim) Gottstein, Esq.; Peter C. Gøtzsche, MD; David Cohen, PhD; Chuck Ruby, PhD; and Faith Myers—click here. (Note: The Report is intended to be used by advocates and is a modification of an earlier "White Paper," without the Alaska-specific information that it included. The "White Paper" was first included in the Key Update in April 2023, and in every subsequent edition in the “…But Still Fresh!” Department.)

MHA Offers "Evidence for Peer Support"

For Mental Health America's nine-page fact sheet offering evidence of the benefits of peer support, click here.

Wellness Activity Manual Helps People Learn Healthy New Behaviors & Habits

The free, 64-page Wellness Activity Manual: A Guide for Group Leaders “focuses on helping people with mental health conditions learn new behaviors and habits to improve their personal wellness. Each lesson has been constructed as a group activity that maximizes learning through building positive interpersonal relationships and actively involving participants. The Wellness Group meets weekly for one hour. The manual contains nine lessons focused on physical, emotional, and intellectual wellness. Each lesson can be used as a stand-alone group or combined into a multi-session series.” For more information and to download the free manual, click here.

“A Manual for Coping with Extraordinary and Remarkable Experiences”

“Extraordinary and remarkable experiences should not interfere with your mood and daily functioning. This manual will help you to keep your extraordinary experiences manageable in daily life, although your extraordinary experiences may be annoying and intruding at times. You can work through this manual with your therapist…Solutions will be sought for your problems. The described method consists of a combination of cognitive behavioral therapy and an educational course.” For the free, 34-page manual, copyrighted in 2013 by Mark van der Gaag, Dorien Nieman, and David van den Berg, click here. (Courtesy of Yulia Mikhailova) Note: This manual has not been reviewed, so no judgment about its value should be inferred from its inclusion in this e-newsletter.

Lived Experience Leadership Offers Numerous Research Studies Focused on Peer Supporters

Lived Experience Leadership features the findings of 12 years of research studies focused on [the peer support] workforce in a range of settings, to foster a better understanding of and respect for Lived Experience as a distinct discipline and build clarity on what makes this work unique and valuable. Importantly, this body of research was led by Lived Experience researchers.” For the website, click here.

International Peer Respite/Soteria Summit Offers Abundant Related Resources

For numerous resources about peer respites, Soteria, and related movements, click here.

“SAMHSA TIP 64: “Incorporating Peer Support into Substance Use Disorder Treatment Services”

“This TIP [Treatment Improvement Protocol’ supports learning about the key aspects, functions, and uses of Peer Support Services (PSS) in recovery from problematic substance use, which will help providers, supervisors, and administrators in SUD treatmen tprograms getter understand and respond to these changes.” To download the free, 301-page document, click here. For 39 additional manuals, click here.

Resources for Supervisors of Peer Workers Offered by BRSS TACS and Pat Deegan 

BRSS TACS writes: “This group of resources helps supervisors understand how to supervise peer workers in behavioral health services.” For details, click here. And the Northwest MHTTC offers a recorded webinar on ”How supervision can help peer specialists remain peer when working on clinical teams,” presented by Pat Deegan. For details, click here.

“You Matter: Stories from People with Lived Experience” 

The Temple University Collaborative on Community Inclusion writes: “In this documentation project, we interviewed individuals with [serious mental health conditions] to hear their stories of times they felt like they did or did not matter and learn about what mattering means to them.” For the free 15-page document, click here.

“Podcast: The Rise in Forced Treatment and Abusive Guardianships”

“[M]illions of Americans are subjected to psychiatric detention or forced treatment every year. Often well meaning family members are trying to ‘help,’ but end up traumatizing and permanently damaging their loved ones. Join us as investigative journalist Rob Wipond explains how most states have broadened their criteria for psychiatrically detaining someone far beyond ‘imminent harm’ and that as a practical matter, this could happen to almost anyone.” For the podcast, click here.

“Alternatives to Coercion in Mental Health Settings: A Literature Review”

This 214-page report was commissioned by the United Nations Office at Geneva to inform the report of the United Nations Special Rapporteur on the Rights of Persons with Disabilities. It was published in 2018 by the Melbourne Social Equity Institute. To download the free report, click here.

“Training of Lived Experience Workforces: A Rapid Review of Content and Outcomes”

“Recently, the lived and living experience (LLE) workforce in mental health and alcohol and other drugs (AOD) sectors has expanded,” researchers at La Trobe University and the Self Help Addiction Resource Center in Australia write. “Despite widespread benefit of this inclusion, some LLE practitioners have encountered personal and professional challenges in their workforce roles…[W]e present recommendations for improving training processes for this workforce.” For the article, published in Administration and Policy in Mental Health and Mental Health Services (Springer), click here.

