A website where Kathleen Nadeau, Ph.D. and Patricia Quinn, M.D. (Edge Foundation board member) provides answers to questions about ADHD for families and individuals at every stage of life from preschool through retirement years.
Attention Deficit Disorders Resources
Attention Deficit Disorders Resources, a nonprofit organization that publishes a great deal of information, including events, publications, and articles for parents, teachers, adults, and professionals.
Coping: A Survival Guide for People with Asperger Syndrome
Autism Speaks
Research and advocacy organization, begun by family members, offers many resources, including tool kits, referrals, support for families, and more.
Online Resources to Help Professionals Help Clients Empower Themselves
Compiled by Susan Rogers, Director, National Mental Health Consumers' Self-Help Clearinghouse
Published in the Carlat Psychiatry Report, May 2012, Volume 1, Issue 3, Recovery and Empowerment
A list of resources to help professionals help individuals with lived experience -- who may also be known as clients, peers, consumers or a variety of other terms -- empower themselves, or to help these individuals directly.
Download PDF
The Center for Consumer Information and Insurance Oversight (CCIIO)
"The Affordable Care Act provides consumers with significant new protections, including the ability to appeal decisions by plans to deny coverage of needed services and select an available primary care provider of their choosing.
"As part of the law, CCIIO is helping consumers appeal health plan decisions, understand the Consumer Assistance Program, and more easily understand and evaluate their health insurance choices."
http://www.cms.gov/CCIIO/Programs-and-Initiatives/Consumer-Support-and-Information/index.html
Healthcare.gov
Offical website for the Health Insurance Marketplace. Includes help enrolling in coverage.
PsychCentral.com Forums
Peer Support Among Individuals with Severe Mental Illness: A Review of the Evidence
Davidson, L., Chinman, M., Kloos, B., Weingarten, R., Stayner, D. and Tebes, J. K. (1999), Peer Support Among Individuals With Severe Mental Illness: A Review of the Evidence. Clinical Psychology: Science and Practice, 6: 165–187.
A Review of the Literature on Peer Support in Mental Health Services
Repper J, Carter T. Journal Ment Health. 2011 Aug;20(4):392-411.
Consumer Providers of Care for Adult Clients of Statutory Mental Health Services (Review)
Pitt V, Lowe D, Hill S, Prictor M, Hetrick SE, Ryan R, Berends L. Consumer‐providers of care for adult clients of statutory mental health services. Cochrane Database of Systematic Reviews 2013, Issue 3. Art. No.: CD004807. DOI: 10.1002/14651858.CD004807.pub2.
Are All Consumer-Operated Programs Empowering Self-Help Agencies?
Steven P. Segal MSW ACSW PhD., Carol Silverman PhD & Tanya L. Temkin MCP MPH (2013) Social Work in Mental Health, 11:1, 1 - 15.
SmokeFree.gov
Smokefree.gov is intended to help you or someone you care about quit smoking. This website provides:
- Information about a wide range of topics related to smoking and quitting
- LiveHelp, the National Cancer Institute's instant messaging service
- National Cancer Institute's telephone quitline, 1-877-44U-QUIT
- Local and state telephone quitlines, 1-800-QUIT-NOW
- SmokefreeTXT, the National Cancer Institute's text messaging service
- Smokefree apps, quizzes, and materials to download
- Publications to download, print, or order
Effects of Participation in Consumer-Operated Service Programs on Both Personal and Organizationally Mediated Empowerment: Results of Multisite Study
E. Sally Rogers, ScD; Gregory B. Teague, PhD; Carolyn Lichenstein, PhD; Jean Campbell, PhD; Asya Lyass, MA; Ren Chen, MS; Steven Banks, PhD,; E. Sally Rogers, ScD; Gregory B. Teague, PhD; Carolyn Lichenstein, PhD; Jean Campbell, PhD; Asya Lyass, MA; Ren Chen, MS; Steven Banks, PhD. Journal of Rehabiliation Research and Development. Volume 44(6), 2007, 785-800.
Consumer Operated Service Programs: Monetary and Donated Costs and Cost Effectiveness
Yates, Brian T.; Mannix, Danyelle; Freed, Michael C.; Campbell, Jean; Johnsen, Matthew; Jones, Kristine; Blyler, Crystal R. Psychiatric Rehabilitation Journal, Vol 35(2), 2011, 91-99.
Office of Minority Health - Mental Health
This page includes articles, data, statistics and further resources.
http://minorityhealth.hhs.gov/templates/browse.aspx?lvl=2&lvlID=26
Federal Multi-Site Study Finds Consumer-Operated Service Programs Are Evidence-Based Practices
After a decade of research on eight consumer-operated service programs located across the United States (1998-2008), investigators of a large SAMHSA-funded multi-site research initiative at the Missouri Institute of Mental Health (MIMH) Coordinating Center report that participation in consumer-operated service programs (COSPs) by adults with serious mental illness had positive effects on their psychological well-being.
Peer Program Evaluation - Preliminary Results
Health Insurance Exchange 101: The Affordable Care Act Explained
Watch the video here.
Making Your Voice Heard: Communicating Your Message Through the Media
Acquire the ABCs of combating discrimination and prejudice via the media! Learn how to do damage control; to write an effective press release, op ed, and letter to the editor; to organize media events; what you should – and should NEVER – do in an interview; and more! Audience participation is welcome.
Susan Rogers' presentation at Alternatives 2013