“WHO’s New Series to Enhance the Meaningful Engagement of People with Lived Experience”

The World Health Organization’s “new ‘Intention to Action’ series is tackling both an evidence gap and a lack of standardized approaches on how to include people with lived experience into decision- and policy-making…The first publication—‘People power: Perspectives from individuals with lived experience of non-communicable diseases, mental health conditions and neurological conditions’—includes six detailed case studies from 12 individuals with lived experience of diverse health conditions.” For more information and a link to download the 80-page publication, click here. (Courtesy of Matthew Jackman)

“What Is Mental Illness?”

“This conversation between Justin Garson (philosopher), Nev Jones (community mental health researcher), and Marco Ramos (psychiatrist/historian)”--sponsored by The Philosopher–“will aim to offer a sense of the scope of what is at stake in our understanding of mental illness, considering the place of biology, society, histories of oppression, evolution, and lived experience in such an understanding.” For the video, click here. (Courtesy of Kevin Fitts)  

“Optimizing Recovery Funding, Volumes 1 & 2”

“In 2021, the Substance Abuse and Mental Health Services Administration (SAMHSA) provided the Peer Recovery Center of Excellence (PR CoE) with supplemental funding for a special project to identify and recommend best practices and strategies to optimize funding for high-quality and effective recovery support services. The result was 'Volume 1: Barriers to Acquiring Funding for Organizations in the Ecosystem of Recovery Volume' and 'Volume 2: Strategies for State Funding of Recovery Support Services.'” To download the full, 130-page report, click here. For more information about the reports, including a brief video, click here.

TU Collaborative Wants to Hear Your Story!

“We are working on a project to better understand social connections among adults with significant mental health challenges,” the Temple University Collaborative on Community Inclusion writes. “We are seeking your stories on your social connections generally” and “what those connections mean to you.” The TU Collaborative will compile these stories based on a series of brief surveys. For details and to share your story, click here.

Common Threads: Stories of Survival & Recovery from Mental Illness

Common Threads: Stories of Survival & Recovery from Mental Illness, a 108-page compendium, includes “tales of survival and recovery” by a number of Floridians. To quote from the Introduction, “Many of the people in these stories have lived significant portions of their lives in psychiatric institutions, and only through their strengths have they found their way back to the community…In these tales, we hear about the importance of education and peer support…” To download the free document, click here.

“Crisis Now” Offers a “Roadmap to Safe, Effective Crisis Care”

The goal of Crisis Now: Transforming Crisis Services—led by the National Association of State Mental Health Program Directors (NASMHPD) and developed with the National Action Alliance for Suicide Prevention, the National Suicide Prevention Lifeline, the National Council for Mental Wellbeing, and RI International—is “to provide all communities a roadmap to safe, effective crisis care that diverts people in distress from the emergency department and jail by developing a continuum of crisis care services that match people’s clinical needs.” Among the resources offered on the website are SAMHSA’s 80-page “National Guidelines for Behavioral Health Crisis Care Best Practice Toolkit” (2020), an “Overview of Crisis Funding Sources Available to States and Localities” (last updated March 2, 2022), and assessment tools, such as “How Does Your Crisis System Rate?” The Crisis Now partners write: “Are you interested in adding your organization to the list supporting Crisis Now, or do you have questions? Reach out to us at info@crisisnow.com. For the website, click here.

“What Is the Meaning of Life?” This Free Online Collection Offers Answers

Excellence Reporter offers more than “1,200 articles-interviews on ‘What Is the Meaning of Life?’ written by renowned spiritual leaders, mindfulness experts, great thinkers and authors, elders, artists, musicians, CEOs, etc.” The contributors include such renowned figures as Bertrand Russell; Carl Jung; the Dalai Lama; Eleanor Roosevelt; Epicurus; Erich Fromm; Kahlil Gibran; Buckminster Fuller; Robert Louis Stevenson; and Ron Bassman, executive director of MindFreedom International. To browse the free compendium, click here.

The UIC Center’s Solutions Suite for Health & Recovery Offers Free Tools

"The UIC Center offers tools, curricula, and implementation manuals for free use in community-based programs, peer-run programs, or one's own life. You can introduce the entire complement of products to foster improved health, wellness, and mental health recovery. Or, you can choose the ones that will work best for your program or your life. The Suite was developed in collaboration with Collaborative Support Programs of New Jersey. The UIC Center is funded by NIDILRR (National Institute on Disability, Independent Living, and Rehabilitation Research). For the UIC Solutions Suite for Health & Recovery, click here. (Courtesy of Peggy Swarbrick via Jacek Haciak)

U.S. Surgeon General Creates Community Toolkit for Addressing Health Misinformation

"The U.S. Surgeon General’s Community Toolkit for Addressing Health Misinformation, developed in collaboration with the HHS Office of Evaluation Sciences (OES), provides specific guidance and resources for health care providers, educators, librarians, faith leaders, and trusted community members to understand, identify, and stop the spread of health misinformation in their communities." For information about the toolkit (a 22-page overview of health misinformation, and resources to stop it), and links to a “Talk to Your Community About Health Misinformation” Infographic, a “Health Misinformation Checklist” Infographic, and the Surgeon General's press release, click here.

“Psychiatrist with Philosophical Interests” Leads “Conversations in Critical Psychiatry,” a Psychiatric Times Series

Awais Aftab, who describes himself as a "psychiatrist with philosophical interests" in his Twitter bio, leads "Conversations in Critical Psychiatry," which, he says, "explores critical and philosophical perspectives in psychiatry and engages with prominent commentators within and outside the profession who have made meaningful criticisms of the status quo." Among those interviewed are Jim Gottstein, author of The Zyprexa Papers, on “The Fight for Pharma Accountability and Psychiatric Rights”; Allen Frances, M.D., author of Saving Normal; Sandra Steingard, M.D., and G. Scott Waterman, M.D., on "Integrating Academic Inquiry and Reformist Activism in Psychiatry"; Susannah Cahalan, author of Brain on Fire: My Month of Madness, on "50 Shades of Misdiagnosis"; Kathy Flaherty, J.D., executive director of the Connecticut Legal Rights Project, Inc., on "Reconsidering Care and Coercion in Psychiatry"; Nev Jones, Ph.D., on "Phenomenology, Power, Polarization, and the Discourse on Psychosis"; Dainius Puras, M.D., on "Global Psychiatry's Crisis of Values"; and many others. For the archived interviews, click here.

U.S. DOL Releases Guidance on FMLA Leave and Mental Health

The U.S. Department of Labor’s newly issued Fact Sheet #280 about the Family and Medical Leave Act (FMLA) explains when eligible employees may take FMLA leave to address mental health conditions, and new Frequently Asked Questions (FAQs) offers additional information. (Although the FMLA covers public and private employers nationwide, only those private employers who have 50 or more employees for at least 20 workweeks in a year are required to provide their eligible employees with FMLA leave.) For details, click here.

Hearing Voices Network Is Now Hosting Online Groups

“There are now ONLINE opportunities to connect, share experiences, and find mutual support,” the Hearing Voices Network (HVN) writes. “These groups are accessible via web-based platforms and by phone…Online groups are specifically for those with personal lived experience with hearing voices, seeing visions, and/or negotiating alternative realities. They are voice-hearer facilitated. With further questions and for details on how to access the group[s], please email info@hearingvoicesusa.org.” To read this announcement online and for more information, click here.

Virtual Group Works to Advance Peer Research Capacity, Leadership, and Involvement

Nev Jones, PhD—a strong advocate for building research capacity, leadership, and involvement among peers, survivors, and service users—leads a virtual group dedicated to this effort. Dr. Jones—assistant professor, School of Social Work, University of Pittsburgh—was part of the team that developed “User/Survivor Leadership & Capacity Building in Research: White Paper on Promoting Engagement Practices in Peer Evaluation/Research (PEPPER),” published by the Lived Experience Research Network. For the white paper, click here. Anyone interested in joining the virtual group can email Nev at nev.inbox@gmail.com.

Mad In America Invites You to Submit Your Personal Story (Within Certain Guidelines)

Mad In America writes: “A ‘personal story’ is defined as your story of being in relationship to psychiatry and/or the mental health system, whatever that means to you. It might involve your opinions and analysis of what happened to you, as well. It can be about a specific event, or about your overall journey, provided it fits the length requirements (1,500 to 3,000 words) and has a narrative arc. The piece should be about your personal experiences, not psychiatry or the mental health system in general. Submissions should fall under the theme of rethinking psychiatry and the mental health system, and should be original works not previously published elsewhere. For examples of the types of stories we publish, view our personal stories archive here.” For more information and/or to submit a personal story, click here.

“Where DNA and Medications Meet”

Not all drugs are effective for all people; therapeutic response rates for many drugs are only 50%-75%. “OneOme, co-founded by [the] Mayo Clinic, provides evidence-based pharmacogenomic solutions that help improve patient outcomes and reduce costs through more personalized medication decisions.” OneOme’s RightMed Test is “a doctor-ordered pharmacogenomic (PGx) test that analyzes your DNA and provides your doctors with genetic information to help them determine how you may respond to certain medications. The results may help your doctors reduce medication trial and error, minimize risk of side effects, save you time and money, and make more informed prescribing decisions. Because your DNA doesn’t change over time, your doctors can use your test results to make more personalized medication decisions for you over the course of your lifetime.” For more information, click here. (Courtesy of Robin Osborne)

Disclaimer: The Clearinghouse does not necessarily endorse the opinions and opportunities included in the Key Update.

About the Key Update

The National Mental Health Consumers’ Self-Help Clearinghouse is affiliated with the Temple University Collaborative on Community Inclusion. The Key Update is the free monthly e-newsletter of the National Mental Health Consumers’ Self-Help Clearinghouse. Volume 20, No. 7, January 2024. For content, reproduction or publication information, please contact Susan Rogers at selfhelpclearinghouse@gmail.com. Follow Susan on Twitter at @SusanRogersMH